Exploring the use of a commercial digital gaming technological initiative to enable social inclusion for community-dwelling older men with dementia in rural England

This PhD thesis addresses the challenges of social inclusion for older men (65+ years) with dementia in rural England. This applied study used an individually-tailored male-only Technological Initiative, drawing on commercially available computer game technology (e.g. iPad, Nintendo Wii and Microsoft Kinect) to deliver person-centred activities to older men with dementia residing in three rural areas of England over a nine week period. Participatory Action Research (PAR) formed the framework for the conduct of the research. Multiple qualitative methods were employed to explore the perceived impact of the Technological Initiative on the men’s social inclusion. These included focus group discussions, open interviews and extensive reflexive field notes. Twenty two men participated in the research alongside fifteen care partners and five community volunteers. A thematic analysis was undertaken to interpret the data. The research demonstrated that whilst the men enjoyed rural life, aspects of rurality combined with their subjective experiences of dementia to hinder their social inclusion. The Technological Initiative appealed to the men and resulted in their increased social confidence and sense of well-being. Three features were integral to its success: the use of technology; the male-only environment; and the approach adopted. The technology enabled the men to re-engage with their old leisure interests, take part in new activities and so continue their learning and personal growth, and challenge assumptions about their abilities. The male-only environment promoted a sense of familiarity and camaraderie that relaxed the men and encouraged them to speak openly. The approach adopted sought to give voice to the men by situating them as experts in the evolution of the Technological Initiative. The thesis concludes by arguing that community ecopsychosocial initiatives designed to enable male social inclusion would be advised to consider these gendered experiences and promote them through the activities offered, the environment created and the method of delivery.

[1]  J. Bensing,et al.  Behavioral and Mood Effects of Snoezelen Integrated into 24‐Hour Dementia Care , 2005, Journal of the American Geriatrics Society.

[2]  S. Schoppmann,et al.  The experience of people with dementia in a social care group: Case study , 2013, Dementia.

[3]  E. Wiersma,et al.  From social network to safety net: Dementia-friendly communities in rural northern Ontario , 2016, Dementia.

[4]  K. Ball How old are you? , 1997, Today's surgical nurse.

[5]  C. Fouché,et al.  Community-based dementia day programmes: Common elements and outcome measures , 2017, Dementia.

[6]  D. Morgan,et al.  Rural and Urban Canadians with Dementia: Use of Health Care Services* , 2007, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[7]  Anthea Innes,et al.  Barriers to leisure participation for people with dementia and their carers: An exploratory analysis of carer and people with dementia’s experiences , 2016, Dementia.

[8]  C. Brayne,et al.  Prevalence and projections of dementia , 2008 .

[9]  L. Clare,et al.  Collective strength , 2008 .

[10]  N. Stewart,et al.  Rural families caring for a relative with dementia: barriers to use of formal services. , 2002, Social science & medicine.

[11]  M. Orrell The new generation of psychosocial interventions for dementia care. , 2012, The British journal of psychiatry : the journal of mental science.

[12]  Amanda Clarke,et al.  Actively involving people with dementia in qualitative research. , 2009, Journal of clinical nursing.

[13]  V. Menec,et al.  Making Rural and Remote Communities More Age-Friendly: Experts’ Perspectives on Issues, Challenges, and Priorities , 2015, Journal of aging & social policy.

[14]  M. Riikonen,et al.  Factors supporting the use of technology in daily life of home-living people with dementia , 2013 .

[15]  Sally McClean,et al.  Video Reminders as Cognitive Prosthetics for People with Dementia , 2011 .

[16]  Rom Harré,et al.  The Construction and Deconstruction of Self in Alzheimer's Disease , 1992, Ageing and Society.

[17]  Inger Hagen,et al.  Technology in dementia care , 2007 .

[18]  Jacques M. Chevalier,et al.  Participatory Action Research: Theory and Methods for Engaged Inquiry , 2013 .

[19]  Tim Pateman,et al.  Rural and urban areas: comparing lives using rural/urban classifications , 2011 .

[20]  L. Clare,et al.  The impact of dementia on self and identity: a systematic review. , 2010, Clinical psychology review.

[21]  M. R. Genoe,et al.  “I'm just like I always was”: a phenomenological exploration of leisure, identity and dementia , 2011 .

[22]  Lee-Ann Fenge,et al.  Striving towards Inclusive Research: An Example of Participatory Action Research with Older Lesbians and Gay Men , 2010 .

[23]  P. Camic,et al.  Theorizing How Art Gallery Interventions Impact People With Dementia and Their Caregivers. , 2016, The Gerontologist.

[24]  G. Hubbard,et al.  Including older people with dementia in research: Challenges and strategies , 2003, Aging & mental health.

