J. Koffman

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Improving care for patients whose recovery is uncertain. The AMBER care bundle: design and implementation

S. Shouls, A. Hopper, K. Bristowe, 2014, BMJ Supportive & Palliative Care.

for Black, Asian and Minority Ethnic groups in the UK

I. Higginson, N. Calanzani, J. Koffman, 2013 .

Cultural meanings of pain: a qualitative study of Black Caribbean and White British patients with advanced cancer

I. Higginson, M. Morgan, I. Higginson, 2008, Palliative medicine.

Acceptability of Namaste Care for patients with advanced dementia being cared for in an acute hospital setting

J. Koffman, K. S. John, 2015 .

Abstracts from the NIHR INVOLVE Conference 2017

Michael Nunns, Sara Schroter, Jenny Donovan, 2017, Research Involvement and Engagement.

Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation

H. Johnson, C. Evans, E. Chukwusa, 2020, Palliative medicine.

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis.

I. Higginson, V. Robinson, C. Ramsenthaler, 2017, Journal of pain and symptom management.

Understanding usual care in randomised controlled trials of complex interventions: A multi-method approach

A. Pickles, H. Johnson, S. Barclay, 2020, Palliative medicine.

Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis

I. Higginson, V. Robinson, C. Ramsenthaler, 2022 .

Religious faith and support at the end of life: a comparison of first generation black Caribbean and white populations

I. Higginson, J. Koffman, 2002, Palliative medicine.

Improving confidence and competence of healthcare professionals in end-of-life care: an evaluation of the ‘Transforming End of Life Care’ course at an acute hospital trust

V. Robinson, R. Burman, J. Koffman, 2015, BMJ Supportive & Palliative Care.

How can we achieve person-centred care for people living with HIV/AIDS? A qualitative interview study with healthcare professionals and patients in Ghana

I. Higginson, G. Ansa, R. Harding, 2019, AIDS care.

‘I wish I knew more ...’ the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals

S. Birring, I. Higginson, A. Wells, 2012, BMJ Supportive & Palliative Care.

Managing uncertain recovery for patients nearing the end of life in hospital; a mixed-method, feasibility cluster randomised controlled trial of the AMBER care bundle

A. Pickles, H. Johnson, S. Barclay, 2019 .

Multiprofessional Palliative Care Education: Past Challenges, Future Issues

J. Koffman, 2001, Journal of palliative care.

The palliative care needs for fibrotic interstitial lung disease: A qualitative study of patients, informal caregivers and health professionals

S. Birring, I. Higginson, A. Wells, 2013, Palliative medicine.

(2017). A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance. Journal Pain and Symptom

I. Higginson, J. Koffman, Suzanne M O’Brien, 2022 .

Servicing multi-cultural needs at the end of life.

J. Koffman, 2014, Journal of renal care.

Demographic factors and awareness of palliative care and related services

J. Koffman, G. Burke, J. Byrne, 2007, Palliative medicine.

Symptom severity in advanced cancer, assessed in two ethnic groups by interviews with bereaved family members and friends.

I. Higginson, N. Donaldson, J. Koffman, 2003, Journal of the Royal Society of Medicine.

Symptom Severity in Advanced Cancer, Assessed in Two Ethnic Groups by Interviews with Bereaved Family Members and Friends

I. Higginson, N. Donaldson, J. Koffman, 2003 .

‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

I. Higginson, M. Morgan, Wei Gao, 2016, BMJ Open.

Use of acute psychiatric beds: a point prevalence survey in North and South Thames regions.

N. Fulop, J. Koffman, K. Coleman, 1996, Journal of public health medicine.

Palliative Medicine Specialist Trainee Research experience, interest and opportunities: a national survey

J. Koffman, C. Chamberlain, F. Dewhurst, 2021, BMJ supportive & palliative care.

Alternative to improve palliative care for all patients and families in critical care units: development and preliminary evaluation following MRC guidance of the King's Psychosocial, Assessment and Care tool

I. Higginson, R. Burman, C. Shipman, 2013, Critical Care.

integrated care pathways for end of life care perceptions of the benefits and harms of study of health care professionals ' ' It doesn ' t do the care for you ' : a qualitative

I. Higginson, M. Morgan, R. Burman, 2017 .

‘Difficult Conversations’: evaluation of multiprofessional training

K. Bristowe, J. Koffman, L. Selman, 2017, BMJ Supportive & Palliative Care.

Invited Editorials

S. Bajwah, J. Koffman, J. Hussain, 2021, Palliative medicine.

Assessing the impact of delayed discharge on acute care.

