A. Trama

H. Comber, J. Rashbass, I. Vergote, 2017, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Information for action: Building a unified European Cancer Information System to bolster cancer control

S. Rosso, D. Forman, S. Siesling, 2013 .

Rare thyroid malignancies in Europe: Data from the information network on rare cancers in Europe (RARECAREnet).

A. Trama, K. Innos, L. Dal Maso, 2020, Oral oncology.

Methodological aspects of estimating rare cancer prevalence in Europe: the experience of the RARECARE project.

G. Gatta, S. Siesling, A. Trama, 2013, Cancer epidemiology.

Embryonal cancers in Europe.

G. Gatta, C. Stiller, A. Ferrari, 2012, European journal of cancer.

Kaposi sarcoma incidence, survival and trends: Data from the information network on rare cancers in Europe (RARECAREnet).

C. Stiller, A. Trama, L. Botta, 2020, Cancer epidemiology.

A system for classifying cancers diagnosed in adolescents and young adults

E. Steliarova-Foucher, L. Ries, G. Gatta, 2020, Cancer.

Analysis of the Consumption of Non-Oncological Medicines: A Methodological Study on Patients of the Ada Cohort

G. Tagliabue, S. Fabiano, A. Tittarelli, 2021, Healthcare.

Access to clinical trials for adolescents with soft tissue sarcomas: Enrollment in European pediatric Soft tissue sarcoma Study Group (EpSSG) protocols

G. Gatta, A. Ferrari, A. Trama, 2017, Pediatric blood & cancer.

Treatment challenges in and outside a specialist network setting: Pancreatic neuroendocrine tumours.

A. Gavin, H. Comber, M. Rugge, 2017, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Excess risk of dying of other causes of cured cancer patients

G. Gatta, A. Trama, R. Capocaccia, 2019, Tumori.

Bone sarcomas: ESMO-EURACAN-GENTURIS-ERNPaedCan Clinical Practice Guideline for diagnosis, treatment and follow-up.

S. Sleijfer, S. Bonvalot, O. Mir, 2021, Annals of oncology : official journal of the European Society for Medical Oncology.

Italian cancer figures--Report 2015: The burden of rare cancers in Italy.

G. Gatta, S. Tognazzo, C. Cirilli, 2016, Epidemiologia e prevenzione.

Mesothelioma and thymic tumors: Treatment challenges in (outside) a network setting.

N. Girard, A. Gavin, H. Comber, 2018, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Italian cancer figures, report 2014: Prevalence and cure of cancer in Italy.

Coviello, Taranto, D. Costarelli, 2014, Epidemiologia e prevenzione.

Changes in life expectancy for cancer patients over time since diagnosis

M. Rugge, G. Gatta, S. Guzzinati, 2019, Journal of advanced research.

The sacral chordoma margin.

P. Georg, P. Navarria, D. Campanacci, 2020, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

COVID‐19 outbreak in Lombardy: Impact on reducing solid cancer diagnoses in 2020

R. Miceli, A. Trama, S. Di Cosimo, 2022, International journal of cancer.

Best practices for the management of thymic epithelial tumors: A position paper by the Italian collaborative group for ThYmic MalignanciEs (TYME).

V. Torri, M. Scorsetti, G. Apolone, 2018, Cancer treatment reviews.

Personalise Medicine, Do Not Medicalise Persons: The Case of Patients with Stage I Testis Tumour Undergoing Surveillance.

A. Trama, N. Nicolai, 2017, European urology.

Available evidence and new biological perspectives on medical treatment of advanced thymic epithelial tumors.

U. Pastorino, G. Pelosi, G. Gatta, 2015, Annals of oncology : official journal of the European Society for Medical Oncology.

Incidence of rare cancers in the city of São Paulo, Brazil

G. Gatta, A. Trama, M. Latorre, 2019, Tumori.

Improving treatment results with reference centres for rare cancers: where do we stand?

J. Blay, J. Coindre, A. Le Cesne, 2017, European journal of cancer.

Italian cancer figures, report 2012: Cancer in children and adolescents.

