P. Bolton-Maggs

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Optimal haemophilia care versus the reality

P. Bolton-Maggs, P. Bolton-Maggs, 2006, British journal of haematology.

Comprehensive Cancer-Predisposition Gene Testing in an Adult Multiple Primary Tumor Series Shows a Broad Range of Deleterious Variants and Atypical Tumor Phenotypes

William J. Astle, Dorothy A. Thompson, Sri V. V. Deevi, 2018, American journal of human genetics.

Pilot study of an Internet‐based electronic patient treatment record and communication system for haemophilia, Advoy.com

P. Collins, P. Bolton-Maggs, D. Stephenson, 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

Haemophilias A and B

K. Pasi, P. Bolton-Maggs, K John Pasi, 2003, The Lancet.

British Society of Haematology Guidelines on the spectrum of fresh frozen plasma and cryoprecipitate products: their handling and use in various patient groups in the absence of major bleeding

R. Cardigan, J. Thachil, S. Stanworth, 2018, British journal of haematology.

A review of inherited platelet disorders with guidelines for their management on behalf of the UKHCDO

S. Watson, D. Perry, A. Mumford, 2006, British journal of haematology.

Towards comprehensive care in transition for young people with haemophilia

V. Blanchette, V. Breakey, P. Bolton-Maggs, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

Serious Hazards of Transfusion (SHOT) haemovigilance and progress is improving transfusion safety

Hannah Cohen, H. Cohen, P. Bolton-Maggs, 2013, British journal of haematology.

Transfusion errors — can they be eliminated?

P. Bolton-Maggs, A. Watt, 2019, British journal of haematology.

Childhood immune thrombocytopenic purpura: diagnosis and management.

V. Blanchette, P. Bolton-Maggs, 2010, Hematology/oncology clinics of North America.

Functional characterization of factor V-Ile359Thr: a novel mutation associated with thrombosis.

B. Dahlbäck, A. Mumford, E. Tuddenham, 2004, Blood.

Use of and reactions to fresh frozen plasma in the UK

P. Bolton-Maggs, H. New, H. Tinegate, 2016 .

Guidelines on transfusion for fetuses, neonates and older children

S. Stanworth, Sailesh Kumar, E. Chalmers, 2016, British journal of haematology.

Review of guidelines for the prevention and treatment of infection in patients with an absent or dysfunctional spleen: Prepared on behalf of the British Committee for Standards in Haematology by a Working Party of the Haemato‐Oncology Task Force

I. Rafi, S. Ladhani, P. Bolton-Maggs, 2011, British journal of haematology.

The administration of blood components: a British Society for Haematology Guideline

C. Atterbury, P. Bolton-Maggs, C. Howell, 2018, Transfusion medicine.

Whole exome sequencing identifies genetic variants in inherited thrombocytopenia with secondary qualitative function defects

S. Mundell, M. Simpson, S. Watson, 2016, Haematologica.

The diagnosis and management of hereditary spherocytosis.

P. Bolton-Maggs, P. Bolton-Maggs, 2000, Bailliere's best practice & research. Clinical haematology.

Wrong blood in tube – potential for serious outcomes: can it be prevented?

E. Wood, P. Bolton-Maggs, J. Wiersum-Osselton, 2015, British journal of haematology.

Guidelines on the use of irradiated blood components

A. Gennery, A. Coles, R. Cardigan, 2020, British journal of haematology.

Mucosa associated lymphoma of the lung.

J. Williams, P. Bolton-Maggs, R. Donnelly, 1993, Thorax.

National comparative audit of blood transfusion: 2014 audit of transfusion services and practice in children and adults with sickle cell disease

L. Estcourt, D. Lowe, P. Bolton-Maggs, 2019, Transfusion medicine.

Principles of Transitional Care in Haematology

P. Bolton-Maggs, Satarupa Choudhuri, 2014 .

Management of Activity in Immune Thrombocytopenia, Fat or Fit?

P. Bolton-Maggs, J. Grainger, 2015, Pediatric blood & cancer.

A common ancestral mutation (C128X) occurring in 11 non‐Jewish families from the UK with factor XI deficiency

R. Mountford, P. Bolton-Maggs, S. Keeney, 2004, Journal of thrombosis and haemostasis : JTH.

Hematopoietic progenitor cell deficiency in fetuses and children affected by Down's syndrome.

