A. Jacoby

Jennie Popay, Fiona Lobban, Andy Gibson, 2013, Health expectations : an international journal of public participation in health care and health policy.

Tools for assessing quality of life in epilepsy patients

Steven Schachter, S. Schachter, G. Baker, 2013, Expert review of neurotherapeutics.

Frequency and reasons for outcome reporting bias in clinical trials: interviews with trialists

D G Altman, D. Altman, C. Gamble, 2011, BMJ : British Medical Journal.

Outcome reporting bias in trials (ORBIT)

C. Gamble, A. Jacoby, P. Williamson, 2009 .

Quality of Life of People with Epilepsy: A European Study

Deborah Buck, G. Baker, A. Jacoby, 1997, Epilepsia.

Immediate versus deferred antiepileptic drug treatment for early epilepsy and single seizures: a randomised controlled trial

A. Marson, D. Chadwick, C. Gamble, 2005, The Lancet.

Quality‐of‐life outcomes of initiating treatment with standard and newer antiepileptic drugs in adults with new‐onset epilepsy: Findings from the SANAD trial

Catrin Tudur Smith, Maria Sudell, Anthony G Marson, 2015, Epilepsia.

Randomised study of antiepileptic drug withdrawal in patients in remission

D. Chadwick, B. Eaton, A. Jacoby, 1991, The Lancet.

Felt versus enacted stigma: a concept revisited. Evidence from a study of people with epilepsy in remission.

A. Jacoby, A Jacoby, 1994, Social science & medicine.

Socioeconomic differences in service use, payment and receipt of illness-related benefits in the last year of life: findings from the British Household Panel Survey

M. Whitehead, A. Jacoby, B. Hanratty, 2008, Palliative medicine.

Deciding to join a perinatal randomised controlled trial: experiences and views of pregnant women enroled in the Magpie Trial.

A. Jacoby, D. Elbourne, R. Smyth, 2012, Midwifery.

Women's experiences of participating in the Magpie Trial: a postal survey in the United Kingdom.

A. Jacoby, D. Elbourne, L. Duley, 2009, Birth.

Out-Group Threat or Inter-Group Contact Theory? Out-Group Attitudes and Interaction in Times of Diversity Growth

A. Jacoby, 2018 .

Public Knowledge, Private Grief: A Study of Public Attitudes to Epilepsy in the United Kingdom and Implications for Stigma

G. Baker, C. Gamble, A. Jacoby, 2004, Epilepsia.

Additional educational needs in children born to mothers with epilepsy

D. Chadwick, A. Jacoby, D. Smith, 2001, Journal of neurology, neurosurgery, and psychiatry.

The associations of psychopathology in epilepsy: a community study

G. Baker, D. Chadwick, A. Jacoby, 1996, Epilepsy Research.

Perceptions of equipoise are crucial to trial participation: a qualitative study of men in the ProtecT study.

F. Hamdy, D. Neal, J. Donovan, 2003, Controlled clinical trials.

Women's preferences for and satisfaction with current procedures in childbirth--findings from a national study.

A. Jacoby, 1987, Midwifery.

Pharmacogenetic testing prior to carbamazepine treatment of epilepsy: patients' and physicians' preferences for testing and service delivery.

M. Pirmohamed, A. Marson, G. Baker, 2015, British journal of clinical pharmacology.

The quality of life of older people with epilepsy: findings from a UK community study

G. Baker, D. Chadwick, A. Jacoby, 2001, Seizure.

WITHDRAWN: Preconception counselling for women with epilepsy to reduce adverse pregnancy outcome.

G. Baker, A. Jacoby, R. Smyth, 2014, The Cochrane database of systematic reviews.

Mothers' views about information and advice in pregnancy and childbirth: findings from a national study.

A. Jacoby, 1988, Midwifery.

Liverpool Seizure Severity Scale revisited

David F. Smith, G. Baker, D. Chadwick, 1998, Seizure.

Psychosocial outcomes of antiepileptic drug discontinuation. The Medical Research Council Antiepileptic Drug Withdrawal Study Group.

