C. Jenkinson

C. Jenkinson, D. Morley, 2016, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

Patients' health related quality of life before and after aesthetic surgery.

R. Fitzpatrick, C. Jenkinson, A. Klassen, 1996, British journal of plastic surgery.

A generic health status instrument in the assessment of rheumatoid arthritis.

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1992, British journal of rheumatology.

A STRUCTURED REVIEW OF PATIENT-REPORTED OUTCOME MEASURES (PROMs) FOR STROKE

R. Fitzpatrick, C. Jenkinson, E. Gibbons, 2009 .

Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study.

Richard Gray, Crispin Jenkinson, Keith Wheatley, 2015, Parkinsonism & related disorders.

The development and validation of the Parkinson’s disease questionnaire and related measures

R. Fitzpatrick, C. Jenkinson, 2011 .

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures

H. Doll, R. Fitzpatrick, C. Jenkinson, 2014, Health and Quality of Life Outcomes.

The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey

H. Doll, R. Fitzpatrick, C. Jenkinson, 2014, BMJ Open.

Patient reports of the outcomes of treatment: a structured review of approaches

R. Fitzpatrick, C. Jenkinson, H. Lloyd, 2014, Health and Quality of Life Outcomes.

Transition questions to assess outcomes in rheumatoid arthritis.

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1993, British journal of rheumatology.

Evidence for the validity and reliability of the ALS assessment questionnaire: the ALSAQ-40.

M Swash, C Brennan, M. Swash, 1999, Amyotrophic lateral sclerosis and other motor neuron disorders : official publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases.

[Validation of the French language version of the Parkinson's Disease Questionnaire - PDQ-39].

A. Destée, B. Dubois, P. Auquier, 2002, Revue neurologique.

Self-reported Functioning and Well-being in Patients with Parkinson's Disease: Comparison of the Short-form 36 and the Parkinson's Disease Questionnaire

R. Fitzpatrick, C. Jenkinson, V. Peto, 1996 .

Editorial: Quality of life: Recent advances in theory and methods: Quality of life measurement in health settings

H. McGee, C. Jenkinson, 1997 .

Burden of cancer trial participation: A qualitative sub-study of the INTERIM feasibility RCT

R. Fitzpatrick, C. Jenkinson, R. Matin, 2021, Chronic illness.

Patients experience of fatigue in advanced heart failure

C. Jenkinson, M. Boulton, T. Floegel, 2019, Contemporary nurse.

Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire

C. Jenkinson, M. Peters, H. Crocker, 2018, Patient related outcome measures.

Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time

M. Swash, R. Fitzpatrick, C. Jenkinson, 2003 .

Development and validation of a short measure of health status for individuals with amyotrophic lateral sclerosis/ motor neurone disease: the ALSAQ-40

M. Swash, R. Fitzpatrick, C. Jenkinson, 1999, Journal of Neurology.

Carers’ experiences of assistive technology use in dementia care: a cross sectional survey

C. Jenkinson, M. Peters, V. Sriram, 2020, BMC Geriatrics.

Withdrawing gluten‐free food from prescriptions in England: a mixed‐methods study to examine the impact of policy changes on quality of life

C. Jenkinson, M. Violato, M. Peters, 2019, Journal of human nutrition and dietetics : the official journal of the British Dietetic Association.

Measuring mental health in amyotrophic lateral sclerosis (ALS): A comparison of the SF-36 Mental Health Index with the Psychological General Well-Being Index

M. Swash, R. Fitzpatrick, C. Jenkinson, 2001, Amyotrophic lateral sclerosis and other motor neuron disorders : official publication of the World Federation of Neurology, Research Group on Motor Neuron Diseases.

Factors relating to patients' reports about hospital care for coronary heart disease in England

A. Coulter, C. Jenkinson, T. Chandola, 2003, Journal of health services research & policy.

Work package 1c: refining and validation of the e-Health Impact Questionnaire

John Powell, Elizabeth Sillence, Louise Locock, 2016 .

Healthcare experiences and quality of life of adults with coeliac disease: a cross-sectional study.

C. Jenkinson, M. Peters, H. Crocker, 2020, Journal of human nutrition and dietetics : the official journal of the British Dietetic Association.

