Simone Thiele

Inclusion body myositis—health-related quality of life and care situation during phases of the “patience journey” in Germany: results from a qualitative study

K. Nagels, Laura Gumbert, Katja C. Senn, 2023, Health and Quality of Life Outcomes.

Cost of illness in inclusion body myositis: results from a cross-sectional study in Germany

K. Nagels, Katja C. Senn, Simone Thiele, 2023, Orphanet Journal of Rare Diseases.

Biallelic variants in SNUPN cause a limb girdle muscular dystrophy with myofibrillar-like features

M. Azkargorta, F. Elortza, A. Töpf, 2024, Brain : a journal of neurology.

Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany.

E. Landfeldt, J. Hussong, Berenike Leibrock, 2024, Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation.