Sylvie Fourdrinoy

Development and validation of a quality of life measurement scale specific to hereditary hemorrhagic telangiectasia: the QoL-HHT

S. Leroy, G. Martinent, P. Magro, 2022, Orphanet Journal of Rare Diseases.

Hereditary hemorrhagic telangiectasia and health-related quality of life: a qualitative investigation

G. Martinent, S. Dupuis-Girod, Anne-Emmanuelle Fargeton, 2020, Quality of Life Research.