T. Pulles

发表

Ten years of the Hunter Outcome Survey (HOS): insights, achievements, and lessons learned from a global patient registry

B. Burton, R. Giugliani, S. Jones, 2017, Orphanet Journal of Rare Diseases.

Birth weight in patients with mucopolysaccharidosis type II: Data from the Hunter Outcome Survey (HOS)

R. Giugliani, O. Bodamer, M. Scarpa, 2017, Molecular genetics and metabolism reports.