Bartha Maria Knoppers

发表

Considering our genetic legacy

Bartha Maria Knoppers, 2000, Nature Biotechnology.

DIVERSA INC.: ETHICAL ISSUES IN BIOPROSPECTING PARTNERSHIPS

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

DESCENDO A TOCA DO COELHO: TRANSFERÊNCIA DE TECNOLOGIA NO CAMPO DA PESQUISA EM CÉLULAS-TRONCO

Bartha Maria Knoppers, Yann Joly, Clara Pham, 2008 .

The Right to Benefit from Science and Its Implications for Genomic Data Sharing

Bartha Maria Knoppers, Rumiana Yotova, B. Knoppers, 2020, European Journal of International Law.

Beyond ELSIs: Where to from Here? From “Regulating” to Anticipating and Shaping the Innovation Trajectory in Personalized Medicine

Vural Ozdemir, Bartha Maria Knoppers, Yann Joly, 2013 .

The Human Genome Organisation: towards next-generation ethics

Bartha Maria Knoppers, Ruth Chadwick, Adrian Thorogood, 2013, Genome Medicine.

Cloning: an international comparative overview.

Bartha Maria Knoppers, 1997 .

MAXIM PHARMACEUTICALS (A): INTERNAL AND EXTERNAL DIALOGUES

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

Toward a roadmap in global biobanking for health

David Cox, Markus Perola, Jane Kaye, 2012, European Journal of Human Genetics.

Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M)

John Wilbanks, Clara Gaff, Anthony J. Brookes, 2018, npj Genomic Medicine.

NOVO NORDISK: THE TRIPLE BOTTOM LINE

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

CONCLUSION: LESSONS FOR COMPANIES AND FUTURE ISSUES

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

AFFYMETRIX, INC.: USING CORPORATE ETHICS ADVICE

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

Improving clinical trial sampling for future research - an international approach: outcomes and next steps from the DIA future use sampling workshop 2011.

Yoshiaki Uyama, Bartha Maria Knoppers, Marianna Bledsoe, 2013, Pharmacogenomics.

PIPELINE BIOTECH A/S: COMPETING REGULATORY REGIMES FOR LABORATORY ANIMAL EXPERIMENTS

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

Prepublication data sharing

Christopher P Austin, Rolf Apweiler, Tatsuhiko Tsunoda, 2009, Nature.

Genomic cloud computing: legal and ethical points to consider

Jennifer Harris, Susan Wallace, Yann Joly, 2014, European Journal of Human Genetics.

From genomic databases to translation: a call to action

David Cox, Jane Kaye, Bartha Maria Knoppers, 2011, Journal of Medical Ethics.

Ethical, Legal and Social Issues: Ethical Aspects of Genome Research and Banking

Bartha Maria Knoppers, 2002, Essentials of Genomics and Bioinformatics.

How Can We Not Waste Legacy Genomic Research Data?

Bartha Maria Knoppers, Emily Kirby, Susan E. Wallace, 2020, Frontiers in Genetics.

Abstract 3605: ICGC in the cloud

Lincoln Stein, Brian O'Connor, Khaled El Emam, 2016 .

Recommendations for the reporting of results from diagnostic next generation sequencing

Amélie Piton, Bartha Maria Knoppers, Luca Lovrečić, 2017 .

TGN BIOTECH: A START-UP WITH ETHICAL ROOTS

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

GENZYME: PUTTING PATIENTS FIRST

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

MILLENNIUM PHARMACEUTICALS, INC.: CREATING AND SUSTAINING CORPORATE VALUES

Béatrice Godard, Bartha Maria Knoppers, David Finegold, 2005 .

Health professionals’ perspectives on breast cancer risk stratification: understanding evaluation of risk versus screening for disease

Gillian Bartlett, Bartha Maria Knoppers, Jacques Simard, 2019, Public Health Reviews.

One Size Does Not Fit All: Toward “Upstream Ethics”?

Vural Ozdemir, Bartha Maria Knoppers, B. Knoppers, 2010, The American journal of bioethics : AJOB.

Framework for responsible sharing of genomic and health-related data

Bartha Maria Knoppers, B. Knoppers, 2014, The HUGO Journal.

The global emergence of epidemiological biobanks: Opportunities and challenges

Paul R. Burton, Bartha Maria Knoppers, Isabel Fortier, 2010 .

Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)

Clement Adebamowo, Erik Fisher, Collet Dandara, 2012 .

Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

Eric M Meslin, Jane Kaye, Bartha Maria Knoppers, 2008, PLoS biology.

Protecting Genetic Information: A Comparison of Normative Approaches

Bartha Maria Knoppers, Patricia Kosseim, B. Knoppers, 2004 .

HUGO Urges Genetic Benefit-Sharing

Bartha Maria Knoppers, Ruth Chadwick, Abdallah S. Daar, 2000, Public Health Genomics.