N. Fulop, M. Hudson, J. Koffman, 1996, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

Purely medicinal: Healthcare professionals and students may be more prone to drink excessively than the general public. Jonathan Koffman and Meryl Husdon report on the disturbing findings of their recent study

J. Koffman, M. Husdon, 1995 .

‘End of life could be on any ward really’: A qualitative study of hospital volunteers’ end-of-life care training needs and learning preferences

V. Robinson, R. Burman, J. Koffman, 2017, Palliative medicine.

To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe

D. Haugen, L. Deliens, I. Higginson, 2013, Palliative medicine.

No way out: the delayed discharge of elderly mentally ill acute and assessment patients in north and south Thames regions.

N. Fulop, J. Koffman, K. Coleman, 1996, Age and ageing.

Synergistic Impact of the Symptom Cluster on Health-Related Quality of Life in Patients With Chronic Obstructive Pulmonary Disease: A Secondary Data Analysis

Wei Gao, J. Koffman, Fei Fei, 2020, Clinical nursing research.

Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study

I. Higginson, L. Fraser, M. Maddocks, 2021, BMJ supportive & palliative care.

Clinical uncertainty and Covid-19: Embrace the questions and find solutions

J. Koffman, L. Selman, S. Etkind, 2020, Palliative medicine.

“I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study

B. Farsides, C. Evans, R. Burman, 2022, medRxiv.

Bereavement Support on the Frontline of COVID-19: Recommendations for Hospital Clinicians

J. Koffman, L. Selman, Steve Marshall, 2020, Journal of Pain and Symptom Management.

Non-pharmacological interventions for management of fatigue among children with cancer: systematic review of existing practices and their effectiveness

J. Koffman, Tushti Bhardwaj, 2017, BMJ Supportive & Palliative Care.

Researching minoritised communities in palliative care: An agenda for change

S. Bajwah, J. Koffman, J. Hussain, 2022, Palliative medicine.

Ethics in Palliative Care Research

J. Koffman, K. Stone, F. Murtagh, 2015, Textbook of Palliative Medicine and Supportive Care.

Knowledge of and attitudes towards palliative care and hospice services among patients with advanced chronic kidney disease

G. Jhangri, S. Davison, J. Koffman, 2014, BMJ Supportive & Palliative Care.

Ethnicity and use of acute psychiatric beds: One-day survey in North and South Thames regions

N. Fulop, J. Koffman, D. Pashley, 1997, British Journal of Psychiatry.

Primary care physicians’ educational needs and learning preferences in end of life care: A focus group study in the UK

V. Robinson, R. Burman, J. Koffman, 2017, BMC Palliative Care.

‘It doesn't do the care for you': a qualitative study of health care professionals' perceptions of the benefits and harms of integrated care pathways for end of life care

Philip Hopkins, Rachel Burman, Myfanwy Morgan, 2015, BMJ Open.

Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle

A. Pickles, H. Johnson, S. Barclay, 2019, Trials.

Rituals surrounding death and dying within the black Carribean community

J. Koffman, 2001 .

Multidisciplinary perspectives of music therapy in adult palliative care

J. O’Kelly, J. Koffman, 2007, Palliative medicine.

Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups

I. Higginson, S. Murray, S. Barclay, 2008, BMJ : British Medical Journal.

Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

I. Higginson, M. Morgan, R. Siegert, 2013, Psycho-oncology.

Does ethnicity affect pain management for people with advanced disease? A mixed methods cross-national systematic review of ‘very high’ Human Development Index English-speaking countries

M. Bennett, E. Chapman, J. Koffman, 2022, BMC Palliative Care.

Involvement of Rabbinic and communal authorities in decision-making by haredi Jews in the UK with breast cancer: an interpretative phenomenological analysis.

J. Spitzer, J. Koffman, Jonathan Koffman, 2009, Social science & medicine.

The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials

J. Armes, C. Evans, R. Harding, 2018, Palliative medicine.

Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study

I. Higginson, B. Gomes, P. McCrone, 2010, BMC Cancer.

Homelessness and the use of acute psychiatric beds: findings from a one-day survey of adult acute and low-level secure psychiatric patients in North and South Thames regions.

