R. Graham

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Tracheal Microbiota in Patients With a Tracheostomy Before, During and After an Acute Respiratory Infection

E. Castro-Nallar, M. Pérez‐Losada, Manuel Aira, 2018, The Pediatric infectious disease journal.

An opportunity: Critical care beyond the intensive care unit

R. Graham, 2005, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

The temporal dynamics of the tracheal microbiome in tracheostomised patients with and without lower respiratory infections

E. Castro-Nallar, M. Pérez‐Losada, Manuel Aira, 2017, PloS one.

Patient characteristics associated with in-hospital mortality in children following tracheotomy

Dionne A. Graham, D. Goldmann, J. Berry, 2010, Archives of Disease in Childhood.

The Impact on Family of Pediatric Chronic Respiratory Failure in the Home.

A. Rodday, S. Parsons, R. Graham, 2016, The Journal of pediatrics.

End-Of-Life Discussions and Advance Care Planning for Children on Long-Term Assisted Ventilation with Life-Limiting Conditions

J. Edwards, S. Kun, T. Keens, 2012, Journal of palliative care.

Clinical Characteristics and Outcomes of Children with Acute Catastrophic Brain Injury: A 13-Year Retrospective Cohort Study

R. Tasker, K. LaRovere, Sally H Vitali, 2021, Neurocritical Care.

Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life.

A. Rodday, L. Leslie, N. Terrin, 2017, Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners.

Predicting healthcare utilization for children with respiratory insufficiency using parent-proxy ratings of children’s health-related quality of life

A. Rodday, N. Terrin, S. Parsons, 2017 .

Weaning children from mechanical ventilation in a post-acute care setting

S. Haley, H. Dumas, D. Birnkrant, 2006, Pediatric rehabilitation.

INCEPTUS Natural History, Run-in Study for Gene Replacement Clinical Trial in X-Linked Myotubular Myopathy

F. Muntoni, L. Servais, G. Rafferty, 2022, Journal of neuromuscular diseases.

Airway Bacterial Colonization, Biofilms and Blooms, and Acute Respiratory Infection.

J. Mansbach, R. Graham, Mollie G. Wasserman, 2022, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Clinical, neuroimaging, and molecular spectrum of TECPR2‐associated hereditary sensory and autonomic neuropathy with intellectual disability

A. Pagnamenta, J. Lupski, J. Meiler, 2020, medRxiv.

Included but isolated: early intervention programmes provision for children and families with chronic respiratory support needs.

J. Palfrey, R. Graham, D. M. Pemstein, 2008, Child: care, health and development.

Specialty services for children with special health care needs: supplement not supplant the medical home

R. Graham, 2007, Archives of Disease in Childhood.

Chronic Illness in Pediatric Critical Care

R. Graham, S. Murphy Salem, Sinead L Murphy Salem, 2021, Frontiers in Pediatrics.

"This Is How Hard It Is": Family Experience of Hospital-to-Home Transition with a Tracheostomy.

Brianna O'Connell, Peter Weinstock, S. Parsons, 2020, Annals of the American Thoracic Society.

Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives

J. Berry, R. Agrawal, D. Goodman, 2020, Pediatric pulmonology.

Discharge Practices for Children with Home Mechanical Ventilation Across the United States: Key Informant Perspectives.

J. Berry, R. Agrawal, D. Goodman, 2020, Annals of the American Thoracic Society.

Chronic Ventilator Need in the Community: A 2005 Pediatric Census of Massachusetts

E. Fleegler, W. Robinson, R. Graham, 2007, Pediatrics.

Pediatric Specialty Care Model for Management of Chronic Respiratory Failure: Cost and Savings Implications and Misalignment With Payment Models*

A. Rodday, M. McManus, S. Parsons, 2018, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

A Core Outcome Measurement Set for Pediatric Critical Care*

R. Burd, H. Knoester, S. Beers, 2022, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Chronic conditions among children admitted to U.S. PICUs: their prevalence and impact on risk for mortality and prolonged length of stay

B. Markovitz, E. Vasilevskis, J. Edwards, 2012 .

Outcome Measures Following Critical Illness in Children With Disabilities: A Scoping Review

Madhura A. Hallman, N. Pinto, R. Graham, 2021, Frontiers in Pediatrics.

