I. Higginson

Alison Richardson, Marjolein Gysels, I. Higginson, 2007, Health expectations : an international journal of public participation in health care and health policy.

and end-of-life care research MORECare research methods guidance development: Recommendations for ethical issues in palliative

I. Higginson, C. Todd, C. Evans, 2014 .

MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research

I. Higginson, C. Todd, G. Grande, 2013, Palliative medicine.

for Black, Asian and Minority Ethnic groups in the UK

I. Higginson, N. Calanzani, J. Koffman, 2013 .

Reporting of clinically diagnosed dementia on death certificates: retrospective cohort study

R. Stewart, I. Higginson, G. Perera, 2016, Age and ageing.

Development and validation of a casemix classification to predict costs of specialist palliative care provision across inpatient hospice, hospital and community settings in the UK: a study protocol

I. Higginson, K. Eagar, A. Douiri, 2018, BMJ Open.

Reports

I. Higginson, N. Leigh, R. Hughes, 1958, The Journal of the Royal Aeronautical Society.

Building user participation to reshape services for people affected by motor neurone disease.

I. Higginson, N. Leigh, R. Hughes, 2002, Journal of interprofessional care.

The effect of Palliative Daycare on Hope: A comparison of Daycare Patients with Two Control Groups

I. Higginson, M. P. Guy, B. Amesbury, 2011, Journal of palliative care.

PRISMA: a pan-European co-ordinating action to advance the science in end-of-life cancer care.

I. Higginson, R. Harding, 2010, European journal of cancer.

Cultural meanings of pain: a qualitative study of Black Caribbean and White British patients with advanced cancer

I. Higginson, M. Morgan, I. Higginson, 2008, Palliative medicine.

It just didn't work: the realities of quality assessment in the English health care context.

I. Higginson, M. Dunckley, R. Hughes, 2004, International journal of nursing studies.

Improving end-of-life care for patients with chronic heart failure: “Let’s hope it’ll get better, when I know in my heart of hearts it won’t”

I. Higginson, R. Harding, L. Selman, 2007, Heart.

Using satisfaction to measure the quality of palliative care: a review of the literature.

I. Higginson, R. Hughes, J. Addington-hall, 2003, Journal of advanced nursing.

4 Palliative and Terminal Care

I. Higginson, 1997 .

Strategies to address the shortcomings of commonly used advanced chronic heart failure descriptors to improve recruitment in palliative care research: A parallel mixed-methods feasibility study

I. Higginson, G. O'Gara, B. Daveson, 2017, Palliative medicine.

A research study to identify facilitators and barriers to outcome measure implementation.

I. Higginson, M. Dunckley, R. Hughes, 2005, International journal of palliative nursing.

Textbook of Palliative Medicine

E. Bruera, I. Higginson, C. Ripamonti, 2009 .

Psychosocial The Patient, Process and Issues in Palliative Care: the Family, and the Outcome of Care

I. Higginson, M. Vachon, L. Kristjanson, 1995 .

Chest pain: physician perceptions and decision-making in a London emergency department.

I. Higginson, Steven A. Farmer, 2006, Annals of emergency medicine.

Does palliative care improve outcomes for patients with HIV/AIDS? A systematic review of the evidence

P. Easterbrook, I. Higginson, K. Marconi, 2005, Sexually Transmitted Infections.

Exploring costs, cost components, and associated factors among people with dementia approaching the end of life: A systematic review

I. Higginson, D. Yi, E. Yorganci, 2021, Alzheimer's & dementia.

Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases.

I. Higginson, M. Gysels, C. Bausewein, 2008, The Cochrane database of systematic reviews.

What palliative care-related problems do patients experience at HIV diagnosis? A systematic review of the evidence.

I. Higginson, R. Harding, V. Simms, 2011, Journal of pain and symptom management.

‘Less ticking the boxes, more providing support’: A qualitative study on health professionals’ concerns towards the Liverpool Care of the Dying Pathway

I. Higginson, M. Costantini, F. Bulli, 2015, Palliative medicine.

Home palliative care for terminal cancer patients: a survey on the final week of life

E. Paci, C. Brunelli, M. Gallucci, 1999, Palliative medicine.

Cancer Pain: Cancer pain epidemiology: a systematic review

I. Higginson, J. Hearn, 2003 .

Episodes of breathlessness: Types and patterns – a qualitative study exploring experiences of patients with advanced diseases

I. Higginson, M. Gysels, C. Bausewein, 2013, Palliative medicine.

Cancer Control in Africa 6 Research into palliative care in sub-Saharan Africa

I. Higginson, L. Gwyther, Z. Ali, 2013 .

Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop.

S. Kaasa, D. Haugen, I. Higginson, 2010, European journal of cancer.

A randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy: recruitment, refusal, randomisation and missing data

Rachel Jenkins, I. Higginson, Z. Ali, 2014, BMC Research Notes.

Exercise Deficiency Diseases of Ageing: The Primacy of Exercise and Muscle Strengthening as First-Line Therapeutic Agents to Combat Frailty.

M. Izquierdo, I. Higginson, S. Harridge, 2018, Journal of the American Medical Directors Association.

Multi-centred mixed-methods PEPFAR HIV care & support public health evaluation: study protocol

P. Fayers, I. Higginson, P. McCrone, 2010, BMC public health.

Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey

I. Higginson, C. Goh, R. Harding, 2021 .

Preparedness of African Palliative Care Services to Respond to the COVID-19 Pandemic: A Rapid Assessment

I. Higginson, C. Normand, M. Costantini, 2020, Journal of Pain and Symptom Management.

Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report

Megan E O'Brien, D. Jamison, K. Reddy, 2017, The Lancet.

Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK

I. Higginson, R. Harding, L. Selman, 2007, Palliative medicine.

Respiratory interventions for breathlessness in adults with advanced diseases

I. Higginson, E. Rehfuess, M. Maddocks, 2017, Cochrane Database of Systematic Reviews.

Physical interventions for breathlessness in adults with advanced diseases

I. Higginson, E. Rehfuess, M. Maddocks, 2017, Cochrane Database of Systematic Reviews.

Cognitive‐emotional interventions for breathlessness in adults with advanced diseases

I. Higginson, E. Rehfuess, M. Maddocks, 2017 .

Regional variations in geographic access to inpatient hospices and Place of death: A Population-based study in England, UK

I. Higginson, J. Verne, E. Chukwusa, 2020, PloS one.

Living and dying with dignity: a qualitative study of the views of older people in nursing homes.

I. Higginson, S. Hall, S. Longhurst, 2009, Age and ageing.

Treatment outcomes in palliative care: the TOPCare study. A mixed methods phase III randomised controlled trial to assess the effectiveness of a nurse-led palliative care intervention for HIV positive patients on antiretroviral therapy

Rachel Jenkins, I. Higginson, L. Gwyther, 2012, BMC Infectious Diseases.

A novel approach to enhancing hope in patients with advanced cancer: a randomised phase II trial of dignity therapy

I. Higginson, S. Hall, P. Speck, 2011, BMJ Supportive & Palliative Care.

Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol

I. Higginson, H. Chochinov, S. Hall, 2009, BMC palliative care.

Service Delivery Models to Maximize Quality of Life for Older People at the End of Life: A Rapid Review

I. Higginson, M. Maddocks, D. Yi, 2019, The Milbank quarterly.

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis.

I. Higginson, V. Robinson, C. Ramsenthaler, 2017, Journal of pain and symptom management.

Twitter discussions from a respirology journal club - authors' reply.

I. Higginson, C. Jolley, Wei Gao, 2015, The Lancet. Respiratory medicine.

Strategies used in improving and assessing the level of reporting of implementation fidelity in randomised controlled trials of palliative care complex interventions: A systematic review

I. Higginson, N. Hepgul, Wei Gao, 2018, Palliative medicine.

Development and Evaluation of Complex Interventions in Palliative Care

I. Higginson, M. Maddocks, N. Hepgul, 2019, Textbook of Palliative Care.

Development and Evaluation of Complex Interventions in Palliative Care

I. Higginson, M. Maddocks, N. Hepgul, 2019, Textbook of Palliative Care.

Feasibility of assessing quality of care at the end of life in two cluster trials using an after-death approach with multiple assessments

I. Higginson, M. Costantini, G. Miccinesi, 2014, BMC Palliative Care.

Challenges in defining ‘palliative care’ for the purposes of clinical trials

I. Higginson, C. Bausewein, 2012, Current opinion in supportive and palliative care.

Implementing a quality improvement programme in palliative care in care homes: a qualitative study

I. Higginson, S. Hall, F. Stewart, 2011, BMC geriatrics.

Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures.

M. Bennett, I. Higginson, S. Murray, 2011, Journal of pain and symptom management.

Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis

I. Higginson, V. Robinson, C. Ramsenthaler, 2022 .

A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care.

I. Higginson, C. Bausewein, B. Daveson, 2015, Journal of pain and symptom management.

Improving palliative care for cancer.

I. Finlay, I. Higginson, 2003, The Lancet. Oncology.

How empowering is hospital care for older people with advanced disease? Barriers and facilitators from a cross-national ethnography in England, Ireland and the USA

D. Meier, R. Morrison, I. Higginson, 2016, Age and ageing.

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

I. Higginson, L. Fraser, M. Maddocks, 2021, Palliative medicine.

Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

I. Higginson, L. Fraser, M. Maddocks, 2021, medRxiv.

Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

I. Higginson, L. Fraser, M. Maddocks, 2020, medRxiv.

Maintaining dignity for residents of care homes: a qualitative study of the views of care home staff, community nurses, residents and their families.

I. Higginson, S. Hall, R. Dodd, 2014, Geriatric nursing.

Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions

K. Chaudhuri, I. Higginson, A. Wilcock, 2020, JAMA network open.

PEPFAR public health evaluation -- care and support. Phase 2 Uganda.

Simms, I. Higginson, R. Harding, 2010 .

How Should Nations Measure the Quality of End‐of‐Life Care for Older Adults? Recommendations for an International Minimum Data Set

I. Higginson, J. Teno, D. Casarett, 2006, Journal of the American Geriatrics Society.

Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the United States

D. Meier, R. Morrison, I. Higginson, 2020, Palliative medicine.

Religious faith and support at the end of life: a comparison of first generation black Caribbean and white populations

I. Higginson, J. Koffman, 2002, Palliative medicine.

Terminal cancer patients and timing of referral to palliative care: a multicenter prospective cohort study. Italian Cooperative Research Group on Palliative Medicine.

E. Paci, C. Brunelli, M. Gallucci, 1999, Journal of pain and symptom management.

How should we manage information needs, family anxiety, depression, and breathlessness for those affected by advanced disease: development of a Clinical Decision Support Tool using a Delphi design

I. Higginson, S. Payne, L. V. van Vliet, 2015, BMC Medicine.

Acute care utilisation towards the end of life and the place of death for patients with serious mental disorders: a register-based cohort study in South London.

I. Higginson, F. Gaughran, R. Wilson, 2021, Public health.

Understanding which people with dementia are at risk of inappropriate care and avoidable transitions to hospital near the end-of-life: a retrospective cohort study.

R. Stewart, I. Higginson, K. Sleeman, 2019, Age and ageing.

The Real-World Problem of Care Coordination: A Longitudinal Qualitative Study with Patients Living with Advanced Progressive Illness and Their Unpaid Caregivers

D. Munday, I. Higginson, S. Murray, 2014, BMC Health Services Research.

Detailed statistical analysis plan for the Danish Palliative Care Trial (DanPaCT)

P. Fayers, M. Groenvold, I. Higginson, 2014, Trials.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

I. Higginson, L. Fraser, M. Maddocks, 2020, medRxiv.

Recommendations for services for people living with chronic breathlessness in advanced disease: Results of a transparent expert consultation

W. Man, I. Higginson, M. Farquhar, 2018, Chronic respiratory disease.

Palliative Care and the Management of Common Distressing Symptoms in Advanced Cancer: Pain, Breathlessness, Nausea and Vomiting, and Fatigue

I. Higginson, M. Maddocks, C. Evans, 2020, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

The use of high doses of adrenaline in paediatric cardiac resuscitation

I. Higginson, D. Montgomery, R. Tuck, 1996, Journal of paediatrics and child health.

Symptom management in patients with established renal failure managed without dialysis.

I. Higginson, P. Donohoe, J. Addington-hall, 2006, EDTNA/ERCA journal.

The Use of Opioid Analgesia in End-Stage Renal Disease Patients Managed Without Dialysis

I. Higginson, P. Donohoe, F. Murtagh, 2007 .

Symptoms in advanced renal disease: a cross-sectional survey of symptom prevalence in stage 5 chronic kidney disease managed without dialysis.

I. Higginson, P. Donohoe, J. Addington-hall, 2007, Journal of palliative medicine.

The use of opioid analgesia in end-stage renal disease patients managed without dialysis: recommendations for practice.

