Julia Slutsman

Medical privacy and the disclosure of personal medical information: The beliefs and experiences of those with genetic and other clinical conditions

L. Gostin, S. Hull, L. Plantinga, 2004, American journal of medical genetics. Part A.

Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research

Holly A. Taylor, Alice Fothergill, Aubrey Miller, 2017, Environmental Health Perspectives.

Institutional Review Board Preparedness for Disaster Research: a Practical Approach

A. Fothergill, Aubrey Miller, R. Rosselli, 2021, Current Environmental Health Reports.

Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their Caregivers

D. Fairclough, L. Emanuel, J. Slutsman, 2000, Annals of Internal Medicine.

The Use of Medical Records in Research: What Do Patients Want?

Sara Chandros Hull, Lawrence O. Gostin, Nancy E. Kass, 2003, Journal of Law, Medicine & Ethics.

Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients.

E. Emanuel, D. Fairclough, H. Alpert, 1999, The New England journal of medicine.

Surprised by Benefit in Pediatric Palliative Care Research.

P. Hinds, Shana Jacobs, M. Weaver, 2018, Cancer nursing.