Furthering our understanding of the needs of adolescent children of parents with Parkinson’s disease

C. Jenkinson, D. Morley, 2013, Adolescent health, medicine and therapeutics.

R. Fitzpatrick, C. Jenkinson, J. Norquist, 2004, Quality of Life Research.

Computerized adaptive testing for the Oxford Hip, Knee, Shoulder, and Elbow scores

C. Jenkinson, J. Dawson, C. Harrison, 2022, Bone & joint open.

Health Status Measurement in Neurological Disorders

R. Fitzpatrick, C. Jenkinson, D. Jenkinson, 2000 .

Adhering to best practice guidelines in outcomes measurement

C. Jenkinson, D. Morley, 2018, Neuroscience & Biobehavioral Reviews.

Quality-of-life outcomes after cosmetic surgery.

R. Fitzpatrick, C. Jenkinson, A. Klassen, 1999, Plastic and reconstructive surgery.

Outcome measure for parkinsons disease.

C. Jenkinson, V. Peto, F. Fitzpatrick, 1995, The British journal of general practice : the journal of the Royal College of General Practitioners.

Adjuvant radiotherapy in patients with high‐risk cutaneous Squamous Cell Carcinoma After surgery (SCC‐AFTER): patient and carer views regarding a proposed clinical trial

R. Fitzpatrick, C. Jenkinson, C. Proby, 2022, Clinical and experimental dermatology.

Tacit models of disability underlying health status instruments.

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1993, Social Science & Medicine (1967).

Comparison oftwoapproaches tomeasuring change inhealth statusinrheumatoid arthritis: theHealth Assessment Questionnaire (HAQ) andmodified HAQ

C. Jenkinson, A. Mowat, 1992 .

Making senseofambiguity: evaluation ofinternal reliability andface validity oftheSF36 questionnaire inwomen presenting with menorrhagia

C. Jenkinson, 1996 .

The social dimension of health status measures in rheumatoid arthritis.

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1991, International disability studies.

Why are we weighting? A critical examination of the use of item weights in a health status measure.

C. Jenkinson, 1991, Social science & medicine.

Developing approaches to the collection and use of evidence of patient experience below the level of national surveys

R. Fitzpatrick, C. Jenkinson, K. Flott, 2016 .

THE SCIENTIFIC ASSESSMENT OF SUBJECTIVE OUTCOME AFTER LAPAROSCOPIC UROLOGICAL PROCEDURES

C. Jenkinson, M. Sullivan, S. Keoghane, 2007, BJU international.

The Manchester–Oxford Foot Questionnaire (MOXFQ)

H. Doll, C. Jenkinson, J. Dawson, 2013, Bone & joint research.

Responsiveness of the Manchester-Oxford Foot Questionnaire (MOXFQ) compared with AOFAS, SF-36 and EQ-5D assessments following foot or ankle surgery.

H. Doll, C. Jenkinson, J. Dawson, 2012, The Journal of bone and joint surgery. British volume.

Short form 36 (SF36) health survey questionnaire: normative data for adults of working age.

A Coulter, L Wright, A. Coulter, 1993, BMJ.

The new UK National Statistics Socio-Economic Classification (NS-SEC); investigating social class differences in self-reported health status.

T Chandola, C. Jenkinson, T. Chandola, 2000, Journal of public health medicine.

Assessment of the SF-36 version 2 in the United Kingdom.

C. Jenkinson, S. Stewart-Brown, C Jenkinson, 1999, Journal of epidemiology and community health.

An assessment of the construct validity of the SF-12 summary scores across ethnic groups.

A. Coulter, C. Jenkinson, T. Chandola, 2001, Journal of public health medicine.

The use of the SF-36 questionnaire in adult survivors of childhood cancer: evaluation of data quality, score reliability, and scaling assumptions

M. Zeegers, C. Jenkinson, E. Lancashire, 2006, Health and quality of life outcomes.

Management of respiration in MND/ALS patients: An evidence based review

David Oliver, Crispin Jenkinson, C. Jenkinson, 2006, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

Quality of life in patients undergoing inguinal hernia repair.

