J. Soucie

发表

Evaluation of CDC’s Hemophilia Surveillance Program — Universal Data Collection (1998–2011) and Community Counts (2011–2019), United States

L. Schieve, W. Hooper, V. Byams, 2020, Morbidity and mortality weekly report. Surveillance summaries.

A Public Health Approach to the Prevention of Inhibitors in Hemophilia

Meredith A Oakley, C. Miller, J. Soucie, 2014, American journal of preventive medicine.

A study of prospective surveillance for inhibitors among persons with haemophilia in the United States

C. Kempton, A. Neff, D. Brettler, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Range of motion measurements: reference values and a database for comparison studies

J. Soucie, C. Wang, A. Forsyth, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Dialysis survival in a large inner-city facility: a comparison to national rates.

E. Hall, J. Soucie, J. Stivelman, 1995, Journal of the American Society of Nephrology : JASN.

Home‐based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia

D. Brettler, B. Evatt, J. Soucie, 2001, Haemophilia : the official journal of the World Federation of Hemophilia.

Occurrence of hemophilia in the United States

B. Evatt, J. Soucie, D. Jackson, 1998 .

Mortality in end-stage renal disease is associated with facility-to-facility differences in adequacy of hemodialysis.

W. McClellan, W. D. Flanders, J. Soucie, 1998, Journal of the American Society of Nephrology : JASN.

Family history of end-stage renal disease among incident dialysis patients.

B. Freedman, W. McClellan, J. Soucie, 1997, Journal of the American Society of Nephrology : JASN.

Prevalence and risk factors for heart disease among males with hemophilia

B. Evatt, J. Soucie, R. Kulkarni, 2005, American journal of hematology.

Population-Based Screening for Family History of End-Stage Renal Disease among Incident Dialysis Patients

B. Freedman, C. Jurkovitz, W. McClellan, 2005, American Journal of Nephrology.

Care models in the management of haemophilia: a systematic review

H. Schünemann, A. Iorio, C. Kessler, 2016, Haemophilia : the official journal of the World Federation of Hemophilia.

Baseline characteristics in the Modification of Diet in Renal Disease Study.

L. Snetselaar, T. Greene, J. Kusek, 1993, Journal of the American Society of Nephrology : JASN.

Characteristics, complications, and sites of bleeding among infants and toddlers less than 2 years of age with VWD.

C. Thornburg, S. O’Brien, V. Byams, 2021, Blood advances.

The longitudinal effect of body adiposity on joint mobility in young males with Haemophilia A

M. Recht, B. Konkle, A. Siddiqi, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Race and sex differences in the identification of candidates for renal transplantation.

W. McClellan, J. Soucie, J. Neylan, 1992, American journal of kidney diseases : the official journal of the National Kidney Foundation.

NHF‐McMaster Guideline on Care Models for Haemophilia Management

H. Schünemann, A. Iorio, C. Kessler, 2016, Haemophilia : the official journal of the World Federation of Hemophilia.

High one year mortality in adults with sickle cell disease and end‐stage renal disease

M. DeBaun, D. Gilbertson, J. Luthi, 2012, British journal of haematology.

Early death in dialysis patients: risk factors and impact on incidence and mortality rates.

W. McClellan, J. Soucie, J. Soucie, 1996, Journal of the American Society of Nephrology : JASN.

Risk factors for candidal bloodstream infections in surgical intensive care unit patients: the NEMIS prospective multicenter study. The National Epidemiology of Mycosis Survey.

L. Saiman, R. Wenzel, M. Pfaller, 2001, Clinical infectious diseases : an official publication of the Infectious Diseases Society of America.

Emergency department visits by patients with venous thromboembolism, 1998-2009

J. Tsai, S. Boulet, A. Siddiqi, 2012 .

The universal data collection surveillance system for rare bleeding disorders.

Meredith A Oakley, J. Soucie, Ann C. Mcclellan, 2010, American journal of preventive medicine.

National surveillance for hemophilia inhibitors in the United States: Summary report of an expert meeting

D. Aschman, B. Konkle, P. Monahan, 2014, American journal of hematology.

Assessing emerging infectious threats to blood safety for the blood disorders community.

J. Soucie, Althea M. Grant, Christopher S. Parker, 2010, American journal of preventive medicine.

Hepatitis A virus infections associated with clotting factor concentrate in the United States

B. Bell, B. Evatt, B. Robertson, 1998, Transfusion.

Knowledge and therapeutic gaps: a public health problem in the rare coagulation disorders population.

D. Aschman, A. Shapiro, F. Peyvandi, 2011, American journal of preventive medicine.

Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia.

Alan R. Cohen, L. Valentino, M. Manco-Johnson, 2007, The New England journal of medicine.

Evidence of porcine endogenous retroviruses in porcine factor VIII and evaluation of transmission to recipients with hemophilia.

W. Heneine, B. Evatt, W. Switzer, 2001, The Journal of infectious diseases.

Men with severe hemophilia in the United States: birth cohort analysis of a large national database.

B. Riske, P. Monahan, J. Soucie, 2016, Blood.

Evidence for the transmission of parvovirus B19 in patients with bleeding disorders treated with plasma‐derived factor concentrates in the era of nucleic acid test screening

C. Kessler, M. Recht, B. Riske, 2013, Transfusion.

Human parvovirus B19 in young male patients with hemophilia A: associations with treatment product exposure and joint range‐of‐motion limitation

W. Hooper, B. Evatt, J. Soucie, 2004, Transfusion.

The effect of secondary prophylaxis versus episodic treatment on the range of motion of target joints in patients with haemophilia

J. Gill, A. Siddiqi, J. Soucie, 2013, British journal of haematology.

Prevalence of comorbid conditions among older males with haemophilia receiving care in haemophilia treatment centers in the United States

Brandi Dupervil, J. Soucie, B. Le, 2022, Haemophilia : the official journal of the World Federation of Hemophilia.

F8 and F9 mutations in US haemophilia patients: correlation with history of inhibitor and race/ethnicity

W. Hooper, C. Miller, J. Soucie, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Respiratory health status of children in three Quebec urban communities: an epidemiologic study.

H. Ghezzo, M. Becklake, J. Soucie, 1978, Bulletin europeen de physiopathologie respiratoire.

Health care expenditures for Medicaid‐covered males with haemophilia in the United States, 2008

C. Kessler, S. Guh, S. Grosse, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

The frequency of joint hemorrhages and procedures in nonsevere hemophilia A vs B.

B. Konkle, P. Monahan, J. Soucie, 2018, Blood advances.

Executive summary of the NHLBI State of the Science (SOS) Workshop: Overview and next steps in generating a national blueprint for future research on factor VIII inhibitors

W. Hooper, S. Pipe, J. Soucie, 2019, Haemophilia : the official journal of the World Federation of Hemophilia.

Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources

S. Grosse, A. Shapiro, J. Soucie, 2019, Haemophilia : the official journal of the World Federation of Hemophilia.

Risk factors associated with invasive orthopaedic interventions in males with haemophilia enrolled in the Universal Data Collection program from 2000 to 2010

J. Gill, A. Siddiqi, J. Soucie, 2018, Haemophilia : the official journal of the World Federation of Hemophilia.

Prophylaxis usage, bleeding rates, and joint outcomes of hemophilia, 1999 to 2010: a surveillance project.

J. Gill, J. Soucie, M. Manco‐Johnson, 2017, Blood.

Complications of haemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System

J. Gill, B. Evatt, A. Shapiro, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Comparison of clot‐based, chromogenic and fluorescence assays for measurement of factor VIII inhibitors in the US Hemophilia Inhibitor Research Study

A. Shapiro, C. Miller, J. Soucie, 2013, Journal of thrombosis and haemostasis : JTH.

Validation of Nijmegen–Bethesda assay modifications to allow inhibitor measurement during replacement therapy and facilitate inhibitor surveillance

C. Miller, J. Soucie, F. Kelly, 2012, Journal of thrombosis and haemostasis : JTH.

In non‐severe hemophilia A the risk of inhibitor after intensive factor treatment is greater in older patients: a case–control study

C. Kempton, N. Key, C. Miller, 2010, Journal of thrombosis and haemostasis : JTH.

Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project Investigators.