D. Chadwick, A. Jacoby, A. Johnson, 1992, Epilepsia.

Impact of epilepsy on employment status: Findings from a UK studly of people with well-controlled epilepsy

A. Jacoby, 1995, Epilepsy Research.

Development of a new seizure severity questionnaire: initial reliability and validity testing

J. Cramer, G. Baker, A. Jacoby, 2002, Epilepsy Research.

Wednesday July 5, 2006 13:30–15:00 Poster Session 3 Epilepsy Syndromes

E. Ben-Menachem, L. Gjerstad, M. Brodie, 2006 .

8.21 – Epilepsy

G. Baker, A. Jacoby, 1998 .

Knowledge gaps and uncertainties about epilepsy: Findings from an ethnographic study in China

G. Baker, A. Jacoby, D. Snape, 2009, Epilepsy & Behavior.

Retirement age caregivers and deprivation of area of residence in England and Wales

M. Whitehead, A. Jacoby, B. Hanratty, 2007, European journal of ageing.

Preconception counselling for women with epilepsy to reduce adverse pregnancy outcome.

G. Baker, A. Jacoby, R. Smyth, 2008, Cochrane Database of Systematic Reviews.

Global Assessments in Epilepsy

D. Chadwick, A. Jacoby, 1993 .

The SF-36 as a health status measure for epilepsy: A psychometric assessment

G. Baker, A. Jacoby, D. Buck, 1999, Quality of Life Research.

Social stigma for adults and children with epilepsy

A. Jacoby, J. Austin, 2007, Epilepsia.

Stigma of people with epilepsy in China: Views of health professionals, teachers, employers, and community leaders

Xiaoying Zheng, G. Baker, A. Jacoby, 2011, Epilepsy & Behavior.

Seizure frequency, patient-perceived seizure severity and the psychosocial consequences of intractable epilepsy

David F. Smith, G. Baker, D. Chadwick, 1991, Epilepsy Research.

Cross-cultural differences in health-related quality of life of people with epilepsy: Findings from a European study

G. Baker, A. Jacoby, D. Buck, 1999, Quality of Life Research.

Treatment of multiple sclerosis with interferon β: an appraisal of cost-effectiveness and quality of life

D. Bates, A. Jacoby, P. McNamee, 2000, Journal of neurology, neurosurgery, and psychiatry.

Lay perceptions of the desired role and type of user involvement in clinical governance

A. Jacoby, A. Litva, K. Canvin, 2009, Health expectations : an international journal of public participation in health care and health policy.

South Asians and epilepsy: Exploring health experiences, needs and beliefs of communities in the north of England

A. Jacoby, Hanif Ismail, N. Small, 2005, Seizure.

A qualitative study to explore influences on general practitioners' decisions to prescribe new drugs.

M. Eccles, A. Jacoby, Monica Smith, 2003, The British journal of general practice : the journal of the Royal College of General Practitioners.

Treatment of multiple sclerosis with interferon â : an appraisal of coste V ectiveness and quality of life

A. Jacoby, P. McNamee, D. Parkin, 2000 .

Psychosocial problems in epilepsy.

D. Chadwick, A. Jacoby, 1992, BMJ.

Introduction: Tracing the recent history of the ‘falling sickness’

G. Baker, A. Jacoby, 2010, Seizure.

A CNS integrated health care delivery system model.

A. Jacoby, C. McGuire, L. Howard-Glenn, 1995, Nursing management.

The development and validation of the Epilepsy and Learning Disabilities Quality of Life (ELDQOL) scale

G. Baker, A. Jacoby, R. Appleton, 2007, Epilepsy & Behavior.

Meanings of epilepsy in its sociocultural context and implications for stigma: Findings from ethnographic studies in local communities in China and Vietnam

G. Baker, A. Jacoby, D. Snape, 2008, Epilepsy & Behavior.

Stigma, epilepsy, and quality of life

A. Jacoby, 2002, Epilepsy & Behavior.

Epilepsy and social identity: the stigma of a chronic neurological disorder

G. Baker, A. Jacoby, D. Snape, 2005, The Lancet Neurology.

Ethical boundary-work in the infertility clinic.