I. Bellantuono, P. Bolton-Maggs, E. Ladusans, 2006, Experimental hematology.

Heterogeneity of the ɛγδβ‐thalassaemias: characterization of three novel English deletions

Cameron S. Osborne, Richard J. Thompson, P. Fraser, 2005, British journal of haematology.

A framework for genetic service provision for haemophilia and other inherited bleeding disorders

D. Perry, A. Fryer, G. Dolan, 2005, Haemophilia : the official journal of the World Federation of Hemophilia.

Serious Hazards of Transfusion (SHOT): Its Implications for Intensive Care

H. Cohen, P. Bolton-Maggs, Dafydd Thomas, 2013 .

Guidelines for the investigation and management of idiopathic thrombocytopenic purpura in adults, children and in pregnancy

W. Ouwehand, I. Greer, M. Murphy, 2003, British journal of haematology.

A ploidy-agnostic method for estimating telomere length from whole genome sequencing data.

Ania, Eleanor, Dewhurst, 2018 .

Gut Overgrowth of Vancomycin-resistant Enterococci (VRE) Results in Linezolid-resistant Mutation in a Child With Severe Congenital Neutropenia: A Case Report

P. Bolton-Maggs, H. V. van Saene, N. Verma, 2007, Journal of pediatric hematology/oncology.

Spectrum of factor XI (F11) mutations in the UK population – 116 index cases and 140 mutations

R. Mountford, M. Mitchell, P. Bolton-Maggs, 2006, Human mutation.

Severe hemorrhage in children with newly diagnosed immune thrombocytopenic purpura.

S. Vesely, E. Neufeld, V. Blanchette, 2008, Blood.

Rare bleeding disorders

F. Peyvandi, A. Batorova, P. Bolton-Maggs, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Guidelines for the diagnosis and management of hereditary spherocytosis – 2011 update

A. Iolascon, J. Langer, P. Bolton-Maggs, 2012, British journal of haematology.

Chronic immune thrombocytopenic purpura—who needs medication?

P. Bolton-Maggs, Victoria S. L. Kok, 2010, Annals of Hematology.

Severe Bleeding in Idiopathic Thrombocytopenic Purpura

P. Bolton-Maggs, 2003, Journal of pediatric hematology/oncology.

primary immune thrombocytopenia International consensus report on the investigation and management of

V. Blanchette, D. Cines, B. Chong, 2010 .

Management of immune thrombocytopenic purpura

P. Bolton-Maggs, 2007 .

The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co‐segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype

K. Khair, P. Collins, D. Keeling, 2005, British journal of haematology.

Myelodysplastic syndrome with trisomy 8 associated with Behçet syndrome: An immunologic link to a karyotypic abnormality

R. Moots, J. Thachil, A. Field, 2008, Pediatric blood & cancer.

Faculty Opinions recommendation of Efficiency and safety of varying the frequency of whole blood donation (INTERVAL): a randomised trial of 45 000 donors.

P. Bolton-Maggs, 2017 .

The use of vitamin K for reversal of over-warfarinization in children.

P. Bolton-Maggs, L. Brook, 2002, British journal of haematology.

Transition of care from paediatric to adult services in haematology

P. Bolton-Maggs, 2007, Archives of Disease in Childhood.

associated with thrombosis Functional characterization of factor V-Ile359Thr: a novel mutation

B. Dahlbäck, A. Mumford, E. Tuddenham, 2013 .

Evaluation of two simplified methods for genotyping hepatitis C virus

N. Beeching, P. Bolton-Maggs, C. Hart, 1997, Journal of medical virology.

Extreme warfarin hypersensitivity after oophorectomy.

M. Shearer, J. Thachil, P. Bolton-Maggs, 2015, Blood coagulation & fibrinolysis : an international journal in haemostasis and thrombosis.

