T. Brei

发表

Whole genomewide linkage screen for neural tube defects reveals regions of interest on chromosomes 7 and 10

W. J. Oakes, J. Gilbert, A. Bassuk, 2005, Journal of Medical Genetics.

Variation in bowel and bladder continence across US spina bifida programs: A descriptive study.

Tiebin Liu, J. Wiener, M. Schechter, 2017, Journal of pediatric rehabilitation medicine.

Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida

R. Kirby, S. Farr, T. Brei, 2021, Birth defects research.

Self-management and independence guidelines for the care of people with spina bifida

T. Brei, K. Sawin, M. Bellin, 2020, Journal of pediatric rehabilitation medicine.

Cross‐informant agreement between adolescents with myelomeningocele and their parents

T. Brei, C. Buran, K. Sawin, 2006, Developmental medicine and child neurology.

Genetic Studies in Neural Tube Defects

W. J. Oakes, M. Pericak-Vance, M. Qumsiyeh, 2000, Pediatric Neurosurgery.

The experience of adolescent women living with spina bifida. Part II: Peer relationships.

T. Brei, C. Buran, G. Roux, 2007, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

A Global Family Quality of Life Scale: Preliminary psychometric evidence.

T. Brei, K. Sawin, R. Schiffman, 2018, Journal of pediatric rehabilitation medicine.

The Future of the Multidisciplinary Clinic

T. Brei, 2007, TheScientificWorldJournal.

From autism to zoom®: Spina bifida advocacy, care, education, and research in a changing word.

T. Brei, J. Thibadeau, J. Castillo, 2022, Journal of pediatric rehabilitation medicine.

Adolescents with myelomeningocele: activities, beliefs, expectations, and perceptions.

P. Fastenau, T. Brei, C. Buran, 2004, Developmental medicine and child neurology.

Prenatal counseling: Guidelines for the care of people with spina bifida

P. Church, T. Brei, M. Merkens, 2020, Journal of pediatric rehabilitation medicine.

Self-management and Spina Bifida: A systematic review of the literature.

R. Margolis, T. Brei, K. Sawin, 2020, Disability and health journal.

Adolescents with my elomeningocele: activities, beliefs, expectations, and perceptions

P. Fastenau, T. Brei, C. Buran, 2004 .

Glaucoma and findings simulating glaucoma in the Rubinstein-Taybi syndrome.

M. J. Burke, T. Brei, J. Rubinstein, 1995, Journal of pediatric ophthalmology and strabismus.

Management of drooling.

T. Brei, 2003, Seminars in pediatric neurology.

Introduction: Spina bifida--a multidisciplinary perspective.

J. Fletcher, T. Brei, 2010, Developmental disabilities research reviews.

Photoreactivation of far U.V. damage in the dinoflagellate Peridinium cinctum

T. Brei, R. C. Tuttle, B. Hayhome, 1981 .

Patient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems

M. Wiznitzer, S. Levy, Thomas F. Long, 2014, Pediatrics.

Factors Associated with Quality of Life in Adolescents with Spina Bifida

P. Fastenau, T. Brei, C. Buran, 2002, Journal of holistic nursing : official journal of the American Holistic Nurses' Association.

The experience of parenting an adolescent with spina bifida.

P. Fastenau, T. Brei, C. Buran, 2003, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

The Experience of Adolescent Women Living with Spina Bifida Part I: Self‐Concept and Family Relationships

T. Brei, C. Buran, G. Roux, 2007, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association.

B. Dicianno, T. Brei, Lisa Raman, 2020, Disability and health journal.

Secondary conditions in adolescents and young adults (AYA) with spina bifida (SB) in Four US Programs

Susan E. Cashin, T. Brei, C. Buran, 2010, Cerebrospinal Fluid Research.

The relationship of neuropsychological functioning to adaptation outcome in adolescents with spina bifida

L. Conant, P. Fastenau, Susan E. Cashin, 2008, Journal of the International Neuropsychological Society.

The Malone antegrade continence enema procedure: quality of life and family perspective.

M. Cain, E. Yerkes, R. Rink, 2003, The Journal of urology.

Quality of life: Guidelines for the care of people with spina bifida

A. Houtrow, T. Brei, K. Sawin, 2020, Journal of pediatric rehabilitation medicine.

Perspectives on Surgical Care and Outcomes in Spina Bifida

T. Brei, W. Walker, 2018, Pediatrics.

Quality of life in adolescents and young adults with and without Spina Bifida: An exploratory analysis.

T. Brei, G. Roux, K. Sawin, 2019, Journal of pediatric nursing.

Spina bifida care, education, and research: A multidisciplinary community in a global context.

T. Brei, J. Thibadeau, J. Castillo, 2021, Journal of pediatric rehabilitation medicine.

Children's health care providers and health care quality measurement.

T. Brei, J. Palfrey, 2011, Academic pediatrics.

Analysis of Self-Management and Transition Readiness Instruments for Clinical Practice

R. Margolis, T. Brei, K. Sawin, 2019 .

The development of the Adolescent/Young Adult Self-Management and Independence Scale II: Psychometric data.

Susan E. Cashin, T. Brei, K. Sawin, 2018, Journal of pediatric rehabilitation medicine.

Depressive symptoms in parents of adolescents with myelomeningocele: the association of clinical, adolescent neuropsychological functioning, and family protective factors.

P. Fastenau, T. Brei, C. Buran, 2014, Journal of pediatric rehabilitation medicine.

Genetic studies in neural tube defects. NTD Collaborative Group.

M. Pericak-Vance, M. Qumsiyeh, T. George, 2000, Pediatric neurosurgery.

Updated investigations of the role of methylenetetrahydrofolate reductase in human neural tube defects

E. Rampersaud, C. Powell, A. Aylsworth, 2003, Clinical genetics.

Sexuality Issues in Adolescents with a Chronic Neurological Condition

P. Fastenau, T. Brei, C. Buran, 2002, Journal of Perinatal Education.