Availability of treatment drives decisions of genetic health professionals about disclosure of incidental findings

[1]  Megan E. Grove,et al.  Views of Genetics Health Professionals on the Return of Genomic Results , 2014, Journal of Genetic Counseling.

[2]  S. Metcalfe,et al.  Key Informants’ Perspectives of Implementing Chromosomal Microarrays Into Clinical Practice in Australia , 2013, Twin Research and Human Genetics.

[3]  Q. Waisfisz,et al.  Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics , 2013, Human mutation.

[4]  B. Knoppers,et al.  Recommendations for returning genomic incidental findings? We need to talk! , 2013, Genetics in Medicine.

[5]  Marc S. Williams,et al.  ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing , 2013, Genetics in Medicine.

[6]  Robert C. Green,et al.  Ethics and Genomic Incidental Findings , 2013, Science.

[7]  B. Knoppers,et al.  Whole-genome sequencing in health care , 2013, European Journal of Human Genetics.

[8]  Domenica Taruscio,et al.  A framework to start the debate on neonatal screening policies in the EU: an Expert Opinion Document , 2013, European Journal of Human Genetics.

[9]  S. Fullerton,et al.  Return of incidental findings in genomic medicine: measuring what patients value—development of an instrument to measure preferences for information from next-generation testing (IMPRINT) , 2013, Genetics in Medicine.

[10]  H. Skirton,et al.  Incidental findings in genetic research and clinical diagnostic tests: A systematic review , 2012, American journal of medical genetics. Part A.

[11]  F. Rousseau,et al.  “I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing , 2012, American journal of medical genetics. Part A.

[12]  Muin J Khoury,et al.  Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time , 2011, Genetics in Medicine.

[13]  B. LeRoy,et al.  A Comparative Analysis of Ethical and Professional Challenges Experienced by Australian and U.S. Genetic Counselors , 2009, Journal of Genetic Counseling.

[14]  C. Shaw-Smith,et al.  Array CGH in patients with learning disability (mental retardation) and congenital anomalies: updated systematic review and meta-analysis of 19 studies and 13,926 subjects , 2009, Genetics in Medicine.

[15]  M. Aitken,et al.  Educating Genetic Counselors in Australia: Developing an International Perspective , 2005, Journal of Genetic Counseling.

[16]  R. Best,et al.  Ethical issues in genetic counseling: A comparison of M.S. counselor and medical geneticist perspectives , 1992, Journal of Genetic Counseling.

[17]  J. Louviere,et al.  Conducting Discrete Choice Experiments to Inform Healthcare Decision Making , 2012, PharmacoEconomics.

[18]  Mandy Ryan,et al.  Using discrete choice experiments to value health and health care , 2008 .

[19]  M Ryan,et al.  Eliciting public preferences for healthcare: a systematic review of techniques. , 2001, Health technology assessment.