An investigation of the von Willebrand factor genotype in UK patients diagnosed to have type 1 von Willebrand disease

P. Collins, C. Hay, D. Keeling, 2006, Thrombosis and Haemostasis.

Pulmonary complications of transfusion: Changes, challenges, and future directions

P. Bolton-Maggs, Sharran Grey, 2020, Transfusion medicine.

Revised international surveillance case definition of transfusion-associated circulatory overload: a classification agreement validation study.

P. Bolton-Maggs, J. Wiersum-Osselton, B. Whitaker, 2019, The Lancet. Haematology.

Serious hazards of transfusion haemovigilance - The UK experience

H. Cohen, P. Bolton-Maggs, 2012 .

A study of variations in the reported haemophilia A prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

THE RARE COAGULATION DISORDERS

P. Bolton-Maggs, 2006 .

von Willebrand disease update: diagnostic and treatment dilemmas

J. Goudemand, D. Lillicrap, E. Berntorp, 2008, Haemophilia : the official journal of the World Federation of Hemophilia.

A study of variations in the reported haemophilia B prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Advances in Hemophilia Care: Report of Two Symposia at the Hemophilia 2010 World Congress

E. Steinhagen-Thiessen, C. Hermans, G. Dolan, 2012, Advances in Therapy.

The World Federation of Hemophilia Annual Global Survey 1999‐2018

Jeffrey S. Stonebraker, A. Iorio, J. Stonebraker, 2020, Haemophilia : the official journal of the World Federation of Hemophilia.

A study of reported factor IX use around the world

J. Stonebraker, A. Srivastava, P. Bolton-Maggs, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

General Surgery in Patients With a Bleeding Diathesis: How We Do It

A. Siriwardena, C. Hay, P. Bolton-Maggs, 2011, World Journal of Surgery.

Transfusion guidelines for neonates and older children

C. Rodeck, J. Duguid, H. Cohen, 2004, British journal of haematology.

Definition of the Bleeding Tendency in Factor XI-Deficient Kindreds–A Clinical and Laboratory Study

E. Tuddenham, P. Bolton-Maggs, R. Wensley, 1995, Thrombosis and Haemostasis.

IDENTIFICATION AND CHARACTERIZATION OF MUTATIONS IN THE FACTOR-XI GENE OF NON-JEWISH FXI DEFICIENT PATIENTS

P. Bolton-Maggs, Y. Imanaka, J. Lloyd, 1993 .

Production and Therapeutic Use of a Factor XI Concentrate from Plasma

L. Winkelman, P. Bolton-Maggs, C. Kasper, 1992, Thrombosis and Haemostasis.

Evidence‐based treatment of haemophilia

P. Bolton-Maggs, R. Smyth, K. Stobart, 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

Changes in bleeding patterns in von Willebrand disease after institution of long-term replacement therapy: results from the von Willebrand Disease Prophylaxis Network

P. Mannucci, L. Valentino, C. Kempton, 2015, Blood coagulation & fibrinolysis : an international journal in haemostasis and thrombosis.

Factor XI Deficiency

E. Mammen, P. Bolton-Maggs, 1983, Definitions.

The natural history of occult or angiodysplastic gastrointestinal bleeding in von Willebrand disease

M. Makris, A. Federici, E. Berntorp, 2015, Haemophilia : the official journal of the World Federation of Hemophilia.

Global Forum of the World Federation of Hemophilia, September 26-27, 2005, Montreal, Quebec, Canada.

P. Mannucci, M. Skinner, J. Dodt, 2006, Transfusion and apheresis science : official journal of the World Apheresis Association : official journal of the European Society for Haemapheresis.

International consensus report on the investigation and management of primary immune thrombocytopenia.

Drew Provan, Robert McMillan, Shirley Watson, 2010, Blood.

A novel deletion mutation is recurrent in von Willebrand disease types 1 and 3.

P. Collins, C. Hay, P. Bolton-Maggs, 2009, Blood.

Pregnancy and rare bleeding disorders

P. Bolton-Maggs, R. Kadir, C. Chi, 2009, Haemophilia : the official journal of the World Federation of Hemophilia.

Diffuse angioma‐like changes associated with chronic DIC

P. Bolton-Maggs, M. Rustin, P. Bolton-Maggs, 1988, Clinical and experimental dermatology.

International haemovigilance: what have we learned and what do we need to do next?

