V. Alonso

Overview of existing initiatives to develop and improve access and data sharing in rare disease registries and biobanks worldwide

D. Taruscio, Hanns Lochmüller, Rachel Thompson, 2016 .

Rare diseases epidemiology research.

Ó. Zurriaga, M. Pollán, M. P. de la Paz, 2010, Advances in experimental medicine and biology.

FINAL Deliverable D 4 Guidelines for data sources and quality for RD Registries in Europe

D. Taruscio, M. Posada, I. Abaitua, 2014 .

Increase in motor neuron disease mortality in Spain: Temporal and geographical analysis (1990–2005)

M. P. de la Paz, A. Villaverde-Hueso, I. Abaitua, 2011, Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases.

Epidemiology of Hereditary Ataxias in Spain: Hospital Discharge Registry and Population-Based Mortality Study

M. Posada de la Paz, A. Villaverde-Hueso, V. Alonso, 2013, Neuroepidemiology.

Trends in systemic lupus erythematosus mortality in Spain from 1981 to 2010

M. Posada, V. Alonso, C. Quiñones, 2014, Lupus.