D. Costarelli, S. Rosso, L. Bisanti, 2013, Epidemiologia e prevenzione.

Retrospective observational studies in ultra-rare sarcomas: A consensus paper from the Connective Tissue Oncology Society (CTOS) community of experts on the minimum requirements for the evaluation of activity of systemic treatments.

Robin L. Jones, Andrea Hayes, J. Blay, 2022, Cancer treatment reviews.

Salivary gland cancer: ESMO–European Reference Network on Rare Adult Solid Cancers (EURACAN) Clinical Practice Guideline for diagnosis, treatment and follow-up

J. Machiels, A. Trama, L. Smeele, 2022, ESMO open.

Accuracy of pathologic diagnosis for thymic epithelial tumors: a brief report from an Italian reference Center.

A. Trama, G. Galli, M. Garassino, 2020, Lung cancer.

Rationale of the rare cancer list: a consensus paper from the Joint Action on Rare Cancers (JARC) of the European Union (EU)

P. Casali, A. Trama, 2020, ESMO Open.

Cancer Cure and Consequences on Survivorship Care: Position Paper from the Italian Alliance Against Cancer (ACC) Survivorship Care Working Group

G. Pravettoni, Margaret Perrone, D. Serraino, 2022, Cancer management and research.

Soft tissue sarcoma in Italy: From epidemiological data to clinical networking to improve patient care and outcomes.

A. D. Dei Tos, A. Marrari, A. Trama, 2019, Cancer epidemiology.

Nasopharyngeal Cancer in Non-Endemic Areas: Impact of Treatment Intensity within a Large Retrospective Multicenter Cohort

A. Argiris, A. Trama, P. Franco, 2021, SSRN Electronic Journal.

Soft Tissue and Visceral Sarcomas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up (vol 25, pg iii102, 2014)

K. S. Hall, J. Blay, Torri, 2015 .

Specialized teams or specialist networks for rare cancers?

G. Gatta, A. D. Dei Tos, P. Casali, 2015, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Developing a comorbidity score in cancer patients using healthcare utilization databases during the COVID‐19 pandemic: An experience from Italy

A. Trama, L. Botta, Alice Bernasconi, 2022, Cancer medicine.

Childhood cancer survival in Europe 1999-2007: results of EUROCARE-5--a population-based study.

Silvia Rossi, Gemma Gatta, Sandra Mallone, 2014, The Lancet. Oncology.

Networking in rare cancers: What was done, what's next.

J. Blay, P. Casali, A. Trama, 2019, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Testicular germ-cell tumours and penile squamous cell carcinoma: Appropriate management makes the difference.

A. Gavin, H. Comber, M. Rugge, 2018, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Survival of male genital cancers (prostate, testis and penis) in Europe 1999-2007: Results from the EUROCARE-5 study.

D. Serraino, A. Trama, M. Sant, 2015, European journal of cancer.

Burden of testicular, paratesticular and extragonadal germ cell tumours in Europe.

F. Berrino, A. Znaor, A. Trama, 2012, European journal of cancer.

Epidemiology of Testicular Cancer

G. Gatta, A. Trama, 2016 .

Tackling rare diseases at European level: why do we need a harmonized framework?

R. Stefanov, D. Taruscio, A. Trama, 2007, Folia medica.

Availability of medicines for rare diseases in EU Countries

D. Taruscio, A. Trama, A. Ceci, 2009 .

Survival of European adolescents and young adults diagnosed with cancer in 2000-07: population-based data from EUROCARE-5.

Milena Maria Maule, Andrea Ferrari, Franco Merletti, 2016, The Lancet. Oncology.

Descriptive epidemiology of sarcomas in Europe: report from the RARECARE project.

C. Stiller, P. Casali, D. Serraino, 2013, European journal of cancer.

Survival in patients with primary liver cancer, gallbladder and extrahepatic biliary tract cancer and pancreatic cancer in Europe 1999-2007: Results of EUROCARE-5.