B. Evatt, J. Soucie, D. Jackson, 1998, American journal of hematology.

Changes in the occurrence of and risk factors for hemophilia‐associated intracranial hemorrhage

B. Evatt, J. Soucie, R. Nuss, 2001, American journal of hematology.

Hemophilia without prophylaxis: Assessment of joint range of motion and factor activity

Michael Wang, D. Cooper, N. Iyer, 2020, Research and practice in thrombosis and haemostasis.

Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: a report from The Centers for Disease Control and Prevention’s (CDC) Universal Data Collection (UDC) project

J. Gill, B. Evatt, J. Soucie, 2009, Haemophilia : the official journal of the World Federation of Hemophilia.

Linking the world with training and research for improving haemophilia care

J. Soucie, A. Srivastava, C. Ludlam, 2008, Haemophilia : the official journal of the World Federation of Hemophilia.

Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators.

L. Cowan, B. Evatt, J. Soucie, 2000, Blood.

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors.

Roshni Kulkarni, Keith Hoots, Heather Huszti, 2004, Blood.

Physical functioning in boys with hemophilia in the U.S.

B. Riske, P. Monahan, J. Soucie, 2011, American journal of preventive medicine.

The effects of joint disease, inhibitors and other complications on health‐related quality of life among males with severe haemophilia A in the United States

J. Thierry, M. Zack, S. Grosse, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Prevalence and risk factors of cardiovascular disease (CVD) events among patients with haemophilia: experience of a single haemophilia treatment centre in the United States (US)

A. Shapiro, J. Soucie, A. Sharathkumar, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Prevalent inhibitors in haemophilia B subjects enrolled in the Universal Data Collection database

J. Puetz, C. Kempton, P. Monahan, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Characteristics of hemophilia patients with factor VIII inhibitors detected by prospective screening

C. Leissinger, J. Gill, C. Miller, 2015, American journal of hematology.

Prophylaxis use among males with haemophilia B in the United States

M. Recht, S. Grosse, J. Soucie, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Measuring the quality of haemophilia care across different settings: a set of performance indicators derived from demographics data

A. Iorio, J. Stonebraker, J. Soucie, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Incidence of inhibitors in a cohort of 838 males with hemophilia A previously treated with factor VIII concentrates

C. Kempton, J. Soucie, T. Abshire, 2006, Journal of thrombosis and haemostasis : JTH.

Risk factors for infection with HBV and HCV in a largecohort of hemophiliac males

C. Leissinger, L. Richardson, B. Evatt, 2001, Transfusion.

Healthcare expenditures for males with haemophilia and employer‐sponsored insurance in the United States, 2008

C. Kessler, S. Guh, S. Grosse, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

B. Konkle, J. Soucie, C. Wang, 2013, Haemophilia : the official journal of the World Federation of Hemophilia.

Relevance of Abusive Head Trauma to Intracranial Hemorrhages and Bleeding Disorders

J. Soucie, R. Sidonio, R. Presley, 2018, Pediatrics.

Bleeding symptoms and laboratory correlation in patients with severe von Willebrand disease

B. Konkle, J. Soucie, C. Wang, 2009, Haemophilia : the official journal of the World Federation of Hemophilia.

Bleeding disorders in neonates

J. Soucie, G. Kenet, Anthony K. C. Chan, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

Renal disease among males with haemophilia

B. Evatt, J. Soucie, R. Kulkarni, 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

Occurrence rates of haemophilia among males in the United States based on surveillance conducted in specialized haemophilia treatment centres

T. Buckner, Brandi Dupervil, C. Miller, 2020, Haemophilia : the official journal of the World Federation of Hemophilia.

Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A White Paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

K. Ponder, J. Soucie, W. Hoots, 2006, Haemophilia : the official journal of the World Federation of Hemophilia.

Impact of inhibitors on hemophilia a mortality in the United States

C. Miller, J. Soucie, C. Walsh, 2015, American journal of hematology.

The national haemophilia program standards, evaluation and oversight systems in the United States of America.