A. Jacoby, L. Frith, M. Gabbay, 2011, Sociology of health & illness.

Childhood chronic-kidney-disease: a longitudinal-qualitative study of families learning to share management early in the trajectory.

A. Jacoby, C. Clarke, V. Swallow, 2008, Patient education and counseling.

Patient‐Focused Drug Development Methods for Benefit–Risk Assessments: A Case Study Using a Discrete Choice Experiment for Antiepileptic Drugs

A. Marson, G. Baker, A. Jacoby, 2018, Clinical pharmacology and therapeutics.

The effectiveness of preconception counseling to reduce adverse pregnancy outcome in women with epilepsy: What’s the evidence?

G. Baker, A. Jacoby, R. Smyth, 2009, Epilepsy & Behavior.

Self‐reported and parent‐reported quality of life of children and adolescents with new‐onset epilepsy

A. Marson, G. Baker, A. Jacoby, 2011, Epilepsia.

Quality-of-life trajectories in epilepsy: A review of the literature

G. Baker, A. Jacoby, 2008, Epilepsy & Behavior.

Mothers' evolving relationships with doctors and nurses during the chronic childhood illness trajectory.

A. Jacoby, V. Swallow, 2001, Journal of advanced nursing.

Mothers' coping in chronic childhood illness: the effect of presymptomatic diagnosis of vesicoureteric reflux.

A. Jacoby, V. Swallow, 2001, Journal of advanced nursing.

Quality of Life of People with Epilepsy in Iran, the Gulf, and Near East

G. Baker, J. Doughty, A. Jacoby, 2005, Epilepsia.

Patients' Experiences of Injury as a Result of Epilepsy

David F. Smith, G. Baker, D. Chadwick, 1997, Epilepsia.

Development of a Novel Scale to Assess Life Fulfilment as Part of the Further Refinement of a Quality‐of‐Life Model for Epilepsy

G. Baker, D. Chadwick, A. Jacoby, 1994, Epilepsia.

S. Moshé, A. Jacoby, G. Birbeck, 2022, Epilepsia.

Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes toward persons living with epilepsy—Report from the International League Against Epilepsy Task Force on Stigma in Epilepsy

S. Moshé, A. Jacoby, G. Birbeck, 2022, Epilepsia.

Assessing Quality of Life in Patients with Epilepsy

A. Jacoby, 1996, PharmacoEconomics.

Epilepsy and stigma: An update and critical review

A. Jacoby, 2008, Current neurology and neuroscience reports.

What Does Recent Literature Tell Us About Epilepsy Stigma ?

A. Jacoby, 2008 .

Learning disability and epilepsy. 2, A review of available outcome measures and position statement on development priorities

G. Baker, A. Jacoby, C. Espie, 1997, Seizure.

Lennox-Gastaut Syndrome (LGS): Development of conceptual models of health-related quality of life (HRQL) for caregivers and children

J. Cramer, G. Baker, A. Jacoby, 2010, Seizure.

Breaking bad news sensitively: what is important to patients in their last year of life?

M. Whitehead, A. Jacoby, B. Hanratty, 2011, BMJ Supportive & Palliative Care.

Development, validation, and evaluation of the PBC-40, a disease specific health related quality of life measure for primary biliary cirrhosis

A. Jacoby, J. Newton, D. Buck, 2005, Gut.

Factors predictive of resilience and vulnerability in new‐onset epilepsy

M. Whitehead, A. Marson, G. Baker, 2011, Epilepsia.

Employers' Attitudes to Employment of People with Epilepsy: Still the Same Old Story?

