S. Trinidad

发表

Genetics researchers’ and IRB professionals’ attitudes toward genetic research review: a comparative analysis

W. Burke, A. Lemke, G. Wiesner, 2012, Genetics in Medicine.

Application of the PEN-3 Model to Tobacco Initiation, Use, and Cessation Among American Indian and Alaska Native Adults

Jaedon P Avey, Vanessa Y. Hiratsuka, Renee F Robinson, 2016, Health promotion practice.

Genomic research and wide data sharing: Views of prospective participants

S. Fullerton, E. Larson, G. Jarvik, 2010, Genetics in Medicine.

Erratum: Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine (American Journal of Human Genetics (2016) 98(6) (1067–1076) (S0002929716301069) (10.1016/j.ajhg.2016.04.011))

Sara Chandros Hull, Robert C. Green, Sean D. Mooney, 2016 .

The Feelings About genomiC Testing Results (FACToR) Questionnaire: Development and Preliminary Validation

S. Fullerton, P. Heagerty, D. Patrick, 2018, Journal of Genetic Counseling.

Return of incidental findings in genomic medicine: measuring what patients value—development of an instrument to measure preferences for information from next-generation testing (IMPRINT)

S. Fullerton, D. Patrick, G. Jarvik, 2013, Genetics in Medicine.

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

L. Hindorff, V. Bonham, S. Hull, 2020, Genetics in Medicine.

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

Kathleen M. Brelsford, S. Fullerton, W. Burke, 2018, Journal of Law, Medicine & Ethics.

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor

S. Fullerton, G. Jarvik, W. Burke, 2017, Molecular genetics & genomic medicine.

Community dissemination and genetic research: Moving beyond results reporting

W. Burke, E. Ludman, S. Hopkins, 2015, American Journal of Medical Genetics. Part A.

Comparative effectiveness of next generation genomic sequencing for disease diagnosis: design of a randomized controlled trial in patients with colorectal cancer/polyposis syndromes.

Peter Tarczy-Hornoch, Deborah A Nickerson, Laura M Amendola, 2014, Contemporary clinical trials.

Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

S. Fullerton, E. Larson, G. Jarvik, 2012, AJOB primary research.

Precision medicine research with American Indian and Alaska Native communities: Results of a deliberative engagement with tribal leaders.

W. Burke, S. Hopkins, B. Boyer, 2021, Genetics in medicine : official journal of the American College of Medical Genetics.

What patients value when oncologists give news of cancer recurrence: commentary on specific moments in audio-recorded conversations.

S. B. Trinidad, A. Back, R. Arnold, 2011, The oncologist.

Measuring Attitudes About Alcohol Misuse and Dependence Among Alaska Native People Within a Tribal Health Care System.

W. Burke, E. Ludman, D. Donovan, 2022, Journal of addiction medicine.

“I Did Not Want to Give Birth to a Child Who has HIV”: Experiences Using PrEP During Pregnancy Among HIV-Uninfected Kenyan Women in HIV-Serodiscordant Couples

J. Baeten, R. Heffron, S. B. Trinidad, 2017, Journal of acquired immune deficiency syndromes.

The role of male partners in women’s participation in research during pregnancy: a case study from the partners demonstration project

J. Baeten, R. Heffron, S. B. Trinidad, 2017, Reproductive Health.

Research Practice and Participant Preferences: The Growing Gulf

Stephanie M. Fullerton, Gail P. Jarvik, Eric B. Larson, 2011, Science.

Reframing the goals of care conversation: "we're in a different place".

A. Back, K. Edwards, Elizabeth K. Hopley, 2014, Journal of palliative medicine.

HIV-Uninfected Kenyan Adolescent and Young Women Share Perspectives on Using Preexposure Prophylaxis During Pregnancy.

