J. M. Soucie

发表

Prevalence and risk factors of cardiovascular disease (CVD) events among patients with haemophilia: experience of a single haemophilia treatment centre in the United States (US)

A. Shapiro, J. Soucie, A. Sharathkumar, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Emergency department visits by patients with venous thromboembolism, 1998-2009

J. Tsai, S. Boulet, A. Siddiqi, 2012 .

Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors.

Roshni Kulkarni, Keith Hoots, Heather Huszti, 2004, Blood.

Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia.

Alan R. Cohen, L. Valentino, M. Manco-Johnson, 2007, The New England journal of medicine.

Eradication of factor viii inhibitors in patients with mild and moderate hemophilia A

C. Kempton, J. Soucie, G. Young, 2012, American journal of hematology.

Bleeding disorders in neonates

J. Soucie, G. Kenet, Anthony K. C. Chan, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

Neutralizing antibodies against adeno-associated virus examined prospectively in pediatric patients with hemophilia

R. Samulski, L. Valentino, M. Manco-Johnson, 2011, Gene Therapy.

Impact of inhibitors on hemophilia a mortality in the United States

C. Miller, J. Soucie, C. Walsh, 2015, American journal of hematology.

Home‐based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia

D. Brettler, B. Evatt, J. Soucie, 2001, Haemophilia : the official journal of the World Federation of Hemophilia.

Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators.

L. Cowan, B. Evatt, J. Soucie, 2000, Blood.

Prevalence and risk factors for heart disease among males with hemophilia

B. Evatt, J. Soucie, R. Kulkarni, 2005, American journal of hematology.

Range of motion measurements: reference values and a database for comparison studies

J. Soucie, C. Wang, A. Forsyth, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Physical functioning in boys with hemophilia in the U.S.

B. Riske, J. Baker, J. M. Soucie, 2011, American journal of preventive medicine.

A study of variations in the reported haemophilia B prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

A study of variations in the reported haemophilia A prevalence around the world

Jeffrey S. Stonebraker, J. Stonebraker, J. Soucie, 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

Bleeding symptoms and laboratory correlation in patients with severe von Willebrand disease

R. Watts, E. Kraut, B. Kerlin, 2009, Haemophilia.

B. Konkle, J. Soucie, C. Wang, 2013, Haemophilia : the official journal of the World Federation of Hemophilia.

The universal data collection surveillance system for rare bleeding disorders.

Meredith A Oakley, J. Soucie, Ann C. Mcclellan, 2010, American journal of preventive medicine.

Care models in the management of haemophilia: a systematic review

H. Schünemann, A. Iorio, C. Kessler, 2016, Haemophilia : the official journal of the World Federation of Hemophilia.

In non‐severe hemophilia A the risk of inhibitor after intensive factor treatment is greater in older patients: a case–control study

C. Kempton, N. Key, C. Miller, 2010, Journal of thrombosis and haemostasis : JTH.

Renal disease among males with haemophilia

B. Evatt, J. Soucie, R. Kulkarni, 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

Sites of initial bleeding episodes, mode of delivery and age of diagnosis in babies with haemophilia diagnosed before the age of 2 years: a report from The Centers for Disease Control and Prevention’s (CDC) Universal Data Collection (UDC) project

J. Gill, B. Evatt, J. Soucie, 2009, Haemophilia : the official journal of the World Federation of Hemophilia.

Changes in the occurrence of and risk factors for hemophilia‐associated intracranial hemorrhage

B. Evatt, J. Soucie, R. Nuss, 2001, American journal of hematology.

Occurrence of hemophilia in the United States

B. Evatt, J. Soucie, D. Jackson, 1998 .

Women and girls with haemophilia receiving care at specialized haemophilia treatment centres in the United States

T. Buckner, V. Byams, C. Miller, 2021, Haemophilia : the official journal of the World Federation of Hemophilia.

Complications of haemophilia in babies (first two years of life): a report from the Centers for Disease Control and Prevention Universal Data Collection System

J. Gill, B. Evatt, A. Shapiro, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Men with severe hemophilia in the United States: birth cohort analysis of a large national database.

