Interventions for enhancing consumers' online health literacy.

BACKGROUND Access to health information is critical to enable consumers to participate in decisions on health. Increasingly, such information is accessed via the internet, but a number of barriers prevent consumers making effective use of it. These barriers include inadequate skills to search, evaluate and use the information. It has not yet been demonstrated whether training consumers to use the internet for health information can result in positive health outcomes. OBJECTIVES To assess the effects of interventions for enhancing consumers' online health literacy (skills to search, evaluate and use online health information). SEARCH STRATEGY We searched: the Cochrane Consumers and Communication Review Group Specialised Register; Cochrane Central Register of Controlled Trials (CENTRAL, The Cochrane Library, Issue 1 2008); MEDLINE (Ovid); EMBASE (Ovid); CINAHL (Dialog); ERIC (CSA Illumina); LISA (CSA Illumina); PsycINFO (Ovid); Index to scientific and technical proceedings; SIGLE; ASLIB Index to Theses; ProQuest Dissertation Abstracts; National Research Register/UK CRN Portfolio database; Current Controlled Trials - MetaRegister of Controlled Trials. We searched all databases for the period January 1990 to March 2008. SELECTION CRITERIA Randomised controlled trials (RCTs), cluster RCTs and associated economic evaluations, quasi-RCTs, interrupted time series analyses, and controlled before and after (CBA) studies assessing interventions to enhance consumers' online health literacy, in any language. DATA COLLECTION AND ANALYSIS Two review authors independently selected studies for inclusion, assessed their quality and extracted data. We contacted study authors for clarification and to seek missing data. We presented results as a narrative and tabular summary, and calculated mean differences where appropriate. MAIN RESULTS We included two studies: one randomised controlled trial (RCT) and one controlled before and after (CBA) study with a combined total of 470 participants. The RCT compared internet health information classes with patient education classes for participants with HIV infection. Only the RCT, which we rated as having a moderate risk of bias, reported statistically significant positive effects for primary outcomes related to online health literacy in the intervention group, for the following outcomes: 'Self-efficacy for health information seeking', 'health information evaluation skills' and the 'number of times the patient discussed online information with a health provider'. The CBA, which we rated as having a high risk of bias, compared internet health information classes with a control group receiving no intervention among healthy adults aged 50+. It showed significant positive changes only in a secondary (behavioural) outcome in the intervention group, regarding the readiness to adopt the internet as a tool for preventive health information. No adverse effects were reported.There is low quality evidence that such interventions may improve some outcomes relevant to online health literacy in certain populations. AUTHORS' CONCLUSIONS Due to the small number of studies and their variable methodological quality, the evidence is too weak to draw any conclusions about implications for the design and delivery of interventions for online health literacy. There is a need for well-designed RCTs to investigate the effects of such interventions. These should involve different participants (in terms of disease status, age, socio-economic group and gender) to analyse the extent to which online health literacy reduces a barrier to using the internet for health information. Trials should be conducted in different settings and should examine interventions to enhance consumers' online health literacy (search, appraisal and use of online health information) like internet training courses, measuring outcomes up to at least one year after the intervention to estimate the sustainability of the intervention effects.

[1]  Ping Yu,et al.  Electronic Health Record , 2012, Encyclopedia of Gerontology and Population Aging.

[2]  Polly D. Boruff-Jones,et al.  Information literacy. , 2009, Radiologic technology.

[3]  A. Markus Access to information. , 1992, The Practitioner.

[4]  Marilyn H Oermann,et al.  Using Web Sites on Quality Health Care for Teaching Consumers in Public Libraries , 2005, Quality management in health care.

[5]  Howard Pope,et al.  Internet use among people living with HIV/AIDS: coping and health-related correlates. , 2005, AIDS patient care and STDs.

[6]  A. While,et al.  Health information seeking and its effect on the doctor-patient digital divide , 2005, Journal of telemedicine and telecare.

[7]  S. Folkman,et al.  Stress, appraisal, and coping , 1974 .

[8]  J. Klein,et al.  The Internet: a window on adolescent health literacy. , 2005, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[9]  M. Hardey Doctor in the house: the Internet as a source of lay health knowledge and the challenge to expertise , 1999 .

[10]  David Nicholas,et al.  What Are Information Needs , 2000 .

[11]  S. Hill,et al.  Cochrane Consumers and Communication Review Group: leading the field on health communication evidence , 2013, Journal of evidence-based medicine.

[12]  W. Katon,et al.  Improving adherence to antidepressants: a systematic review of interventions. , 2003, The Journal of clinical psychiatry.

[13]  Robert P. Hawkins,et al.  CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved , 2002, Int. J. Medical Informatics.

[14]  Robert LaRose,et al.  Internet Self-Efficacy and the Psychology of the Digital Divide , 2006, J. Comput. Mediat. Commun..

[15]  赵红彬 Placebo , 2007 .

[16]  Robert L. Shrader,et al.  Electronic communication. , 1971, South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde.