M. Skinner, J. Soucie, K. Mclaughlin, 2014, Blood transfusion = Trasfusione del sangue.

Pediatric Hemophilia: A Review

J. Soucie, R. Kulkarni, Roshni Kulkarni1, 2011, Seminars in thrombosis and hemostasis.

Primary Prophylaxis Prevents the Onset of Arthropathy: Longitudinal Results of 603 Boys with Severe Factor VIII Deficiency Analyzed through the Centers for Disease Control Universal Data Collection (CDC UDC) Study.

B. Konkle, J. Soucie, M. Manco‐Johnson, 2008 .

Association of overweight and obesity with the use of self and home‐based infusion therapy among haemophilic men

A. Grant, J. Soucie, D. Brown, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States

T. Buckner, V. Byams, C. Miller, 2021, Haemophilia : the official journal of the World Federation of Hemophilia.

Burden of disease resulting from hemophilia in the U.S.

S. Ebrahim, H. Atrash, A. Siddiqi, 2010, American journal of preventive medicine.

Investigation of porcine parvovirus among persons with hemophilia receiving Hyate:C porcine factor VIII concentrate

B. Evatt, J. Soucie, D. Erdman, 2000, Transfusion.

Global Hemophilia Care: Data for Action

J. Soucie, 2019, Annals of Internal Medicine.

Intracranial Hemorrhage in Patients with Hemophilia in the Prophylaxis Era.

C. Manno, C. Witmer, J. Soucie, 2008 .

Increased Prevalence of Inhibitors in Mexican-Hispanic Patients with Severe Hemophilia A Enrolled in the Universal Data Collection Project.

J. Soucie, R. Presley, S. Carpenter, 2009 .

Surveillance for hemophilia and inherited hematologic disorders

B. Evatt, J. Soucie, F. Rickles, 2000 .

Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres

B. Konkle, J. Gill, P. Kouides, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Accounting for differences in healthcare utilization and expenditures among US males with haemophilia by type of health insurance

S. Guh, S. Grosse, J. Soucie, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Hepatitis B vaccination is effective by subcutaneous route in children with bleeding disorders: a universal data collection database analysis

J. Soucie, M. Ragni, B. Wicklund, 2015, Haemophilia : the official journal of the World Federation of Hemophilia.

Eradication of factor viii inhibitors in patients with mild and moderate hemophilia A

C. Kempton, J. Soucie, G. Young, 2012, American journal of hematology.

Complications with permanent peritoneal dialysis catheters: experience with 154 percutaneously placed catheters.

J. Soucie, M. Allon, E. Macon, 1988, Nephron.

History of kidney stones as a possible risk factor for chronic kidney disease.

W. McClellan, D. Sandler, S. Vupputuri, 2004, Annals of epidemiology.

Demographic and geographic variability of kidney stones in the United States.

M. Thun, R. Coates, W. McClellan, 1994, Kidney international.

Relation between geographic variability in kidney stones prevalence and risk factors for stones.

M. Thun, R. Coates, W. McClellan, 1996, American journal of epidemiology.

Family history of end-stage renal disease does not predict dialytic survival.

B. Freedman, W. McClellan, J. Soucie, 2001, American journal of kidney diseases : the official journal of the National Kidney Foundation.

Evidence for the continued transmission of parvovirus B19 in patients with bleeding disorders treated with plasma‐derived factor concentrates

C. Kessler, M. Recht, B. Riske, 2013, Transfusion.

Hypercalcemia and Neuromuscular Disease

J. Soucie, 1974 .

Familial clustering of end-stage renal disease in blacks with HIV-associated nephropathy.

