J. Robinson

发表

The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial.

Matthew S. Lebo, Heidi L Rehm, Danielle R Azzariti, 2017, Annals of internal medicine.

Responsibility, culpability, and parental views on genomic testing for seriously ill children

D. Parsons, A. McGuire, S. Plon, 2019, Genetics in Medicine.

Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents

S. Hilsenbeck, A. McGuire, C. Lau, 2014, Pediatrics.

Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium

B. Bernhardt, J. Wynn, C. Blout, 2018, Journal of Genetic Counseling.

Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

R. Green, A. McGuire, K. Christensen, 2016, Journal of empirical research on human research ethics : JERHRE.

Parental Interest in Genomic Sequencing of Newborns: Enrollment Experience from the BabySeq Project

R. Green, S. Waisbren, A. McGuire, 2018, Genetics in Medicine.

Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation

A. McGuire, Demetrio Sierra-Mercado, B. Koenig, 2022, AJOB neuroscience.

Lessons learned and recommendations for data coordination in collaborative research: The CSER consortium experience

Kathleen F. Mittendorf, M. Kvale, L. Hindorff, 2022, HGG advances.

Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials

A. McGuire, Demetrio Sierra-Mercado, B. Koenig, 2020, Frontiers in Human Neuroscience.

Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development

Caryn Kseniya Rubanovich, Stephanie R. Morain, B. Wilfond, 2021, The Patient - Patient-Centered Outcomes Research.

Educating military primary health-care providers in genomic medicine: lessons learned from the MilSeq Project

Cubby L. Gardner, R. Green, J. Robinson, 2020, Genetics in Medicine.

Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study

A. McGuire, A. Beggs, I. Holm, 2022, Frontiers in Genetics.

Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011))

Sara Chandros Hull, Robert C. Green, Sean D. Mooney, 2016 .

The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial.

Matthew S. Lebo, Danielle R Azzariti, D. Bates, 2017, Annals of internal medicine.

Conducting clinical genomics research during the COVID‐19 pandemic: Lessons learned from the CSER consortium experience

L. Hindorff, J. Robinson, Dave Kaufman, 2022, American journal of medical genetics. Part A.

Pediatric Oncologists’ Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care

D. Parsons, A. McGuire, R. Street, 2021, Journal of personalized medicine.

Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost

P. Starr, M. Okun, A. McGuire, 2022, Brain Stimulation.

Genomic Data-Sharing Practices

A. McGuire, R. Cook-Deegan, J. Robinson, 2019, The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.

Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique

Amy L McGuire, A. McGuire, J. Robinson, 2018, PLoS biology.

Short Term Costs of Integrating Whole Genome Sequencing into Primary Care and Cardiology Settings: A Pilot Randomized Trial

Robert C. Green, Natasha K. Stout, Heidi L. Rehm, 2018, Genetics in Medicine.

'Someday it will be the norm': physician perspectives on the utility of genome sequencing for patient care in the MedSeq Project.

R. Green, A. McGuire, M. Murray, 2015, Personalized medicine.

Patient understanding of, satisfaction with, and perceived utility of whole genome sequencing: Findings from the MedSeq Project

R. Green, A. McGuire, P. Diamond, 2017, Genetics in Medicine.

Parental Perspectives on Whole Exome Sequencing in Pediatric Cancer: A Typology of Perceived Utility.

A. McGuire, S. Plon, J. Robinson, 2017, JCO precision oncology.

Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.

R. Green, S. Waisbren, A. McGuire, 2021, JAMA pediatrics.

Public mental health during and after the SARS-CoV-2 pandemic: Opportunities for intervention via emotional self-efficacy and resilience

A. McGuire, C. Bloss, J. Robinson, 2023, Frontiers in Psychology.

Patients' perceived utility of whole-genome sequencing for their healthcare: findings from the MedSeq project.

R. Green, A. McGuire, Heather E. Danysh, 2016, Personalized medicine.

Return of individual genomic research results: what do consent forms tell participants?

A. McGuire, J. Robinson, Stacey Pereira, 2016, European Journal of Human Genetics.

Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.

A. McGuire, S. Plon, J. Robinson, 2023, Journal of adolescent and young adult oncology.

Experiences and Attitudes of Genome Investigators Regarding Return of Individual Genetic Test Results

A. McGuire, S. Plon, S. Joffe, 2013, Genetics in Medicine.

The price of whole-genome sequencing may be decreasing, but who will be sequenced?

M. A. Goldman, R. Green, A. McGuire, 2017, Personalized Medicine.

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

L. Hindorff, B. Wilfond, Julianne M. O’Daniel, 2021, Journal of Clinical and Translational Science.

Returning genetic research results: study type matters.

Amy L McGuire, A. McGuire, S. Plon, 2013, Personalized medicine.

Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services.

