Pascal Borry

发表

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans

Heidi C. Howard, Carla G. van El, Francesca Forzano, 2017, European Journal of Human Genetics.

Direct-to-consumer genetic testing: more questions than benefits?

Pascal Borry, Heidi C Howard, P. Borry, 2008, Personalized medicine.

Genetic testing in Europe : an overview of the legal framework

Pascal Borry, Dominique Sprumont, Mahsa Shabani, 2017 .

Genetica via het web. Is er een toekomst voor genetische zelftests

Pascal Borry, Willem Willems, 2010 .

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

Pascal Borry, Heidi C Howard, Jörg Schmidtke, 2014, European Journal of Human Genetics.

Data sharing platforms and the academic evaluation system

Pascal Borry, Mahsa Shabani, Thijs Devriendt, 2020, EMBO reports.

Freedom to directly access to genetic tests on internet: a part of the right to innovation?

Emmanuelle Rial-Sebbag, Pascal Borry, Heidi Howard, 2011 .

Users’ motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories

Pascal Borry, Yeyang Su, Heidi C. Howard, 2011, Journal of Community Genetics.

The convergence of direct-to-consumer genetic testing companies and biobanking activities: the example of 23andme

Sigrid Sterckx, Pascal Borry, Anne Cambon-Thomsen, 2015 .

Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies

Pascal Borry, Luca Marelli, Mahsa Shabani, 2018, Genetics in Medicine.

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

Pascal Borry, Heidi C. Howard, Martina C. Cornel, 2010, Journal of Community Genetics.

Haploid data of biohistorical materials and contemporary privacy concerns

Dieter Deforce, Pascal Borry, Tom Wenseleers, 2016 .

An agenda-setting paper on data sharing platforms: euCanSHare workshop

Rodrigo Costas, Pascal Borry, Karim Lekadir, 2021, Open research Europe.

How international is bioethics? A quantitative retrospective study

Pascal Borry, Kris Dierickx, Paul Schotsmans, 2006, BMC medical ethics.

Evidence-based medicine and its role in ethical decision-making.

Pascal Borry, Kris Dierickx, Paul Schotsmans, 2006, Journal of evaluation in clinical practice.

Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

Pascal Borry, P. Borry, 2010, European Journal of Human Genetics.

Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate

Pascal Borry, Christopher McCabe, Yann Joly, 2013, PLoS biology.

Bioethics and its methodology: the rise of empirical contributions

Pascal Borry, Kris Dierickx, Paul Schotsmans, 2007 .

A review of the key issues associated with the commercialization of biobanks

Judy Illes, Pascal Borry, Christine Critchley, 2014, Journal of law and the biosciences.

Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics.

Pascal Borry, Wybo Dondorp, Heidi C Howard, 2013, European journal of human genetics : EJHG.

To ban or not to ban?

Pascal Borry, Heidi Carmen Howard, 2012, EMBO reports.

Direct-to-consumer pharmacogenomic testing.

Pascal Borry, Heidi Carmen Howard, P. Borry, 2011, Pharmacogenomics.

The author who wasn’t there? Fairness and attribution in publications following access to population biobanks

Ma'n Zawati, Pascal Borry, Erika Kleiderman, 2018, PLoS ONE.

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Pascal Borry, Bartha Maria Knoppers, Edward S Dove, 2017, Biopreservation and biobanking.

Consent insufficient for data release

Pascal Borry, Jane Kaye, Stephanie Fullerton, 2019, Science.

Raw Genomic Data: Storage, Access, and Sharing.

Pascal Borry, Mahsa Shabani, P. Borry, 2018, Trends in genetics : TIG.

Author, Contributor or Just a Signer? A Quantitative Analysis of Authorship Trends in the Field of Bioethics

Pascal Borry, Kris Dierickx, Paul Schotsmans, 2006, Bioethics.

From the principles of genomic data sharing to the practices of data access committees

Pascal Borry, Bartha Maria Knoppers, Mahsa Shabani, 2015, EMBO molecular medicine.

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

Pascal Borry, Mahsa Shabani, P. Borry, 2018, European Journal of Human Genetics.

Third party interpretation of raw genetic data: an ethical exploration

Pascal Borry, P. Borry, Lauren Badalato, 2017, European Journal of Human Genetics.

Europe and direct-to-consumer genetic tests

Pascal Borry, Heidi Carmen Howard, P. Borry, 2011, Nature Reviews Genetics.

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

Pascal Borry, Heidi Carmen Howard, Bartha Maria Knoppers, 2015, European Journal of Human Genetics.

Industry involvement in publicly funded biobanks

Pascal Borry, Timothy Caulfield, Herbert Gottweis, 2014, Nature Reviews Genetics.

Nobody Tosses a Dwarf! The Relation between the Empirical and the Normative Reexamined

Pascal Borry, R. D. de Vries, C. Leget, 2009, Bioethics.

What is the role of empirical research in bioethical reflection and decision-making? An ethical analysis

Pascal Borry, Kris Dierickx, Paul Schotsmans, 2004, Medicine, health care, and philosophy.

Legislation on direct-to-consumer genetic testing in seven European countries

Emmanuelle Rial-Sebbag, Pascal Borry, Dominique Sprumont, 2012, European Journal of Human Genetics.

Patient rights in EU Member States after the ratification of the Convention on Human Rights and Biomedicine.

Pascal Borry, Kris Dierickx, Herman Nys, 2007, Health policy.

Changes on the horizon for consumer genomics in the EU

Pascal Borry, Heidi Carmen Howard, P. Borry, 2014, Science.

Crowdsourced direct-to-consumer genomic analysis of a family quartet

Frank Schacherer, Manuel Corpas, Andrew P. Harrison, 2015, BMC Genomics.

Is there a doctor in the house?

Pascal Borry, Heidi Carmen Howard, P. Borry, 2011, Journal of Community Genetics.

Reporting practices for variants of uncertain significance from next generation sequencing technologies.

Pascal Borry, Karine Sénécal, K. Sénécal, 2017, European journal of medical genetics.