[25]  Steven R. Sabat A Bio-Psycho-Social model enhances young adults’ understanding of and beliefs about people with Alzheimer's disease: A case study , 2012 .

[26]  J. Meyer,et al.  Qualitative research in health care: Using qualitative methods in health related action research , 2000 .

[27]  Valeria Manera,et al.  ‘Kitchen and cooking,’ a serious game for mild cognitive impairment and Alzheimer’s disease: a pilot study , 2015, Front. Aging Neurosci..

[28]  B. Jennings,et al.  What does quality care mean to nurses in rural hospitals? , 2010, Journal of advanced nursing.

[29]  Deborah O'Connor,et al.  Dementia at the Intersections: A unique case study exploring social location , 2010 .

[30]  Pia Kontos,et al.  Rethinking sociability in long-term care: An embodied dimension of selfhood , 2012 .

[31]  Hilary Bradbury,et al.  Participatory action research as practice , 2008 .

[32]  Nicki Ward Social Exclusion, Social Identity and Social Work: Analysing Social Exclusion from a Material Discursive Perspective , 2009 .

[33]  P. Kontos,et al.  Dementia Discourse: From Imposed Suffering to Knowing Other-Wise , 2013, Journal of Applied Hermeneutics.

[34]  J. Hughes Thinking Through Dementia , 2011 .

[35]  Norman Alm,et al.  Using a touch screen computer to support relationships between people with dementia and caregivers , 2010, Interact. Comput..

[36]  D. Somme Excellence in dementia care: research into practice , 2010, International Journal of Integrated Care.

[37]  Preserving personhood in dementia research: a literature review. , 2006, International journal of older people nursing.

[38]  J. Starr,et al.  Geographical variation in dementia: systematic review with meta-analysis , 2012, medRxiv.

[39]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[40]  R. Bartlett The emergent modes of dementia activism , 2012, Ageing and Society.

[41]  Jonas Nordh,et al.  Crafting citizen(ship) for people with dementia: How policy narratives at national level in Sweden informed politics of time from 1975 to 2013. , 2015, Journal of aging studies.

[42]  S. Hong,et al.  Computer Activities for Persons With Dementia. , 2015, The Gerontologist.

[43]  Ruth Levitas,et al.  Let's hear it for Humpty: social exclusion, the third way and cultural capital , 2004 .

[44]  M. Levin,et al.  Virtual Reality in Stroke Rehabilitation: A Meta-Analysis and Implications for Clinicians , 2011, Stroke.

[45]  C. Kilmartin The Masculine Self , 1994 .

[46]  P. Mudge,et al.  Barriers to the provision of care for people with dementia and their carers in a rural community , 2005 .

[47]  C. Tannenbaum,et al.  Masculinity and Health in Late Life Men , 2011, American journal of men's health.

[48]  Habib Chaudhury,et al.  Doing as much as I can do: The meaning of activity for people with dementia , 2007, Aging & mental health.

[49]  A. Kramer,et al.  Can training in a real-time strategy video game attenuate cognitive decline in older adults? , 2008, Psychology and aging.

[50]  A. Innes,et al.  Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers , 2006 .

[51]  Lynn Martin,et al.  Shifting our conceptualization of social inclusion , 2012 .

[52]  C. Ballard,et al.  The dementia antipsychotic withdrawal trial (DART-AD): long-term follow-up of a randomised placebo-controlled trial , 2009, The Lancet Neurology.

[53]  Trisha Greenhalgh,et al.  What matters to older people with assisted living needs? A phenomenological analysis of the use and non-use of telehealth and telecare. , 2013, Social science & medicine.

[54]  L. Solomons,et al.  The World Cup effect: Using football to engage men with dementia , 2012 .

[55]  M. Nolan,et al.  Ethical and Methodological Issues in Interviewing Persons With Dementia , 2007, Nursing ethics.

[56]  Behind the Stiff Upper Lip: War Narratives of Older Men with Dementia , 2013 .

[57]  Member States,et al.  Convention on the Rights of Persons with Disabilities and Optional Protocol , 2012 .

[58]  Rose-Marie Dröes,et al.  What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services , 2009, International Psychogeriatrics.

[59]  N. Chappell,et al.  Meaningful Activity for Persons With Dementia , 2015, American journal of Alzheimer's disease and other dementias.

[60]  O. Hankivsky,et al.  Taking Action on Stigma and Discrimination: An Intersectionality-Informed Model of Social Inclusion and Exclusion , 2015 .

[61]  C. Nugent,et al.  Review of ICT-based services for identified unmet needs in people with dementia , 2007, Ageing Research Reviews.

[62]  Andrea Waling,et al.  ‘Don't fix what ain't broke’: evaluating the effectiveness of a Men's Shed in inner‐regional Australia , 2017, Health & social care in the community.