I. Higginson, P. Donohoe, F. Murtagh, 2007, Journal of pain & palliative care pharmacotherapy.

Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis

I. Higginson, F. Murtagh, L. Selman, 2018, Palliative medicine.

How can we achieve person-centred care for people living with HIV/AIDS? A qualitative interview study with healthcare professionals and patients in Ghana

I. Higginson, G. Ansa, R. Harding, 2019, AIDS care.

‘I wish I knew more ...’ the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals

S. Birring, I. Higginson, A. Wells, 2012, BMJ Supportive & Palliative Care.

The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND

I. Higginson, M. Gysels, 2011, BMC palliative care.

Clinical Effectiveness and Safety of Acupuncture in the Treatment of Irradiation-Induced Xerostomia in Patients with Head and Neck Cancer: A Systematic Review

I. Higginson, I. Higginson, E. O'Sullivan, 2010, Acupuncture in medicine : journal of the British Medical Acupuncture Society.

'A softening of edges': a comparison of yoga classes at palliative care services in New Delhi and London.

I. Higginson, L. Selman, 2010, International journal of palliative nursing.

The role of service factors on variations in place of death: an observational study

I. Higginson, J. Verne, Wei Gao, 2019, Health Services and Delivery Research.

The palliative care needs for fibrotic interstitial lung disease: A qualitative study of patients, informal caregivers and health professionals

S. Birring, I. Higginson, A. Wells, 2013, Palliative medicine.

Patient, caregiver, health professional and researcher views and experiences of participating in research at the end of life: a critical interpretive synthesis of the literature

I. Higginson, C. Evans, M. Gysels, 2012, BMC Medical Research Methodology.

The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers.

I. Higginson, M. Costantini, C. Todd, 2020, The Cochrane database of systematic reviews.

End-of-life care and place of death in adults with serious mental illness: A systematic review and narrative synthesis

I. Higginson, N. Hepgul, Wei Gao, 2019, Palliative medicine.

A psychometric evaluation of the functional assessment of chronic illness therapy-palliative care (FACIT-Pal) scale with palliative care samples in three African countries.

I. Higginson, L. Gwyther, R. Siegert, 2014, Journal of pain and symptom management.

Symptom severity in advanced cancer, assessed in two ethnic groups by interviews with bereaved family members and friends.

I. Higginson, N. Donaldson, J. Koffman, 2003, Journal of the Royal Society of Medicine.

Symptom Severity in Advanced Cancer, Assessed in Two Ethnic Groups by Interviews with Bereaved Family Members and Friends

I. Higginson, N. Donaldson, J. Koffman, 2003 .

Integration of palliative care throughout HIV disease.

I. Higginson, R. Harding, V. Simms, 2012, The Lancet. Infectious diseases.

‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

I. Higginson, M. Morgan, Wei Gao, 2016, BMJ Open.

Psychological well-being and quality of care: a factor-analytic examination of the palliative care outcome scale.

I. Higginson, R. Siegert, Wei Gao, 2010, Journal of pain and symptom management.

Clinical Audit in Palliative Care

I. Higginson, 1993 .

End-of-life care: lessons from other nations.

I. Higginson, 2005, Journal of palliative medicine.

Is the presence of dyspnea a risk factor for morbidity in cancer patients?

I. Higginson, M. Mcdonnell, P. Edmonds, 2000, Journal of pain and symptom management.

Does the EQ-5D capture the concerns measured by the Palliative care Outcome Scale? Mapping the Palliative care Outcome Scale onto the EQ-5D using statistical methods

I. Higginson, P. McCrone, M. Dzingina, 2017, Palliative medicine.

Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial.

I. Higginson, Z. Ali, R. Harding, 2015, The lancet. HIV.

Quality of life and wellbeing among HIV outpatients in East Africa: a multicentre observational study

I. Higginson, R. Harding, V. Simms, 2014, BMC Infectious Diseases.

The need to research refractory breathlessness

Miriam J. Johnson, A. Abernethy, C. Morélot-Panzini, 2016, European Respiratory Journal.

Are bereaved family members a valid proxy for a patient's assessment of dying?

I. Higginson, M. Mccarthy, I. Higginson, 1994, Social science & medicine.

Alternative to improve palliative care for all patients and families in critical care units: development and preliminary evaluation following MRC guidance of the King's Psychosocial, Assessment and Care tool

I. Higginson, R. Burman, C. Shipman, 2013, Critical Care.

integrated care pathways for end of life care perceptions of the benefits and harms of study of health care professionals ' ' It doesn ' t do the care for you ' : a qualitative

I. Higginson, M. Morgan, R. Burman, 2017 .

Dignity Through Integrated Symptom Management: Lessons From the Breathlessness Support Service.

I. Higginson, C. Jolley, J. Moxham, 2016, Journal of pain and symptom management.

Time for a prospective study to evaluate the Amber Care Bundle

I. Higginson, D. Currow, 2013, BMJ Supportive & Palliative Care.

Spiritual needs in health care

I. Higginson, J. Addington-hall, P. Speck, 2004, BMJ : British Medical Journal.

Is end-of-life care a priority for policymakers? Qualitative documentary analysis of health care strategies

I. Higginson, K. Bristowe, K. Sleeman, 2018, Palliative medicine.

What methods do stakeholders prefer for feeding back performance data: a qualitative study in palliative care.

I. Higginson, R. Hughes, J. Addington-hall, 2004, International Journal for Quality in Health Care.

Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review.

I. Higginson, C. Bausewein, B. Daveson, 2015, Journal of pain and symptom management.

Republished: Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey

I. Higginson, R. Harding, C. Bausewein, 2012, Postgraduate Medical Journal.

Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey

I. Higginson, R. Harding, C. Bausewein, 2012, BMJ Supportive & Palliative Care.

Are we heading in the same direction? European and African doctors’ and nurses’ views and experiences regarding outcome measurement in palliative care

I. Higginson, R. Harding, C. Bausewein, 2012, Palliative medicine.

Factors associated with older people’s emergency department attendance towards the end of life: a systematic review

I. Higginson, J. Verne, B. Gomes, 2018, European journal of public health.

ill patients with cancer: systematic review Factors influencing death at home in terminally

I. Higginson, B. Gomes, 2009 .

The quality of expectation: Healing, palliation or disappointment

I. Higginson, I. Higginson, Irene J. Higginson, 2000, Journal of the Royal Society of Medicine.

What Next in Refractory Breathlessness? Breathlessness? Research Questions for Palliative Care

I. Higginson, M. Maddocks, C. Jolley, 2014, Journal of palliative care.

Living with motor neurone disease: lives, experiences of services and suggestions for change.

Anu Sinha, P. Leigh, I. Higginson, 2005, Health & social care in the community.

Symptom Prevalence and Severity in People Severely Affected by Multiple Sclerosis

I. Higginson, R. Burman, E. Silber, 2006, Journal of palliative care.

Symptom Prevalence among People Affected by Advanced and Progressive Neurological Conditions—a Systematic Review

I. Higginson, P. Leigh, T. Saleem, 2007, Journal of palliative care.

Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral Sclerosis

L. Goldstein, A. Al-Chalabi, I. Higginson, 2016, Qualitative health research.

The HIV basic care package: where is it available and who receives it? Findings from a mixed methods evaluation in Kenya and Uganda

I. Higginson, R. Harding, V. Simms, 2014, AIDS care.

Provision of palliative care for chronic heart failure inpatients: how much do we need?

I. Higginson, M. Kinirons, R. Harding, 2009, BMC palliative care.

Research into end-of-life cancer care—investment is needed

I. Higginson, B. Gomes, K. Sleeman, 2012, The Lancet.

Minimum dataset activity for hospice and hospital palliative care services in the UK 1997/98

I. Higginson, I. Higginson, A. Eve, 2000, Palliative medicine.

Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale – a multi-centre study

I. Higginson, P. Ferreira, P. Rodrigues, 2019, BMC Palliative Care.

The role of palliative care teams: Systematic review of their effectiveness and cost-effectiveness. Report to Wales Office of Research and Development of the National Assembly of Wales.

A. Edwards, A. Cook, I. Finlay, 2000 .

Depression assessment and classification in palliative cancer patients: a systematic literature review

Matthew Hotopf, Mari Lloyd-Williams, Elisabet Wasteson, 2009, Palliative medicine.

Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care

L. Radbruch, M. Echteld, L. Deliens, 2012, Supportive Care in Cancer.

The Future of Palliative Medicine

I. Higginson, C. Gunten, 2021, Textbook of Palliative Medicine and Supportive Care.

Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations

I. Higginson, S. Barclay, A. Finucane, 2021, Palliative medicine.

Research priorities in health economics and funding for palliative care: views of an international think tank.

I. Higginson, B. Gomes, K. Foley, 2009, Journal of pain and symptom management.

Measuring the net benefits of hospice and palliative care: a composite measure for multiple audiences-palliative net benefit.

Miriam J. Johnson, A. Abernethy, I. Higginson, 2011, Journal of palliative medicine.

The TEAM Approach to Improving Oncology Outcomes by Incorporating Palliative Care in Practice.

Thomas J. Smith, J. Temel, I. Higginson, 2017, Journal of oncology practice.

Randomised clinical trial of early specialist palliative care plus standard care versus standard care alone in patients with advanced cancer: The Danish Palliative Care Trial

P. Fayers, M. Groenvold, I. Higginson, 2017, Palliative medicine.

A framework for complexity in palliative care: A qualitative study with patients, family carers and professionals

I. Higginson, L. V. van Vliet, C. Evans, 2018, Palliative medicine.

Working with ambivalence: informal caregivers of patients at the end of life

I. Higginson, R. Harding, 2001, Supportive Care in Cancer.

Bmc Cancer

I. Higginson, M. Costantini, M. Beccaro, 2022 .

Implementation of the Mental Capacity Act: a national observational study of changes in place of death for older heart failure patients with or without comorbid dementia

I. Higginson, T. McDonagh, Wei Gao, 2021 .

Palliative Care Core Audit measure for palliative care : the palliative care Development and validation of a core outcome

I. Higginson, J. Hearn, 1999 .

Refractory breathlessness: oxygen or room air?

I. Higginson, 2010, The Lancet.

Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

I. Higginson, M. Gysels, C. Bausewein, 2014, Palliative and Supportive Care.

The experience of breathlessness: the social course of chronic obstructive pulmonary disease.

I. Higginson, M. Gysels, 2010, Journal of pain and symptom management.

Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness.

I. Higginson, M. Gysels, 2008, Journal of pain and symptom management.

The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: A qualitative phase 1 study

I. Higginson, M. Farquhar, M. Gysels, 2006, Palliative and Supportive Care.

Universal coverage for palliative care in respiratory disease and critical care.

I. Higginson, M. Maddocks, 2017, The Lancet. Respiratory medicine.

Avoid ‘prognostic paralysis’—just get ahead and plan and co-ordinate care

I. Higginson, S. Murray, R. Harding, 2014, npj Primary Care Respiratory Medicine.

Effect of a palliative home care team on hospital admissions among patients with advanced cancer

I. Higginson, M. Costantini, P. Bruzzi, 2003, Palliative medicine.

"I Can Breathe Again!" Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews.

I. Higginson, R. Voltz, M. Gysels, 2016, Journal of Pain and Symptom Management.

JAN Forum: your views and letters

I. Higginson, R. Hughes, J. Addington-hall, 2002 .

To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe

D. Haugen, L. Deliens, I. Higginson, 2013, Palliative medicine.

Establishing key criteria to define and compare models of specialist palliative care: A mixed-methods study using qualitative interviews and Delphi survey

I. Higginson, M. Hocaoglu, G. Grande, 2019, Palliative medicine.

Recent developments in managing breathlessness: International researchers' meeting on Breathlessness in London, November 2006

I. Higginson, C. Bausewein, F. Malik, 2007 .

Diversity in Defining End of Life Care: An Obstacle or the Way Forward?

I. Higginson, R. Pool, R. Harding, 2013, PloS one.

Acceptability and preferences of six different routes of drug application for acute breathlessness: a comparison study between the United Kingdom and Germany.

I. Higginson, R. Voltz, C. Bausewein, 2012, Journal of palliative medicine.

Predicting outcomes following holistic breathlessness services: A pooled analysis of individual patient data

W. Man, I. Higginson, M. Farquhar, 2019, Palliative medicine.

Fatigue in cancer

I. Higginson, J. Armes, M. Krishnasamy, 2004 .

The King’s Brief Interstitial Lung Disease (KBILD) questionnaire: an updated minimal clinically important difference

S. Birring, I. Higginson, A. Wells, 2019, BMJ Open Respiratory Research.

Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

I. Higginson, L. Fraser, M. Maddocks, 2021, BMJ supportive & palliative care.

Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD - Authors' reply.

C. Nolan, M. Polkey, W. Man, 2016, The Lancet. Respiratory medicine.

Factors Associated with Transition from Community Settings to Hospital as Place of Death for Adults Aged 75 and Older: A Population‐Based Mortality Follow‐Back Survey

I. Higginson, B. Gomes, M. Morgan, 2016, Journal of the American Geriatrics Society.

How to analyse palliative care outcome data for patients in sub-Saharan Africa : an international multicentred factor analytic examination of the APCA African

I. Higginson, F. Walkey, F. Namisango, 2017 .

How to analyze palliative care outcome data for patients in Sub-Saharan Africa: an international, multicenter, factor analytic examination of the APCA African POS.