G. Baker, A. Jacoby, J. Gorry, 2005, Epilepsia.

The Stigma of Epilepsy: A European Perspective

G. Baker, A. Jacoby, J. Brooks, 2000, Epilepsia.

Uptake and Costs of Care for Epilepsy: Findings from a U.K. Regional Study

G. Baker, D. Chadwick, A. Jacoby, 1998, Epilepsia.

The Clinical Course of Epilepsy and Its Psychosocial Correlates: Findings from a U.K. Community Study

G. Baker, D. Chadwick, A. Jacoby, 1996, Epilepsia.

Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy.

A. Jacoby, 1992, Social science & medicine.

Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients.

E McColl, L Thomas, J. Bond, 2001, Health technology assessment.

Epilepsy stigma: What do we know and where next?

A. Jacoby, P. Fernandes, D. Snape, 2011, Epilepsy & Behavior.

Deviance and medicalization: From badness to sickness: By P. Conrad and J. W. Schneider. Temple University Press, Philadelphia, PA, 1992. 352 pp., $49.95 (hard) $18.95 (soft)

A. Jacoby, 1995 .

Quality improvement report

Jenny Donovan, Nicola Mills, F. Hamdy, 2002, BMJ : British Medical Journal.

Duty, desire or indifference? A qualitative study of patient decisions about recruitment to an epilepsy treatment trial

A. Jacoby, K. Canvin, 2006, Trials.

Patient‐Based Assessments of Quality of Life in Newly Diagnosed Epilepsy Patients: Validation of the NEWQOL

G. Baker, A. Jacoby, L. Abetz, 2000, Epilepsia.

Advances in methods for assessing the impact of epilepsy and antiepileptic drug therapy on patients' health-related quality of life

J. Ware, M. Kosinski, S. D. Keller, 1995, Quality of Life Research.

The contribution of the measurement of seizure severity to quality of life research

G. Baker, D. Chadwick, A. Jacoby, 1995, Quality of Life Research.

Assessing quality of life in primary biliary cirrhosis.

A. Jacoby, D. Buck, David E. J. Jones, 2004, Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association.

The initial development of a health-related quality of life model as an outcome measure in epilepsy

David F. Smith, G. Baker, D. Chadwick, 1993, Epilepsy Research.

The reliability and validity of the Revised Liverpool Impact of Epilepsy Scale for use in people with new-onset epilepsy

G. Baker, A. Jacoby, Joanne Crossley, 2013, Epilepsy & Behavior.

A cost-utility analysis of interferon beta for multiple sclerosis.

A. Jacoby, D. Parkin, S. Thomas, 1998, Health technology assessment.

Self-reported anxiety and sleep problems in people with epilepsy and their association with quality of life

G. Baker, A. Jacoby, S. Lane, 2015, Epilepsy & Behavior.

Predictors of positive and negative attitudes toward their condition in Turkish individuals with epilepsy

A. Jacoby, C. Özkara, N. Aydemir, 2012, Seizure.

Development and Validation of NEWSQOL®, the Newcastle Stroke-Specific Quality of Life Measure

A. Jacoby, G. Ford, D. Buck, 2003, Cerebrovascular Diseases.

Does the concept of resilience contribute to understanding good quality of life in the context of epilepsy?

M. Whitehead, A. Marson, G. Baker, 2016, Epilepsy & Behavior.

WITHDRAWN: Self-management education for adults with epilepsy.

G. Baker, A. Jacoby, R. Baker, 2010, The Cochrane database of systematic reviews.

WITHDRAWN: Self-management education for children with epilepsy.

G. Baker, A. Jacoby, R. Baker, 2010, The Cochrane database of systematic reviews.

Self-management education for adults with epilepsy.

G. Baker, A. Jacoby, R. Baker, 2010, The Cochrane database of systematic reviews.

Self-management education for children with epilepsy.

G. Baker, A. Jacoby, R. Baker, 2007, The Cochrane database of systematic reviews.

Understanding routine antiepileptic drug decisions: A qualitative analysis of patients’ accounts of hospital consultations

A. Jacoby, T. Marson, D. Mccorry, 2009, Epilepsy & Behavior.

Stigma and epilepsy: The Chinese perspective

Josemir W Sander, A. Jacoby, Wenzhi Wang, 2010, Epilepsy & Behavior.