J. Baeten, R. Heffron, S. B. Trinidad, 2018, AIDS patient care and STDs.

Perceived Social Influences on Women's Decisions to use Medications not Studied in Pregnancy. A Qualitative Ethical Analysis of Preexposure Prophylaxis Implementation Research in Kenya

J. Baeten, R. Heffron, S. B. Trinidad, 2021, Journal of empirical research on human research ethics : JERHRE.

Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit

W. Burke, S. B. Trinidad, K. Edwards, 2011 .

Community engagement in biobanking: Experiences from the eMERGE Network

J. Pulley, A. Lemke, Joel T. Wu, 2010, Genomics, society, and policy.

Glad You Asked: Participants' Opinions of Re-Consent for DbGap Data Submission

S. Fullerton, E. Larson, G. Jarvik, 2010, Journal of empirical research on human research ethics : JERHRE.

Ensuring equity: Pharmacogenetic implementation in rural and tribal communities

S. B. Trinidad, E. Woodahl, K. Brown, 2022, Frontiers in Pharmacology.

Lessons from PrEP: A Qualitative Study Investigating How Clinical and Policy Experts Weigh Ethics and Evidence When Evaluating Preventive Medications for Use in Pregnant and Breastfeeding Women

J. Baeten, R. Heffron, G. John-Stewart, 2018, AIDS and Behavior.

"Getting off the Bus Closer to Your Destination": Patients' Views about Pharmacogenetic Testing.

S. Fullerton, J. Ralston, E. Larson, 2015, The Permanente journal.

Patient and primary care perspectives on hypertension management: short report of a qualitative study in a tribal health system

D. Dillard, Renee F Robinson, Krista R. Schaefer, 2022, International journal of circumpolar health.

Silent loss and the clinical encounter: Parents’ and physicians’ experiences of stillbirth–a qualitative analysis

M. Kelley, S. Trinidad, 2012, BMC Pregnancy and Childbirth.

Views on electronic cigarette use in tobacco screening and cessation in an Alaska Native healthcare setting

S. B. Trinidad, Jaedon P Avey, Vanessa Y. Hiratsuka, 2015, International journal of circumpolar health.

Stakeholder engagement: a key component of integrating genomic information into electronic health records

Erica A. Bowton, Andrea Hartzler, Kadija Ferryman, 2013, Genetics in Medicine.

Patient-Centered Discussions About Prostate Cancer Screening: A Real-World Approach

T. Gallagher, C. Braddock, K. Edwards, 2010, Annals of Internal Medicine.

Clinical exome sequencing vs. usual care for hereditary colorectal cancer diagnosis: A pilot comparative effectiveness study.

D. Nickerson, S. Fullerton, M. Dorschner, 2019, Contemporary clinical trials.

Perceptions of alcohol misuse among Alaska native health care system stakeholders: A qualitative exploration

Lisa G. Dirks, W. Burke, S. B. Trinidad, 2020, Journal of ethnicity in substance abuse.

The Cultural Adaption of a Sobriety Support App for Alaska Native and American Indian People: Qualitative Feasibility and Acceptability Study

S. B. Trinidad, Jaedon P Avey, A. Collier, 2022, JMIR formative research.

Systems medicine and the public's health

Wylie Burke, Susan Brown Trinidad, W. Burke, 2011, Genome Medicine.

Can Precision Medicine Reduce the Burden of Diabetes?

W. Burke, David P. Schenck, S. Trinidad, 2019, Ethnicity & disease.

Attitudes toward Genetic Research Review: Results from a Survey of Human Genetics Researchers

A. Lemke, G. Wiesner, S. Lewis, 2011, Public Health Genomics.

Recovery from alcohol among urban Alaska Native and American Indian people

J. Shaw, Kate M. Lillie, Kelley J Jansen, 2021, Journal of ethnicity in substance abuse.

Communicating Precision Medicine Research: Multidisciplinary Teams and Diverse Communities

P. Gaffney, P. Spicer, W. Burke, 2022, Public Health Genomics.

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death

S. Fullerton, B. Evans, G. Jarvik, 2015, Journal of Law, Medicine & Ethics.

Perceptions of pharmacogenetic research to guide tobacco cessation by patients, providers and leaders in a tribal healthcare setting.

R. Tyndale, Jaedon P Avey, Vanessa Y. Hiratsuka, 2016, Pharmacogenomics.

Educational Needs in Genetic Medicine: Primary Care Perspectives

Penny Kyler, Susan B. Trinidad, Wylie Burke, 2008, Public Health Genomics.

The Deceptive Appeal of Direct-to-Consumer Genetics

W. Burke, S. Trinidad, 2016, Annals of Internal Medicine.

Returning integrated genomic risk and clinical recommendations: the eMERGE study.

Melissa L. Habrat, Jorge A. Alsip, Kathleen F. Mittendorf, 2023, Genetics in medicine : official journal of the American College of Medical Genetics.

Building Partnerships in Community-Based Participatory Research

W. Burke, S. Hopkins, B. Boyer, 2014, Health promotion practice.

Attitudes toward Genetic Research Review: Results from a National Survey of Professionals Involved in Human Subjects Protection

A. Lemke, G. Wiesner, K. Edwards, 2010, Journal of empirical research on human research ethics : JERHRE.

Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research

W. Burke, S. B. Trinidad, M. Pershouse, 2016, Progress in community health partnerships : research, education, and action.

Partnership with the Confederated Salish and Kootenai Tribes: Establishing an Advisory Committee for Pharmacogenetic Research

W. Burke, S. B. Trinidad, M. Pershouse, 2016, Progress in community health partnerships : research, education, and action.

The Feelings About genomiC Testing Results (FACToR) Questionnaire: Development and Preliminary Validation.

S. Fullerton, P. Heagerty, D. Patrick, 2019, Journal of genetic counseling.

Seeking Genomic Knowledge: The Case for Clinical Restraint.

Ellen Wright Clayton, Wylie Burke, Susan Brown Trinidad, 2013, The Hastings law journal.

Looking for Trouble and Finding It

S. Fullerton, W. Burke, S. Trinidad, 2015, The American journal of bioethics : AJOB.

Broad data sharing in genetic research: views of institutional review board professionals.

Wendy A. Wolf, Wendy A Wolf, Susan Brown Trinidad, 2011, IRB.

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance

Kathleen M. Brelsford, S. Fullerton, W. Burke, 2018, Journal of Law, Medicine & Ethics.

Comprar Achieving Justice in Genomic Translation Re-Thinking the Pathway to Benefit | Susan Brown Trinidad | 9780195390384 | Oxford University Press

W. Burke, S. B. Trinidad, K. Edwards, 2011 .

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Matthew S. Lebo, Victoria A. Miller, Jeffrey W. Pennington, 2016, American journal of human genetics.

Educational Needs in Genetic Medicine: Primary Care Perspectives

W. Burke, Kelly A Fryer-Edwards, M. Lloyd-Puryear, 2008, Public Health Genomics.

What patients value when oncologists give news of cancer recurrence: commentary on specific moments in audio-recorded conversations.

A. Back, R. Arnold, W. Baile, 2011, The oncologist.

The CPT1A Arctic variant: perspectives of community members and providers in two Alaska tribal health settings

Jaedon P Avey, Julie A. Beans, Samantha Kleindienst Robler, 2023, Journal of community genetics.

Glad You Asked: Participants' Opinions of Re-Consent for DbGap Data Submission

S. Fullerton, E. Larson, G. Jarvik, 2010, Journal of empirical research on human research ethics : JERHRE.

Human-to-Computer Interactivity Features Incorporated Into Behavioral Health mHealth Apps: Systematic Search

Morgan Vigil-Hayes, A. Collier, S. Trinidad, 2022, JMIR formative research.

Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation

W. Burke, S. B. Trinidad, S. Hopkins, 2022, Journal of empirical research on human research ethics : JERHRE.

Ethics of Predicting and Preventing Preterm Birth

E. Blacksher, S. Trinidad, Wylie Burke, 2024, Clinics in Perinatology.