Readmission drivers for children with medical complexity: Home nursing shortages cause health crises

M. Peek, R. Graham, S. Sobotka, 2020, Pediatric pulmonology.

Safety and efficacy of risdiplam in patients with type 1 spinal muscular atrophy (FIREFISH part 2): secondary analyses from an open-label trial

G. Comi, C. Palermo, M. Pane, 2022, The Lancet Neurology.

Diagnosis and management of spinal muscular atrophy: Part 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics

R. Finkel, E. Bertini, M. Schroth, 2017, Neuromuscular Disorders.

Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care

W. Chung, R. Finkel, E. Bertini, 2017, Neuromuscular Disorders.

Intrahepatic Cholestasis Is a Clinically Significant Feature Associated with Natural History of X-Linked Myotubular Myopathy (XLMTM): A Case Series and Biopsy Report

B. Kamath, M. Lawlor, R. Graham, 2021, Journal of neuromuscular diseases.

Outcomes for Children With Pulmonary Hypertension Undergoing Tracheostomy Placement: A Multi-Institutional Analysis*

J. Berry, P. Melvin, M. Mullen, 2022, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Predictors of Clinical Outcomes and Hospital Resource Use of Children After Tracheotomy

Dionne A. Graham, D. Goldmann, J. Berry, 2009, Pediatrics.

Pre-Nusinersen Hospitalization Costs of Children With Spinal Muscular Atrophy.

M. McManus, Urbano L. França, R. Graham, 2019, Pediatric neurology.

Successful and safe delivery of anesthesia and perioperative care for children with complex special health care needs.

Maria T. Wachendorf, R. Graham, T. Mancuso, 2009, Journal of clinical anesthesia.

Integrating palliative care into chronic care for children with severe neurodevelopmental disabilities.

W. Robinson, R. Graham, 2005, Journal of developmental and behavioral pediatrics : JDBP.

Medicine and children with special health care needs: conflict with the cult of cure.

R. Graham, 2008, Journal of developmental and behavioral pediatrics : JDBP.

Congenital neurodevelopmental diagnoses and an intensive care unit: Defining a population*

H. Dumas, R. Graham, J. O’Brien, 2004, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Chronic respiratory failure: Utilization of a pediatric specialty integrated care program.

A. Rodday, M. McManus, S. Parsons, 2017, Healthcare.

Experiencing the pediatric intensive care unit: Perspective from parents of children with severe antecedent disabilities*

M. Curley, R. Graham, D. M. Pemstein, 2009, Critical care medicine.

Pediatric Resident Attitudes Toward Caring for Children with Severe Disabilities

J. Edwards, A. Houtrow, R. Graham, 2010, American journal of physical medicine & rehabilitation.

Gastric outlet obstruction in an infant: lactobezoar.

R. Graham, P. Stein, 2007, The American journal of emergency medicine.

PROGRESS IN ORTHOPEDIC SURGERY FOR 1945 A Review Prepared by an Editorial Board of the American Academy of Orthopaedic Surgeons: XVI. CONDITIONS INVOLVING THE KNEE JOINT

J. M. Janes, J. C. Ivins, R. K. Ghormley, 1947 .

Mortality and respiratory support in X-linked myotubular myopathy: a RECENSUS retrospective analysis

B. Byrne, F. Muntoni, A. Beggs, 2019, Archives of Disease in Childhood.

Evidence-based guideline summary: Evaluation, diagnosis, and management of congenital muscular dystrophy

Ching H. Wang, L. Morrison, R. Griggs, 2015, Neurology.

Two‐year mortality, complications, and healthcare use in children with medicaid following tracheostomy

M. Hall, J. Berry, K. Watters, 2016, The Laryngoscope.

ASPIRO Gene Therapy Trial In X-Linked Myotubular Myopathy (XLMTM): Update on Preliminary Safety And Efficacy Findings up to 72 Weeks Post-Treatment (1053)

F. Muntoni, L. Servais, J. Dowling, 2020 .

Metabolic assessment and individualized nutrition in children dependent on mechanical ventilation at home.

R. Graham, Craig D Smallwood, N. Mehta, 2015, The Journal of pediatrics.

Current applications of metabolic monitoring in the pediatric intensive care unit.

R. Graham, Craig D Smallwood, N. Mehta, 2014, Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition.

Hospital Access Patterns of Children With Technology Dependence.