N. Fulop, J. Koffman, 1999, Health & social care in the community.

Challenging bed behaviours: The use of acute psychiatric beds in an inner-London District Health Authority

N. Fulop, M. Hudson, J. Koffman, 1992 .

Recommendations to reduce inequalities for LGBT people facing advanced illness: ACCESSCare national qualitative interview study

M. Hodson, R. Harding, B. Daveson, 2017, Palliative medicine.

Does palliative chemotherapy really palliate and are we measuring it correctly? A mixed methods longitudinal study of health related quality of life in advanced soft tissue sarcoma

I. Judson, J. Koffman, J. Ross, 2019, PloS one.

Symptom clusters, associated factors and health‐related quality of life in patients with chronic obstructive pulmonary disease: A structural equation modelling analysis

R. Siegert, J. Koffman, Fei Fei, 2022, Journal of clinical nursing.

Seeing is believing – healthcare professionals’ perceptions of a complex intervention to improve care towards the end of life: A qualitative interview study

I. Higginson, S. Shouls, A. Hopper, 2018, Palliative medicine.

Palliative care for patients with advanced fibrotic lung disease: a randomised controlled phase II and feasibility trial of a community case conference intervention

S. Birring, I. Higginson, A. Wells, 2015, Thorax.

Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature

I. Higginson, A. Wells, S. Bajwah, 2012, Thorax.

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study

I. Higginson, G. O'Gara, B. Daveson, 2018, Palliative medicine.

Feasibility and acceptability of a patient-reported outcome intervention in chronic heart failure

I. Higginson, G. O'Gara, B. Daveson, 2017, BMJ Supportive & Palliative Care.

Influence of individual, illness and environmental factors on place of death among people with neurodegenerative diseases: a retrospective, observational, comparative cohort study

T. Friede, R. Nicholas, J. Koffman, 2021, BMJ supportive & palliative care.

Feasibility and acceptability of a culturally adapted advance care planning intervention for people living with advanced cancer and their families: A mixed methods study

M. Hou, C. Evans, R. Harding, 2020, Palliative medicine.

What influences patients’ decisions regarding palliative care in advance care planning discussions? Perspectives from a qualitative study conducted with advanced cancer patients, families and healthcare professionals

C. Evans, R. Harding, S. Sheu, 2019, Palliative medicine.

The value of uncertainty in critical illness? An ethnographic study of patterns and conflicts in care and decision-making trajectories

I. Higginson, M. Costantini, R. Burman, 2015, BMC Anesthesiology.

Newspaper coverage of advance care planning during the COVID-19 pandemic: Content analysis.

D. Heyland, I. Korfage, A. van der Heide, 2023, Death studies.

Symptom Burden in Advanced Soft-Tissue Sarcoma.

I. Judson, J. Koffman, J. Ross, 2017, Journal of pain and symptom management.

End-of-life care for the British Asian Hindu Community: Preferences and Solutions

J. Henderson, J. Koffman, G. Burke, 2013 .

Uncertainty and COVID-19: how are we to respond?

J. Koffman, L. Selman, S. Etkind, 2020, Journal of the Royal Society of Medicine.

Leaky pipeline, gender bias, self-selection or all three? A quantitative analysis of gender balance at an international palliative care research conference

I. Higginson, J. Koffman, K. Sleeman, 2017, BMJ Supportive & Palliative Care.

Comparisons of Costs between Black Caribbean and White British Patients with Advanced Multiple Sclerosis in the UK

I. Higginson, R. Burman, E. Silber, 2014, Multiple sclerosis international.

Chronic Obstructive Pulmonary Disease Symptom Cluster Composition, Associated Factors, and Methodologies: A Systematic Review

J. Koffman, Fei Fei, Xiaohan Zhang, 2021, Western journal of nursing research.

Factors Associated with Participation, Active Refusals and Reasons for Not Taking Part in a Mortality Followback Survey Evaluating End-of-Life Care

I. Higginson, B. Gomes, N. Calanzani, 2016, PloS one.

Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study

I. Higginson, B. Gomes, N. Calanzani, 2015, BMC Medicine.

Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer

I. Higginson, M. Morgan, J. Koffman, 2009, Journal of Medical Ethics.

Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review

J. Koffman, Megumi Kishino, C. Ellis-Smith, 2022, Palliative medicine.

Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review

J. Koffman, Tara Dehpour, 2022, Aging & mental health.

Patient and carer experiences of clinical uncertainty and deterioration, in the face of limited reversibility: A comparative observational study of the AMBER care bundle

I. Higginson, S. Shouls, A. Hopper, 2015, Palliative medicine.

Out-of-hours palliative care: what are the educational needs and preferences of general practitioners?