I. Higginson, L. Gwyther, R. Siegert, 2013, Journal of pain and symptom management.

The relationship between patient characteristics and carer psychological status in home palliative cancer care

I. Higginson, N. Donaldson, R. Harding, 2003, Supportive Care in Cancer.

Effectiveness of two palliative support teams.

I. Higginson, M. Mccarthy, A. Wade, 1992, Journal of public health medicine.

In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’

R. Dobson, I. Higginson, J. Teo, 2019, Journal of Medical Ethics.

Challenges of research in palliative medicine

E. Bruera, I. Higginson, C. Ripamonti, 2009 .

Better Breathlessness Services for Older People with Advanced Diseases: A Multicentre Discrete Choice Experiment and Economic Modelling (OPRBreathe)

I. Higginson, D. Yi, Wei Gao, 2021 .

Symptom prevalence of patients with end-stage liver disease: a systematic review

I. Higginson, N. Hepgul, Wei Gao, 2016, BMJ Supportive & Palliative Care.

Primary care service use by end-of-life cancer patients: a nationwide population-based cohort study in the United Kingdom

I. Higginson, M. Gulliford, M. Morgan, 2020, BMC Family Practice.

Primary care service use by end-of-life cancer patients: a nationwide retrospective cohort study in the United Kingdom

I. Higginson, M. Gulliford, M. Morgan, 2019 .

Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: Results of a descriptive cohort study

I. Higginson, R. Voltz, C. Bausewein, 2015, Palliative medicine.

Edinburgh Research Explorer Learning from the public

G. Albers, L. Deliens, I. Higginson, 2017 .

Palliative care for non-cancer patients

I. Higginson, J. Addington-hall, 2001 .

Developing methods to improve the quality of end-of-life care

I. Higginson, M. Dunckley, R. Hughes, 2004, Journal of interprofessional care.

Assessing palliative care outcomes for people with motor neurone disease living at home.

I. Higginson, M. Dunckley, R. Hughes, 2004, International journal of palliative nursing.

Professionals' views and experiences of using outcome measures in palliative care.

I. Higginson, M. Dunckley, R. Hughes, 2003, International journal of palliative nursing.

A user's guide to the Palliative care Outcome Scale

I. Higginson, F. Aspinal, J. Chidgey, 2002 .

Project to impROve management of terminal illnEss (PROMOTE).

I. Higginson, M. Dunckley, J. Addington-hall, 2001, Journal of interprofessional care.

A virtual user involvement forum for people living with motor neuron disease

I. Higginson, P. Leigh, R. Hughes, 2003, Journal of telemedicine and telecare.

Can we really consider quality of life as an outcome of palliative care? Author's response

M. Maltoni, I. Higginson, M. Fantini, 2003 .

Access and equity in HIV/AIDS palliative care: a review of the evidence and responses

P. Easterbrook, I. Higginson, K. Marconi, 2005, Palliative medicine.

International variation in classification of dialysis withdrawal: a systematic review.

I. Higginson, M. Germain, F. Murtagh, 2014, Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association.

Using routine data to improve palliative and end of life care

Bee Wee, Wei Gao, Julia Verne, 2016, BMJ Supportive & Palliative Care.

Managing Cancer Pain at the End of Life with Multiple Strong Opioids: A Population-Based Retrospective Cohort Study in Primary Care

M. Bennett, I. Higginson, M. Gulliford, 2014, PloS one.

Effectiveness of topical administration of opioids in palliative care: a systematic review.

I. Higginson, G. Zeppetella, Beata Lebon, 2009, Journal of pain and symptom management.

Marie Curie nurses: enabling patients with cancer to die at home.

I. Higginson, S. Wilkinson, 2002, British journal of community nursing.

The presence of CD4 counts for the management of HIV patients in East Africa: A multicentred study

I. Higginson, R. Harding, V. Simms, 2014, AIDS care.

Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers.

I. Higginson, B. Gomes, N. Calanzani, 2014, JAMA.

Do social factors affect where patients die: an analysis of 10 years of cancer deaths in England.

I. Higginson, B. Jarman, P. Astin, 1999, Journal of public health medicine.

Time to go beyond observing the problem. Response to: Dying in hospital: socioeconomic inequality trends in England, DOI: 10.1177/1355819616686807.

I. Higginson, K. Sleeman, J. Davies, 2018, Journal of health services research & policy.

General practitioners' use and experiences of palliative care services: a survey in south east England

I. Higginson, S. Bajwah, 2008, BMC palliative care.

Self-report measurement of pain & symptoms in palliative care patients: a comparison of verbal, visual and hand scoring methods in Sub-Saharan Africa

S. Kaasa, I. Higginson, D. Blum, 2014, Health and Quality of Life Outcomes.

Identifying Neuropathic Pain in Patients with Head and Neck Cancer: Use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale

I. Higginson, Jean Potter, J. Scadding, 2003 .

Identifying neuropathic pain in patients with head and neck cancer: use of the Leeds Assessment of Neuropathic Symptoms and Signs Scale.

I. Higginson, Jean Potter, J. Scadding, 2003, Journal of the Royal Society of Medicine.

Effectiveness and cost‐effectiveness of home palliative care services for adults with advanced illness and their caregivers

I. Higginson, B. Gomes, P. McCrone, 2013, The Cochrane database of systematic reviews.

The influence of protein containing meals on the pharmacokinetics of levodopa in healthy volunteers.

A G Renwick, D G Waller, I. Higginson, 1991, British journal of clinical pharmacology.

“Keep All Thee ‘Til the End”: Reclaiming the Lifeworld for Patients in the Hospice Setting

B. Onwuteaka-Philipsen, I. Higginson, H. Philipsen, 2019, Omega.

Do religious or spiritual beliefs influence bereavement? A systematic review

G. Becker, I. Higginson, H. Blum, 2007, Palliative medicine.

Communication in end-of-life cancer care: a comparison of team assessments in three European countries.

I. Higginson, M. Costantini, 2002, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

A critical review of advance directives in Germany: attitudes, use and healthcare professionals' compliance.

I. Higginson, R. Pool, R. Harding, 2012, Patient education and counseling.

A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations.

I. Higginson, R. Siegert, R. Harding, 2011, Journal of pain and symptom management.

The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review.

I. Higginson, R. Harding, M. Gysels, 2011, Journal of pain and symptom management.

Spiritual care recommendations for people from Black and minority ethnic (BME) groups receiving palliative care in the UK

I. Higginson, V. Robinson, R. Harding, 2010 .

Heterogeneity and changes in preferences for dying at home: a systematic review

I. Higginson, B. Gomes, S. Hall, 2013, BMC Palliative Care.

Measuring Symptoms in Terminal Cancer: Are Pain and Dyspnoea Controlled?

I. Higginson, M. Mccarthy, Mark I. McCarthy, 1989, Journal of the Royal Society of Medicine.

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

I. Higginson, R. Pool, H. Pasman, 2012, PloS one.

Optimal approaches to the health economics of palliative care: report of an international think tank.

Richard Harding, I. Higginson, B. Gomes, 2009, Journal of pain and symptom management.

Developing primary palliative care

A. Sheikh, I. Higginson, S. Murray, 2004, BMJ : British Medical Journal.

Palliative care: the solid facts

I. Higginson, E. Davies, 2004 .

Better palliative care for older people

I. Higginson, E. Davies, 2004 .

What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness

I. Higginson, R. Harding, R Harding, 2003, Palliative medicine.

Place of care in advanced cancer: a qualitative systematic literature review of patient preferences.

I. Higginson, I. Higginson, G. Sen-Gupta, 2000, Journal of palliative medicine.

Reconciling employment with caring for a husband with an advanced illness

I. Higginson, M. Gysels, 2009, BMC health services research.

The Effectiveness of Singing or Playing a Wind Instrument in Improving Respiratory Function in Patients with Long-Term Neurological Conditions: A Systematic Review

I. Higginson, M. Maddocks, K. Ang, 2017, Journal of music therapy.

'My dreams are shuttered down and it hurts lots’–a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda

I. Higginson, R. Harding, V. Simms, 2013, BMC Palliative Care.

Dying with cancer, living well with advanced cancer.

I. Higginson, M. Costantini, 2008, European journal of cancer.

Improving supportive and palliative care for adults with cancer: Research Evidence

Irene J. Higginson, Marjolein Gysels, I. Higginson, 2004 .

The "Spirit 8" successfully captured spiritual well-being in African palliative care: factor and Rasch analysis.

I. Higginson, L. Gwyther, R. Siegert, 2012, Journal of clinical epidemiology.

Past trends and projections of hospital deaths to inform the integration of palliative care in one of the most ageing countries in the world

I. Higginson, B. Gomes, P. Ferreira, 2015, Palliative medicine.

[Epidemiological study of place of death in Portugal in 2010 and comparison with the preferences of the Portuguese population].

I. Higginson, B. Gomes, P. Ferreira, 2013, Acta medica portuguesa.

Epidemiology of Pain in Cancer

T. R. Osborne, I. Higginson, F. Murtagh, 2013 .

Cancer Pain: Cancer pain epidemiology

I. Higginson, F. Murtagh, 2009 .

Palliative care in hospital, hospice, at home: results from a systematic review.

A. Edwards, A. Cook, I. Finlay, 2002, Annals of oncology : official journal of the European Society for Medical Oncology.

‘It doesn't do the care for you': a qualitative study of health care professionals' perceptions of the benefits and harms of integrated care pathways for end of life care

Philip Hopkins, Rachel Burman, Myfanwy Morgan, 2015, BMJ Open.

Liverpool Care Pathway for patients with cancer in hospital: a cluster randomised trial

C. Brunelli, I. Higginson, M. Costantini, 2014, The Lancet.

The Liverpool Care Pathway for cancer patients dying in hospital medical wards: A before–after cluster phase II trial of outcomes reported by family members

I. Higginson, M. Costantini, F. Pellegrini, 2014, Palliative medicine.

Characteristics, Symptom Management, and Outcomes of 101 Patients With COVID-19 Referred for Hospital Palliative Care

I. Higginson, M. Maddocks, I. Carey, 2020, Journal of Pain and Symptom Management.

Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?

A. Edwards, A. Cook, I. Finlay, 2003, Journal of pain and symptom management.

Patterns of dying: palliative care for non-malignant disease.

I. Higginson, I. Higginson, F. Murtagh, 2004, Clinical medicine.

Electronic palliative care coordination systems (EPaCCS): a systematic review

I. Higginson, K. Sleeman, A. Weil, 2019, BMJ Supportive & Palliative Care.

Evidence-based policy in palliative care: time to learn from our mistakes

I. Higginson, K. Sleeman, 2016, BMJ Supportive & Palliative Care.

Social-cultural factors in end-of-life care in Belgium: A scoping of the research literature

I. Higginson, Joachim Cohen, R. Pool, 2013, Palliative medicine.

The development, validity, reliability and practicality of a new measure of palliative care : the Support Team Assessment Schedule

I. Higginson, 1992 .

End-of-life care across Southern Europe: a critical review of cultural similarities and differences between Italy, Spain and Portugal.

I. Higginson, X. Gómez-Batiste, R. Pool, 2012, Critical reviews in oncology/hematology.

Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups

I. Higginson, S. Murray, S. Barclay, 2008, BMJ : British Medical Journal.

Validation of a core outcome measure for palliative care in Africa: the APCA African Palliative Outcome Scale

I. Higginson, L. Gwyther, R. Harding, 2010, Health and quality of life outcomes.

Meeting information needs of patients with incurable progressive disease and their families in South Africa and Uganda: multicentre qualitative study

I. Higginson, L. Gwyther, R. Harding, 2009, BMJ : British Medical Journal.

Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities

I. Higginson, K. Marconi, J. O'Neill, 2003, BMC public health.

Is antiretroviral therapy associated with symptom prevalence and burden?

P. Easterbrook, I. Higginson, R. Harding, 2006, International journal of STD & AIDS.

The impact of population ageing on end-of-life care in Scotland: projections of place of death and recommendations for future service provision

I. Higginson, S. Murray, B. Gomes, 2019, BMC Palliative Care.

Methodological considerations for end-of-life research in patients with chronic kidney disease.

