Social Media Use and Preferences in Patients With Inflammatory Bowel Disease.

INTRODUCTION There has been growing interest in social media use in managing chronic illnesses. The aim of this study was to assess social media usage in a large sample of patients with inflammatory bowel disease (IBD). METHODS We performed a cross-sectional study within the Crohn's and Colitis Foundation's IBD Partners' internet-based cohort. We used bivariate analyses to compare patient characteristics by various factors associated with social media utilization. We used logistic regression models to determine factors independently associated with using social media to obtain IBD-related information. RESULTS A total of 1960 IBD patients were included. Most respondents reported spending between 30 and 60 minutes on social media sites per day. Thirty-two percent of respondents agreed that social media could be useful for disease management. Most respondents agreed that social media should be used to connect patients with IBD-related organizations and to obtain IBD-related information online. Fifty percent of respondents could not rate the quality of IBD information posted online. Concerns surrounding social media use included privacy/confidentiality and lack of trust of information posted. The most frequently used social media website was Facebook. Thirty-two percent of respondents used social media at least once in the last week to obtain or post IBD-related content. Factors independently associated with social media use for IBD included female gender (odds ratio [OR] 1.43; 95% CI,1.10-1.87), age (OR 0.99; 95% CI, 0.98-1.00), remission (OR 0.63; 95% CI, 0.50-0.79), and a diagnosis of Crohn's disease (CD) rather than ulcerative colitis (UC) (OR 0.74; 95% CI, 0.58-0.93). CONCLUSIONS Patients with IBD in this cohort expressed a substantial interest in using social media to aid in disease management. Use was higher in younger patients, females, and patients with active disease. Most patients were unsure of the quality of information posted online, which represents opportunities for clinicians to guide patients to appropriate resources.

[1]  Mohamed Khalifa,et al.  The impact of social media-based support groups on smoking relapse prevention in Saudi Arabia , 2018, Comput. Methods Programs Biomed..

[2]  L. Fishman,et al.  Use of Social Media for Health-Related Tasks by Adolescents With Inflammatory Bowel Disease: A Step in the Pathway of Transition. , 2018, Inflammatory bowel diseases.

[3]  T. Alanzi.  Role of Social Media in Diabetes Management in the Middle East Region: Systematic Review , 2018, Journal of medical Internet research.

[4]  J. Groshek,et al.  Media Consumption and Creation in Attitudes Toward and Knowledge of Inflammatory Bowel Disease: Web-Based Survey , 2017, Journal of medical Internet research.

[5]  L. Neubeck,et al.  Cardiac Patients’ Experiences and Perceptions of Social Media: Mixed-Methods Study , 2017, Journal of medical Internet research.

[6]  J. Groshek,et al.  A Survey of Social Media Use and Preferences in Patients with Inflammatory Bowel Disease , 2016, Inflammatory bowel diseases.

[7]  D. O. Frohlich.  The Social Construction of Inflammatory Bowel Disease Using Social Media Technologies , 2016, Health communication.

[8]  Christopher F. Martin,et al.  Evaluation of the patient-reported outcomes measurement information system in a large cohort of patients with inflammatory bowel diseases. , 2014, Clinical gastroenterology and hepatology : the official clinical practice journal of the American Gastroenterological Association.

[9]  Kristen Anton,et al.  Validation of an Internet-Based Cohort of Inflammatory Bowel Disease (CCFA Partners) , 2014, Inflammatory bowel diseases.

[10]  R. Sandler,et al.  Immunization Rates and Vaccine Beliefs Among Patients with Inflammatory Bowel Disease: An Opportunity for Improvement , 2014, Inflammatory bowel diseases.

[11]  S. Mukewar,et al.  YouTube and inflammatory bowel disease. , 2013, Journal of Crohn's & colitis.

[12]  A. Kaplan.  If you love something, let it go mobile: Mobile marketing and mobile social media 4x4 , 2012 .

[13]  Christopher F. Martin,et al.  Development of an internet‐based cohort of patients with inflammatory bowel diseases (CCFA Partners): Methodology and initial results , 2011, Inflammatory bowel diseases.

[14]  Alan P Baptist,et al.  Social Media, Text Messaging, and Email—Preferences of Asthma Patients between 12 and 40 Years Old , 2011, The Journal of asthma : official journal of the Association for the Care of Asthma.

[15]  W. Sandborn,et al.  Short CDAI: Development and validation of a shortened and simplified Crohn's disease activity index , 2011, Inflammatory bowel diseases.

[16]  M. Welfare,et al.  Defining Relapse of Ulcerative Colitis Using a Symptom-based Activity Index , 2003, Scandinavian journal of gastroenterology.