Deborah Garland

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Enhancing the Validity of a Quality of Life Measure for Autistic People

H. McConachie, J. Parr, J. Rodgers, 2017, Journal of Autism and Developmental Disorders.

What Is Important in Measuring Quality of Life? Reflections by Autistic Adults in Four Countries.

H. McConachie, J. Parr, S. Skevington, 2020, Autism in adulthood : challenges and management.

Predictors of quality of life for autistic adults

H. McConachie, J. Parr, J. Rodgers, 2018, Autism research : official journal of the International Society for Autism Research.

Children with neurodisability and feeding difficulties: a UK survey of parent-delivered interventions

H. McConachie, J. Parr, H. Taylor, 2021, BMJ Paediatrics Open.

Parents’ Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study

A. Le Couteur, J. Lecouturier, V. Grahame, 2018, Journal of applied research in intellectual disabilities : JARID.

Additional information on Chapter 4 search methodology

Shannon Robalino, Caroline B. Terwee, James Law, 2015 .

Developing the FEEDS toolkit of parent-delivered interventions for eating, drinking and swallowing difficulties in young children with neurodisability: findings from a Delphi survey and stakeholder consultation workshops

H. McConachie, J. Parr, H. Taylor, 2022, BMJ Paediatrics Open.

A clinical and cost-effectiveness trial of a parent group intervention to manage challenging restricted and repetitive behaviours in young children with autism spectrum disorder: study protocol for a randomised controlled trial

S. Fletcher‐Watson, A. Le Couteur, Eamonn Walls, 2021, Trials.

Parents Suggest Which Indicators of Progress and Outcomes Should be Measured in Young Children with Autism Spectrum Disorder

Geraldine Macdonald, Bryony Beresford, Paul Gringras, 2017, Journal of autism and developmental disorders.

Parent-delivered interventions used at home to improve eating, drinking and swallowing in children with neurodisability: the FEEDS mixed-methods study.

H. McConachie, J. Parr, H. Taylor, 2021, Health technology assessment.

Systematic review of tools to measure outcomes for young children with autism spectrum disorder.

G. Baird, Jonathan Green, H. McConachie, 2015, Health technology assessment.

Mental Wellbeing of Family Members of Autistic Adults

M. Freeston, J. Rodgers, E. Honey, 2017, Journal of autism and developmental disorders.

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults

M. Freeston, J. Rodgers, E. Honey, 2017, Journal of autism and developmental disorders.

Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

J. Parr, M. Freeston, J. Goodwin, 2021, Autism : the international journal of research and practice.

Measuring quality of life in autistic adults: the reliability and validity of the Brief Version of the World Health Organization Quality of Life scale

H. McConachie, J. Parr, J. Rodgers, 2022, AMRC Open Research.

Measuring quality of life in autistic adults: the reliability and validity of the Brief Version of the World Health Organization Quality of Life scale [version 1; peer review: awaiting peer review]

H. McConachie, J. Parr, J. Rodgers, 2022 .

Coping with Uncertainty in Everyday Situations (CUES©) to address intolerance of uncertainty in autistic children: study protocol for an intervention feasibility trial

J. Parr, M. Freeston, J. Goodwin, 2019, Trials.

“We couldn’t think in the box if we tried. We can’t even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults

H. McConachie, J. Parr, A. Le Couteur, 2022, PloS one.

Uncertain Futures: Reporting the Experiences and Worries of Autistic Adults and Possible Implications for Social Work Practice

M. Freeston, J. Rodgers, Deborah Garland, 2018, The British Journal of Social Work.

Coping with uncertainty in everyday situations (CUES©) to address intolerance of uncertainty in autistic children: an intervention feasibility trial

J. Parr, M. Freeston, J. Goodwin, 2022, Journal of Autism and Developmental Disorders.