B. Riske, J. M. Soucie, Paul E. Monahan, 2016, Blood.

F8 and F9 mutations in US haemophilia patients: correlation with history of inhibitor and race/ethnicity

W. Hooper, C. Miller, Amanda B. Payne, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Population‐based surveillance of haemophilia and patient outcomes in Indiana using multiple data sources

S. Grosse, A. Shapiro, J. Soucie, 2019, Haemophilia : the official journal of the World Federation of Hemophilia.

Accounting for differences in healthcare utilization and expenditures among US males with haemophilia by type of health insurance

S. Guh, S. Grosse, J. Soucie, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Hemophilia without prophylaxis: Assessment of joint range of motion and factor activity

Michael Wang, D. Cooper, N. Iyer, 2020, Research and practice in thrombosis and haemostasis.

Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project Investigators.

B. Evatt, J. Soucie, D. Jackson, 1998, American journal of hematology.

Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States

M. Lewandowska, A. Shapiro, C. Miller, 2022, Haemophilia : the official journal of the World Federation of Hemophilia.

Septic arthritis in males with haemophilia

A. Ashrani, N. Key, A. Forsyth, 2008, Haemophilia : the official journal of the World Federation of Hemophilia.

NHF‐McMaster Guideline on Care Models for Haemophilia Management

H. Schünemann, A. Iorio, C. Kessler, 2016, Haemophilia : the official journal of the World Federation of Hemophilia.

Investigation of porcine parvovirus among persons with hemophilia receiving Hyate:C porcine factor VIII concentrate

B. Evatt, J. Soucie, D. Erdman, 2000, Transfusion.

Prevalent inhibitors in haemophilia B subjects enrolled in the Universal Data Collection database

J. Puetz, C. Kempton, P. Monahan, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Increased prevalence of inhibitors in Hispanic patients with severe haemophilia A enrolled in the Universal Data Collection database

R. Presley, S. Carpenter, J. Michael Soucie, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

High one year mortality in adults with sickle cell disease and end‐stage renal disease

M. DeBaun, D. Gilbertson, J. Luthi, 2012, British journal of haematology.

Evidence for the transmission of parvovirus B19 in patients with bleeding disorders treated with plasma‐derived factor concentrates in the era of nucleic acid test screening

C. Kessler, M. Recht, B. Riske, 2013, Transfusion.

Knowledge and therapeutic gaps: a public health problem in the rare coagulation disorders population.

D. Aschman, A. Shapiro, F. Peyvandi, 2011, American journal of preventive medicine.

Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres

B. Konkle, J. Gill, P. Kouides, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Associations between intracranial haemorrhage and prescribed prophylaxis in a large cohort of haemophilia patients in the United States

C. Manno, C. Witmer, J. Soucie, 2011, British journal of haematology.

The effects of joint disease, inhibitors and other complications on health‐related quality of life among males with severe haemophilia A in the United States

J. Thierry, M. Zack, S. Grosse, 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

Unresolved issues in diagnosis and management of inherited bleeding disorders in the perinatal period: A White Paper of the Perinatal Task Force of the Medical and Scientific Advisory Council of the National Hemophilia Foundation, USA

K. Ponder, J. Soucie, W. Hoots, 2006, Haemophilia : the official journal of the World Federation of Hemophilia.

Human parvovirus B19 in young male patients with hemophilia A: associations with treatment product exposure and joint range‐of‐motion limitation

W. Hooper, B. Evatt, J. Soucie, 2004, Transfusion.

The longitudinal effect of body adiposity on joint mobility in young males with Haemophilia A

C. Wang, J. M. Soucie, Michael Recht, 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

Health care expenditures for Medicaid‐covered males with haemophilia in the United States, 2008

C. Kessler, S. Guh, S. Grosse, 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

Validation of Nijmegen–Bethesda assay modifications to allow inhibitor measurement during replacement therapy and facilitate inhibitor surveillance

A. Rice, J. M. Soucie, C. H. Miller, 2012, Journal of thrombosis and haemostasis : JTH.

A study of prospective surveillance for inhibitors among persons with haemophilia in the United States

C. Kempton, A. Neff, D. Brettler, 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

Association of overweight and obesity with the use of self and home‐based infusion therapy among haemophilic men

A. Grant, J. Soucie, D. Brown, 2014, Haemophilia.