A. Coulter, C. Jenkinson, K. Lawrence, 1997, Annals of the Royal College of Surgeons of England.

Young People’s Response to Parental Neurological Disorder: A Structured Review

C. Jenkinson, D. Morley, L. Hartman, 2020, Adolescent health, medicine and therapeutics.

Predictors of activity and participation across neurodegenerative conditions: a comparison of people with motor neurone disease, multiple sclerosis and Parkinson’s disease

R. Fitzpatrick, C. Jenkinson, D. Morley, 2018, BMC Neurology.

Validation of the Oxford Participation and Activities Questionnaire

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2016, Patient Related Outcome Measures.

Review Paper: Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions

C. Jenkinson, C. Heffernan, 2005, Chronic illness.

Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q)

C. Jenkinson, D. Morley, L. Kelly, 2020, JMIR diabetes.

Web-Based and mHealth Technologies to Support Self-Management in People Living With Type 2 Diabetes: Validation of the Diabetes Self-Management and Technology Questionnaire (DSMT-Q)

Crispin Jenkinson, Laura Kelly, D Morley, 2020, JMIR diabetes.

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005–2006 National Family Health Survey

C. Jenkinson, R. Gray, C. Carson, 2018, Social Psychiatry and Psychiatric Epidemiology.

Development and Testing of the UK SF-12

Crispin Jenkinson, Richard Layte, C. Jenkinson, 1997 .

Measuring the effects of online health information for patients: Item generation for an e-health impact questionnaire

Sue Ziebland, Laura Kelly, Crispin Jenkinson, 2013, Patient education and counseling.

Importance of sensitivity to change as a criterion for selecting health status measures.

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1992, Quality in health care : QHC.

Should breast reduction surgery be rationed? A comparison of the health status of patients before and after treatment: postal questionnaire survey

R. Fitzpatrick, C. Jenkinson, A. Klassen, 1996, BMJ.

The development and validation of a patient-reported questionnaire to assess outcomes of elbow surgery.

A. Carr, H. Doll, R. Fitzpatrick, 2008, The Journal of bone and joint surgery. British volume.

ANKLE The Manchester – Oxford Foot Questionnaire ( MOXFQ ) DEVELOPMENT AND VALIDATION OF A SUMMARY INDEX SCORE

H. Doll, C. Jenkinson, J. Dawson, 2013 .

Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments.

Angela Coulter, Crispin Jenkinson, A. Coulter, 2003, Journal of public health medicine.

The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries.

Angela Coulter, Crispin Jenkinson, A. Coulter, 2002, International journal for quality in health care : journal of the International Society for Quality in Health Care.

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy.

C. Jenkinson, A. Thomas, B. Lambert, 2004, Developmental medicine and child neurology.

Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy

C. Jenkinson, A. Thomas, B. Lambert, 2004 .

The influence of psychosocial factors on survival after myocardial infarction.

C. Jenkinson, J. Mitchell, R. Madeley, 1993, Public health.

Mapping from the Parkinson’s Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L

Emma McIntosh, Crispin Jenkinson, Alastair Gray, 2015, Medical decision making : an international journal of the Society for Medical Decision Making.

Evidence for the sensitivity of the SF-36 health status measure to inequalities in health: results from the Oxford healthy lifestyles survey.

A Coulter, L Wright, A. Coulter, 1996, Journal of epidemiology and community health.

The SF-36 Physical and Mental Health Summary Measures: An Example of How to Interpret Scores

C. Jenkinson, C Jenkinson, 1998, Journal of health services research & policy.

Can pain and function be distinguished in the Oxford Hip Score in a meaningful way?

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2014, Bone & joint research.

Health‐status of adult survivors of childhood cancer: A large‐scale population‐based study from the British childhood cancer survivor study

M. Zeegers, C. Jenkinson, E. Lancashire, 2007, International journal of cancer.

The London handicap scale: a re-evaluation of its validity using standard scoring and simple summation

D. Wade, C. Jenkinson, J. Mant, 2000, Journal of neurology, neurosurgery, and psychiatry.

Evaluating the psychometric properties of an e-based version of the 39-item Parkinson’s Disease Questionnaire

C. Jenkinson, J. Dawson, D. Morley, 2015, Health and Quality of Life Outcomes.

Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)

C. Jenkinson, M. Peters, H. Crocker, 2018, Alimentary Pharmacology and Therapeutics.

The level of haemoglobin in anaemic cancer patients correlates positively with quality of life

D. Cruickshank, H. Doll, C. Jenkinson, 2002, British Journal of Cancer.

Comparison of two approaches to measuring change in health status in rheumatoid arthritis: the Health Assessment Questionnaire (HAQ) and modified HAQ.