O Flesland, E M Wood, E. Wood, 2019, Transfusion medicine.

De Novo Truncating Mutations in WASF1 Cause Intellectual Disability with Seizures

Henning Gall, Fengyuan Hu, Kevin Rue-Albrecht, 2018, American journal of human genetics.

Commentary on session: Immune thrombocytopenia nomenclature, guidelines, and natural history.

M. Elalfy, P. Bolton-Maggs, 2013, Seminars in hematology.

The haemoglobinopathy survey: The reality of transfusion practice in sickle cell disease and thalassaemia in England

L. Estcourt, P. Bolton-Maggs, A. Mora, 2020, Transfusion medicine.

Pure red cell aplasia heralding chronic myelomonocytic leukaemia.

P. Bolton-Maggs, M. Galloway, E. G. Rhodes, 1989, Clinical and laboratory haematology.

A consensus redefinition of transfusion‐related acute lung injury

Daryl J. Kor, Pearl Toy, Mark R. Looney, 2019, Transfusion.

TREATMENT OF PAROXYSMAL SUPRAVENTRICULAR TACHYCARDIA

T. Pickering, P. Bolton-Maggs, 1975, The Lancet.

Newly diagnosed idiopathic thrombocytopenic purpura in childhood: an observational study

V. Blanchette, P. Bolton-Maggs, T. Kühne, 2001, The Lancet.

Update on the management of immune thrombocytopenic purpura in children

M. Tarantino, P. Bolton-Maggs, 2007, Current opinion in hematology.

The Child With Immune Thrombocytopenic Purpura: Is Pharmacotherapy or Watchful Waiting the Best Initial Management?: A Panel Discussion From the 2002 Meeting of the American Society of Pediatric Hematology/Oncology

J. George, J. Bussel, M. Tarantino, 2004, Journal of pediatric hematology/oncology.

Serious hazards of transfusion – conference report: celebration of 20 years of UK haemovigilance

P. Bolton-Maggs, 2017, Transfusion medicine.

Acute immune thrombocytopenic purpura

P. Bolton-Maggs, 2009, Hämostaseologie.

Childhood immune thrombocytopenic purpura: diagnosis and management.

V. Blanchette, P. Bolton-Maggs, 2008, Pediatric clinics of North America.

Late presentation of polyvinyl alcohol sponge (Ivalon) aortic graft failure.

P. Bolton-Maggs, R. Motson, 1979, Thorax.

10 Factor XI deficiency

P. Bolton-Maggs, 1996 .

Paroxysmal cold haemoglobinuria of childhood: a review of the management and unusual presenting features of six cases.

P. Bolton-Maggs, R. Stevens, R. Wynn, 1998, Clinical and laboratory haematology.

The nontreatment of childhood ITP (or "the art of medicine consists of amusing the patient until nature cures the disease").

A. Vora, P. Bolton-Maggs, R. Dickerhoff, 2001, Seminars in thrombosis and hemostasis.

Investigation of the neutropenic child

P. Bolton-Maggs, 1998 .

The granulocytes in neutropenia 1 (GIN 1) study: a safety study of granulocytes collected from whole blood and stored in additive solution and plasma

B. Kahan, J. Moppett, S. Stanworth, 2012, Transfusion medicine.

Idiopathic thrombocytopenic purpura

P. Bolton-Maggs, 1995, Archives of disease in childhood.

The management of immune thrombocytopenic purpura

P. Bolton-Maggs, 2002 .

Congenital and acquired bleeding disorders in infancy.

P. Bolton-Maggs, S. Campbell, 2015, Early human development.

A United Kingdom Immune Thrombocytopenia (ITP) Forum review of practice: thrombopoietin receptor agonists

C. Bradbury, J. Thachil, M. Murphy, 2018, British journal of haematology.

Bleeding manifestations and management of children with persistent and chronic immune thrombocytopenia: data from the Intercontinental Cooperative ITP Study Group (ICIS).