I. Higginson, F. Murtagh, Sara N Davidson, 2008, Journal of nephrology.

Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

I. Higginson, M. Morgan, R. Siegert, 2013, Psycho-oncology.

Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study

M. Hotopf, L. Goodwin, B. Monroe, 2011, BMJ Supportive & Palliative Care.

Doctors should not discuss resuscitation with terminally ill patients

I. Higginson, 2003, BMJ : British Medical Journal.

Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions A Randomized Clinical Trial

K. Chaudhuri, I. Higginson, N. Hepgul, 2020 .

Caregiver assessment of patients with advanced cancer: concordance with patients, effect of burden and positivity

I. Higginson, W. Gao, 2008, Health and quality of life outcomes.

Health and Quality of Life Outcomes

I. Higginson, N. Donaldson, 2004 .

The Challenges of Caring for People Dying From COVID-19: A Multinational, Observational Study (CovPall)

I. Higginson, L. Fraser, M. Maddocks, 2021, Journal of Pain and Symptom Management.

The challenges of caring for people dying from COVID-19: a multinational,observational study of palliative and hospice services (CovPall)

I. Higginson, L. Fraser, M. Maddocks, 2020, medRxiv.

Palliative care for patients with severe covid-19

I. Higginson, K. Sleeman, P. Edmonds, 2020, BMJ.

EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services – Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement

L. Radbruch, L. Deliens, I. Higginson, 2016, Palliative medicine.

Spiritual care recommendations for people receiving palliative care in sub-Saharan Africa

I. Higginson, R. Harding, L. Selman, 2010 .

Stressors and Resources of Caregivers of Patients With Incurable Progressive Illness in Sub-Saharan Africa

I. Higginson, L. Gwyther, R. Harding, 2014, Qualitative health research.

‘Peace’ and ‘life worthwhile’ as measures of spiritual well-being in African palliative care: a mixed-methods study

I. Higginson, L. Gwyther, R. Harding, 2013, Health and Quality of Life Outcomes.

Repository ) ‘ Peace ’ and ‘ life worthwhile ’ as measures of spiritual well-being in African palliative care : a mixed-methods study

I. Higginson, L. Gwyther, R. Harding, 2013 .

Quality of life among patients receiving palliative care in South Africa and Uganda: a multi-centred study

I. Higginson, L. Gwyther, R. Harding, 2011, Health and quality of life outcomes.

Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations

I. Higginson, D. Yi, C. Evans, 2021, BMC Geriatrics.

Evaluation of a short-term group intervention for informal carers of patients attending a home palliative care service.

I. Higginson, V. Robinson, N. Donaldson, 2004, Journal of pain and symptom management.

An Evaluation of Systematic Reviews of Palliative Care Services

A. Edwards, A. Cook, I. Finlay, 2002, Journal of palliative care.

Do hospital-based palliative teams improve care for patients or families at the end of life?

A. Edwards, A. Cook, I. Finlay, 2002, Journal of pain and symptom management.

Pain experienced by lung cancer patients: a review of prevalence, causes and pathophysiology.

I. Higginson, Jean Potter, 2004, Lung cancer.

Symptom prevalence and quality of life of patients with end-stage liver disease: A systematic review and meta-analysis

I. Higginson, N. Hepgul, Jen-Kuei Peng, 2018, Palliative medicine.

Accuracy of prognosis estimates by four palliative care teams: a prospective cohort study

I. Higginson, M. Costantini, 2002, BMC palliative care.

The prevalence of symptoms in end-stage renal disease: a systematic review.

Julia Addington-Hall, I. Higginson, J. Addington-hall, 2007, Advances in chronic kidney disease.

Symptoms in the month before death for stage 5 chronic kidney disease patients managed without dialysis.

I. Higginson, P. Donohoe, J. Addington-hall, 2010, Journal of pain and symptom management.

Cachexia-anorexia syndrome in cancer patients

E. Bruera, I. Higginson, 1996 .

Challenges to conducting research with older people living in nursing homes

I. Higginson, S. Hall, S. Longhurst, 2009, BMC geriatrics.

What factors influence emergency department visits by patients with cancer at the end of life? Analysis of a 124,030 patient cohort

I. Higginson, L. Henson, W. Gao, 2018, Palliative medicine.

Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow-up

I. Higginson, R. Burman, E. Silber, 2008, BMC palliative care.

Study protocol: delayed intervention randomised controlled trial within the Medical Research Council (MRC) Framework to assess the effectiveness of a new palliative care service

Rachel Burman, I. Higginson, R. Burman, 2006, BMC palliative care.

Expert opinion on detecting and treating depression in palliative care: A Delphi study

M. Hotopf, I. Higginson, A. Price, 2011, BMC palliative care.

The development of evidence-based European guidelines on the management of depression in palliative cancer care.

M. Hotopf, I. Higginson, A. Price, 2011, European journal of cancer.

How many people will need palliative care in 2040? Past trends, future projections and implications for services

I. Higginson, B. Gomes, C. Evans, 2017, BMC Medicine.

The randomized fast-track trial in palliative care: Role, utility and ethics in the evaluation of interventions in palliative care?

I. Higginson, S. Booth, 2011, Palliative medicine.

Holistic services for people with advanced disease and chronic or refractory breathlessness: a mixed-methods evidence synthesis

W. Man, I. Higginson, M. Farquhar, 2019, Health Services and Delivery Research.

Measurement of breathlessness in advanced disease: a systematic review.

I. Higginson, M. Farquhar, M. Gysels, 2007, Respiratory medicine.

Textbook of Palliative Medicine and Supportive Care

E. Bruera, I. Higginson, T. Morita, 2015 .

UvA-DARE ( Digital Academic Repository ) Is the qualitative research interview an acceptable medium for research with palliative care patients and carers ?

Marjolein Gysels, I. Higginson, M. Gysels, 2018 .

MANAGING BEREAVEMENT IN THE CLASSROOM: A CONSPIRACY OF SILENCE?

K. Lowton, I. Higginson, 2003, Death studies.

Early bereavement: what factors influence children's responses to death?

K. Lowton, I. Higginson, 2002 .

Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study

I. Higginson, B. Gomes, P. McCrone, 2010, BMC Cancer.

Electroacupuncture as an adjunctive treatment to control neuropathic pain in patients with cancer.

I. Higginson, O. Minton, 2007, Journal of pain and symptom management.

Integration of oncology and palliative care: a Lancet Oncology Commission.

P. Stone, E. Bruera, M. Hjermstad, 2018, The Lancet. Oncology.

Health Status and Service Needs of Male Inmates Seriously Ill With HIV/AIDS at Two Large Urban Jails

I. Higginson, D. Karus, V. Raveis, 2007, American journal of men's health.

Palliative care in sub-Saharan Africa

I. Higginson, R. Harding, 2005, The Lancet.

Change in multidimensional problems and quality of life over three months after HIV diagnosis: a multicentre longitudinal study in Kenya and Uganda

I. Higginson, R. Harding, V. Simms, 2019, BMC Infectious Diseases.

Multidimensional Patient-Reported Problems within Two Weeks of HIV Diagnosis in East Africa: A Multicentre Observational Study

P. Fayers, I. Higginson, R. Harding, 2013, PloS one.

Psychological distress in cancer from survivorship to end of life care: prevalence, associated factors and clinical implications.

M. Bennett, I. Higginson, S. Murray, 2010, European journal of cancer.

Opioid prescribing for cancer pain during the last 3 months of life: associated factors and 9-year trends in a nationwide United Kingdom cohort study.

I. Higginson, W. Gao, 2012, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Phase I Cancer Trials and Palliative Care: Antagonism, Irrelevance, or Synergy?

I. Higginson, F. Strasser, S. Hurst, 2016, Journal of pain and symptom management.

Psychological, social and spiritual distress at the end of life in heart failure patients

I. Higginson, R. Harding, L. Selman, 2007, Current opinion in supportive and palliative care.

Benzodiazepines for the relief of breathlessness in advanced malignant and non-malignant diseases in adults.

I. Higginson, R. Harding, C. Bausewein, 2016, The Cochrane database of systematic reviews.

Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis

I. Higginson, J. Verne, M. Maddocks, 2019, PLoS medicine.

Preparedness and Capacity of Indian Palliative Care Services to Respond to the COVID-19 Pandemic: An Online Rapid Assessment Survey

I. Higginson, M. Costantini, M. Ekstrand, 2021, Indian journal of palliative care.

Antidepressants for the treatment of depression in neurological disorders: a systematic review and meta-analysis of randomised controlled trials

M. Hotopf, I. Higginson, A. Evans, 2011, Journal of Neurology, Neurosurgery & Psychiatry.

‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

I. Higginson, L. Fraser, M. Maddocks, 2021, Palliative medicine.

Managing the supportive care needs of those affected by COVID-19

Miriam J. Johnson, S. Birring, M. Kreuter, 2020, European Respiratory Journal.

What Is the Evidence That Palliative Care Teams Improve Outcomes for Cancer Patients and Their Families?

I. Higginson, C. Evans, 2010, Cancer journal.

Holistic models for end of life care: Establishing the place of culture

I. Higginson, R. Harding, M. Gysels, 2014 .

A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease.

I. Higginson, Irene J Higginson, Joao Paulo Solano, 2006, Journal of pain and symptom management.

Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review

I. Higginson, R. Burman, D. Gruenewald, 2004, Multiple sclerosis.

Patterns and predictors of place of cancer death for the oldest old

I. Higginson, Anna Lock, 2005, BMC palliative care.

Palliative cancer care: an epidemiologic study.

Isaak Hatami, G. Becker, M. Olschewski, 2011, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness

I. Higginson, A. Richardson, M. Gysels, 2004, Supportive Care in Cancer.

Psychosocial issues in palliative care: the patient, the family, and the process and outcome of care.

I. Higginson, M. Vachon, L. Kristjanson, 1995, Journal of pain and symptom management.

Specialist Palliative Care is More Than Drugs: A Retrospective Study of ILD Patients

S. Birring, I. Higginson, A. Wells, 2011, Lung.

An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial.

I. Higginson, C. Jolley, P. McCrone, 2014, The Lancet. Respiratory medicine.

The development and validation of the King's Sarcoidosis Questionnaire for the assessment of health status

S. Birring, I. Higginson, A. Wells, 2012, Thorax.

Antidepressants for depression in physically ill people.

Alison Evans, Matthew Hotopf, M. Hotopf, 2010, The Cochrane database of systematic reviews.

What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death

I. Higginson, J. Verne, B. Gomes, 2017, Palliative medicine.

End-of-life care—what do cancer patients want?

I. Higginson, B. Gomes, Shaheen A. Khan, 2014, Nature Reviews Clinical Oncology.

Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)

R. Morrison, I. Higginson, C. Normand, 2020, BMC Medicine.

Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers

Richard Harding, I. Higginson, R. Harding, 2014, Palliative medicine.

Psychological as well as illness factors influence acceptance of non-invasive ventilation (NIV) and gastrostomy in amyotrophic lateral sclerosis (ALS): A prospective population study

L. Goldstein, S. Landau, A. Al-Chalabi, 2014, Amyotrophic lateral sclerosis & frontotemporal degeneration.

Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010

I. Higginson, C. Evans, S. Hall, 2014, PLoS medicine.

Understanding what matters most to people with multiple myeloma: a qualitative study of views on quality of life

T. R. Osborne, I. Higginson, R. Siegert, 2014, BMC Cancer.

Changing Patterns in Place of Cancer Death in England: A Population-Based Study

I. Higginson, J. Verne, M. Glickman, 2013, PLoS medicine.

Symptoms and anxiety predict declining health-related quality of life in multiple myeloma: A prospective, multi-centre longitudinal study

I. Higginson, R. Siegert, C. Ramsenthaler, 2019, Palliative medicine.

The impact of disease-related symptoms and palliative care concerns on health-related quality of life in multiple myeloma: a multi-centre study

T. R. Osborne, I. Higginson, R. Siegert, 2016, BMC Cancer.

How many people need palliative care? A study developing and comparing methods for population-based estimates

I. Higginson, J. Verne, C. Bausewein, 2014, Palliative medicine.

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.

D. Haugen, G. Albers, L. Deliens, 2012, Annals of oncology : official journal of the European Society for Medical Oncology.

The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions

I. Higginson, B. Gomes, R. Harding, 2019, The Lancet. Global health.

How integrated are neurology and palliative care services? Results of a multicentre mapping exercise

A. Al-Chalabi, K. Chaudhuri, I. Higginson, 2016, BMC Neurology.

Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries

L. Deliens, I. Higginson, B. Gomes, 2014, Palliative medicine.

Mirtazapine for chronic breathlessness? A review of mechanistic insights and therapeutic potential

I. Higginson, M. Maddocks, C. Jolley, 2018, Expert review of respiratory medicine.

Bioelectrical impedance phase angle relates to function, disease severity and prognosis in stable chronic obstructive pulmonary disease.

Wei Gao, S. Kon, S. Jones, 2015, Clinical nutrition.

Palliative care in terminal illness

I. Higginson, J. Hanratty, 1994 .

Current and future needs for hospice care: an evidence-based report

I. Higginson, N. Calanzani, Barbara Oliveira Gomes Da Silva, 2013 .

Current and future needs for hospice care : an evidence-based report HELP THE HOSPICES COMMISSION into the future of hospice care

I. Higginson, B. Gomes, N. Calanzani, 2013 .

Current and future needs for hospice care

I. Higginson, B. Gomes, N. Calanzani, 2013 .

A Multi-Professional Short-Term Group Intervention for Informal Caregivers of Patients Using a Home Palliative Care Service

I. Higginson, R. Harding, A. Pearce, 2002, Journal of palliative care.

Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers

I. Higginson, B. Gomes, M. Gysels, 2017, BMJ Supportive & Palliative Care.

Hospital-based specialist palliative care compared with usual care for adults with advanced illness and their caregivers: a systematic review

I. Higginson, M. Costantini, C. Todd, 2021 .

The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers

I. Higginson, M. Costantini, C. Todd, 2016 .

Experience of persistent psychological symptoms and perceived stigma among people with HIV on antiretroviral therapy (ART): a systematic review.