J. Koffman, C. Magee, 2014, BMJ Supportive & Palliative Care.

Improving care for patients whose recovery is uncertain. The AMBER care bundle: design and implementation

S. Shouls, A. Hopper, K. Bristowe, 2014, BMJ Supportive & Palliative Care.

Emotional labour in palliative and end-of-life care communication: A qualitative study with generalist palliative care providers.

C. Evans, K. Bristowe, J. Koffman, 2019, Patient education and counseling.

Cultural competence in end-of-life care: terms, definitions, and conceptual models from the British literature.

I. Higginson, R. Pool, R. Harding, 2012, Journal of palliative medicine.

A Systematic Review of End-of-Life Care Communication Skills Training for Generalist Palliative Care Providers: Research Quality and Reporting Guidance.

I. Higginson, V. Robinson, J. Koffman, 2017, Journal of pain and symptom management.

Loss, transition and trust: perspectives of terminally ill patients and their oncologists when transferring care from the hospital into the community at the end of life

Clare Smith, N. Bosanquet, J. Koffman, 2016, BMJ Supportive & Palliative Care.

Improving Generalist End of Life Care

I. Higginson, S. Murray, S. Barclay, 2008 .

Development and evaluation of the feasibility and effects on staff, patients, and families of a new tool, the Psychosocial Assessment and Communication Evaluation (PACE), to improve communication and palliative care in intensive care and during clinical uncertainty

I. Higginson, M. Morgan, R. Burman, 2013, BMC Medicine.

Appraisal of literature reviews on end-of-life care for minority ethnic groups in the UK and a critical comparison with policy recommendations from the UK end-of-life care strategy

I. Higginson, R. Pool, R. Harding, 2011, BMC health services research.

No way in: including the excluded at the end of life

J. Koffman, M. Camps, 2004 .

Fit to care? A comparison of informal caregivers of first-generation Black Caribbeans and White dependants with advanced progressive disease in the UK.

I. Higginson, J. Koffman, 2003, Health & social care in the community.

Implementation of a complex intervention to improve care for patients whose situations are clinically uncertain in hospital settings: A multi-method study using normalisation process theory

H. Johnson, S. Barclay, M. Farquhar, 2020, PloS one.

Accounts of carers' satisfaction with health care at the end of life: A comparison of first generation black Caribbeans and white patients with advanced disease

I J Higginson, J Koffman, I. Higginson, 2001, Palliative medicine.

Systematic review of the primary research on minority ethnic groups and end-of-life care from the United Kingdom.

I. Higginson, R. Pool, R. Harding, 2012, Journal of pain and symptom management.

Public health and palliative care.

I. Higginson, J. Koffman, 2005, Clinics in geriatric medicine.

Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom.

I. Higginson, J. Koffman, 2004, Journal of palliative medicine.

‘The greatest thing in the world is the family’: the meaning of social support among Black Caribbean and White British patients living with advanced cancer

M. Morgan, I. Higginson, J. Koffman, 2012, Psycho-oncology.

Does Ethnicity Affect Where People with Cancer Die? A Population-Based 10 Year Study

I. Higginson, J. Koffman, J. Davies, 2014, PloS one.

Does ethnicity matter? Bereavement outcomes in two ethnic groups living in the United Kingdom

M. Hotopf, I. Higginson, N. Donaldson, 2005, Palliative and Supportive Care.

Assessing the Effectiveness and Acceptability of Interprofessional Palliative Care Education

I. Higginson, J. Koffman, 2005, Journal of palliative care.

Correspondence. Minority ethnic groups and our healthier nation

I. Higginson, J. Koffman, 2000 .

Minority ethnic groups and our healthier nation.