Knowledge of and attitudes expressed toward epilepsy by carers of people with epilepsy: A UK perspective

G. Baker, A. Jacoby, L. McEwan, 2007, Epilepsy & Behavior.

Factors associated with perceived stigma of epilepsy in Croatia: A study using the revised Epilepsy Stigma Scale

A. Jacoby, I. Bielen, S. Hajnsek, 2014, Seizure.

The stigma of people with epilepsy is demonstrated at the internalized, interpersonal and institutional levels in a specific sociocultural context: Findings from an ethnographic study in rural China

G. Baker, A. Jacoby, D. Snape, 2012, Epilepsy & Behavior.

Multiple impacts of epilepsy and contributing factors: Findings from an ethnographic study in Vietnam

G. Baker, A. Jacoby, D. Snape, 2009, Epilepsy & Behavior.

Cross‐cultural Differences in Levels of Knowledge about Epilepsy

G. Baker, J. Doughty, A. Jacoby, 2003, Epilepsia.

Patients' Understanding of and Adjustment to Epilepsy: Interim Findings from a European Survey

G. Baker, J. Doughty, A. Jacoby, 1999, Epilepsia.

The psychosocial impact of epilepsy in adults

Bruce Hermann, A. Jacoby, B. Hermann, 2009, Epilepsy & Behavior.

Improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study

T. Peters, F. Hamdy, D. Neal, 2002 .

The natural history of conducting and reporting clinical trials: interviews with trialists

D. Altman, C. Gamble, A. Jacoby, 2015, Trials.

Measuring the impact of epilepsy: the development of a novel scale

David Chadwick, Gus Baker, David F. Smith, 1993, Epilepsy Research.

The Contribution of Sleep and Anxiety Disorders to Quality of Life in People with Epilepsy

G. Baker, A. Jacoby, D. Snape, 2015 .

Labor market participation following onset of seizures and early epilepsy: Findings from a UK cohort

M. Whitehead, A. Marson, A. Jacoby, 2009, Epilepsia.

Quality of life outcomes of immediate or delayed treatment of early epilepsy and single seizures

A. Marson, D. Chadwick, J. Doughty, 2007, Neurology.

Is the rural idyll bad for your health? Stigma and exclusion in the English countryside.

A. Jacoby, F. Watkins, 2007, Health & place.

Exploring loss and replacement of loss for understanding the impacts of epilepsy onset: A qualitative investigation

M. Whitehead, A. Marson, G. Baker, 2014, Epilepsy & Behavior.

Factors influencing compliance with antiepileptic drug regimes

G. Baker, D. Chadwick, A. Jacoby, 1997, Seizure.

Relationship of clinical and quality of life trajectories following the onset of seizures: Findings from the UK MESS Study

A. Marson, G. Baker, A. Jacoby, 2011, Epilepsia.

Adverse antiepileptic drug effects in new-onset seizures

W. Hauser, D. Thurman, A. Marson, 2011, Neurology.

Associates of stigma in an incident epilepsy population from northern Manhattan, New York City

W. Hauser, D. Thurman, D. Hesdorffer, 2011, Epilepsy & Behavior.

Feasibility of using postal questionnaires to examine carer satisfaction with palliative care: a methodological assessment

A. Jacoby, M. Eccles, J. Lecouturier, 1999, Palliative medicine.

Chapter 41 – Health Outcomes and Quality of Life

A. Jacoby, D. Buck, 2005 .

Psychosocial Outcomes of Antiepileptic Drug Discontinuation

D. Chadwick, A. Jacoby, A. Johnson, 1992 .

The impact of counselling with a practical statistical model on patients' decision-making about treatment for epilepsy: Findings from a pilot study

G. Baker, D. Chadwick, A. Jacoby, 1993, Epilepsy Research.

Compliance and satisfaction with switching from an immediate-release to sustained-release formulation of valproate in people with epilepsy

G. Baker, J. Doughty, A. Jacoby, 2003, Epilepsy & Behavior.

A general practice records audit of the process of care for people with epilepsy.