I. Higginson, R. Harding, Keira Lowther, 2014, International journal of nursing studies.

The MVQOLI successfully captured quality of life in African palliative care: a factor analysis.

I. Higginson, L. Gwyther, R. Siegert, 2011, Journal of clinical epidemiology.

Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review

I. Higginson, J. Hearn, Irene J Higginson, 1998, Palliative medicine.

Place of death and factors associated with hospital death in patients who have died from liver disease in England: a national population-based study.

I. Higginson, Jen-Kuei Peng, W. Gao, 2019, The lancet. Gastroenterology & hepatology.

The Role and Response of Palliative Care and Hospice Services in Epidemics and Pandemics: A Rapid Review to Inform Practice During the COVID-19 Pandemic

I. Higginson, R. Harding, K. Sleeman, 2020, Journal of Pain and Symptom Management.

The impact of and response to the COVID-19 pandemic on a hospital palliative care team

I. Higginson, S. Bajwah, K. Sleeman, 2021, Future Healthcare Journal.

Quality of care and evaluating services

Irene J. Higginson, I. Higginson, 1994 .

Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease.

S. Jones, W. Man, I. Higginson, 2016, The Cochrane database of systematic reviews.

Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease.

I. Higginson, M. Maddocks, A. Wilcock, 2013, The Cochrane database of systematic reviews.

Antidepressants for the treatment of depression in palliative care: systematic review and meta-analysis

M. Hotopf, I. Higginson, A. Evans, 2011, Palliative medicine.

Use of the palliative outcome scale in Argentina: a cross-cultural adaptation and validation study.

I. Higginson, R. Harding, J. Eisenchlas, 2008, Journal of pain and symptom management.

Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group.

I. Higginson, J. Hearn, I. Higginson, 1999, Quality in health care : QHC.

Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Palliative Care Core Audit Project Advisory Group.

I. Higginson, J. Hearn, I. Higginson, 1999, Quality in health care : QHC.

Perspectives of patients, family caregivers and health professionals on the use of outcome measures in palliative care and lessons for implementation: a multi-method qualitative study.

Jana Witt, I. Higginson, B. Daveson, 2018, Annals of palliative medicine.

Seeing is believing – healthcare professionals’ perceptions of a complex intervention to improve care towards the end of life: A qualitative interview study

I. Higginson, S. Shouls, A. Hopper, 2018, Palliative medicine.

Disability in activities of daily living among adults with cancer: A systematic review and meta-analysis.

I. Higginson, M. Maddocks, L. Fettes, 2017, Cancer treatment reviews.

Outcome measurement-a scoping review of the literature and future developments in palliative care clinical practice.

I. Higginson, P. Ferreira, P. Rodrigues, 2018, Annals of palliative medicine.

Communication, information and support for adults with malignant cerebral glioma : a systematic literature review

I. Higginson, E. Davies, 2002, Supportive Care in Cancer.

A Rasch Analysis of the Integrated Palliative Care Outcome Scale.

I. Higginson, R. Siegert, Margaret H. Sandham, 2019, Journal of pain and symptom management.

PRISMA: Share best practice in end-of-life cancer care research and measurement

I. Higginson, R. Harding, 2010 .

What is the evidence for mirtazapine in treating cancer-related symptomatology? A systematic review

I. Higginson, N. Lovell, Anna Johnston, 2019, Supportive Care in Cancer.

Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention

S. Birring, I. Higginson, A. Wells, 2015, Thorax.

Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): Brief report

I. Higginson, M. Farquhar, S. Booth, 2010, Palliative and Supportive Care.

Holistic services for people with advanced disease and chronic breathlessness: a systematic review and meta-analysis

W. Man, I. Higginson, M. Farquhar, 2018, Thorax.

Breathlessness during daily activity: The psychometric properties of the London Chest Activity of Daily Living Scale in patients with advanced disease and refractory breathlessness

I. Higginson, R. Garrod, C. Jolley, 2016, Palliative medicine.

To what extent do the NRS and CRQ capture change in patients' experience of breathlessness in advanced disease? Findings from a mixed-methods double blind randomised feasibility trial.

I. Higginson, M. Maddocks, S. Bajwah, 2019, Journal of pain and symptom management.

Control and Context Are Central for People With Advanced Illness Experiencing Breathlessness: A Systematic Review and Thematic Synthesis.

I. Higginson, M. Maddocks, S. Bajwah, 2019, Journal of pain and symptom management.

Variations in the cost of formal and informal health care for patients with advanced chronic disease and refractory breathlessness: A cross-sectional secondary analysis

I. Higginson, C. Jolley, D. Yi, 2017, Palliative medicine.

The clinical and cost effectiveness of a Breathlessness Intervention Service for patients with advanced non-malignant disease and their informal carers: mixed findings of a mixed method randomised controlled trial

I. Higginson, C. Todd, M. Farquhar, 2016, Trials.

Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial

I. Higginson, C. Todd, M. Farquhar, 2014, BMC Medicine.

Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study.

I. Higginson, R. Voltz, C. Bausewein, 2014, Journal of pain and symptom management.

Definition, categorization, and terminology of episodic breathlessness: consensus by an international Delphi survey.

I. Higginson, R. Voltz, C. Bausewein, 2014, Journal of pain and symptom management.

UvA-DARE ( Digital Academic Repository ) An integrated palliative and respiratory care for patients with advanced disease and refractory breathlessness : a randomised controlled trial

I. Higginson, C. Jolley, P. McCrone, 2014 .

Characterizing episodic breathlessness in patients with advanced disease.

I. Higginson, R. Voltz, C. Bausewein, 2013, Journal of palliative medicine.

Breathlessness – current and emerging mechanisms, measurement and management: A discussion from an European Association of Palliative Care workshop

Miriam J. Johnson, I. Higginson, D. Currow, 2013, Palliative medicine.

Chronic obstructive pulmonary disease 2 Palliative care and management of troublesome symptoms for people with chronic obstructive pulmonary disease

W. Man, I. Higginson, M. Maddocks, 2017 .

The etiology and management of intractable breathlessness in patients with advanced cancer: a systematic review of pharmacological therapy

I. Higginson, S. Moosavi, S. Booth, 2008, Nature Clinical Practice Oncology.

WITHDRAWN: Non-pharmacological interventions for breathlessness in advanced stages of malignant and non-malignant diseases.

I. Higginson, M. Gysels, C. Bausewein, 2013, The Cochrane database of systematic reviews.

Episodic breathlessness in patients with advanced disease: a systematic review.

H. Magnussen, I. Higginson, C. Ramsenthaler, 2013, Journal of pain and symptom management.

Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study

I. Higginson, M. Gysels, C. Bausewein, 2010, Palliative medicine.

Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review.

I. Higginson, R. Harding, K. Moens, 2014, Journal of pain and symptom management.

Use of mirtazapine in patients with chronic breathlessness: A case series

I. Higginson, M. Maddocks, A. Wilcock, 2018, Palliative medicine.

Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure

I. Higginson, M. Gysels, F. Malik, 2013, Palliative medicine.

Understanding breathlessness: cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer.

I. Higginson, M. Gysels, C. Bausewein, 2010, Journal of palliative medicine.

Experiences of breathlessness: A systematic review of the qualitative literature

I. Higginson, M. Gysels, C. Bausewein, 2007, Palliative and Supportive Care.

Developing A Breathlessness Intervention Service for Patients with Palliative and Supportive Care Needs, irrespective of Diagnosis

I. Higginson, M. Farquhar, S. Booth, 2011, Journal of palliative care.

Patients’ experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey

I. Higginson, C. Jolley, J. Moxham, 2015, Palliative medicine.

Episodic breathlessness: a clinically relevant and rising issue.

I. Higginson, R. Voltz, C. Bausewein, 2014, Annals of the American Thoracic Society.

Effectiveness of a hand-held fan for breathlessness: a randomised phase II trial

I. Higginson, M. Gysels, C. Bausewein, 2010, BMC palliative care.

Neuromuscular electrical stimulation to improve exercise capacity in patients with severe COPD: a randomised double-blind, placebo-controlled trial.

C. Nolan, M. Polkey, W. Man, 2016, The Lancet. Respiratory medicine.

Rasch analysis and impact factor methods both yield valid and comparable measures of health status in interstitial lung disease.

S. Birring, I. Higginson, A. Wells, 2015, Journal of Clinical Epidemiology.

The minimal important difference of the King's Brief Interstitial Lung Disease Questionnaire (K-BILD) and forced vital capacity in interstitial lung disease.

S. Birring, I. Higginson, A. Wells, 2013, Respiratory medicine.

Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature

I. Higginson, A. Wells, S. Bajwah, 2012, Thorax.

The development and validation of the King's Brief Interstitial Lung Disease (K-BILD) health status questionnaire

S. Birring, I. Higginson, S. Steer, 2012, Thorax.

assessment of health status Sarcoidosis Questionnaire for the The development and validation of the King ' s and Surinder S Birring

S. Birring, I. Higginson, A. Wells, 2012 .

How does a new breathlessness support service affect patients?

I. Higginson, C. Jolley, J. Moxham, 2015, European Respiratory Journal.

The feasibility of a single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease

I. Higginson, M. Farquhar, S. Booth, 2009, BMC palliative care.

Choosing care homes as the least preferred place to die: a cross-national survey of public preferences in seven European countries

L. Deliens, I. Higginson, B. Gomes, 2014, BMC Palliative Care.

‘Burden to others’ as a public concern in advanced cancer: a comparative survey in seven European countries

L. Deliens, I. Higginson, B. Gomes, 2013, BMC Cancer.

Breathlessness in cancer patients - implications, management and challenges.

I. Higginson, C. Bausewein, S. Booth, 2011, European journal of oncology nursing : the official journal of European Oncology Nursing Society.

Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique

I. Higginson, K. Eagar, C. Evans, 2019, Palliative medicine.

Pharmacological treatment of refractory breathlessness

I. Higginson, C. Bausewein, S. Moosavi, 2009, Expert review of respiratory medicine.

Randomised, double-blind, multicentre, mixed-methods, dose-escalation feasibility trial of mirtazapine for better treatment of severe breathlessness in advanced lung disease (BETTER-B feasibility)

Miriam J. Johnson, I. Higginson, D. Currow, 2020, Thorax.

Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale

I. Higginson, C. Ramsenthaler, C. Bausewein, 2015, Palliative medicine.

Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial

I. Higginson, C. Jolley, P. McCrone, 2012, BMC Pulmonary Medicine.

Study Protocol: Phase III single-blinded fast-track pragmatic randomised controlled trial of a complex intervention for breathlessness in advanced disease

I. Higginson, M. Farquhar, P. McCrone, 2011, Trials.

Changing health behaviour with rehabilitation in thoracic cancer: A systematic review and synthesis

I. Higginson, M. Maddocks, A. Wilcock, 2018, Psycho-oncology.

Measurement of dyspnoea in the clinical rather than the research setting

I. Higginson, C. Bausewein, S. Booth, 2008, Current opinion in supportive and palliative care.

Pharmacological and nonpharmacological interventions to improve symptom control, functional exercise capacity and quality of life in interstitial lung disease: an evidence synthesis

I. Higginson, A. Wells, M. Maddocks, 2020, ERJ Open Research.

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS)

I. Higginson, C. Ramsenthaler, C. Bausewein, 2019, Palliative medicine.

Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study.

I. Higginson, C. Evans, A. Bone, 2021, Public health.

Developing a model of short-term integrated palliative and supportive care for frail older people in community settings: perspectives of older people, carers and other key stakeholders

I. Higginson, M. Morgan, M. Maddocks, 2016, Age and ageing.

The need for palliative care in Ireland: a population-based estimate of palliative care using routine mortality data, inclusive of nonmalignant conditions.

I. Higginson, B. Daveson, F. Murtagh, 2015, Journal of pain and symptom management.

‘My body's falling apart.’ Understanding the experiences of patients with advanced multimorbidity to improve care: serial interviews with patients and carers

D. Munday, I. Higginson, S. Murray, 2014, BMJ Supportive & Palliative Care.

Mixed methods research in the development and evaluation of complex interventions in palliative and end-of-life care: report on the MORECare consensus exercise.

I. Higginson, C. Todd, M. Farquhar, 2013, Journal of palliative medicine.

Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study.

D. Munday, I. Higginson, S. Murray, 2013, The British journal of general practice : the journal of the Royal College of General Practitioners.

‘Best practice’ in developing and evaluating palliative and end-of-life care services: A meta-synthesis of research methods for the MORECare project

I. Higginson, C. Evans, R. Harding, 2013, Palliative medicine.

Trajectories of illness in stage 5 chronic kidney disease: a longitudinal study of patient symptoms and concerns in the last year of life.

Julia Addington-Hall, I. Higginson, N. Sheerin, 2011, Clinical journal of the American Society of Nephrology : CJASN.