S. Vesely, E. Neufeld, V. Blanchette, 2009, Blood.

Changing trends in the UK management of childhood ITP

P. Bolton-Maggs, J. Grainger, M. Reeves, 2011, Archives of Disease in Childhood.

Hereditary spherocytosis; new guidelines

P. Bolton-Maggs, P H B Bolton-Maggs, 2004, Archives of Disease in Childhood.

A genome-wide association study of resistance to HIV infection in highly exposed uninfected individuals with hemophilia A.

K. Shianna, D. Goldstein, J. Goedert, 2013, Human molecular genetics.

Characterisation of five factor XI mutations

M. Mitchell, P. Bolton-Maggs, G. Savidge, 2007, Thrombosis and Haemostasis.

The rarer inherited coagulation disorders: a review.

P. Bolton-Maggs, F. Hill, 1995, Blood reviews.

Missed irradiation of cellular blood components for vulnerable patients: Insights from 10 years of SHOT data

P. Bolton-Maggs, Shruthi Narayan, J. Elliot, 2020, Transfusion.

The high frequency of the — 6G → A factor IX promoter mutation is the result both of a founder effect and recurrent mutation at a CpG dinucleotide

G. Brownlee, P. Bolton-Maggs, M. S. Figueiredo, 1995, British journal of haematology.

Characterisation of blood coagulation factor XIT475I

E. Tuddenham, P. Bolton-Maggs, J. McVey, 2005, Thrombosis and Haemostasis.

Molecular analysis of the genotype-phenotype relationship in factor X deficiency

D. Cooper, M. Krawczak, A. Wacey, 2000, Human Genetics.

Conference report: International Haemovigilance Seminar and the SHOT Annual Symposium, 10–12 July 2018

P. Bolton-Maggs, P H B Bolton-Maggs, 2019, Transfusion medicine.

Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation

V. Blanchette, N. Young, R. Klaassen, 2009, Health and quality of life outcomes.

Phenotypic Characterization of EIF2AK4 Mutation Carriers in a Large Cohort of Patients Diagnosed Clinically With Pulmonary Arterial Hypertension

Fengyuan Hu, Kevin Rue-Albrecht, Patrick Deegan, 2017, Circulation.

Successful vaginal delivery in a patient with extreme thrombotic thrombocytopenic purpura at term

M. Davies, P. Bolton-Maggs, L. Byrd, 2009, Journal of obstetrics and gynaecology : the journal of the Institute of Obstetrics and Gynaecology.

Transfusion and hemovigilance in pediatrics.

P. Bolton-Maggs, 2013, Pediatric clinics of North America.

Molecular genetic analysis of severe protein C deficiency

D. Cooper, V. Kakkar, S. Schulman, 2000, Human Genetics.

A cross‐reactive material positive variant of coagulation factor XI (FXIP520L) with a catalytic defect

A. Schmidt, P. Bolton-Maggs, S. P. Bajaj, 2007, Journal of thrombosis and haemostasis : JTH.

An update of the transfusion-related acute lung injury (TRALI) definition.

S. Kleinman, C. Silliman, D. Kor, 2019, Transfusion clinique et biologique : journal de la Societe francaise de transfusion sanguine.

A Novel Assay for Determining Bleeding Risk in Factor XI Deficiency

P. Bolton-Maggs, 2020, Thrombosis and Haemostasis.

Identification of two novel mutations in non‐Jewish factor XI deficiency

P. Bolton-Maggs, J. McVey, Y. Imanaka, 1995, British journal of haematology.

Letter: Treatment of paroxysmal supraventricular tachycardia.

T. Pickering, P. Bolton-Maggs, 1975, Lancet.

Congenital afibrinogenemia: identification and expression of a missense mutation in FGB impairing fibrinogen secretion.

J. Parr, M. Morris, P. Bolton-Maggs, 2003, Blood.

FXI concentrate use and risk of thrombosis

C. Hermans, M. Makris, J. Goudemand, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Immune Thrombocytopenia Treatment.