C. Lepage, J. Faivre, A. Trama, 2015, European journal of cancer.

Descriptive epidemiology of Kaposi sarcoma in Europe. Report from the RARECARE project.

E. Weiderpass, J. Verne, A. D. Dei Tos, 2013, Cancer epidemiology.

Chordoma: update on disease, epidemiology, biology and medical therapies

A. D. Dei Tos, S. Stacchiotti, A. Trama, 2019, Current opinion in oncology.

The Epidemiology of Malignant Germ Cell Tumors: The EUROCARE Study

F. Berrino, A. Trama, 2017 .

COVID-19 in patients with thoracic malignancies (TERAVOLT): first results of an international, registry-based, cohort study

V. Torri, G. Minuti, H. Wakelee, 2020, The Lancet Oncology.

Thymoma and thymic carcinomas.

M. Scorsetti, G. Gatta, A. Trama, 2016, Critical reviews in oncology/hematology.

RELEVENT Trial: Phase II Trial of Ramucirumab, Carboplatin, and Paclitaxel in Previously Untreated Thymic Carcinoma/B3 Thymoma With Area of Carcinoma

V. Torri, M. Marino, G. Pruneri, 2018, Clinical lung cancer.

Burden and centralised treatment in Europe of rare tumours: results of RARECAREnet-a population-based study.

Eva Ardanaz, Gemma Gatta, Sandra Mallone, 2017, The Lancet. Oncology.

Gastrointestinal stromal tumours: ESMO-EURACAN-GENTURIS Clinical Practice Guidelines for diagnosis, treatment and follow-up.

S. Sleijfer, S. Bonvalot, O. Mir, 2021, Annals of oncology : official journal of the European Society for Medical Oncology.

Cancer Burden in Adolescents and Young Adults: A Review of Epidemiological Evidence

E. Steliarova-Foucher, A. Trama, L. Botta, 2018, Cancer journal.

Treatment challenges in and outside a network setting: Head and neck cancers.

A. Trama, L. Licitra, E. Orlandi, 2018, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Rare Cancers Europe (RCE) methodological recommendations for clinical studies in rare cancers: a European consensus position paper

M. Coleman, M. Piccart, V. Torri, 2014, Annals of oncology : official journal of the European Society for Medical Oncology.

Incidence, survival and prevalence of myeloid malignancies in Europe.

C. Stiller, A. Trama, R. De Angelis, 2012, European journal of cancer.

Defining and listing very rare cancers of paediatric age: consensus of the Joint Action on Rare Cancers in cooperation with the European Cooperative Study Group for Pediatric Rare Tumors.

P. Kearns, G. Gatta, G. Vassal, 2019, European journal of cancer.

Cancer burden in adolescents and young adults in Europe

S. Bielack, A. Trama, A. Toss, 2023, ESMO open.

Characteristics and Outcomes of Over 300,000 Patients with COVID-19 and History of Cancer in the United States and Spain

M. Suchard, N. Shah, I. Soerjomataram, 2021, Cancer Epidemiology, Biomarkers & Prevention.

Nasopharyngeal carcinoma: ESMO-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up.

J. Machiels, L. Smeele, A. Trama, 2020, Annals of oncology : official journal of the European Society for Medical Oncology.

Treatment challenges in and outside a network setting: Soft tissue sarcomas.

A. Gavin, H. Comber, M. Rugge, 2017, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Data Quality in Rare Cancers Registration: The Report of the RARECARE Data Quality Study

Eva Ardanaz, Gemma Gatta, Sabine Siesling, 2017, Tumori.

Accreditation for centers of sarcoma surgery

A. Gronchi, A. Trama, V. Quagliuolo, 2017, Updates in Surgery.

Information network on Rare Cancers

G. Gatta, S. Siesling, A. Trama, 2014 .

The Burden of Rare Cancers in Italy: The Surveillance of Rare Cancers in Italy (RITA) Project

G. Gatta, A. Trama, S. Mallone, 2012 .

The burden of rare cancers in Italy: the surveillance of rare cancers in Italy (RITA) project.