Human genomic databases: a global public good?

Bartha Maria Knoppers, B. Knoppers, Claudine Fecteau, 2003, European journal of health law.

Routledge handbook of medical law and ethics

Yann Joly, Bartha Maria Knoppers, B. Knoppers, 2014 .

Biobanking: International Norms

Bartha Maria Knoppers, B. Knoppers, 2005, Journal of Law, Medicine & Ethics.

Rare diseases and now rare data?

Simon Woods, Bartha Maria Knoppers, Ségolène Aymé, 2013, Nature Reviews Genetics.

The Babel of genetic data terminology

Bartha Maria Knoppers, B. Knoppers, Madelaine Saginur, 2005, Nature Biotechnology.

Public variant databases: liability?

Robert Cook-Deegan, Bartha Maria Knoppers, Adrian Thorogood, 2016, Genetics in Medicine.

An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.

Bartha Maria Knoppers, Stephanie O. M. Dyke, B. Knoppers, 2016, Biopreservation and biobanking.

Population genetic testing for cancer susceptibility: founder mutations to genomes

Bartha Maria Knoppers, Clare Turnbull, William D. Foulkes, 2016, Nature Reviews Clinical Oncology.

Exposing participants? Population biobanks go geo

Bartha Maria Knoppers, Kees de Hoogh, Anna Hansell, 2015, European Journal of Human Genetics.

Genetic information and the family: are we our brother's keeper?

Bartha Maria Knoppers, B. Knoppers, 2002, Trends in biotechnology.

Public–Private Partnerships in Cloud-Computing Services in the Context of Genomic Research

Yann Joly, Bartha Maria Knoppers, B. Knoppers, 2017, Front. Med..

Ethics and Big Data in health

Bartha Maria Knoppers, Adrian Thorogood, B. Knoppers, 2017 .

Electronic Consent to Health Research in Canada

Bartha Maria Knoppers, Ma'n H. Zawati, Emily Kirby, 2012 .

Population Genetics and Benefit Sharing

Bartha Maria Knoppers, B. Knoppers, 2001, Public Health Genomics.

Human genetic research: emerging trends in ethics

Bartha Maria Knoppers, Ruth Chadwick, B. Knoppers, 2006, Nature Reviews Genetics.

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Pascal Borry, Bartha Maria Knoppers, Edward S Dove, 2017, Biopreservation and biobanking.

Human Genetic Research: Emerging Trends in Ethics

Bartha Maria Knoppers, Ruth Chadwick, 2006 .

From the principles of genomic data sharing to the practices of data access committees

Pascal Borry, Bartha Maria Knoppers, Mahsa Shabani, 2015, EMBO molecular medicine.

Genotype-driven recruitment: a strategy whose time has come?

Bartha Maria Knoppers, Jennifer R Harris, Isabelle Budin-Ljøsne, 2013, BMC Medical Genomics.

Identifiability and privacy in pluripotent stem cell research.

Sara Chandros Hull, Peter W. Andrews, Andreas Kurtz, 2014, Cell stem cell.

Consortium, G.P A map of human genome variation from population-scale sequencing. Nature 467, 1061-1073

Ken Chen, Joshua M. Korn, Afidalina Tumian, 2010 .

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

Pascal Borry, Heidi Carmen Howard, Bartha Maria Knoppers, 2015, European Journal of Human Genetics.

Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011))

Sara Chandros Hull, Robert C. Green, Sean D. Mooney, 2016 .

Rationale for an integrated approach to genetic epidemiology.

Bartha Maria Knoppers, B. Knoppers, C. Laberge, 1992, Bioethics.

How to fix the GDPR's frustration of global biomedical research

Mark Barnes, Bartha Maria Knoppers, David Peloquin, 2020, Science.

Human gene editing: revisiting Canadian policy

Judy Illes, Bartha Maria Knoppers, Timothy Caulfield, 2017, npj Regenerative Medicine.

Accessing Health and Health-Related Data in Canada: The Expert Panel on Timely Access to Health and Social Data for Health Research and Health System Innovation

Khaled El Emam, Bartha Maria Knoppers, Tom Noseworthy, 2015 .

Towards a data sharing Code of Conduct for international genomic research

Jane Kaye, Bartha Maria Knoppers, Jennifer R Harris, 2011, Genome Medicine.

Return of genetic testing results in the era of whole-genome sequencing

Bartha Maria Knoppers, Ma'n H. Zawati, Karine Sénécal, 2015, Nature Reviews Genetics.

Consent recommendations for research and international data sharing involving persons with dementia

Martin Rossor, Henry Brodaty, Bartha Maria Knoppers, 2018, Alzheimer's & Dementia.

The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues

Bartha Maria Knoppers, B. Knoppers, K. Charlebois, 2016, PloS one.