Review: Delivering research in end-of-life care: problems, pitfalls and future priorities

M. Bennett, I. Higginson, E. Davies, 2010, Palliative medicine.

The effectiveness and cost-effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers ( Protocol )

I. Higginson, C. Todd, G. Grande, 2022 .

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study

I. Higginson, G. O'Gara, B. Daveson, 2018, Palliative medicine.

Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure

I. Higginson, G. O'Gara, B. Daveson, 2017, BMJ Supportive & Palliative Care.

Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help

I. Higginson, R. Harding, C. Bausewein, 2011, Health and quality of life outcomes.

The experience of using the SEIQoL-DW with patients with advanced chronic obstructive pulmonary disease (COPD): issues of process and outcome

I. Higginson, M. Farquhar, G. Ewing, 2010, Quality of Life Research.

Short-term integrated rehabilitation for people with newly diagnosed thoracic cancer: a multi-centre randomized controlled feasibility trial

I. Higginson, M. Maddocks, A. Wilcock, 2019, Clinical rehabilitation.

‘I'll continue as long as I can, and die when I can't help it’: a qualitative exploration of the views of end-of-life care by those affected by head and neck cancer (HNC)

I. Higginson, E. O'Sullivan, 2014, BMJ Supportive & Palliative Care.

The value of uncertainty in critical illness? An ethnographic study of patterns and conflicts in care and decision-making trajectories

I. Higginson, M. Costantini, R. Burman, 2015, BMC Anesthesiology.

Meeting the communication and information needs of chronic heart failure patients.

Richard Harding, I. Higginson, R. Harding, 2008, Journal of pain and symptom management.

I’ve had a good life, what’s left is a bonus: Factor analysis of the Mental Adjustment to Cancer Scale in a palliative care population

M. Hotopf, L. Goodwin, B. Monroe, 2014, Palliative medicine.

Predictors of non-remission of depression in a palliative care population

M. Hotopf, L. Goodwin, B. Monroe, 2011, BMJ Supportive & Palliative Care.

Palliative care-related self-report problems among cancer patients in East Africa: a two-country study

I. Higginson, Z. Ali, R. Harding, 2014, Supportive Care in Cancer.

Research into palliative care in sub-Saharan Africa.

I. Higginson, L. Gwyther, Z. Ali, 2013, The Lancet. Oncology.

The prevalence and burden of symptoms amongst cancer patients attending palliative care in two African countries.

I. Higginson, L. Gwyther, R. Harding, 2011, European journal of cancer.

Palliative care and the need for education - Do we know what makes a difference? A limited systematic review

I. Higginson, E. Bugge, 2006 .

End of life content in geriatric textbooks: what is the current situation?

I. Higginson, F. Malik, H. Wu, 2006, BMC palliative care.

Towards person-centred quality care for children with life-limiting and life-threatening illness: Self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study

I. Higginson, Z. Ali, L. Lohfeld, 2020, Palliative medicine.

Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes

M. Allsop, I. Higginson, R. Harding, 2018, The Patient - Patient-Centered Outcomes Research.

The gap between policy and practice: a systematic review of patient-centred care interventions in chronic heart failure

I. Higginson, G. O'Gara, B. Daveson, 2015, Heart Failure Reviews.

A Pan-European survey of public preferences and priorities for end of life care

L. Deliens, I. Higginson, B. Gomes, 2010 .

The changing demographics of inpatient hospice death: population-based, cross-sectional study in England, 1993–2012

I. Higginson, J. Verne, K. Sleeman, 2015, The Lancet.

Which patients with advanced respiratory disease die in hospital? A 14-year population-based study of trends and associated factors

I. Higginson, M. Costantini, M. Maddocks, 2017, BMC Medicine.

Symptom prevalence, severity and palliative care needs assessment using the Palliative Outcome Scale: A cross-sectional study of patients with Parkinson’s disease and related neurological conditions

K. Chaudhuri, I. Higginson, P. Leigh, 2013, Palliative medicine.

Phase II mixed methods’ feasibility cluster randomised controlled trial of a novel community-based enhanced care intervention to improve person-centred outcomes for people living with HIV in Ghana

I. Higginson, G. Ansa, R. Harding, 2020, AIDS care.

Research methods in palliative care.

E. Bruera, I. Higginson, S. Payne, 2007 .

Palliative Care in Acute Heart Failure

I. Higginson, T. McDonagh, J. Beattie, 2020, Current Heart Failure Reports.

Palliative care: views of patients and their families.

M McCarthy, I. Higginson, M. Mccarthy, 1990, BMJ.

Chest pain: communication of symptoms and history in a London emergency department.

D. Roter, I. Higginson, Steven A. Farmer, 2006, Patient education and counseling.

The real-world problem of care coordination

D. Munday, I. Higginson, S. Murray, 2014 .

Predictors of emergency department attendance by people with dementia in their last year of life: Retrospective cohort study using linked clinical and administrative data

R. Stewart, I. Higginson, G. Perera, 2018, Alzheimer's & Dementia.

"I will do it if it will help others:" motivations among patients taking part in qualitative studies in palliative care.

Marjolein Gysels, I. Higginson, M. Gysels, 2008, Journal of pain and symptom management.

Validation and clinical application of the german version of the palliative care outcome scale.

L. Radbruch, I. Higginson, G. Borasio, 2005, Journal of pain and symptom management.

Validity , reliability and responsiveness to change of the Italian palliative care outcome scale : A multicenter study of advanced cancer patients Cancer palliative care

G. Zaninetta, Elisa Rabitti, I. Higginson, 2016 .

Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions.

Richard Harding, Wei Gao, Joanna Murray, 2010, Journal of clinical epidemiology.

Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal.

I. Higginson, Pedro Lopes Ferreira, Pedro Pereira Rodrigues, 2021, Acta medica portuguesa.

Outcome measurement in palliative care: The Essentials

I. Higginson, C. Bausewein, B. Daveson, 2014 .

What influenced people with chronic or refractory breathlessness and advanced disease to take part and remain in a drug trial? A qualitative study

I. Higginson, M. Maddocks, S. Bajwah, 2020, Trials.

Invisible and intangible illness: a qualitative interview study of patients' experiences and understandings of conservatively managed end-stage kidney disease.

I. Higginson, K. Bristowe, F. Murtagh, 2019, Annals of palliative medicine.

Relationships between prolonged physical and social isolation during the COVID-19 pandemic, reduced physical activity and disability in activities of daily living among people with advanced respiratory disease

I. Higginson, M. Maddocks, J. Bayly, 2021, Chronic respiratory disease.

Leaky pipeline, gender bias, self-selection or all three? A quantitative analysis of gender balance at an international palliative care research conference

I. Higginson, J. Koffman, K. Sleeman, 2017, BMJ Supportive & Palliative Care.

Standards, Guidelines, and Quality Measures for Successful Specialty Palliative Care Integration Into Oncology: Current Approaches and Future Directions.

I. Higginson, D. Currow, D. Dudgeon, 2020, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Prescription patterns of analgesics in the last 3 months of life: a retrospective analysis of 10202 lung cancer patients

I. Higginson, M. Gulliford, W. Gao, 2011, British Journal of Cancer.

Public evidence before the House of Lords Select Committee on the Assisted Dying for the Terminally Ill Bill, 14 Sept. 2004

I. Higginson, J. Glover, P. Lewis, 2005 .

Appropriate methods to assess the effectiveness and efficacy of treatments or interventions to control cancer pain.

I. Higginson, C. Bausewein, 2004, Journal of palliative medicine.

Emergency department attendance by patients with cancer in their last month of life: a systematic review and meta-analysis.

I. Higginson, B. Daveson, J. Davies, 2015, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK

I. Higginson, R. Burman, E. Silber, 2014, Multiple sclerosis international.

Exploratory analyses of the Danish Palliative Care Trial (DanPaCT): a randomized trial of early specialized palliative care plus standard care versus standard care in advanced cancer patients

P. Fayers, M. Groenvold, I. Higginson, 2019, Supportive Care in Cancer.

Interventions for improving palliative care for older people living in nursing care homes.

I. Higginson, A. Kolliakou, S. Hall, 2011, The Cochrane database of systematic reviews.

Can professionals improve their assessments?

I. Higginson, 1998, Journal of pain and symptom management.

Audit in palliative care

I. Higginson, 1993 .

Research challenges in palliative and end of life care

I. Higginson, 2016, BMJ Supportive & Palliative Care.

Recommendations for managing missing data, attrition and response shift in palliative and end-of-life care research: Part of the MORECare research method guidance on statistical issues

Peter Fayers, Mark Pilling, Stephen J Walters, 2013, Palliative medicine.

The clinical epidemiology of depression in palliative care and the predictive value of somatic symptoms: Cross-sectional survey with four-week follow-up

M. Hotopf, B. Monroe, I. Higginson, 2011, Palliative medicine.

Psychological Services in Hospices in the UK and Republic of Ireland

M. Henderson, M. Hotopf, B. Monroe, 2006 .

A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial (DanPaCT) protocol

P. Fayers, M. Groenvold, M. Petersen, 2013, BMC Palliative Care.

The end of life: unknown and unplanned?

I. Higginson, A. Tsouros, E. Davies, 2007, European journal of public health.

Communication training for health professionals who care for patients with cancer: a systematic review of training methods

I. Higginson, A. Richardson, M. Gysels, 2005, Supportive Care in Cancer.

Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care

I. Higginson, B. Gomes, N. Calanzani, 2016, PloS one.

Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study

I. Higginson, B. Gomes, N. Calanzani, 2015, BMC Medicine.

Dying at home – is it better: A narrative appraisal of the state of the science

I. Higginson, B. Gomes, N. Calanzani, 2013, Palliative medicine.

It would be NICE to have more evidence?

I. Higginson, 2004, Palliative medicine.

Patterns of dignity-related distress at the end of life: A cross-sectional study of patients with advanced cancer and care home residents

I. Higginson, S. Hall, J. Davies, 2014, Palliative medicine.

Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer

I. Higginson, M. Morgan, J. Koffman, 2009, Journal of Medical Ethics.

The stability of care preferences following acute illness: a mixed methods prospective cohort study of frail older people

I. Higginson, C. Nicholson, A. Bone, 2020, BMC Geriatrics.

Results of a transparent expert consultation on patient and public involvement in palliative care research

I. Higginson, C. Evans, B. Daveson, 2015, Palliative medicine.

Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: A randomised controlled single-blind mixed method trial.

I. Higginson, B. Gomes, M. Morgan, 2021, International journal of nursing studies.

Symptoms and Quality of Life in Late Stage Parkinson Syndromes: A Longitudinal Community Study of Predictive Factors

K. Chaudhuri, I. Higginson, P. Leigh, 2012, PloS one.

Organization and governance

E. Bruera, I. Higginson, C. Ripamonti, 2009 .

Symptom assessment in palliative care: a need for international collaboration.

Dagny Faksvåg Haugen, Peter Fayers, Augusto Caraceni, 2008, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Cancer Pain : Assessment and Management

I. Higginson, J. Hearn, 2003 .

Cost–effectiveness of lenalidomide in multiple myeloma

I. Higginson, S. Schey, 2010, Expert review of pharmacoeconomics & outcomes research.

Caring for a person in advanced illness and suffering from breathlessness at home: Threats and resources

I. Higginson, M. Gysels, 2009, Palliative and Supportive Care.

Local preferences and place of death in regions within England

I. Higginson, N. Calanzani, Barbara Oliveira Gomes Da Silva, 2011 .

Patient and carer experiences of clinical uncertainty and deterioration, in the face of limited reversibility: A comparative observational study of the AMBER care bundle

I. Higginson, S. Shouls, A. Hopper, 2015, Palliative medicine.

Patterns of emergency department attendance among older people in the last three months of life and factors associated with frequent attendance: a mortality follow-back survey.

I. Higginson, C. Evans, A. Bone, 2019, Age and ageing.

Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature.

I. Higginson, R. Pool, R. Harding, 2012, Journal of palliative medicine.

A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance.

I. Higginson, V. Robinson, J. Koffman, 2017, Journal of pain and symptom management.

Constructing understandings of end-of-life care in Europe: a qualitative study involving cognitive interviewing with implications for cross-national surveys.

I. Higginson, R. Harding, C. Bausewein, 2011, Journal of palliative medicine.

Priorities and preferences for end of life care in England, Wales and Scotland.

I. Higginson, 2003 .

A pan-European survey of research in end-of-life cancer care

S. Kaasa, D. Haugen, I. Higginson, 2010, Supportive Care in Cancer.

Learning from the public: citizens describe the need to improve end-of-life care access, provision and recognition across Europe

G. Albers, L. Deliens, I. Higginson, 2013, European journal of public health.

Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained

I. Higginson, M. Costantini, R. Burman, 2011, Postgraduate Medical Journal.

Improving Generalist End of Life Care

I. Higginson, S. Murray, S. Barclay, 2008 .

The changing demographics of inpatient hospice death: Population-based cross-sectional study in England, 1993–2012

I. Higginson, J. Verne, K. Sleeman, 2016, Palliative medicine.

Evidence on home palliative care: Charting past, present, and future at the Cicely Saunders Institute – WHO Collaborating Centre for Palliative Care, Policy and Rehabilitation

I. Higginson, B. Gomes, 2013 .

A tale of two cities: factors affecting place of cancer death in London and New York.