G. Gatta, A. Trama, S. Mallone, 2012, Tumori.

Epidemiology of rare cancers in India and South Asian countries – remembering the forgotten

R. Dikshit, M. Dhimal, A. Trama, 2023, The Lancet regional health. Southeast Asia.

"Rare cancers": not all together in clinical studies!

P. Casali, A. Trama, L. Licitra, 2022, Annals of oncology : official journal of the European Society for Medical Oncology.

Ultra‐rare sarcomas: A consensus paper from the Connective Tissue Oncology Society community of experts on the incidence threshold and the list of entities

David M. Thomas, Kevin B. Jones, Robin L. Jones, 2021, Cancer.

Epidemiology of Neuroendocrine Neoplasms

A. Trama, 2021, Neuroendocrine Neoplasia Management.

Rare cancers are not rare in Asia as well: The rare cancer burden in East Asia.

A. Trama, Wen-Chung Lee, Y. Won, 2020, Cancer epidemiology.

Epidemiology of rare cancers and inequalities in oncologic outcomes.

G. Gatta, A. Trama, R. Capocaccia, 2017, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Bayesian estimates of the incidence of rare cancers in Europe.

G. Gatta, A. Trama, R. De Angelis, 2018, Cancer epidemiology.

Cancer prevalence estimates in Europe at the beginning of 2000.

G. Gatta, S. Siesling, A. Trama, 2013, Annals of oncology : official journal of the European Society for Medical Oncology.

Epithelioid hemangioendothelioma, an ultra-rare cancer: a consensus paper from the community of experts

C. Antonescu, A. Caraceni, S. Bonvalot, 2021, ESMO open.

1486PAn epidemiological insight into epithelioid sarcoma (ES): The open issue of distal-type (DES) versus proximal-type (PES)

P. Casali, A. Gronchi, S. Stacchiotti, 2017 .

Integrated cancer control: the case for comprehensive cancer care networks (CCCN)

S. Kaasa, A. Caraceni, L. Dušek, 2017 .

Survival of adults with cancers of bone or soft tissue in Europe-Report from the EUROCARE-5 study.

G. Gatta, C. Stiller, P. Casali, 2018, Cancer epidemiology.

A classification prognostic score to predict OS in stage IV well-differentiated neuroendocrine tumors

H. Comber, L. Mariani, V. Mazzaferro, 2018, Endocrine-related cancer.

Where Are Adolescents with Soft Tissue Sarcomas Treated? An Italian Nationwide Study on Referrals Based on Hospital Discharge Records.

G. Gatta, A. Ferrari, A. Trama, 2020, Journal of adolescent and young adult oncology.

The burden of rare cancers in Europe.

Gemma Gatta, Annalisa Trama, G. Gatta, 2010, Advances in experimental medicine and biology.

Incidence and survival of rare cancers in the US and Europe

A. Mariotto, G. Gatta, A. Trama, 2020, Cancer Medicine.

European Guide on Quality Improvement in Comprehensive Cancer Control

Giuseppe La Torre, Elio Rossi, Annalisa Trama, 2017 .

Increased incidence of rare cancers and varied age distributions by cancer group: A population-based cancer registry study in Hiroshima Prefecture, Japan.

H. Sugiyama, A. Trama, T. Matsuda, 2023, Cancer epidemiology.

The European study on centralisation of childhood cancer treatment.

H. Comber, G. Gatta, S. Siesling, 2019, European journal of cancer.

Impact of Rhabdomyosarcoma Treatment Modalities by Age in a Population-Based Setting.

M. Rugge, G. Gatta, G. Tagliabue, 2020, Journal of adolescent and young adult oncology.

Where are adolescents with cutaneous melanoma treated? An Italian nationwide study on referrals based on hospital discharge records

A. Ferrari, A. Trama, P. Gasparini, 2020, Pediatric blood & cancer.

Epidemiology of glial and non-glial brain tumours in Europe.

Damien C Weber, Umberto Ricardi, Riccardo Soffietti, 2012, European journal of cancer.

Is the cancer survival improvement in European and American adolescent and young adults still lagging behind that in children?