G. Baker, D. Chadwick, A. Jacoby, 1996, The British journal of general practice : the journal of the Royal College of General Practitioners.

Evaluation of measures used to assess quality of life after stroke.

A. Jacoby, G. Ford, D. Buck, 2000, Stroke.

The contribution of seizures to psychosocial ill-health

A. Jacoby, A. Thapar, 2009, Epilepsy & Behavior.

G. Baker, A. Jacoby, 2002, Epilepsy & Behavior.

Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: a modified Delphi study

J. Popay, A. Jacoby, N. Britten, 2014, BMJ Open.

Use of a visual analogue scale in a daily patient diary: modelling cross-sectional time-series data on health-related quality of life.

Nigel Rice, David Parkin, J. Doughty, 2004, Social science & medicine.

Treatment of multiple sclerosis with interferon β: an appraisal of cost-effectiveness and quality of life

D. Bates, A. Jacoby, D. Parkin, 2000 .

The role of the primary care practitioner

G. Baker, A. Jacoby, 2013 .

Thirty years of psychosocial research in epilepsy: Personal reflections of a social scientist

A. Jacoby, 2015, Epilepsy & Behavior.

Valuations of epilepsy-specific health states: a comparison of patients with epilepsy and the general population

G. Baker, A. Jacoby, J. Brazier, 2014, Epilepsy & Behavior.

Levels of epilepsy stigma in an incident population and associated factors

G. Baker, A. Jacoby, Joanne Taylor, 2011, Epilepsy & Behavior.

What really matters? A mixed methods study of treatment preferences and priorities among people with epilepsy in the UK

A. Marson, G. Baker, A. Jacoby, 2019, Epilepsy & Behavior.

Developing a health state classification system from NEWQOL for epilepsy using classical psychometric techniques and Rasch analysis: a technical report

A. Jacoby, J. Brazier, D. Hughes, 2010 .

Psychosocial functioning in people with epilepsy in remission and the outcomes of antiepileptic drug withdrawal.

A. Jacoby, 1995 .

Patients' Experiences of and Satisfaction with Care for Their Epilepsy

G. Baker, D. Chadwick, A. Jacoby, 1996, Epilepsia.

Treatment of multiple sclerosis with interferon (cid:226) : an appraisal of cost-e V ectiveness and quality of life

A. Jacoby, D. Parkin, P. Miller, 2000 .

Quality improvement report: Improving design and conduct of randomised trials by embedding them in qualitative research: ProtecT (prostate testing for cancer and treatment) study. Commentary: presenting unbiased information to patients can be difficult.

F. Hamdy, A. Jacoby, N. Mills, 2002, BMJ.

Epilepsy stigma and quality of life

A. Jacoby, 2011 .

Labels and lingo in epilepsy: A response to Dr Hatcher

A. Jacoby, 2014, Seizure.

Epilepsy and insurance in the UK: an exploratory survey of the experiences of people with epilepsy

A. Jacoby, K. Jacoby, 2004, Epilepsy & Behavior.

Quality improvement report

T. Peters, F. Hamdy, D. Neal, 2002, BMJ : British Medical Journal.

Adverse antiepileptic drug effects in new-onset seizures

D. Thurman, D. Hesdorffer, A. Marson, 2011, Neurology.

Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients.

J. Bond, A. Jacoby, A. Garratt, 2001, Health technology assessment.

Levels of epilepsy stigma in an incident population and associated factors

G. Baker, A. Jacoby, Joanne Taylor, 2011, Epilepsy & Behavior.

The conduct and design of questionnaire surveys in healthcare research

J. Bond, L. Thomas, A. Jacoby, 2001 .

Development of a health-related quality of life model as an outcome measure in epilepsy

A. Jacoby, 1993 .

Quality of Life in Epilepsy: Beyond Seizure Counts in Assessment and Treatment

G. Baker, A. Jacoby, 2013 .

Personality profiles of patients with pseudoseizures

J. Sackellares, G. Baker, D. Chadwick, 1997, Seizure.