Genomic Research Data Generation, Analysis and Sharing - Challenges in the African Setting
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Faisal M. Fadlelmola | C. Rotimi | D. Stein | C. Adebamowo | N. Mulder | O. Adebayo | M. Owolabi | A. Benkahla | S. Baichoo | H. Ghazal | S. Adebamowo | A. Moussa | A. Matimba | O. Adeleye | M. Alibi | K. Ghedira | Zahra Mungloo-Dilmohamud | F. Radouani | Oussama Souiai
[1] Sabina Leonelli,et al. Beyond the digital divide: Towards a situated approach to open data , 2017 .
[2] P. Tindana,et al. Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries , 2017, BMC Medical Ethics.
[3] P. Tindana,et al. Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries. , 2016, Annual review of genomics and human genetics.
[4] A. Thorogood,et al. Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts , 2016, European Journal of Human Genetics.
[5] J. Seeley,et al. Evolving perspectives on broad consent for genomics research and biobanking in Africa. Report of the Second H3Africa Ethics Consultation Meeting, 11 May 2015 , 2016, Global health, epidemiology and genomics.
[6] J. McPherson,et al. Coming of age: ten years of next-generation sequencing technologies , 2016, Nature Reviews Genetics.
[7] O. Olopade,et al. Building local capacity for genomics research in Africa: recommendations from analysis of publications in Sub-Saharan Africa from 2004 to 2013 , 2016, Global health action.
[8] R. Akinyemi,et al. Stroke Investigative Research and Education Network , 2016, Health education & behavior : the official publication of the Society for Public Health Education.
[9] Özlem Tastan Bishop,et al. H3ABioNet, a sustainable pan-African bioinformatics network for human heredity and health in Africa , 2016, Genome research.
[10] Jason H. Moore,et al. Adapting bioinformatics curricula for big data , 2015, Briefings Bioinform..
[11] D. Stein,et al. Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents , 2015, Journal of Medical Ethics.
[12] M. Schatz,et al. Big Data: Astronomical or Genomical? , 2015, PLoS biology.
[13] S. Denny,et al. Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings , 2015, Journal of empirical research on human research ethics : JERHRE.
[14] S. Bull,et al. Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research , 2015, Journal of empirical research on human research ethics : JERHRE.
[15] O. Doumbo,et al. Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali , 2015, BMC Medical Ethics.
[16] Thomas K. Karikari,et al. Neurogenomics: An opportunity to integrate neuroscience, genomics and bioinformatics research in Africa , 2015, Applied & translational genomics.
[17] The future of genomic medicine education in Africa , 2015, Genome Medicine.
[18] P. Marshall,et al. Community engagement strategies for genomic studies in Africa: a review of the literature , 2015, BMC medical ethics.
[19] S. Goodman. Clinical Trial Data Sharing: What Do We Do Now? , 2015, Annals of Internal Medicine.
[20] Ebony B. Madden,et al. Addressing ethical issues in H3Africa research – the views of research ethics committee members , 2015, The HUGO Journal.
[21] C. Rotimi,et al. The H3Africa policy framework: negotiating fairness in genomics , 2015, Trends in genetics : TIG.
[22] Gary W Miller,et al. Data sharing in toxicology: beyond show and tell. , 2015, Toxicological sciences : an official journal of the Society of Toxicology.
[23] J. Grefenstette,et al. A systematic review of barriers to data sharing in public health , 2014, BMC Public Health.
[24] Krzysztof J. Gorgolewski,et al. Making big data open: data sharing in neuroimaging , 2014, Nature Neuroscience.
[25] Adam R Ferguson,et al. Big data from small data: data-sharing in the 'long tail' of neuroscience , 2014, Nature Neuroscience.
[26] A. Adeyemo,et al. Informed consent and ethical re-use of African genomic data , 2014, Human Genomics.
[27] S. Bull,et al. Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya , 2014, BMC medical ethics.
[28] Peter N Robinson,et al. Genomic data sharing for translational research and diagnostics , 2014, Genome Medicine.
[29] M. Ramsay,et al. Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees , 2014, Human Genomics.
[30] D. Kwiatkowski,et al. Knowing who to trust: exploring the role of ‘ethical metadata’ in mediating risk of harm in collaborative genomics research in Africa , 2014, BMC medical ethics.
[31] K. Hemminki,et al. Overview on health research ethics in Egypt and North Africa. , 2014, European journal of public health.
[32] M. McCarthy,et al. Research Capacity: Enabling African Scientists to Engage Fully in the Genomic Revolution , 2014 .
[33] Faisal M. Fadlelmola,et al. Enabling Genomic Revolution in Africa , 2019, The Genetics of African Populations in Health and Disease.
[34] C. Rotimi,et al. Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria , 2014, BMC medical ethics.
[35] Kimberley D. Lakes,et al. Community Member and Faith Leader Perspectives on the Process of Building Trusting Relationships between Communities and Researchers , 2014, Clinical and translational science.