A. Bleyer, L. Ries, G. Gatta, 2018, Pediatric blood & cancer.

Cancer of the anal region.

F. Valvo, J. Bosset, R. Doci, 2019, Critical reviews in oncology/hematology.

Quality of life in clinical trials for children

A. Trama, M. Dieci, 2011, European Journal of Clinical Pharmacology.

A Definitive Prognostication System for Patients With Thoracic Malignancies Diagnosed With Coronavirus Disease 2019: An Update From the TERAVOLT Registry

V. Torri, N. Reinmuth, H. Wakelee, 2022, Journal of Thoracic Oncology.

Cancer treatment data available in European cancer registries: Where are we and where are we going?

A. Gavin, V. Arndt, G. Gatta, 2023, Frontiers in Oncology.

Quality analysis of population-based information on cancer stage at diagnosis across Europe, with presentation of stage-specific cancer survival estimates: A EUROCARE-5 study.

A. Trama, K. Innos, O. Visser, 2017, European journal of cancer.

Survival patterns in lung and pleural cancer in Europe 1999-2007: Results from the EUROCARE-5 study.

U. Pastorino, A. Trama, M. Sant, 2015, European journal of cancer.

Cardiovascular Risk After Adjuvant Trastuzumab in Early Breast Cancer: An Italian Population‐Based Cohort Study

L. Tarantini, G. Apolone, G. Corrao, 2020, The oncologist.

The EUROCARE-5 study on cancer survival in Europe 1999-2007: Database, quality checks and statistical analysis methods.

M. Lorez, A. Trama, R. De Angelis, 2015, European journal of cancer.

Comparing cancer care, outcomes, and costs across health systems: charting the course.

A. Mariotto, G. Gatta, I. Durand-zaleski, 2013, Journal of the National Cancer Institute. Monographs.

Quality of Care Indicators for Head and Neck Cancers: The Experience of the European Project RARECAREnet

J. Borrás, G. Gatta, A. Trama, 2019, Front. Oncol..

Development of a multiomics database for personalized prognostic forecasting in head and neck cancer: The Big Data to Decide EU Project

J. Berkhof, F. Hoebers, C. R. Leemans, 2020, Head & neck.

Introducing hepatitis B virus vaccine into the Expanded Programme on Immunization in Bangladesh: a proposed method to evaluate whether the existing infrastructure has the capacity.

A. Trama, J. Fox-Rushby, D. Walker, 2005, Journal of health, population, and nutrition.

Late Mortality, Subsequent Malignant Neoplasms and Hospitalisations in Long-Term Survivors of Adolescent and Young Adult Hematological Cancers

A. Trama, C. Vener, P. Lasalvia, 2022, Frontiers in Oncology.

Is low survival for cancer in Eastern Europe due principally to late stage at diagnosis?

A. Trama, K. Innos, M. Sant, 2018, European journal of cancer.

The Prognostic Role of TNM Staging Compared With Tumor Volume and Number of Pleural Sites in Malignant Pleural Mesothelioma.

G. Gatta, A. Trama, G. Galli, 2019, Clinical lung cancer.

Late mortality reduction among survivors of germ cell tumors in childhood and adolescence in Europe: A report from the PanCareSurFup cohort

A. Trama, J. Byrne, R. Reulen, 2022, Pediatric blood & cancer.

Treatment patterns among patients with malignant pleural mesothelioma: An Italian, population‐based nationwide study

G. Gatta, G. Tagliabue, C. Cirilli, 2020, Thoracic cancer.

Prostate cancer changes in clinical presentation and treatments in two decades: an Italian population-based study.

G. Gatta, P. Contiero, R. Tumino, 2016, European journal of cancer.

Reasons for low cervical cancer survival in new accession European Union countries: a EUROCARE-5 study

S. Rosso, V. Zadnik, H. Brenner, 2019, Archives of Gynecology and Obstetrics.

Supporting Clinical Decision-Making during the SARS-CoV-2 Pandemic through a Global Research Commitment: The TERAVOLT Experience

V. Torri, H. Wakelee, V. Pancaldi, 2020, Cancer Cell.

Thoracic Cancers International COVID-19 Collaboration (TERAVOLT): Impact of type of cancer therapy and COVID therapy on survival.

