R. Safer

Characteristics and Outcomes Reported by Patients With Primary Sclerosing Cholangitis Through an Online Registry.

K. Lindor, G. Everson, C. Bowlus, 2019, Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association.

Improving disease knowledge of primary sclerosing cholangitis patients and their relatives with a 3-dimensional education video.

C. Ponsioen, R. Safer, P. Nieuwkerk, 2020, Patient education and counseling.

A Systematic Review of Patient‐Reported Outcomes in Primary Biliary Cholangitis and Primary Sclerosing Cholangitis

Jennifer S. Walker, D. Evon, A. Moon, 2020, Hepatology communications.

Development and validation of a primary sclerosing cholangitis–specific patient‐reported outcomes instrument: The PSC PRO

M. Stepanova, K. Kowdley, W. Lenderking, 2018, Hepatology.

Impact of pruritus in primary sclerosing cholangitis (PSC): a multinational survey

K. Kowdley, Martine Walmsley, Rachel Gomel, 2022, Journal of Hepatology.

Caregiver-reported symptom burden and preferences for therapeutic goals in pediatric primary sclerosing cholangitis.

Rachel Gomel, R. Safer, S. Wadhwani, 2024, Journal of pediatric gastroenterology and nutrition.