S Ziebland, S. Ziebland, R. Fitzpatrick, 1992, Annals of the rheumatic diseases.

The SF 36 health survey questionnaire. ...if used within its limits.

A. Coulter, C. Jenkinson, L. Wright, 1993, BMJ.

The conceptual validity and appropriateness of using health-related quality of life measures with minority ethnic groups.

C. Jenkinson, S. Staniszewska, L. Ahmed, 1999, Ethnicity & health.

Normative data for the SF-12 health survey in the Republic of Ireland with comparisons to England

C. Jenkinson, R. Layte, 2001 .

How should we evaluate health status? A comparison of three methods in patients presenting with obstructive sleep apnoea

J. Stradling, C. Jenkinson, J. Stradling, 1998, Quality of Life Research.

Evaluation of index and profile measures of health status in a randomized controlled trial. Comparison of the Medical Outcomes Study 36-Item Short Form Health Survey, EuroQol, and disease specific measures.

H. Doll, C. Jenkinson, R. Layte, 1997, Medical care.

Comparison of three measures of quality of life outcome in the evaluation of continuous positive airways pressure therapy for sleep apnoea

J. Stradling, C. Jenkinson, S. Petersen, 1997, Journal of sleep research.

Criterion validity and reliability of the SF-36 in a population sample

A. Coulter, C. Jenkinson, C. Jenkinson, 1994, Quality of Life Research.

Comparing Alternative Rasch-Based Methods vs Raw Scores in Measuring Change in Health

Ray Fitzpatrick, Jill Dawson, Crispin Jenkinson, 2004, Medical care.

Validation of the Oxford Participation & Activities Questionnaire (Ox-PAQ)

C. Jenkinson, J. Dawson, D. Morley, 2016 .

The Oxford Participation and Activities Questionnaire: study protocol

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2013, Patient related outcome measures.

MEASURING HEALTH STATUS AND QUALITY OF LIFE

C. Jenkinson, 1999 .

Transition Questions or Items

C. Jenkinson, H. Lloyd, D. Morley, 2014 .

Rasch measurement in the assessment of amytrophic lateral sclerosis patients.

R. Fitzpatrick, C. Jenkinson, J. Norquist, 2003, Journal of applied measurement.

Outcome measurement in neurodegenerative disease: attributes, applications & interpretation.

C. Jenkinson, D. Morley, L. Kelly, 2015, Neurodegenerative disease management.

The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease

E. Diane Playford, Ray Fitzpatrick, Crispin Jenkinson, 2012, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

Measurement properties of multidimensional patient‐reported outcome measures in neurodisability: a systematic review of evaluation studies

A. Tennant, C. Jenkinson, S. Logan, 2015, Developmental medicine and child neurology.

Quality of Life Measurement in Neurodegenerative and Related Conditions: Aspects of methodology relevant to patient-reported outcome measures (PROMs)

C. Jenkinson, J. Dawson, C. Morris, 2011 .

Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery.

H. Doll, C. Jenkinson, J. Dawson, 2014, Journal of clinical epidemiology.

Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus.

H. Doll, C. Jenkinson, J. Dawson, 2007, Osteoarthritis and cartilage.

Distribution-based criteria for change in health-related quality of life in Parkinson's disease.

R. Fitzpatrick, C. Jenkinson, J. Norquist, 2004, Journal of clinical epidemiology.

Health selection in the Whitehall II study, UK.

C. Jenkinson, T. Chandola, M. Marmot, 2003, Social science & medicine.

Death by Questionnaire: Quality of Life Measurement Could Seriously Damage your Health

Crispin Jenkinson, C. Jenkinson, 1999, Journal of health services research & policy.

Measuring quality of life in cosmetic surgery patients with a condition-specific instrument: the Derriford Scale.

R. Fitzpatrick, C. Jenkinson, A. Klassen, 1998, British journal of plastic surgery.

Living with breathlessness in chronic heart failure: a qualitative study

C. Jenkinson, M. Boulton, H. Walthall, 2017, Journal of clinical nursing.

A structured review of patient reported outcome measures used for cosmetic surgical procedures

R. Fitzpatrick, C. Jenkinson, D. Morley, 2013 .

Comparison of UK and US methods for weighting and scoring the SF-36 summary measures.