V. Torri, H. Wakelee, V. Pancaldi, 2020 .

TERAVOLT: Thoracic Cancers International COVID-19 Collaboration

V. Torri, H. Wakelee, V. Pancaldi, 2020, Cancer Cell.

Cancer Incidence, Survival, and Mortality Among Adolescents and Young Adults

A. Bleyer, L. Ries, G. Gatta, 2017 .

Incidence, prevalence and survival of patients with rare epithelial digestive cancers diagnosed in Europe in 1995-2002.

J. Bosset, R. Audisio, C. Lepage, 2012, European journal of cancer.

Estimating Country-Specific Incidence Rates of Rare Cancers: Comparative Performance Analysis of Modeling Approaches Using European Cancer Registry Data

G. Gatta, A. Trama, R. Capocaccia, 2021, American journal of epidemiology.

SMO mutations confer poor prognosis in malignant pleural mesothelioma

U. Pastorino, G. Gatta, M. Tiseo, 2020, Translational lung cancer research.

Nasopharyngeal cancer in non-endemic areas: Impact of treatment intensity within a large retrospective multicentre cohort.

A. Argiris, I. Garassino, A. Trama, 2021, European journal of cancer.

Complexity index in sarcoma and genomic grade index gene signatures in rhabdomyosarcoma of pediatric and adult ages

O. Fortunato, G. Sozzi, L. De Cecco, 2021, Pediatric blood & cancer.

Rare cancers in Europe

G. Gatta, P. Casali, A. D. Tos, 2010 .

Immunometabolic Status of COVID-19 Cancer Patients

V. Torri, A. Sica, M. Colombo, 2020, Physiological reviews.

Resolution of Citalopram Sexual Adverse Effects With Low Dose of Cariprazine: A Case Report.

A. Trama, M. Dieci, Gianluigi Mansi, 2020, Clinical neuropharmacology.

Comparing cancer care, outcomes, and costs across health systems: charting the course.

A. Mariotto, G. Gatta, I. Durand-zaleski, 2013, Journal of the National Cancer Institute. Monographs.

Abstract S12-03: Thoracic cancers international COVID-19 collaboration (TERAVOLT): Small-cell lung cancer and other rare thoracic malignancies

V. Torri, H. Wakelee, S. Peters, 2020 .

Mesothelioma and thymic tumors: Treatment challenges in (outside) a network setting.

N. Girard, A. Gavin, H. Comber, 2018, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

Survival in patients with primary liver cancer, gallbladder and extrahepatic biliary tract cancer and pancreatic cancer in Europe 1999-2007: Results of EUROCARE-5.

C. Lepage, J. Faivre, A. Trama, 2015, European journal of cancer.

Editorial: Real-World evidence in onco-hematological patients

A. Trama, C. Vener, M. Franchi, 2022, Frontiers in Oncology.

Diagnosis and management of typical and atypical lung carcinoids.

U. Pastorino, G. Pelosi, F. D. De Braud, 2016, Critical reviews in oncology/hematology.

Technical report with basic indicators for rare cancers and health care related macro indicators

G. Gatta, P. Casali, A. D. Tos, 2010 .

Soft tissue and visceral sarcomas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up.

S. Litière, A. Cesne, H. Joensuu, 2014, Annals of oncology : official journal of the European Society for Medical Oncology.

RARECAREnet: Information network on rare cancers in Europe

G. Gatta, A. Trama, 2018, European Journal of Public Health.

Benefits and Risks of Machine Learning Decision Support Systems.

Marco D. Huesch, Marco D Huesch, M. Huesch, 2017, JAMA.

Solutions for optimal care and research for children and adolescents with extremely rare cancers developed within the Joint Action for Rare Cancers (JARC)

A. Trama, I. Brecht, G. Bisogno, 2023, EJC Paediatric Oncology.