I. Higginson, Sandra L. Decker, 2007, European journal of public health.

Development of a caregiver-reported measure to support systematic assessment of people with dementia in long-term care: The Integrated Palliative care Outcome Scale for Dementia

I. Higginson, C. Evans, B. Daveson, 2017, Palliative medicine.

How can a measure improve assessment and management of symptoms and concerns for people with dementia in care homes? A mixed-methods feasibility and process evaluation of IPOS-Dem

I. Higginson, C. Evans, B. Daveson, 2018, PloS one.

A new approach to eliciting patients' preferences for palliative day care: the choice experiment method.

I. Higginson, D. Goodwin, C. Normand, 2005, Journal of pain and symptom management.

Palliative care needs of heart failure patients in China: putting people first

I. Higginson, R. Harding, P. Guo, 2017, Current opinion in supportive and palliative care.

Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical uncertainty

I. Higginson, M. Morgan, R. Burman, 2013, BMC Medicine.

Reversal of English trend towards hospital death in dementia: a population-based study of place of death and associated individual and regional factors, 2001–2010

I. Higginson, J. Verne, K. Sleeman, 2014, BMC Neurology.

Public preferences and priorities for end-of-life care in Kenya: a population-based street survey

I. Higginson, B. Gomes, R. Harding, 2014, BMC Palliative Care.

Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy

I. Higginson, R. Pool, R. Harding, 2011, BMC health services research.

Home or Hospital? Choices at the end of Life

I. Higginson, B. Gomes, 2004 .

International trends in circumstances of death and dying among older people

L. Deliens, I. Higginson, B. Gomes, 2011 .

The level of need for palliative care: a systematic review of the literature

Chris Salisbury, Nick Bosanquet, Suzanne Kite, 2000, Palliative medicine.

Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews

M. Hotopf, P. Fayers, I. Higginson, 2013, BMC Medicine.

Health Services Research

I. Higginson, M. Costantini, 2009 .

Outcome measures in palliative care for advanced cancer patients: a review.

I. Higginson, J. Hearn, I. Higginson, 1997, Journal of public health medicine.

Patient reports of symptoms and their treatment at three palliative care projects servicing individuals with HIV/AIDS.

I. Higginson, K. Marconi, D. Karus, 2005, Journal of pain and symptom management.

Fit to care? A comparison of informal caregivers of first-generation Black Caribbeans and White dependants with advanced progressive disease in the UK.

I. Higginson, J. Koffman, 2003, Health & social care in the community.

Where do cancer patients die? Ten-year trends in the place of death of cancer patients in England

I. Higginson, P. Astin, Susan Dolan Imperial, 1998, Palliative medicine.

Population-based palliative care planning in Ireland: how many people will live and die with serious illness to 2046?

I. Higginson, C. Normand, R. Kenny, 2019, HRB open research.

Finding a ‘new normal’ following acute illness: A qualitative study of influences on frail older people’s care preferences

I. Higginson, C. Nicholson, F. Murtagh, 2018, Palliative medicine.

Assessing quality-of-life in older people in care homes.

I. Higginson, S. Hall, R. Dodd, 2011, Age and ageing.

Integrating palliative care into neurology services: what do the professionals say?

I. Higginson, L. V. van Vliet, N. Hepgul, 2017, BMJ Supportive & Palliative Care.

Intention-to-treat analyses for randomised controlled trials in hospice/palliative care: the case for analyses to be of people exposed to the intervention.

Miriam J. Johnson, S. Kaasa, I. Higginson, 2019, Journal of pain and symptom management.

Disability in basic activities of daily living is associated with symptom burden in older people with advanced cancer or chronic obstructive pulmonary disease: A secondary data analysis.

I. Higginson, M. Maddocks, A. Bone, 2020, Journal of pain and symptom management.

Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service

I. Higginson, R. Burman, E. Silber, 2010, Multiple sclerosis.

Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom.

I. Higginson, R. Pool, R. Harding, 2012, Journal of pain and symptom management.

Public health and palliative care.

I. Higginson, J. Koffman, 2005, Clinics in geriatric medicine.

Reducing hospital beds for patients with advanced cancer

I. Higginson, D. Webb, L. Lessof, 1994, The Lancet.

Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom.

I. Higginson, J. Koffman, 2004, Journal of palliative medicine.

Does Ethnicity Affect Where People with Cancer Die? A Population-Based 10 Year Study

I. Higginson, J. Koffman, J. Davies, 2014, PloS one.

Does ethnicity matter? Bereavement outcomes in two ethnic groups living in the United Kingdom

M. Hotopf, I. Higginson, N. Donaldson, 2005, Palliative and Supportive Care.

I. Higginson, L. Gwyther, R. Harding, 2016 .

Outcomes 'out of africa': the selection and implementation of outcome measures for palliative care in Africa

I. Higginson, R. Harding, C. Bausewein, 2012, BMC Palliative Care.

Assessing the Effectiveness and Acceptability of Interprofessional Palliative Care Education

I. Higginson, J. Koffman, 2005, Journal of palliative care.

Palliative day care: what does it cost to run a centre and does attendance affect use of other services?

I. Higginson, D. Goodwin, C. Normand, 2003, Palliative medicine.

Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis

I. Higginson, F. Murtagh, A. Bone, 2018, Journal of the American Geriatrics Society.

Does a social model of hospice day care affect advanced cancer patients’ use of other health and social services? A prospective quasi-experimental trial

I. Higginson, C. Normand, B. Amesbury, 2010, Supportive Care in Cancer.

Effectiveness of palliative day care in improving pain, symptom control, and quality of life.

I. Higginson, D. Goodwin, C. Normand, 2003, Journal of pain and symptom management.

What is palliative day care?

I. Higginson, D. Goodwin, C. Normand, 2002, Supportive Care in Cancer.

Assessing structure, process and outcome in palliative day care: a pilot study for a multicentre trial.

I. Higginson, C. Normand, H. Douglas, 2000, Health & social care in the community.

The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop

I. Higginson, C. Todd, G. Grande, 2013, Journal of pain and symptom management.

A comparison of two scoring methods for the King's brief interstitial lung disease questionnaire

S. Birring, I. Higginson, A. Wells, 2015 .

Palliative care: no longer a luxury but a necessity?

I. Higginson, K. Foley, 2009, Journal of pain and symptom management.

Evaluation of palliative care: steps to quality assurance?

I. Higginson, M. Mccarthy, 1989 .

Place of death, and its relation with underlying cause of death, in Parkinson’s disease, motor neurone disease, and multiple sclerosis: A population-based study

I. Higginson, J. Verne, E. Silber, 2013, Palliative medicine.

[What influences end-of-life decisions? Results of a representative German survey].

I. Higginson, B. Gomes, C. Bausewein, 2015, Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz.

Systematic review of specialist palliative day-care for adults with cancer

Irene J. Higginson, Elizabeth Davies, I. Higginson, 2005, Supportive Care in Cancer.

Clinical audit by a palliative care team

I. Higginson, M. Mccarthy, 1991 .

The PRISMA Symposium 4: how should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings.

I. Higginson, R. Harding, B. Daveson, 2011, Journal of pain and symptom management.

Palliative care: Based on neither diagnosis nor prognosis, but patient and family need. Commentary on Chattoo and Atkin.

I. Higginson, J. Beattie, F. Murtagh, 2009, Social science & medicine.

What is the potential for the use of clinical outcome measures to be computerised? Findings from a qualitative research study.

I. Higginson, M. Dunckley, R. Hughes, 2004, International journal of health care quality assurance incorporating Leadership in health services.

Effectiveness ofcareforolder people: areview

I. Higginson, Christina RVictor, 1994 .

A Comparison of Four Outcome Measures of Terminal Care

Mark I. McCarthy, Irene J. Higginson, Angela Wade, 1988 .

Attitudes to timeliness of death and euthanasia among first generation black Caribbean and white patients and their families living in the United Kingdom.

I. Higginson, J. Koffman, 2003, Journal of palliative medicine.

Public health and palliative care in 2015.

I. Higginson, M. Dzingina, 2015, Clinics in geriatric medicine.

What are the perceived needs and challenges of informal caregivers in home cancer palliative care? Qualitative data to construct a feasible psycho-educational intervention

I. Higginson, V. Robinson, E. Epiphaniou, 2012, Supportive Care in Cancer.

Palliative day care: what do services do? Palliative Day Care Project Group.

I. Higginson, J. Hearn, A. Naysmith, 2000, Palliative medicine.

What is palliative day care? A patient perspective of five UK services.

I. Higginson, D. Goodwin, C. Normand, 2002, Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer.

Culture is a priority for research in end-of-life care in Europe: a research agenda.

C. Gastmans, I. Higginson, X. Gómez-Batiste, 2012, Journal of pain and symptom management.

How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery

I. Higginson, S. Murray, C. Evans, 2021, BMJ Open.

Place of death and other factors associated with unnatural mortality in patients with serious mental disorders: population-based retrospective cohort study

I. Higginson, F. Gaughran, T. Whitburn, 2019, BJPsych Open.

Interactive technologies and videotapes for patient education in cancer care: systematic review and meta-analysis of randomised trials

Irene J. Higginson, Marjolein Gysels, I. Higginson, 2006, Supportive Care in Cancer.

Development and validation of the Myeloma Patient Outcome Scale (MyPOS): A quality of life questionnaire for use in the clinical care of people with multiple myeloma

T. R. Osborne, I. Higginson, R. Siegert, 2014 .

Needs assessments in palliative care: an appraisal of definitions and approaches used.

I. Higginson, R. Harding, J. Koffman, 2007, Journal of pain and symptom management.

Valuing Attributes of Home Palliative Care With Service Users: A Pilot Discrete Choice Experiment.

I. Higginson, B. Gomes, P. Ferreira, 2017, Journal of pain and symptom management.

Developing an integrated rehabilitation model for thoracic cancer services: views of patients, informal carers and clinicians

I. Higginson, M. Maddocks, A. Wilcock, 2018, Pilot and Feasibility Studies.

Dying at Home

I. Higginson, E. Chai, N. Calanzani, 2014 .

MRC guidance on developing and evaluating complex interventions: Application to research on palliative and end of life care

I. Higginson, J. Manthorpe, C. Evans, 2013 .

"I know he controls cancer": the meanings of religion among Black Caribbean and White British patients with advanced cancer.

I. Higginson, M. Morgan, J. Koffman, 2008, Social science & medicine.

Early specialised palliative care: interventions, symptoms, problems

P. Fayers, M. Groenvold, I. Higginson, 2020, BMJ Supportive & Palliative Care.

Geographical and temporal Understanding In place of Death in England (1984–2010): analysis of trends and associated factors to improve end-of-life Care (GUIDE_Care) – primary research

I. Higginson, J. Verne, E. Gordon, 2014 .

Prevalence, burden, and correlates of physical and psychological symptoms among HIV palliative care patients in sub-Saharan Africa: an international multicenter study.

I. Higginson, L. Gwyther, R. Harding, 2012, Journal of pain and symptom management.

Bereaved relatives’ views about participating in cancer research

I. Higginson, B. Gomes, P. McCrone, 2012, Palliative medicine.

The detection of depression in palliative care

I. Higginson, J. Loge, E. Wasteson, 2009, Current opinion in supportive and palliative care.

Loss and change: experiences of people severely affected by multiple sclerosis

I. Higginson, R. Burman, E. Silber, 2007, Palliative medicine.

Illness perceptions, adjustment to illness, and depression in a palliative care population.

M. Hotopf, L. Goodwin, B. Monroe, 2012, Journal of pain and symptom management.

The place where they have to take you in or the place where you prefer to be?

I. Higginson, 2009, Journal of palliative medicine.

Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions

K. Chaudhuri, I. Higginson, A. Wilcock, 2016, PloS one.

Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial.

Paul McCrone, Rachel Burman, I. Higginson, 2009, Journal of pain and symptom management.

A multicenter evaluation of cancer pain control by palliative care teams.

I. Higginson, J. Hearn, Irene J. Higginson, 1997, Journal of pain and symptom management.

Progression, Symptoms and Psychosocial Concerns among Those Severely Affected by Multiple Sclerosis: A Mixed-Methods Cross-Sectional Study of Black Caribbean and White British People

I. Higginson, R. Burman, E. Silber, 2013, PloS one.

Symptom dimensions in people affected by long-term neurological conditions: a factor analysis of a patient-centred palliative care outcome symptom scale

I. Higginson, N. Hepgul, R. Saha, 2019, Scientific Reports.

Translation and cognitive testing of the Italian Integrated Palliative Outcome Scale (IPOS) among patients and healthcare professionals

Elisa Rabitti, I. Higginson, M. Costantini, 2019, PloS one.

A psychometric validation of two brief measures to assess palliative need in patients severely affected by multiple sclerosis.