C. Jenkinson, C Jenkinson, 1999, Journal of public health medicine.

The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer).

Ray Fitzpatrick, Laura Kelly, Jill Dawson, 2012, Parkinsonism & related disorders.

Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare – a qualitative study

C. Jenkinson, G. Wilcock, Z. Walker, 2013, International Psychogeriatrics.

Quality of life and patient satisfaction following treatment for menorrhagia.

A. Coulter, C. Jenkinson, V. Peto, 1994, Family practice.

The Importance of Recognising Depression in Adolescents Affected by Parental Illness

C. Jenkinson, D. Morley, 2012 .

R. Fitzpatrick, C. Jenkinson, V. Peto, 1997, Movement disorders : official journal of the Movement Disorder Society.

Making sense of ambiguity: evaluation in internal reliability and face validity of the SF 36 questionnaire in women presenting with menorrhagia.

A. Coulter, C. Jenkinson, V. Peto, 1996, Quality in health care : QHC.

Health-protective behaviours and risk of fall-related hip fractures: a population-based case–control study

H. Doll, R. Fitzpatrick, C. Jenkinson, 2006 .

Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire.

Sue Ziebland, Laura Kelly, Crispin Jenkinson, 2015, Patient education and counseling.

Comparison of the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey

M. Swash, R. Fitzpatrick, C. Jenkinson, 2007, Clinical rehabilitation.

Health Care Professionals' Perceptions of the Arthroplasty Patient Experience: Planning Phase in the Development of a Patient‐Reported Outcome Measure

C. Jenkinson, D. Murray, H. Pandit, 2018, Journal of perianesthesia nursing : official journal of the American Society of PeriAnesthesia Nurses.

Development of a patient-reported outcome measure of activity and participation (the OKS-APQ) to supplement the Oxford knee score.

C. Jenkinson, J. Dawson, D. Beard, 2014, The bone & joint journal.

The Nottingham Health Profile: an analysis of its sensitivity in differentiating illness groups.

M. Argyle, R. Fitzpatrick, C. Jenkinson, 1988, Social science & medicine.

The MOXFQ patient-reported questionnaire: assessment of data quality, reliability and validity in relation to foot and ankle surgery.

H. Doll, C. Jenkinson, J. Dawson, 2011, Foot.

A patient-based questionnaire to assess outcomes of foot surgery: Validation in the context of surgery for hallux valgus

H. Doll, C. Jenkinson, J. Dawson, 2006, Quality of Life Research.

Development and validation of a short measure of health status for individuals with acute myocardial infarction: The myocardial infarction dimensional assessment scale (MIDAS)

C. Jenkinson, T. Chandola, D. Thompson, 2002, Quality of Life Research.

Social Class Differences in Morbidity Using the New U.K. National Statistics Socio‐Economic Classification: Do Class Differences in Employment Relations Explain Class Differences in Health?

C. Jenkinson, T. Chandola, 1999, Annals of the New York Academy of Sciences.

Factors associated with satisfaction with bunion surgery in women: A prospective study

H. Doll, C. Jenkinson, J. Dawson, 2007 .

Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study.

H. Doll, C. Jenkinson, J. Dawson, 2012, Foot.

Unilateral Versus Bilateral Same-Day Surgery Outcomes for Hallux Valgus : An Eight Year Prospective Cohort Study

H. Doll, C. Jenkinson, J. Dawson, 2012 .

R. Fitzpatrick, C. Jenkinson, V. Peto, 1999, PharmacoEconomics.

Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain.

R. Fitzpatrick, C. Jenkinson, 2007, Parkinsonism & related disorders.

Measuring improvement in health-status with the Oxford Participation and Activities Questionnaire (Ox-PAQ)

C. Jenkinson, D. Morley, L. Kelly, 2019, Patient related outcome measures.

Administering the Routine Activities domain of the Oxford Participation and Activities Questionnaire as a stand-alone scale: the Oxford Routine Activities Measure

C. Jenkinson, D. Morley, L. Kelly, 2018, Patient related outcome measures.

The Stroke Impact Scale: Validation in a UK Setting and Development of a SIS Short Form and SIS Index

R. Fitzpatrick, C. Jenkinson, M. Peters, 2013, Stroke.

Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

Johan Marinus, Anne M Stiggelbout, Crispin Jenkinson, 2008, Parkinsonism & related disorders.

