Co-Design Beyond Words: 'Moments of Interaction' with Minimally-Verbal Children on the Autism Spectrum

Existing co-design methods support verbal children on the autism spectrum in the design process, while their minimally-verbal peers are overlooked. We describe Co-Design Beyond Words (CDBW), an approach which merges existing co-design methods with practice-based methods from Speech and Language Therapy which are child-led and interests-based. These emphasise the rich detail that can be conveyed in the moment, through recognising occurrences of, for example, Joint Attention, Turn Taking and Imitation. We worked in an autism-specific primary school over 20 weeks with ten children, aged 5 to 8. We co-designed a playful prototype, the TangiBall, using the three iterative phases of CDBW; the Foundation Phase (preparation for interaction), the Interaction Phase (designing-and-reflecting in the moment) and the Reflection Phase (reflection-on-action). We contribute a novel co-design approach and present moments of interaction, the micro instances in design in which minimally-verbal children on the spectrum can convey meaning beyond words, through their actions, interactions, and attentional foci. These moments of interaction provide design insight, shape design direction, and reveal unique strengths, interests, and abilities.

[1]  Christopher Frauenberger,et al.  Micro-ethics for participatory design with marginalised children , 2018, PDC.

[2]  Susan J. Danby,et al.  Children as Experts in Their Lives: Child Inclusive Research , 2011 .

[3]  Elizabeth Foss,et al.  Children initiating and leading cooperative inquiry sessions , 2013, IDC.

[4]  Ole Iversen,et al.  Child as Protagonist: Expanding the Role of Children in Participatory Design , 2017, IDC.

[5]  Connie Kasari,et al.  Minimally Verbal School‐Aged Children with Autism Spectrum Disorder: The Neglected End of the Spectrum , 2013, Autism research : official journal of the International Society for Autism Research.

[6]  Mary Beth Rosson,et al.  Participatory design in community informatics , 2007 .

[7]  Jessica L. Benham Giving voice: mobile communication, disability, and inequality , 2017 .

[8]  Hilary Johnson,et al.  Structured approaches to participatory design for children: can targeting the needs of children with autism provide benefits for a broader child population? , 2014 .

[9]  Margot Brereton,et al.  Design Artefacts to Support People with a Disability to Build Personal Infrastructures , 2018, Conference on Designing Interactive Systems.

[10]  Asimina Vasalou,et al.  Design Opportunities for AAC and Children with Severe Speech and Physical Impairments , 2018, CHI.

[11]  Janice Light,et al.  Putting People First: Re-Thinking the Role of Technology in Augmentative and Alternative Communication Intervention , 2013, Augmentative and alternative communication.

[12]  Narcís Parés,et al.  Achieving dialogue with children with severe autism in an adaptive multisensory interaction: the "MEDIATE" project , 2005, IEEE Transactions on Visualization and Computer Graphics.

[13]  Bernd Ploderer,et al.  The transition of stroke survivors from hospital to home: understanding work and design opportunities , 2017, OZCHI.

[14]  Krzysztof Z. Gajos,et al.  Ability-Based Design: Concept, Principles and Examples , 2011, TACC.

[15]  Barbara B. Kawulich Participant Observation as a Data Collection Method , 2005 .

[16]  Christopher Frauenberger,et al.  Designing Smart Objects with Autistic Children: Four Design Exposès , 2016, CHI.

[17]  Gillian R. Hayes,et al.  Disability studies as a source of critical inquiry for the field of assistive technology , 2010, ASSETS '10.

[18]  Gillian R. Hayes,et al.  vSked: evaluation of a system to support classroom activities for children with autism , 2010, CHI.

[19]  Christopher Frauenberger,et al.  Interpreting input from children: a designerly approach , 2012, CHI.

[20]  Roisin McNaney,et al.  Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies , 2018, CHI.

[21]  Laura Benton,et al.  Widening participation in technology design: A review of the involvement of children with special educational needs and disabilities , 2015, Int. J. Child Comput. Interact..

[22]  Eevi E. Beck,et al.  P for Political: Participation is Not Enough , 2002 .

[23]  Anne Marie Piper,et al.  Making as Expression: Informing Design with People with Complex Communication Needs through Art Therapy , 2018, CHI.

[24]  Margot Brereton,et al.  Design after design to bridge between people living with cognitive or sensory impairments, their friends and proxies , 2015 .

[25]  Christopher Frauenberger,et al.  Supporting the design contributions of children with autism spectrum conditions , 2012, IDC '12.

[26]  Allison Druin,et al.  Including children in technology design processes: techniques and practices , 2014, CHI Extended Abstracts.

[27]  Ann Light,et al.  The unit of analysis in understanding the politics of participatory practice , 2010, PDC '10.

[28]  Elizabeth Foss,et al.  Layered elaboration: a new technique for co-design with children , 2010, CHI.

[29]  Christian Dindler,et al.  Fictional Inquiry—design collaboration in a shared narrative space , 2007 .

[30]  Jacob O. Wobbrock,et al.  SIGCHI Social Impact Award Talk -- Ability-Based Design: Elevating Ability over Disability in Accessible Computing , 2017, CHI Extended Abstracts.