J. George, P. Bolton-Maggs, 2021, The New England journal of medicine.

Addendum to the British Committee for Standards in Haematology (BCSH): guidelines for the use of fresh‐frozen plasma, cryoprecipitate and cryosupernatant, 2004 (Br. J Haematol 2004,126,11‐28) ‐ response to Neisser‐Svae and Heger

R. Cardigan, J. Thachil, S. Stanworth, 2018, British journal of haematology.

Addendum to the British Committee for Standards in Haematology (BCSH): Guidelines for the use of fresh‐frozen plasma, cryoprecipitate and cryosupernatant, 2004 (Br. J Haematol 2004,126,11‐28)

R. Cardigan, J. Thachil, S. Stanworth, 2017, British journal of haematology.

Choice of treatment for menorrhagia

P. Bolton-Maggs, 1999, The Lancet.

Eleven novel mutations in non-Jewish factor XI deficient kindreds detected by SSCP with heteroduplex analysis followed by sequencing

R. Mountford, P. Bolton-Maggs, D. Gailani, 2003 .

Blood transfusion safety: patients at risk from human errors.

P. Bolton-Maggs, Paula Hb Bolton-Maggs, 2013, British journal of hospital medicine.

Combined glucose-6-phosphate dehydrogenase and glucosephosphate isomerase deficiency can alter clinical outcome.

T. Vulliamy, P. Bolton-Maggs, P. Mason, 2003, Blood cells, molecules & diseases.

CYTOMEGALOVIRUS, SERUM β2 MICROGLOBULIN, AND PROGRESSION TO AIDS IN HIV-SEROPOSITIVE HAEMOPHILIACS

C. Hay, P. Bolton-Maggs, K. Mutton, 1989, The Lancet.

Comprehensive Rare Variant Analysis via Whole-Genome Sequencing to Determine the Molecular Pathology of Inherited Retinal Disease.

Dorothy A. Thompson, Sri V. V. Deevi, Eleanor F. Dewhurst, 2017, American journal of human genetics.

mutation in FGB impairing fibrinogen secretion Congenital afibrinogenemia: identification and expression of a missense

J. Parr, M. Morris, P. Bolton-Maggs, 2013 .

Brief report Congenital aﬁbrinogenemia: identiﬁcation and expression of a missense mutation in FGB impairing ﬁbrinogen secretion

J. Parr, M. Morris, P. Bolton-Maggs, 2003 .

Telomerecat: A ploidy-agnostic method for estimating telomere length from whole genome sequencing data

Andy G Lynch, Sri V. V. Deevi, Eleanor F. Dewhurst, 2017, Scientific Reports.

Patient identification in blood sampling.

P. Bolton-Maggs, A. Davidson, 2014, Nursing Times.

Serious Hazards of Transfusion (SHOT) haemovigilance and progress is improving transfusion safety

H. Cohen, P. Bolton-Maggs, 2013, British journal of haematology.

Telomerecat: A ploidy-agnostic method for estimating telomere length from whole genome sequencing data

Sri V. V. Deevi, Eleanor F. Dewhurst, Courtney E. French, 2017, Scientific Reports.

UK Transfusion Laboratory Collaborative: minimum standards for staff qualifications, training, competency and the use of information technology in hospital transfusion laboratories 2014

H. Mistry, J. Staves, P. Bolton-Maggs, 2014, Transfusion medicine.

THE RARE COAGULATION

P. Bolton-Maggs, 2006 .

British Society for Haematology Guidelines on transfusion for fetuses, neonates and older children (Br J Haematol. 2016;175:784–828). Addendum August 2020

S. Stanworth, E. Chalmers, P. Bolton-Maggs, 2020, British journal of haematology.

Biallelic Mutation of ARHGEF18, Involved in the Determination of Epithelial Apicobasal Polarity, Causes Adult-Onset Retinal Degeneration.

Sri V. V. Deevi, Eleanor F. Dewhurst, Lorena E. Lorenzo, 2017, American journal of human genetics.

Rare bleeding disorders

F. Peyvandi, P. Bolton-Maggs, P. de Moerloose, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Cold agglutinins in haemophiliac boys infected with HIV.

J. Duguid, L. Ball, P. Bolton-Maggs, 1991, Archives of disease in childhood.

Diagnosis and management of thrombotic microangiopathy: The role of registries

P. Bolton-Maggs, 2013, Pediatric blood & cancer.