Asking patients about their treatment.

S Ziebland, A Coulter, S. Ziebland, 1993, BMJ.

Development and testing of the UK SF-12 (short form health survey).

C. Jenkinson, R. Layte, 1997, Journal of health services research & policy.

Comment The use of family health services authority registers as a sampling frame in the UK: a review of theory and practice

C. Jenkinson, L. Rushton, C. Chilvers, 2022 .

Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review

C. Jenkinson, Robert Harris, Joanna Epton, 2009, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions

H. Doll, R. Fitzpatrick, C. Jenkinson, 2013, Health and Quality of Life Outcomes.

Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

H. Doll, R. Fitzpatrick, C. Jenkinson, 2011, Parkinsonism & related disorders.

Patients’ experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis

C. Jenkinson, L. Jones, S. Bayliss, 2016, BMJ Open.

Quality of life in patients with Parkinson’s disease: Translation and psychometric evaluation of the Iranian version of PDQ-39

C. Jenkinson, M. Nojomi, G. Shahidi, 2010, Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences.

Protocol for Generation of a Patient-Reported Outcome Measure of Quality of Life in Heart Valve Disease: The VALVQ

C. Jenkinson, G. Whalley, Ariel Pons, 2023, medRxiv.

Quality of life and burden of morbidity in primary care users with multimorbidity

R. Fitzpatrick, C. Jenkinson, J. Forder, 2018, Patient related outcome measures.

Data quality, floor and ceiling effects, and test–retest reliability of the Mild Cognitive Impairment Questionnaire

C. Jenkinson, Z. Walker, K. Dean, 2018, Patient related outcome measures.

The needs and experiences of services by individuals with long-term progressive neurological conditions, and their carers : a benchmarking study

Sue Ziebland, Robert Harris, Ray Fitzpatrick, 2010 .

PND28 CROSS CULTURAL EVALUATION OF THE SHORT FORM 8 ITEM PARKINSON'S DISEASE QUESTIONNAIRE: RESULTS FROM AMERICA, CANADA, JAPAN, ITALY AND SPAIN

R. Fitzpatrick, C. Jenkinson, L. Findley, 2010 .

Measuring change over time: a comparison of results from a global single item of health status and the multi-dimensional SF-36 health status survey questionnaire in patients presenting with menorrhagia

A. Coulter, C. Jenkinson, V. Peto, 1994, Quality of Life Research.

The Coeliac Disease Assessment Questionnaire (Cdaq): Development of a Patient-Reported Outcome Measure

C. Jenkinson, M. Peters, H. Crocker, 2016 .

The PDQ-Carer: development and validation of a summary index score.

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2013, Parkinsonism & related disorders.

Determining minimally important differences for the PDQ-39 Parkinson's disease questionnaire.

R. Fitzpatrick, C. Jenkinson, V. Peto, 2001, Age and ageing.

A comparison of the sensitivity to change of several health status instruments in rheumatoid arthritis.

S Ziebland, S. Ziebland, R. Fitzpatrick, 1993, The Journal of rheumatology.

A Review: Carers, MND and service provision

Crispin Jenkinson, R. Fitzpatrick, C. Jenkinson, 2006, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

The Relational Aspects of Care Questionnaire: item reduction and scoring using inpatient and accident and emergency data in England

C. Jenkinson, S. Sizmur, L. Kelly, 2018, Patient related outcome measures.

An Evaluation of a Near Real-Time Survey for Improving Patients’ Experiences of the Relational Aspects of Care.

Crispin Jenkinson, Laura Kelly, C. Jenkinson, 2018 .

