Diabetes self-management in online health communities: an information exchange perspective

Background Online health communities (OHCs), with a wealth of multi-source information exchange, have provided a convenient way for people with diabetes to actively participate in their self-management and have been widely used. Information exchange assists people with diabetes with health-related decisions to actively engage in their care, and reduce the occurrence of potential complications of diabetes. However, there has been relatively little research on the information exchange behaviors and their effect on health in professional online medical platforms—OHCs. Objective Using a social exchange theory, this study focuses on two sources of information (doctors and people with diabetes) to investigate information exchange behaviors and consequences. Moreover, we also examine moderating effects of information price as patients need to pay prices for consulting with doctors to obtain medical information on OHCs. Methods By using the Python program, a rich dataset contained 22,746 doctor-patient dialogues from December 2017 to December 2018 is collected from the biggest OHC in China. Then the logistic and ordinal regression models are used to get empirical results. Results We found that first information sharing from doctors and other people with diabetes can promote their information sharing behavior. Second, the moderating effects of information price are heterogeneous and change with the exchange participants. Third, rich information exchange supports self-management of people with diabetes and improves their health status. Conclusion This study is among the first that tests the information exchange behavior and consequence for diabetes in OHCs and examines the moderating effects of the information price. The present study produces several insights, which have implications for social exchange, patient behavior, online health communities, and information technology in diabetes self-management literature.

[1]  S. Agrawal Role of self- Care in management of diabetes mellitus. , 2016, The Journal of the Association of Physicians of India.

[2]  Gbd Disease and Injury Incidence and Prevalence Collab Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016 , 2017 .

[3]  K. Cook,et al.  Social Exchange Theory , 1989, Theoretical Sociology.

[4]  M. Holbrook The Nature of Customer Value: An Axiology of Services in the Consumption Experience , 1994 .

[5]  María Teresa Arredondo,et al.  Integration of Personalized Healthcare Pathways in an ICT Platform for Diabetes Managements: A Small-Scale Exploratory Study , 2016, IEEE Journal of Biomedical and Health Informatics.

[6]  Oliver E. Williamson,et al.  Chapter 3 Transaction cost economics , 1989 .

[7]  Atreyi Kankanhalli,et al.  Contributing Knowledge to Electronic Knowledge Repositories: An Empirical Investigation , 2005, MIS Q..

[8]  Yi Guo,et al.  Mobile Apps for the Management of Diabetes , 2017, Diabetes Care.

[9]  Manju K. Ahuja,et al.  Socialization in Virtual Groups , 2003 .

[10]  T. Hansen,et al.  Lifestyle factors, self-management and patient empowerment in diabetes care , 2019, European journal of preventive cardiology.

[11]  Borim Ryu,et al.  Impact of an Electronic Health Record-Integrated Personal Health Record on Patient Participation in Health Care: Development and Randomized Controlled Trial of MyHealthKeeper , 2017, Journal of medical Internet research.

[12]  Joseph P. Cannon,et al.  Buyer–Seller Relationships in Business Markets , 1999 .

[13]  Qing Zhu,et al.  Health information privacy concerns, antecedents, and information disclosure intention in online health communities , 2017, Inf. Manag..

[14]  Hilde van der Togt,et al.  Publisher's Note , 2003, J. Netw. Comput. Appl..

[15]  Hong Wu,et al.  Online written consultation, telephone consultation and offline appointment: An examination of the channel effect in online health communities , 2017, Int. J. Medical Informatics.

[16]  Zhaohua Deng,et al.  Online service qualities in the multistage process and patients' compliments: A transaction cycle perspective , 2020, Inf. Manag..

[17]  Wen-Lung Shiau,et al.  Factors affecting online group buying intention and satisfaction: A social exchange theory perspective , 2012, Comput. Hum. Behav..

[18]  Mauro Raciti,et al.  Development of an integrated ICT system for data production, standardization and elaboration in health & care , 2017, 2017 E-Health and Bioengineering Conference (EHB).

[19]  Josh Pasek,et al.  Motivations for Participation in an Online Social Media Community for Diabetes , 2018, Journal of diabetes science and technology.

[20]  Po-yuan Chen,et al.  Perceived value, transaction cost, and repurchase-intention in online shopping: A relational exchange perspective , 2014 .

[21]  D. Dutta,et al.  Factors Determining the Success of Therapeutic Lifestyle Interventions in Diabetes – Role of Partner and Family Support , 2019, European endocrinology.

[22]  Yan Zhang,et al.  Facebook as a Platform for Health Information and Communication: A Case Study of a Diabetes Group , 2013, Journal of Medical Systems.

[23]  Linda D. Molm Coercive power in social exchange , 1997 .

[24]  Chun-Ming Chang,et al.  What motivates health information exchange in social media? The roles of the social cognitive theory and perceived interactivity , 2018, Inf. Manag..

[25]  Konstantina S. Nikita,et al.  A Review of Emerging Technologies for the Management of Diabetes Mellitus , 2015, IEEE Transactions on Biomedical Engineering.

[26]  M. Lynne Markus,et al.  The experienced "sense" of a virtual community: characteristics and processes , 2004, DATB.

[27]  Reeva Lederman,et al.  How Trust Is Formed in Online Health Communities: A Process Perspective , 2014, Commun. Assoc. Inf. Syst..

[28]  Gunilla Widén,et al.  Not what you know, nor who you know, but who you know already: Examining Online Information Sharing Behaviours in a Blogging Environment through the Lens of Social Exchange Theory , 2010 .

[29]  Zhaohua Deng,et al.  Knowledge collaboration among physicians in online health communities: A transactive memory perspective , 2019, Int. J. Inf. Manag..

[30]  Xitong Guo,et al.  The Effects of Participating in a Physician-Driven Online Health Community in Managing Chronic Disease: Evidence from Two Natural Experiments , 2020, MIS Q..

[31]  Bin Gu,et al.  An investigation of information sharing and seeking behaviors in online investment communities , 2014, Comput. Hum. Behav..

[32]  Han Zhang,et al.  Knowledge sharing in online health communities: A social exchange theory perspective , 2016, Inf. Manag..

[33]  B. Frey,et al.  Motivation crowding theory , 2001 .

[34]  Zhaohua Deng,et al.  Knowledge sharing motivations in online health communities: A comparative study of health professionals and normal users , 2017, Comput. Hum. Behav..

[35]  R. Glasgow,et al.  Do Internet-Based Support Interventions Change Perceptions of Social Support?: An Experimental Trial of Approaches for Supporting Diabetes Self-Management , 2002, American journal of community psychology.

[36]  Min Zhang,et al.  Impact of Free Contributions on Private Benefits in Online Healthcare Communities , 2019, Int. J. Electron. Commer..

[37]  T. Vos,et al.  Global, regional, and national incidence and prevalence, and years lived with disability for 328 diseases and injuries in 195 countries, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016 , 2017 .

[38]  Martin McKee,et al.  Caring for People with Chronic Conditions: A Health System Perspective , 2008 .

[39]  R. Vallerand Toward A Hierarchical Model of Intrinsic and Extrinsic Motivation , 1997 .