[31]  Allison Druin,et al.  Designing with and for children with special needs: an inclusionary model , 2008, IDC.

[32]  A. Kaiser,et al.  The effectiveness of parent-implemented language interventions: a meta-analysis. , 2011, American journal of speech-language pathology.

[33]  G. Dawson,et al.  Early Predictors of Communication Development in Young Children with Autism Spectrum Disorder: Joint Attention, Imitation, and Toy Play , 2006, Journal of autism and developmental disorders.

[34]  Bongshin Lee,et al.  Co-Designing with Preschoolers Using Fictional Inquiry and Comicboarding , 2017, CHI.

[35]  Nicola Yuill,et al.  Tablets for two: How dual tablets can facilitate other-awareness and communication in learning disabled children with autism , 2017, Int. J. Child Comput. Interact..

[36]  Margot Brereton,et al.  'Put yourself in the picture': designing for futures with young adults with intellectual disability , 2016, OZCHI.

[37]  Christopher Frauenberger,et al.  The Things We Play with Roles of Technology in Social Play , 2018, CHI PLAY.

[38]  Jesper Simonsen,et al.  Routledge International Handbook of Participatory Design , 2012 .

[39]  Gregory D. Abowd,et al.  Monitoring children’s developmental progress using augmented toys and activity recognition , 2012, Personal and Ubiquitous Computing.

[40]  Allison Druin,et al.  Cooperative Inquiry revisited: Reflections of the past and guidelines for the future of intergenerational co-design , 2013, Int. J. Child Comput. Interact..

[41]  Christopher Frauenberger,et al.  Blending Methods: Developing Participatory Design Sessions for Autistic Children , 2017, IDC.

[42]  Jan Mainz,et al.  A room for design: Through participatory design young adults with schizophrenia become strong collaborators. , 2016, International journal of mental health nursing.

[43]  John McGhee,et al.  The case for conversation: a design research framework for participatory feedback from autistic children , 2016, OZCHI.

[44]  Elizabeth Foss,et al.  Cooperative Inquiry Extended: Creating Technology with Middle School Students with Learning Differences , 2013 .

[45]  Juan Pablo Hourcade,et al.  Evaluation of tablet apps to encourage social interaction in children with autism spectrum disorders , 2013, CHI.

[46]  R. J. Bogumil,et al.  The reflective practitioner: How professionals think in action , 1985, Proceedings of the IEEE.

[47]  Allison Druin,et al.  Cooperative inquiry: developing new technologies for children with children , 1999, CHI '99.

[48]  Christopher Frauenberger,et al.  Embodied Companion Technologies for Autistic Children , 2016, Tangible and Embedded Interaction.

[49]  Abi Roper Accessibility of computer therapy and technology for people with aphasia , 2014, ASAC.

[50]  Allison Druin,et al.  Mixing ideas: a new technique for working with young children as design partners , 2004, IDC '04.

[51]  Christopher Frauenberger,et al.  Creating creative spaces for co-designing with autistic children: the concept of a , 2016, PDC.

[52]  Hilary Johnson,et al.  Diversity for design: a framework for involving neurodiverse children in the technology design process , 2014, CHI.

[53]  Stellan Welin,et al.  Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement , 2012, Health Care Analysis.

[54]  Austin Henderson,et al.  Interaction Analysis: Foundations and Practice , 1995 .

[55]  Margot Brereton,et al.  MyWord: enhancing engagement, interaction and self-expression with minimally-verbal children on the autism spectrum through a personal audio-visual dictionary , 2018, IDC.

[56]  Roisin McNaney,et al.  StammerApp: Designing a Mobile Application to Support Self-Reflection and Goal Setting for People Who Stammer , 2018, CHI.

[57]  Christopher Frauenberger,et al.  Participatory Evaluation with Autistic Children , 2017, CHI.

[58]  Kenneth K Poon,et al.  To What Extent Do Joint Attention, Imitation, and Object Play Behaviors in Infancy Predict Later Communication and Intellectual Functioning in ASD? , 2011, Journal of Autism and Developmental Disorders.

[59]  Peggy Gregory,et al.  An Investigation of Participatory Design with Children – Informant, Balanced and Facilitated Design , 2002 .

[60]  Patrick Olivier,et al.  Design to support interpersonal communication in the special educational needs classroom , 2013, IDC.

[61]  Laura Malinverni,et al.  Towards methods for evaluating and communicating participatory design: A multimodal approach , 2016, Int. J. Hum. Comput. Stud..

[62]  S. Wieder,et al.  The child with special needs : encouraging intellectual and emotional growth , 1998 .

[63]  Lauren E. Sherman,et al.  Deficit, difference, or both? Autism and neurodiversity. , 2013, Developmental psychology.

[64]  Margot Brereton,et al.  Digital Strategies for Supporting Strengths- and Interests-based Learning with Children with Autism , 2017, ASSETS.

[65]  Margot Brereton,et al.  Giving a voice through design: adapting design methods to enhance the participation of people with communication difficulties , 2018, PDC.

[66]  Gillian R. Hayes,et al.  Would You Be Mine: Appropriating Minecraft as an Assistive Technology for Youth with Autism , 2016, ASSETS.