The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe

M. Swash, R. Fitzpatrick, C. Jenkinson, 2000, Journal of Neurology.

The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients

R. Fitzpatrick, C. Jenkinson, A. Garratt, 2000, Journal of Neurological Sciences.

The Parkinson's disease questionnaire

C. Jenkinson, C Jenkinson, 1998 .

Patients’ experiences of health and social care in long-term neurological conditions in England: A cross-sectional survey

H. Doll, R. Fitzpatrick, C. Jenkinson, 2013, Journal of health services research & policy.

Spanish version of the Parkinson’s Disease Questionnaire–Carer (PDQ-Carer)

C. Jenkinson, R. Ferrer-Cascales, M. Cabañero‐Martínez, 2016, Health and Quality of Life Outcomes.

Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions

M. Swash, J. Hobart, R. Fitzpatrick, 2002, Journal of Neurology.

The Oxford Participation and Activities Questionnaire (Ox-PAQ): development of a short form and index measure

C. Jenkinson, D. Morley, L. Kelly, 2019, Patient related outcome measures.

A pilot evaluation of specialist community pharmacy services for patients with Parkinson's disease

C. Jenkinson, V. Macneill, G. Mynors, 2007 .

The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data.

H. Doll, R. Fitzpatrick, C. Jenkinson, 2006, Age and ageing.

An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats.

C. Jenkinson, J. Dawson, D. Morley, 2014, Journal of Parkinson's disease.

Quality of Life and Health: Concepts, Methods and Applications

C. Jenkinson, 1996 .

Using rapid cycle tests of change to develop the Carers Assistive Technology Experience Questionnaire: a cognitive interview study in the UK

C. Jenkinson, M. Peters, V. Sriram, 2021, BMJ Open.

The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment

C. Jenkinson, G. Wilcock, Z. Walker, 2013, International Psychogeriatrics.

Assessment and evaluation of health and medical care : a methods text

C. Jenkinson, 1997 .

Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.

R. Fitzpatrick, C. Jenkinson, C. Hunter, 2016, Patient related outcome measures.

Evaluation of the Dartmouth COOP charts in a large-scale community survey in the United Kingdom.

C. Jenkinson, A. Garratt, E. Juszczak, 2002, Journal of public health medicine.

Quality of Life Measurement in Neurodegenerative and Related Conditions: Index

C. Jenkinson, M. Bromberg, M. Peters, 2011 .

Validity, reliability, and responsiveness of a self-reported foot and ankle score (SEFAS)

H. Doll, C. Jenkinson, J. Dawson, 2012, Acta orthopaedica.

People with limiting long-term conditions report poorer experiences and more problems with hospital care

A. Coulter, C. Jenkinson, P. Hewitson, 2014, BMC Health Services Research.

Assessment of health-related quality-of-life in males with Anderson Fabry Disease before therapeutic intervention

C. Jenkinson, K. Macdermot, A. Miners, 2002, Quality of Life Research.

Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England

A. Coulter, R. Fitzpatrick, C. Jenkinson, 2017, BMJ Open.

Quality of Life Measurement in Neurodegenerative and Related Conditions

C. Jenkinson, M. Bromberg, M. Peters, 2011 .

Health Inequalities: Comparing health inequalities among men aged 18–65 years in Australia and England using the SF‐36

C. Jenkinson, P. Clarke, Len Smith, 2002, Australian and New Zealand journal of public health.

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study

A. Coulter, R. Fitzpatrick, C. Jenkinson, 2015, BMJ Open.

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2022 .

Validation of the Oxford Participation and activities Questionnaire

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2016 .

Carers using assistive technology in dementia care at home: a mixed methods study

C. Jenkinson, M. Peters, V. Sriram, 2022, BMC Geriatrics.

Carers using assistive technology in dementia care: an explanatory sequential mixed-methods study

C. Jenkinson, M. Peters, V. Sriram, 2021, medRxiv.

Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study

C. Jenkinson, M. Peters, V. Sriram, 2021, Age and ageing.

The Outcomes and experiences Questionnaire : development and validation

R. Fitzpatrick, C. Jenkinson, P. Hewitson, 2015 .

Validation of the Oxford Participation and Activities Questionnaire

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2016, Patient related outcome measures.

General practice Randomised controlled trial comparing hospital at home care with inpatient hospital care . I : three month follow up of health outcomes

A. Gray, C. Jenkinson, J. Coast, 1998 .

A systematic review of outcome measures used in forensic mental health research with consensus panel opinion.