I. Higginson, J. Koffman, 2000, Journal of Public Health Medicine.

UK Palliative trainees Research Collaborative (UK-PRC): the first 5 years – 0–100 study sites

S. Noble, J. Koffman, C. Chamberlain, 2022, BMJ Supportive & Palliative Care.

Attitudes to timeliness of death and euthanasia among first generation black Caribbean and white patients and their families living in the United Kingdom.

I. Higginson, J. Koffman, 2003, Journal of palliative medicine.

Taking patient and public involvement online: qualitative evaluation of an online forum for palliative care and rehabilitation research

Jana Witt, C. Evans, S. Bailey, 2018, Research Involvement and Engagement.

Needs assessments in palliative care: an appraisal of definitions and approaches used.

I. Higginson, R. Harding, J. Koffman, 2007, Journal of pain and symptom management.

Supportive Care: Communication Strategies to Improve Cultural Competence in Shared Decision Making.

Jane O. Schell, E. Brown, H. Bekker, 2016, Clinical journal of the American Society of Nephrology : CJASN.

‘When something is this rare … how do you know bad really is bad…?’—views on prognostic discussions from patients with advanced soft tissue sarcoma

I. Judson, J. Koffman, J. Ross, 2015, BMJ Supportive & Palliative Care.

"I know he controls cancer": the meanings of religion among Black Caribbean and White British patients with advanced cancer.

I. Higginson, M. Morgan, J. Koffman, 2008, Social Science & Medicine (1967).

Bereaved relatives’ views about participating in cancer research

I. Higginson, B. Gomes, P. McCrone, 2012, Palliative medicine.

A realist review of advance care planning for people with multiple sclerosis and their families

B. Farsides, C. Evans, R. Burman, 2020, PloS one.

Progression, Symptoms and Psychosocial Concerns among Those Severely Affected by Multiple Sclerosis: A Mixed-Methods Cross-Sectional Study of Black Caribbean and White British People

I. Higginson, R. Burman, E. Silber, 2013, PloS one.

Factors associated with aggressive end of life cancer care

I. Higginson, B. Gomes, B. Daveson, 2015, Supportive Care in Cancer.

The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT.

A. Pickles, I. Higginson, H. Johnson, 2019, Health technology assessment.

Introducing Namaste Care to the hospital environment: a pilot study.

J. Koffman, K. St John, 2017, Annals of palliative medicine.

Exploring meanings of illness causation among those severely affected by multiple sclerosis: a comparative qualitative study of Black Caribbean and White British people

I. Higginson, R. Burman, E. Silber, 2015, BMC Palliative Care.

“I’ll be in a safe place”: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

I. Higginson, M. Morgan, B. Daveson, 2016, BMJ Supportive & Palliative Care.

Time to get it right: are preferences for place of death more stable than we think?

B. Gomes, S. Hall, I. Higginson, 2010, Palliative medicine.

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.

D. Haugen, G. Albers, L. Deliens, 2012, Annals of oncology : official journal of the European Society for Medical Oncology.

Public Opinions About Palliative and End-of-Life Care During the COVID-19 Pandemic: Twitter-Based Content Analysis

V. Curcin, E. Chukwusa, J. Koffman, 2022, JMIR formative research.

Why is this happening to me? Illness beliefs held by haredi Jewish breast cancer patients: an exploratory study

J. Koffman, Kate Coleman, C. Daniels, 2007 .

Cognitive interviewing of bereaved relatives to improve the measurement of health outcomes and care utilisation at the end of life in a mortality followback survey

I. Higginson, B. Gomes, P. McCrone, 2013, Supportive Care in Cancer.

Enhancing equity and diversity in palliative care clinical practice, research and education

G. Shapiro, J. Koffman, Christian Schulz-Quach, 2023, BMC Palliative Care.

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.

D. Haugen, G. Albers, L. Deliens, 2012, Annals of oncology : official journal of the European Society for Medical Oncology.

Out-of-hours palliative care: what are the educational needs and preferences of general practitioners?

J. Koffman, C. Magee, 2014, BMJ Supportive & Palliative Care.

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis.

I. Higginson, V. Robinson, C. Ramsenthaler, 2017, Journal of pain and symptom management.

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis. Journal of Pain and Symptom Management (3),

J. Koffman, Suzanne M O’Brien, L. Brighton, 2022 .

The views of patients with advanced cancer regarding participation in serial questionnaire studies

M. Hotopf, S. Murray, R. Harding, 2008, Palliative medicine.