S. Lombardelli

Patient Perspective on Acute Hepatic Porphyria with Sporadic Attacks: A Chronic Disease with Substantial Health-Related Quality of Life Impacts

C. Evans, S. Meninger, A. Simon, 2022, Advances in Therapy.

Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study

J. E. Matos, S. Meninger, Jordanna Mora, 2022, JIMD reports.

Patient and caregiver experiences of living with acute hepatic porphyria in the UK: a mixed-methods study

S. Meninger, M. Merkel, Jordanna Mora, 2020, Orphanet Journal of Rare Diseases.

Estimating health state utilities in primary hyperoxaluria type 1: a valuation study

A. Lloyd, L. Hubig, H. D. de Freitas, 2023, Journal of medical economics.