[36] T. Hifnawy,et al. Applying Ethical Guidelines in Clinical Researches among Academic Medical Staff: An Experience from South Egypt , 2014 .
[37] Tien-Shang Huang,et al. To evaluate the effectiveness of health care ethics consultation based on the goals of health care ethics consultation: a prospective cohort study with randomization , 2014, BMC medical ethics.
[38] M. Feldman,et al. On the stability of the Bayenv method in assessing human SNP-environment associations , 2014, Human Genomics.
[39] Stephanie A. Morris,et al. caNanoLab: data sharing to expedite the use of nanotechnology in biomedicine. , 2013, Computational science & discovery.
[40] K. Moodley,et al. Challenges in biobank governance in Sub-Saharan Africa , 2013, BMC medical ethics.
[41] A. Adeyemo,et al. Ethical and legal implications of whole genome and whole exome sequencing in African populations , 2013, BMC medical ethics.
[42] A. Brazma,et al. Reuse of public genome-wide gene expression data , 2012, Nature Reviews Genetics.
[43] Eran Halperin,et al. Identifying Personal Genomes by Surname Inference , 2013, Science.
[44] S. Bull,et al. Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience , 2012, BMC Medical Ethics.
[45] L. Rozmovits,et al. Aligning community engagement with traditional authority structures in global health research: a case study from northern Ghana. , 2011, American journal of public health.
[46] Michèle Ramsay,et al. Africa: the next frontier for human disease gene discovery? , 2011, Human molecular genetics.
[47] M. Pepper,et al. Pharmacogenomic Research in South Africa: Lessons Learned and Future Opportunities in the Rainbow Nation , 2011, Current pharmacogenomics and personalized medicine.
[48] C. Tenopir,et al. Data Sharing by Scientists: Practices and Perceptions , 2011, PloS one.
[49] Ian T. Foster,et al. Globus Online: Accelerating and Democratizing Science through Cloud-Based Services , 2011, IEEE Internet Computing.
[50] Michael Parker,et al. Ethical issues in human genomics research in developing countries , 2011, BMC medical ethics.
[51] A. McGuire,et al. Informed consent in genomics and genetic research. , 2010, Annual review of genomics and human genetics.
[52] C. AbouZahr,et al. Sharing health data: good intentions are not enough. , 2010, Bulletin of the World Health Organization.
[53] Tom H. Pringle,et al. Complete Khoisan and Bantu genomes from southern Africa , 2010, Nature.
[54] Scott M. Williams,et al. The Genetic Structure and History of Africans and African Americans , 2009, Science.
[55] W. Kilama,et al. Composition, training needs and independence of ethics review committees across Africa: are the gate-keepers rising to the emerging challenges? , 2009, Journal of Medical Ethics.
[56] S. Tishkoff,et al. Genetic structure in African populations: implications for human demographic history. , 2009, Cold Spring Harbor symposia on quantitative biology.
[57] A. Daar,et al. South Africa: from species cradle to genomic applications , 2009, Nature Reviews Genetics.
[58] Ludivine A. Thomas,et al. Proteomics in South Africa: current status, challenges and prospects. , 2008, Biotechnology journal.
[59] S. Nelson,et al. Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays , 2008, PLoS genetics.
[60] John D. Van Horn,et al. Domain-Specific Data Sharing in Neuroscience: What Do We Have to Learn from Each Other? , 2008, Neuroinformatics.
[61] C. Coleman,et al. How do we know that research ethics committees are really working? The neglected role of outcomes assessment in research ethics review , 2008, BMC medical ethics.
[62] M. Kruger,et al. Health research ethics review and needs of institutional ethics committees in Tanzania. , 2008, Tanzania health research bulletin.
[63] M. Leppert,et al. Community Engagement and Informed Consent in the International HapMap Project , 2007, Public Health Genomics.
[64] D. Kwiatkowski,et al. Valid Consent for Genomic Epidemiology in Developing Countries , 2007, PLoS medicine.
[65] A. Hyder,et al. The Structure and Function of Research Ethics Committees in Africa: A Case Study , 2007, PLoS medicine.
[66] M. Kruger,et al. Health research ethics and needs of institutional ethics committees in Tanzania , 2007 .
[67] D. Kwiatkowski,et al. Data sharing and intellectual property in a genomic epidemiology network: policies for large-scale research collaboration. , 2006, Bulletin of the World Health Organization.
[68] C. Wambebe,et al. Status of national research bioethics committees in the WHO African region , 2005, BMC medical ethics.
[69] Douglas K. Martin,et al. South Africa—blazing a trail for African biotechnology , 2004, Nature Biotechnology.
[70] Ada Hamosh,et al. Problematic variation in local institutional review of a multicenter genetic epidemiology study. , 2003, JAMA.
[71] C Rayner,et al. Informed consent. , 2000, British journal of plastic surgery.