[17]  A Coulter,et al.  Sharing decisions with patients: is the information good enough? , 1999, BMJ.

[18]  Ramākānta Miśra,et al.  शैक्षिकप्रविधिः = Educational technology , 2006 .

[19]  Joseph A. Diaz,et al.  Patients’ use of the internet for medical information , 2002, Journal of General Internal Medicine.

[20]  R. Campbell,et al.  Teaching Elderly Adults to Use the Internet to Access Health Care Information: Before-After Study , 2005, Journal of medical Internet research.

[21]  William A. Fisher,et al.  The Information‐Motivation‐Behavioral Skills Model: A General Social Psychological Approach to Understanding and Promoting Health Behavior , 2009 .

[22]  Michael C. McKenna,et al.  Handbook of Literacy and Technology : Transformations in A Post-typographic World , 1998 .

[23]  Frank Burns,et al.  Consumer information , 1990, The Lancet.

[24]  Penny Garrod Information and IT Literacy: Enabling Learning in the 21st Century , 2004, Program.

[25]  V. Lotter,et al.  Follow-Up Studies , 1978 .

[26]  Elizabeth Murray,et al.  Interactive Health Communication Applications for people with chronic disease. , 2005, The Cochrane database of systematic reviews.

[27]  Suzanne M. Miller,et al.  Styles of coping with threat: Implications for health. , 1988 .

[28]  S. Brophy,et al.  Interventions for latent autoimmune diabetes (LADA) in adults. , 2011, The Cochrane database of systematic reviews.

[29]  E. Benotsch,et al.  Closing the digital divide in HIV/AIDS care: development of a theory-based intervention to increase Internet access , 2002, AIDS care.

[30]  R. J. Cline,et al.  Consumer health information seeking on the Internet: the state of the art. , 2001, Health education research.

[31]  Y. Braunstein,et al.  Information management , 1996 .

[32]  T. Bodenheimer,et al.  Patient self-management of chronic disease in primary care. , 2002, JAMA.

[33]  Jeff Dean,et al.  Time Series , 2009, Encyclopedia of Database Systems.

[34]  Alan L. Rector,et al.  MEDICAL INFORMATICS , 1990, The Lancet.

[35]  F. Griffiths,et al.  Why Are Health Care Interventions Delivered Over the Internet? A Systematic Review of the Published Literature , 2006, Journal of medical Internet research.

[36]  J. Walther Computer-Mediated Communication , 1996 .

[37]  J. Northover The impact of learning on health , 2005 .

[38]  Y. Suarez-Balcazar,et al.  Internet access and empowerment , 2003, Journal of General Internal Medicine.

[39]  I. Sarason,et al.  Simultaneous Assessment of Perceived Global and Relationship-Specific Support , 1996 .

[40]  Cynthia A Olney,et al.  MedlinePlus and the challenge of low health literacy: findings from the Colonias project. , 2007, Journal of the Medical Library Association : JMLA.

[41]  J. Farradane,et al.  Information Science , 1971, Nature.

[42]  Susan Brewer,et al.  Information storage and retrieval , 1959, ACM '59.

[43]  Jerry Suls,et al.  Social psychological foundations of health and illness , 2003 .

[44]  Yva Doually,et al.  Information Technology , 1997, IFIP Advances in Information and Communication Technology.

[45]  Howard Pope,et al.  Internet-based health information consumer skills intervention for people living with HIV/AIDS. , 2006, Journal of consulting and clinical psychology.

[46]  David A. Kindig,et al.  Health literacy : a prescription to end confusion , 2004 .

[47]  R. Short Teaching AIDS. , 1989, IPPF medical bulletin.

[48]  Mark Levene,et al.  Search Engines: Information Retrieval in Practice , 2011, Comput. J..

[49]  J. Prochaska Treating entire populations for behavior risks for cancer. , 2001, Cancer Journal.

[50]  L. Sansom,et al.  Do Internet interventions for consumers cause more harm than good? A systematic review , 2002, Health expectations : an international journal of public participation in health care and health policy.

[51]  L. Edgar,et al.  Providing internet lessons to oncology patients and family members: a shared project , 2002, Psycho-oncology.

[52]  Constantine Gatsonis,et al.  Analysing and Presenting Results , 2010 .

[53]  L. Baker,et al.  Use of the Internet and e-mail for health care information: results from a national survey. , 2003, JAMA.

[54]  Craig R Ramsay,et al.  INTERRUPTED TIME SERIES DESIGNS IN HEALTH TECHNOLOGY ASSESSMENT: LESSONS FROM TWO SYSTEMATIC REVIEWS OF BEHAVIOR CHANGE STRATEGIES , 2003, International Journal of Technology Assessment in Health Care.

[55]  Arthur Luehrmann,et al.  Computer Literacy , 1983 .

[56]  M. Weissman,et al.  Community surveys of psychiatric disorders , 1989 .