B. Freedman, J. Soucie, S. Pegram, 1999, American journal of kidney diseases : the official journal of the National Kidney Foundation.

Epidemiology of Device-Associated Infections Related to a Long-Term Implantable Vascular Access Device

S. Ray, M. Sotir, J. Soucie, 1999, Infection Control & Hospital Epidemiology.

Vascular access and increased risk of death among hemodialysis patients.

W. McClellan, J. Soucie, William M McClellan, 2002, Kidney international.

Racial disparities in the prevalence of cardiovascular disease among incident end-stage renal disease patients.

A. Schoolwerth, W. McClellan, J. Soucie, 2006, Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association.

A prospective comparison of methods for determining if cardiovascular disease is a predictor of mortality in dialysis patients.

W. Mitch, W. McClellan, J. Soucie, 1994, American Journal of Kidney Diseases.

Racial variation in autosomal dominant polycystic kidney disease.

B. Freedman, A. Chapman, W. McClellan, 2000, American journal of kidney diseases : the official journal of the National Kidney Foundation.

Clustering Patterns of Comorbidities Associated with In-Hospital Death in Hospitalizations of US Adults with Venous Thromboembolism

H. Atrash, A. Helwig, J. Tsai, 2013, International journal of medical sciences.

Facility mortality rates for new end-stage renal disease patients: implications for quality improvement.

W. McClellan, J. Soucie, William McClellan, 1994, American journal of kidney diseases : the official journal of the National Kidney Foundation.

Public health surveillance and data collection: general principles and impact on hemophilia care

J. Soucie, J Michael Soucie, 2012, Hematology.

Neighborhood poverty and racial differences in ESRD incidence.

D. Kleinbaum, W. McClellan, D. Flanders, 2008, Journal of the American Society of Nephrology : JASN.

Origins and organization of the NHLBI State of the Science Workshop: Generating a national blueprint for future research on factor VIII inhibitors

W. Hooper, S. Pipe, J. Soucie, 2019, Haemophilia : the official journal of the World Federation of Hemophilia.

Potential of the Community Counts registry to characterize rare bleeding disorders

A. Shapiro, J. Soucie, A. Lail, 2019, Haemophilia : the official journal of the World Federation of Hemophilia.

Cluster of inhibitors among adult inpatients with haemophilia in a single institution

T. Buckner, W. Hooper, N. Key, 2015, Haemophilia : the official journal of the World Federation of Hemophilia.

Achievement and safety of a low blood pressure goal in chronic renal disease. The Modification of Diet in Renal Disease Study Group.

A. Levey, T. Greene, V. Buckalew, 1997, Hypertension.

Risk factors for hospital utilization in chronic dialysis patients. Southeastern Kidney Council (Network 6).

M. Rocco, D. Reboussin, W. McClellan, 1996, Journal of the American Society of Nephrology : JASN.

Peritoneal dialysis adequacy and risk of death.

M. Rocco, W. McClellan, J. Soucie, 2000, Kidney international.

Ethnic differences in the use of peritoneal dialysis as initial treatment for end-stage renal disease.

C. Barker‐Cummings, W. McClellan, J. Soucie, 1995, JAMA.

Neutralizing antibodies against adeno-associated virus examined prospectively in pediatric patients with hemophilia

R. Samulski, L. Valentino, M. Manco-Johnson, 2011, Gene Therapy.

A study of variations in the reported haemophilia A prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

Associations between intracranial haemorrhage and prescribed prophylaxis in a large cohort of haemophilia patients in the United States

C. Manno, C. Witmer, J. Soucie, 2011, British journal of haematology.

High school completion rates among men with hemophilia.

B. Riske, A. Forsberg, J. Soucie, 2010, American journal of preventive medicine.

A study of variations in the reported haemophilia B prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.