I. Higginson, K. Sleeman, 2013, Journal of pain and symptom management.

Factors associated with aggressive end of life cancer care

I. Higginson, B. Gomes, B. Daveson, 2015, Supportive Care in Cancer.

Improving the assessment of quality of life in the clinical care of myeloma patients: the development and validation of the Myeloma Patient Outcome Scale (MyPOS)

T. R. Osborne, I. Higginson, R. Siegert, 2015, BMC Cancer.

Effect of participation in a randomised controlled trial of an integrated palliative care intervention on HIV-associated stigma

I. Higginson, Z. Ali, R. Harding, 2018, AIDS care.

Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods

I. Higginson, R. Siegert, C. Ramsenthaler, 2017, Quality of Life Research.

Development of a Patient-Reported Palliative Care-Specific Health Classification System: The POS-E

I. Higginson, P. McCrone, M. Dzingina, 2017, The Patient - Patient-Centered Outcomes Research.

Screening for depression in advanced disease: psychometric properties, sensitivity, and specificity of two items of the Palliative Care Outcome Scale (POS).

I. Higginson, R. Harding, C. Bausewein, 2015, Journal of pain and symptom management.

The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT.

A. Pickles, I. Higginson, H. Johnson, 2019, Health technology assessment.

Palliative Care Outcome Scale

I. Higginson, J. Hearn, 2017 .

Quality criteria valuable with slight modification.

I. Higginson, 2007, Journal of clinical epidemiology.

The value of cognitive interviewing techniques in palliative care research

I. Higginson, J. Addington-hall, F. Murtagh, 2007, Palliative medicine.

Active ingredients of a person-centred intervention for people on HIV treatment: analysis of mixed methods trial data

I. Higginson, Z. Ali, R. Harding, 2018, BMC Infectious Diseases.

Trajectories of disability in activities of daily living in advanced cancer or respiratory disease: a systematic review

I. Higginson, M. Maddocks, S. Ashford, 2020, Disability and rehabilitation.

The PRISMA Symposium 1: outcome tool use. Disharmony in European outcomes research for palliative and advanced disease care: too many tools in practice.

I. Higginson, R. Harding, C. Bausewein, 2011, Journal of pain and symptom management.

The views and experiences of older people with conservatively managed renal failure: a qualitative study of communication, information and decision-making

I. Higginson, K. Bristowe, F. Murtagh, 2019, BMC Nephrology.

Fear of dying in an ethnically diverse society: cross-sectional studies of people aged 65+ in Britain

S. Iliffe, A. Bowling, I. Higginson, 2010, Postgraduate Medical Journal.

A Population-Based Conceptual Framework for Evaluating the Role of Healthcare Services in Place of Death

Wei Gao, Myfanwy Morgan, I. Higginson, 2018, Healthcare.

Coordination of end-of-life care for patients with lung cancer and those with advanced COPD: are there transferable lessons? A longitudinal qualitative study

I. Higginson, S. Murray, R. Harding, 2014, Primary care respiratory journal : journal of the General Practice Airways Group.

How common are palliative care needs among older people who die in the emergency department?

I. Higginson, B. Gomes, E. Glucksman, 2010, Emergency Medicine Journal.

What Are the Predictors of Health-related Quality of Life and Cost in Multiple Myeloma? A Meta-analysis

I. Higginson, R. Siegert, C. Ramsenthaler, 2014 .

Do we need palliative care audit in developing countries?

E. Bruera, I. Higginson, 2002, Palliative medicine.

Characteristics and mortality rates among patients requiring intermediate care: a national cohort study using linked databases

Sube Banerjee, U. Dalrymple, I. Higginson, 2021, BMC Medicine.

Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review

I. Higginson, C. Evans, B. Daveson, 2016, BMC Medicine.

Feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: A phase II randomized controlled trial of a brief palliative care psychotherapy

I. Higginson, S. Hall, P. Speck, 2012, Palliative medicine.

Advancing palliative care by learning.

I. Higginson, 2013, Journal of palliative medicine.

MoreCare research methods guidance development:recommendations for using mixed methods to develop and evaluate complex interventions in palliative and end of life care

I. Higginson, C. Todd, M. Farquhar, 2012 .

MORECare research methods guidance development: recommendations for health economic evaluations in palliative and end of life care research

I. Higginson, C. Todd, G. Grande, 2012 .

Children and young people who die from cancer: epidemiology and place of death in England (1995-9)

I. Higginson, M. Thompson, 2003, BMJ : British Medical Journal.

The Myeloma Patient Outcome Scale is the first quality of life tool developed for clinical use and validated in patients with follicular lymphoma

T. R. Osborne, I. Higginson, C. Ramsenthaler, 2017, European journal of haematology.

Capturing activity, costs, and outcomes: The challenges to be overcome for successful economic evaluation in palliative care

I. Higginson, N. Calanzani, C. Bausewein, 2013 .

Quality of life assessment and outcome of palliative care.

E. Paci, C. Brunelli, M. Gallucci, 2001, Journal of pain and symptom management.

Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people

I. Higginson, R. Burman, E. Silber, 2015, BMC Palliative Care.

Hospice and Palliative Care

I. Higginson, B. Gomes, E. Davies, 2008 .

Discussion of Quality and Audit in Health

I. Higginson, R. Hughes, 2006, Journal of health & social policy.

"It makes you feel that somebody is out there caring": a qualitative study of intervention and control participants' perceptions of the benefits of taking part in an evaluation of dignity therapy for people with advanced cancer.

I. Higginson, S. Hall, P. Speck, 2013, Journal of pain and symptom management.

“I’ll be in a safe place”: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

I. Higginson, M. Morgan, B. Daveson, 2016, BMJ Supportive & Palliative Care.

The Effective Management of Cancer Pain

I. Higginson, P. Edmonds, 2000 .

How common are palliative care needs among older people who die in the emergency department?

I. Higginson, B. Gomes, E. Glucksman, 2011, BMJ Supportive & Palliative Care.

Benzodiazepines for the relief of breathlessness in malignant and advanced non‐malignant diseases in adults

I. Higginson, R. Harding, C. Bausewein, 2008 .

Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data

Z. ul-Haq, I. Higginson, D. Yi, 2021, Palliative medicine.

Palliative care needs to be provided on basis of need rather than diagnosis

I. Higginson, J. Addington-hall, 1999, BMJ.

‘It makes me feel that I’m still relevant’: A qualitative study of the views of nursing home residents on dignity therapy and taking part in a phase II randomised controlled trial of a palliative care psychotherapy

I. Higginson, S. Hall, P. Speck, 2013, Palliative medicine.

Of apples and oranges: Lessons learned from the preparation of research protocols for systematic reviews exploring the effectiveness of Specialist Palliative Care

G. Becker, J. Gaertner, I. Higginson, 2016, BMC Palliative Care.

UvA-DARE ( Digital Academic Repository ) Understanding breathlessness : cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer

I. Higginson, M. Gysels, C. Bausewein, 2010 .

Measuring quality of care in palliative care services.

I. Higginson, A. L. Romer, 2000, Journal of Palliative Medicine.

Home care by general practitioners for cancer patients in the last 3 months of life: An epidemiological study of quality and associated factors

L. Deliens, I. Higginson, B. Gomes, 2016, Palliative medicine.

Adjusting to the caregiving role: the importance of coping and support.

I. Higginson, V. Robinson, R. Harding, 2012, International journal of palliative nursing.

Intensive care utilization in patients with end-stage liver disease: A population-based comparative study of cohorts with and without comorbid hepatocellular carcinoma in taiwan

I. Higginson, Hao-Hsiang Chang, Jen-Kuei Peng, 2020, EClinicalMedicine.

Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993–2014

I. Higginson, J. Verne, A. Greenough, 2016, BMC Cancer.

Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey

I. Higginson, B. Gomes, P. McCrone, 2013, Supportive Care in Cancer.

Translating clinical tools in nursing practice.

I. Higginson, M. Dunckley, R. Hughes, 2003, Journal of advanced nursing.

Edinburgh Research Explorer 'Burden to others' as a public concern in advanced cancer

L. Deliens, I. Higginson, B. Gomes, 2013 .

Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: Results of a descriptive cohort study

I. Higginson, R. Voltz, C. Bausewein, 2015, Palliative medicine.

Integration of oncology and palliative care: a Lancet Oncology Commission.

P. Stone, E. Bruera, M. Hjermstad, 2018, The Lancet. Oncology.

Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet Commission report

Megan E O'Brien, D. Jamison, K. Reddy, 2017, The Lancet.

Nurse-led palliative care for HIV-positive patients taking antiretroviral therapy in Kenya: a randomised controlled trial.

I. Higginson, Z. Ali, R. Harding, 2015, The lancet. HIV.

Prevalence, severity, duration and measurement of pain in sub-Saharan Africa

I. Higginson, R. Harding, P. Cartledge, 2004, Palliative medicine.

Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

I. Higginson, M. Gysels, C. Bausewein, 2014, Palliative and Supportive Care.

Factors influencing death at home in terminally ill patients with cancer: systematic review

C. Mulvaney, I. Higginson, B. Gomes, 2006, BMJ : British Medical Journal.

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis.

I. Higginson, V. Robinson, C. Ramsenthaler, 2017, Journal of pain and symptom management.

Health and Quality of Life Outcomes

I. Higginson, N. Donaldson, 2004 .

Priorities for treatment, care and information if faced with serious illness: A comparative population-based survey in seven European countries

L. Deliens, I. Higginson, B. Gomes, 2014, Palliative medicine.

Liverpool Care Pathway for patients with cancer in hospital: a cluster randomised trial

C. Brunelli, I. Higginson, M. Costantini, 2014, The Lancet.

A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care.

I. Higginson, C. Bausewein, B. Daveson, 2015, Journal of pain and symptom management.

Capture, transfer, and feedback of patient-centered outcomes data in palliative care populations: does it make a difference? A systematic review.

I. Higginson, C. Bausewein, B. Daveson, 2015, Journal of pain and symptom management.

Benefits and costs of home palliative care compared with usual care for patients with advanced illness and their family caregivers.

I. Higginson, B. Gomes, N. Calanzani, 2014, Journal of the American Medical Association (JAMA).

Implementing patient reported outcome measures (PROMs) in palliative care - users' cry for help

I. Higginson, R. Harding, C. Bausewein, 2011, Health and quality of life outcomes.

Depression assessment and classification in palliative cancer patients: a systematic literature review

M. Hotopf, S. Kaasa, I. Higginson, 2009, Palliative medicine.

The development, validity, reliability and practicality of a new measure of palliative care : the Support Team Assessment Schedule

I. Higginson, 1992 .

Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale

I. Higginson, N. Hepgul, I. Tunnard, 2020, Health and Quality of Life Outcomes.

Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study

I. Higginson, B. Gomes, P. McCrone, 2010, BMC Cancer.

Cancer Pain: Cancer pain epidemiology

I. Higginson, F. Murtagh, 2009 .

Emergency department attendance by patients with cancer in their last month of life: a systematic review and meta-analysis.

I. Higginson, B. Daveson, J. Davies, 2015, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

Place of death in children and young people with cancer and implications for end of life care: a population-based study in England, 1993–2014

I. Higginson, J. Verne, A. Greenough, 2016, BMC Cancer.

Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups

I. Higginson, S. Murray, S. Barclay, 2008, BMJ : British Medical Journal.

The global palliative care lottery: can we overcome it?

I. Higginson, 2011, Journal of Palliative Medicine.

Inclusion of end-of-life care in the global health agenda.

I. Higginson, R. Harding, 2014, The Lancet. Global health.

Availability of essential drugs for managing HIV-related pain and symptoms within 120 PEPFAR-funded health facilities in East Africa: A cross-sectional survey with onsite verification

I. Higginson, R. Harding, V. Simms, 2014, Palliative Medicine.

Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures

I. Higginson, L. Gwyther, R. Siegert, 2014, Health and Quality of Life Outcomes.

Assessment Of Health Related Quality Of Life (HRQOL) In Connective Tissue Disease Associated Interstitial Lung Diseases (CTD-ILD)

S. Birring, I. Higginson, S. Steer, 2011, Asian Test Symposium.

Experiences, concerns, and priorities for palliative care research during the COVID-19 pandemic: A rapid virtual stakeholder consultation with people affected by serious illness in England

H. Roberts, I. Higginson, H. Johnson, 2020 .

UvA-DARE ( Digital Academic Repository ) MORECare research methods guidance development : recommendations for ethical issues in palliative and end-of-life care research

I. Higginson, C. Todd, C. Evans, 2013 .

Study of white coat effect on the prognosis of women with breast cancer.

I. Higginson, R. Harding, J. Burt, 2004, European journal of cancer care.

Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

I. Higginson, M. Morgan, R. Siegert, 2013, Psycho-oncology.

Factors associated with transition from community settings to hospital as place of death for adults aged 75 years or older : a population-based mortality follow-back survey

I. Higginson, B. Gomes, M. Maddocks, 2017 .

"I Can Breathe Again!" Patients' Self-Management Strategies for Episodic Breathlessness in Advanced Disease, Derived From Qualitative Interviews.

I. Higginson, R. Voltz, M. Gysels, 2016, Journal of pain and symptom management.

The need to research refractory breathlessness

A. Abernethy, C. Morélot-Panzini, T. Similowski, 2016, European Respiratory Journal.

Palliative care in cancer: how to improve clinical research.

S. Kaasa, I. Higginson, 2010, European journal of cancer.

Symptom assessment in palliative care: a need for international collaboration.

P. Fayers, M. Hjermstad, S. Kaasa, 2008, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.