Rebecca Anderson

发表

Developing a National Registry for conditions identifiable through newborn screening

J. Botkin, N. Longo, C. Staes, 2009, Genetics in Medicine.

Residual newborn screening samples for research: parental information needs for decision-making.

J. Botkin, L. Clark, E. Rothwell, 2013, Journal for specialists in pediatric nursing : JSPN.

Secondary Data Usage in Direct-to-Consumer Genetic Testing: To What Extent Are Customers Aware and Concerned?

J. Botkin, B. Baty, Rebecca Anderson, 2021, Public Health Genomics.

The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots

J. Botkin, E. Rothwell, B. Wong, 2016, Journal of empirical research on human research ethics : JERHRE.

Exploring the use of a comic for education about expanded carrier screening among a diverse group of mothers

J. Botkin, E. Rothwell, Erin P Johnson, 2021, Journal of communication in healthcare.

Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Siobhan M. Dolan, M. Kuppermann, J. Botkin, 2016, JAMA pediatrics.

Cost-Effectiveness of Nusinersen and Universal Newborn Screening for Spinal Muscular Atrophy.

J. Botkin, A. Jalali, R. Nelson, 2020, The Journal of pediatrics.

Newborn Screening

Erin Rothwell, J. Botkin, Jeffrey R Botkin, 2011, Annual Review of Nursing Research.

What parents want to know about the storage and use of residual newborn bloodspots

Siobhan M. Dolan, M. Kuppermann, J. Botkin, 2014, American journal of medical genetics. Part A.

Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing

J. Botkin, B. Baty, Rebecca Anderson, 2022, Public Health Genomics.

State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples

Jeffrey Botkin, Aaron Goldenberg, Erin Rothwell, 2011, Pediatrics.

Public Attitudes Regarding the Use of Residual Newborn Screening Specimens for Research

J. Botkin, M. Lewis, L. Stark, 2012, Pediatrics.

Retention and Research Use of Residual Newborn Screening Bloodspots

Erin Rothwell, Aaron J Goldenberg, J. Botkin, 2013, Pediatrics.

Proposed regulations for research with biospecimens: Responses from stakeholders at CTSA consortium institutions

K. Maschke, J. Botkin, L. Cuttler, 2014, American journal of medical genetics. Part A.

Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study.

J. Botkin, M. Lewis, L. Stark, 2012, Social science & medicine.

Parental Permission for Pilot Newborn Screening Research: Guidelines From the NBSTRN

B. Wilfond, M. Watson, J. Botkin, 2014, Pediatrics.

A Randomized Controlled Trial of an Electronic Informed Consent Process

J. Botkin, L. Stark, N. Rose, 2014, Journal of Empirical Research on Human Research Ethics.

Deliberative Discussion Focus Groups

J. Botkin, E. Rothwell, Rebecca Anderson, 2016, Qualitative health research.

Investigator Experiences and Attitudes About Research With Biospecimens

Suzanne M. Rivera, K. Maschke, J. Botkin, 2015, Journal of empirical research on human research ethics : JERHRE.

Public attitudes regarding the use of electronic health information and residual clinical tissues for research

Joyce A. Mitchell, J. Botkin, L. Stark, 2014, Journal of Community Genetics.

Public attitudes regarding a pilot study of newborn screening for spinal muscular atrophy

J. Botkin, K. Swoboda, L. Stark, 2013, American journal of medical genetics. Part A.

Perceptions of fairness in the justice system: A cross-cultural comparison

Amy L. Otto, Rebecca Anderson, A. Otto, 2003 .

Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots.

Bob Wong, Aaron J Goldenberg, J. Botkin, 2011, American journal of public health.

IRB practices and policies regarding the secondary research use of biospecimens

Suzanne M. Rivera, K. Maschke, J. Botkin, 2015, BMC medical ethics.

Newborn Screening

J. Botkin, E. Rothwell, Rebecca Anderson, 2011, Annual Review of Nursing Research.

State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples

J. Botkin, M. Lewis, A. Goldenberg, 2011, Pediatrics.

Development of requirements and a pilot registry for long-term follow-up of children with heritable conditions.

Joyce A. Mitchell, J. Botkin, N. Longo, 2007, AMIA ... Annual Symposium proceedings. AMIA Symposium.

Policy Issues and Stakeholder Concerns Regarding the Storage and Use of Residual Newborn Dried Blood Samples for Research

J. Botkin, Rebecca Anderson, Erin Rothwell, 2010, Policy, politics & nursing practice.