A. McGuire, J. Robinson, Stacey Pereira, 2022, American journal of human genetics.

Are physicians prepared for whole genome sequencing? a qualitative analysis

Denise L. Perry, R. Green, A. McGuire, 2016, Clinical genetics.

Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies

W. Chung, R. Green, A. McGuire, 2019, Genetics in Medicine.

Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research

P. Starr, M. Okun, A. McGuire, 2021, Frontiers in Neuroscience.

Ask me later: deciding to have clinical exome trio sequencing for my critically ill child

J. Robinson, 2021, Genetics in Medicine.

Perceived Benefits, Risks, and Utility of Newborn Genomic Sequencing in the BabySeq Project

R. Green, A. McGuire, A. Beggs, 2019, Pediatrics.

Behavioral and psychological impact of genome sequencing: a pilot randomized trial of primary care and cardiology patients

R. Green, J. Roberts, A. McGuire, 2021, npj Genomic Medicine.

Effects of participation in a U.S. trial of newborn genomic sequencing on parents at risk for depression

R. Green, S. Waisbren, A. McGuire, 2021, Journal of genetic counseling.

Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing

S. Hilsenbeck, A. McGuire, Tao Wang, 2013, Journal of empirical research on human research ethics : JERHRE.

Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability

A. McGuire, J. Robinson, Amanda M. Gutierrez, 2023, Frontiers in Big Data.

It depends whose data are being shared: considerations for genomic data sharing policies

A. McGuire, J. Robinson, M. J. Slashinski, 2015, Journal of law and the biosciences.

Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.

S. Hilsenbeck, A. McGuire, R. Street, 2018, Patient education and counseling.

Patient understanding of, satisfaction with, and perceived utility of whole genome sequencing: Findings from the MedSeq Project

R. Green, J. Roberts, A. McGuire, 2017, Genetics in Medicine.

When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing

Denise L. Perry, R. Green, A. McGuire, 2017, AJOB empirical bioethics.

Researcher Perspectives on Data Sharing in Deep Brain Stimulation

Stacey Pereira, Amy L. McGuire, Jill O. Robinson, 2020, Frontiers in Human Neuroscience.

Airmen and Healthcare Providers’ attitudes toward the use of genomic sequencing in the US Air Force: Findings from the MilSeq Project

Matthew S. Lebo, Cubby L. Gardner, R. Green, 2020, Genetics in Medicine.

Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.

A. McGuire, R. Street, S. Plon, 2019, Patient education and counseling.

Lessons learned about harmonizing survey measures for the CSER consortium

K. Goddard, L. Hindorff, A. McGuire, 2020, Journal of clinical and translational science.

How Biomedical Citizen Scientists Define What They Do: It’s All in the Name

J. Robinson, Christi J. Guerrini, M. Trejo, 2020, AJOB empirical bioethics.

Short Term Costs of Integrating Whole Genome Sequencing into Primary Care and Cardiology Settings: A Pilot Randomized Trial

Danielle R Azzariti, Christine Y. Lu, R. Green, 2018, Genetics in Medicine.

Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure.

A. McGuire, R. Street, S. Plon, 2017, Personalized medicine.

Parents' decision-making regarding whether to receive adult-onset only genetic findings for their children: Findings from the BabySeq Project.

Matthew S. Lebo, H. Rehm, S. Waisbren, 2022, Genetics in medicine : official journal of the American College of Medical Genetics.

Discordant results between conventional newborn screening and genomic sequencing in the BabySeq Project

Matthew S. Lebo, R. Green, H. Rehm, 2021, Genetics in Medicine.

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

A. McGuire, J. Robinson, M. Majumder, 2021, Journal of personalized medicine.

Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi

A. McGuire, J. Robinson, M. Majumder, 2023, Journal of law and the biosciences.

Experiences of stigma in the United States during the COVID-19 pandemic.

J. Robinson, Christi J. Guerrini, R. Islam, 2022, Stigma and Health.

Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial

P. Starr, M. Okun, A. McGuire, 2023, Brain Stimulation.

Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies

W. Chung, A. McGuire, L. Biesecker, 2019, Genetics in Medicine.

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

Stacey Pereira, Amy L McGuire, Mary A Majumder, 2017, PloS one.

Participants and Study Decliners’ Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing

Denise L. Perry, R. Green, A. McGuire, 2016, Journal of empirical research on human research ethics : JERHRE.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Matthew S. Lebo, Victoria A. Miller, Jeffrey W. Pennington, 2016, American journal of human genetics.

Responsibility, culpability, and parental views on genomic testing for seriously ill children

A. McGuire, S. Plon, J. Robinson, 2019, Genetics in Medicine.

When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing

Denise L. Perry, R. Green, A. McGuire, 2017, AJOB empirical bioethics.

Researchers’ Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement

A. McGuire, Demetrio Sierra-Mercado, J. Robinson, 2022, Frontiers in Human Neuroscience.

Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".

J. Robinson, S. Scollon, Blake Vuocolo, 2024, Journal of genetic counseling.