[57]  K. Griffiths,et al.  Providing information about the effectiveness of treatment options to depressed people in the community: a randomized controlled trial of effects on mental health literacy, help-seeking and symptoms , 2003, Psychological Medicine.

[58]  L. Siu,et al.  Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada. , 2001, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[59]  Chris Clifton,et al.  Information Seeking , 2009, Encyclopedia of Database Systems.

[60]  A. Jadad,et al.  Analysis of cases of harm associated with use of health information on the internet. , 2002, JAMA.

[61]  Christian Köhler,et al.  How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews , 2002, BMJ : British Medical Journal.

[62]  Tefko Saracevic,et al.  Information science: What is it? , 1968 .

[63]  E. Rogers,et al.  Diffusion of Innovations , 1964 .

[64]  K. Slonneger Computer attitudes , 1976, SGCS.

[65]  A. Campbell,et al.  Ethics in health education , 1990 .

[66]  Robert Mittman,et al.  Health e-People: The Online Consumer Experience , 2000 .

[67]  Ronald E. Rice,et al.  Influences, usage, and outcomes of Internet health information searching: Multivariate results from the Pew surveys , 2006, Int. J. Medical Informatics.

[68]  Douglas G. Altman,et al.  Chapter 9: Analysing Data and Undertaking Meta-Analyses , 2008 .

[69]  Jonathan J Deeks,et al.  Chapter 13: Including non-randomized studies , 2008 .

[70]  Helen Christensen,et al.  The Internet and Mental Health Literacy , 2000 .

[71]  V. Preedy,et al.  Randomized Controlled Trial , 2010 .

[72]  L. Baker,et al.  Internet use and stigmatized illness. , 2005, Social science & medicine.

[73]  Alejandro R. Jadad,et al.  Randomized controlled trials , 2007 .

[74]  E. Murray,et al.  Interactive computer-based interventions for sexual health promotion. , 2010, The Cochrane database of systematic reviews.

[75]  Yuelin Li,et al.  Provider-patient dialogue about Internet health information: an exploration of strategies to improve the provider-patient relationship. , 2007, Patient education and counseling.

[76]  J. Powell,et al.  Internet information-seeking in mental health , 2006, British Journal of Psychiatry.

[77]  H. Daniels,et al.  A study of information seeking by cancer patients and their carers. , 2007, Clinical oncology (Royal College of Radiologists (Great Britain)).

[78]  Jack A. Chambers,et al.  Computer assisted instruction: current trends and critical issues , 1980, CACM.

[79]  P Sutcliffe,et al.  Health technology assessment. , 1986, Israel journal of medical sciences.

[80]  J. Powell,et al.  Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. , 2002, JAMA.

[81]  S. Kalichman,et al.  HIV-AIDS patients' evaluation of health information on the internet: the digital divide and vulnerability to fraudulent claims. , 2004, Journal of consulting and clinical psychology.

[82]  D. Altman,et al.  Chapter 8: Assessing risk of bias in included studies , 2008 .

[83]  G Foster,et al.  Self-management education programmes by lay leaders for people with chronic conditions. , 2007, The Cochrane database of systematic reviews.

[84]  T Leaffer,et al.  The Internet: an underutilized tool in patient education. , 2000, Computers in nursing.

[85]  Paul Heron,et al.  Assessing the quality of information to support people in making decisions about their health and healthcare , 2006 .

[86]  E. Murray,et al.  The impact of health information on the internet on the physician-patient relationship: patient perceptions. , 2003, Archives of internal medicine.

[87]  M. Roland,et al.  What Predicts Patients' Interest in the Internet as a Health Resource in Primary Care in England? , 2003 .

[88]  Linda Little,et al.  E-health , 2008, BCS HCI.

[89]  H R RUGIERO,et al.  [Teaching methods]. , 1957, Revista de la Asociacion Medica Argentina.

[90]  Florence Puno,et al.  Installing Computers in Older Adults' Homes and Teaching Them to Access a Patient Education Web Site: A Systematic Approach , 2004, Computers, informatics, nursing : CIN.

[91]  Gina A. Keppel,et al.  A Qualitative Study of Depression in Primary Care: Missed Opportunities for Diagnosis and Education , 2007, The Journal of the American Board of Family Medicine.

[92]  R S Willard,et al.  Information services. , 1982, Science.

[93]  J. Higgins Cochrane handbook for systematic reviews of interventions. Version 5.1.0 [updated March 2011]. The Cochrane Collaboration , 2011 .

[94]  S. Thompson,et al.  Quantifying heterogeneity in a meta‐analysis , 2002, Statistics in medicine.

[95]  R. Blendon,et al.  Health information, the Internet, and the digital divide. , 2000, Health affairs.

[96]  Janet Morahan-Martin,et al.  How Internet Users Find, Evaluate, and Use Online Health Information: A Cross-Cultural Review , 2004, Cyberpsychology Behav. Soc. Netw..

[97]  D Pencheon,et al.  Economic evaluation in health: a thumb nail sketch , 1998, BMJ.