H. Doll, R. Fitzpatrick, C. Jenkinson, 2010, Health technology assessment.

Assessing health‐related quality‐of‐life in individuals with haemophilia

C. Sabin, C. Jenkinson, P. Kind, 1999, Haemophilia : the official journal of the World Federation of Hemophilia.

Interpreting change scores on the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40)

R. Fitzpatrick, C. Jenkinson, V. Peto, 2003, Clinical rehabilitation.

Comparison of medical and nursing attitudes to resuscitation and patient autonomy between a British and an American teaching hospital.

C. Jenkinson, M. Mello, C. Jenkinson, 1998, Social science & medicine.

Rasch scoring of outcomes of total hip replacement.

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2003, Journal of clinical epidemiology.

The Outcomes and experiences Questionnaire: development and validation

R. Fitzpatrick, C. Jenkinson, D. Morley, 2015 .

Importance ofsensitivity tochange as a criterion forselecting health statusmeasures

C. Jenkinson, A. Mowat, 1992 .

Measuring the experiences of health care for patients with musculoskeletal disorders (MSD): development of the Picker MSD questionnaire.

A. Coulter, C. Jenkinson, Elisabeth Höglund, 2002, Scandinavian journal of caring sciences.

Assessing Patients' Experiences with Medical Injury Reconciliation Processes: Item Generation for a Novel Survey Questionnaire.

C. Jenkinson, M. Mello, M. Bismark, 2021, Joint Commission journal on quality and patient safety.

Mapping from the Parkinson’s Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L

C. Jenkinson, A. Gray, E. McIntosh, 2015, Medical decision making : an international journal of the Society for Medical Decision Making.

R. Fitzpatrick, C. Jenkinson, P. Hewitson, 2022 .

Development of the Oxford Participation and activities Questionnaire: constructing an item pool

C. Jenkinson, L. Kelly, S. Dummett, 2015 .

Development of the Oxford Participation and activities Questionnaire: constructing an item pool

C. Jenkinson, L. Kelly, S. Dummett, 2015 .

Development of the Oxford Participation and activities Questionnaire: constructing an item pool

C. Jenkinson, L. Kelly, S. Dummett, 2015 .

R. Fitzpatrick, C. Jenkinson, C. Hunter, 2022 .

Association between spousal emotional abuse and reproductive outcomes of women in India: findings from cross-sectional analysis of the 2005–2006 National Family Health Survey

C. Jenkinson, R. Gray, C. Carson, 2018, Social Psychiatry and Psychiatric Epidemiology.

Young People ’ s Response to Parental Neurological Disorder: A Structured Review

C. Jenkinson, D. Morley, L. Hartman, 2020 .

Assessing short term outcome

S. Ziebland, R. Fitzpatrick, C. Jenkinson, 1992 .

Test-retest reliability of the PDQ-Carer.

C. Jenkinson, D. Morley, L. Kelly, 2022, Parkinsonism & related disorders.

Use of the Oxford Participation and Activities Questionnaire in chronic obstructive pulmonary disease

C. Jenkinson, D. Morley, 2019, Chronic Respiratory Disease.

The Oxford Participation and Activities Questionnaire: study protocol

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2013, Patient related outcome measures.

Generating items for the Oxford Participation and Activities Questionnaire (Ox-PAQ)

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2014 .

R. Fitzpatrick, C. Jenkinson, J. Dawson, 2022 .

Patient reported outcomes

C. Jenkinson, D. Morley, 2016, European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology.

Quality of Life Measurement in Neurodegenerative and Related Conditions: Index

C. Jenkinson, M. Bromberg, M. Peters, 2011 .

The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ‐40): Evidence for a method of imputing missing data

R. Fitzpatrick, C. Jenkinson, Robert Harris, 2007, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

Deriving summary indices of health status from the Amyotrophic Lateral Sclerosis Assessment Questionnaires (ALSAQ-40 and ALSAQ-5)

R. Fitzpatrick, C. Jenkinson, J. Norquist, 2003, Journal of neurology, neurosurgery, and psychiatry.

Contrasting evidence of the effectiveness of cosmetic surgery from two health related quality of life measures.

R. Fitzpatrick, C. Jenkinson, T. Goodacre, 1999, Journal of epidemiology and community health.

MEASURING HEALTH STATUS AND QUALITY OF LIFE

C. Jenkinson, 1999 .

Strategies and challenges for monitoring patient experience at the local level

R. Fitzpatrick, C. Jenkinson, K. Flott, 2015 .