M. McManus, K. Moynihan, Urbano L. França, 2023, Pediatrics.

Pediatric patients with home mechanical ventilation: The health services landscape

J. Berry, R. Agrawal, D. Goodman, 2018, Pediatric pulmonology.

Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home

M. Msall, R. Graham, S. Sobotka, 2022, Pediatric pulmonology.

Long-term ventilation: charting a pathway home

R. Graham, 2013, Archives of Disease in Childhood.

Family-centered assessment and function for children with chronic mechanical respiratory support.

A. Rodday, S. Parsons, R. Graham, 2014, Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners.

Pediatric neurocritical care: a neurology consultation model and implication for education and training.

R. Tasker, R. Graham, Kerri L. LaRovere, 2013, Pediatric neurology.

Comprehensive nutritional and metabolic assessment in patients with spinal muscular atrophy: Opportunity for an individualized approach

B. Darras, R. Graham, N. Mehta, 2018, Neuromuscular Disorders.

Nutritional Status and Nutrient Intake Challenges in Children With Spinal Muscular Atrophy.

R. Graham, N. Mehta, H. Newman, 2016, Pediatric neurology.

Impact of Individualized Diet Intervention on Body Composition and Respiratory Variables in Children With Respiratory Insufficiency: A Pilot Intervention Study*

C. Duggan, R. Graham, Craig D Smallwood, 2015, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Ethical decision-making for children with neuromuscular disorders in the COVID-19 crisis

S. Rasmussen, P. Kang, N. Laventhal, 2020, Neurology.

Tele-Mental-Health Intervention for Caregivers of Children on Home Ventilation: A Randomized Control Trial.

R. Graham, Yudy F Muñeton-Castaño, J. Hull, 2021, Child: care, health and development.

Outcome Rating Scales for Pediatric Head Injury

S. Haley, H. Dumas, R. Graham, 2004, Journal of intensive care medicine.

Association of a Multidisciplinary Care Approach With the Quality of Care After Pediatric Tracheostomy.

R. Rahbar, R. Nuss, K. Watters, 2019, JAMA otolaryngology-- head & neck surgery.

Chronic conditions among children admitted to U.S. pediatric intensive care units: Their prevalence and impact on risk for mortality and prolonged length of stay*

R. Adams Dudley, Barry P. Markovitz, Eduard E. Vasilevskis, 2012, Critical care medicine.

Child Opportunity Index and Emergent PICU Readmissions: A Retrospective, Cross-Sectional Study of 43 U.S. Hospitals.

D. Goodman, S. Ramgopal, R. Graham, 2023, Pediatric Critical Care Medicine.

X‐linked myotubular myopathy and pulmonary blebs: Not just a muscle disorder

R. Graham, E. Ward, 2019, Muscle & nerve.

A Call for Defining Pediatric Chronic Critical Illness: Moving Beyond I Know It When I See It.

R. Graham, S. Murphy Salem, 2023, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies.

Real-world analysis of healthcare resource utilization by patients with X-linked myotubular myopathy (XLMTM) in the United States

A. Beggs, B. Darras, C. Genetti, 2023, Orphanet Journal of Rare Diseases.

Dysphagia Phenotypes in Spinal Muscular Atrophy: The Past, Present, and Promise for the Future

C. DiDonato, B. Darras, K. McGrattan, 2021, American journal of speech-language pathology.

Measuring the Health Status of Pediatric Intensive Care Unit Survivors

A. Randolph, R. Graham, 2003 .

Trial of telemedicine for patients on home ventilator support: feasibility, confidence in clinical management and use in medical decision-making

David Zurakowski, D. Zurakowski, M. McManus, 2014, Journal of telemedicine and telecare.

Ethical Challenges Confronted When Providing Nusinersen Treatment for Spinal Muscular Atrophy

H. Tabor, C. Feudtner, D. Magnus, 2017, JAMA pediatrics.

Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss

A. Rodday, N. Rothrock, D. DeWalt, 2017, Journal of Patient-Reported Outcomes.

Understanding the Relationship Between Child Health-Related Quality of Life and Parent Emotional Functioning in Pediatric Hematopoietic Stem Cell Transplant

A. Rodday, L. Leslie, N. Terrin, 2017, Journal of pediatric psychology.

Acute respiratory distress syndrome in children with severe motor and intellectual disabilities

R. Graham, 2006, Brain and Development.

J. Zimmerman, R. Watson, A. Maddux, 2021, Quality of Life Research.