[63]  S. Evans,et al.  How iPads can support people with dementia living in care homes , 2015 .

[64]  Alison Bowes,et al.  RemoDem: Delivering support for people with dementia in remote areas , 2018, Dementia.

[65]  Fiona Kelly Abusive Interactions: Research in Locked Wards for People with Dementia , 2010, Social Policy and Society.

[66]  S. Dwyer,et al.  The Space Between: On Being an Insider-Outsider in Qualitative Research , 2009 .

[67]  A. J. Astell,et al.  Facilitating communication in dementia with multimedia technology , 2004, Brain and Language.

[68]  Jan Dewing,et al.  Personhood and dementia: revisiting Tom Kitwood's ideas. , 2008, International journal of older people nursing.

[69]  J. Kosteniuk,et al.  Adventures in rural and remote health services innovation: the role of researcher as collaborator. , 2014, Rural and remote health.

[70]  R. Bartlett Scanning the conceptual horizons of citizenship , 2016, Dementia.

[71]  L. Clare Managing threats to self: awareness in early stage Alzheimer's disease. , 2003, Social science & medicine.

[72]  B. Frank,et al.  Health, Illness, Men and Masculinities (HIMM): a theoretical framework for understanding men and their health , 2011 .

[73]  Bob Woods,et al.  The needs of people with dementia living at home from user, caregiver and professional perspectives: a cross-sectional survey , 2013, BMC Health Services Research.

[74]  David J. Martin,et al.  The (mis)Representation of Rural Deprivation , 2000 .

[75]  E. Moniz-Cook,et al.  Living positively with dementia: a systematic review and synthesis of the qualitative literature , 2016, Aging & mental health.

[76]  J. Manthorpe Dementia studies: a social science perspective , 2010, International Journal of Integrated Care.

[77]  K. Lyman,et al.  Bringing the social back in: a critique of the biomedicalization of dementia. , 1989, The Gerontologist.

[78]  Österholm Jh,et al.  Citizenship as practice: Handling communication problems in encounters between persons with dementia and social workers , 2016, Dementia.

[79]  B. Schneider Participatory Action Research, Mental Health Service User Research, and the Hearing (our) Voices Projects , 2012 .

[80]  P. Cloke,et al.  Deprivation and Lifestyles in Rural Wales II: Rurality and the Cultural Dimension , 1992 .

[81]  Louise McCabe,et al.  Supporting safe walking for people with dementia: User participation in the development of new technology , 2013 .

[82]  K. Mäkelä,et al.  Safety and monitoring technologies for the homes of people with dementia , 2010 .

[83]  Rhea Young,et al.  The impact of community-based arts and health interventions on cognition in people with dementia: a systematic literature review , 2016, Aging & mental health.

[84]  D. Morgan,et al.  Maintaining health and wellness in the face of dementia: an exploratory analysis of individuals attending a rural and remote memory clinic. , 2014, Rural and remote health.

[85]  Timothy D. Lee,et al.  Exploring Spared Capacity in Persons With Dementia: What WiiTM Can Learn , 2010 .

[86]  A. Boonen,et al.  The international classification for functioning, disability and health , 2007, Clinical Rheumatology.

[87]  Matthew Thomas,et al.  Social inclusion and social citizenship: towards a truly inclusive society , 2009 .

[88]  P. Kahlbaugh,et al.  Effects of Playing Wii on Well-Being in the Elderly: Physical Activity, Loneliness, and Mood , 2011 .

[89]  Nicolas Farina,et al.  The effect of exercise interventions on cognitive outcome in Alzheimer's disease: a systematic review , 2013, International Psychogeriatrics.

[90]  A. Innes,et al.  Does Digital Gaming Enable Healthy Aging for Community-Dwelling People With Dementia? , 2016, Games Cult..

[91]  M. Crossley,et al.  Availability and Primary Health Care Orientation of Dementia-Related Services in Rural Saskatchewan, Canada , 2015, Home health care services quarterly.

[92]  Kim Rutter,et al.  Dementia 2013: The hidden voice of loneliness , 2013 .

[93]  A. Innes,et al.  Dichotomising dementia: is there another way? , 2017, Sociology of health & illness.

[94]  Judi Walker,et al.  Insights and principles for supporting social engagement in rural older people , 2012, Ageing and Society.

[95]  K. Healy Participatory action research and social work , 2001 .

[96]  M. Lykes,et al.  7 Towards Transformational Liberation: Participatory and Action Research and Praxis , 2008 .

[97]  E. Wiersma,et al.  Creating space for citizenship: The impact of group structure on validating the voices of people with dementia , 2016, Dementia.

[98]  A. Wharton,et al.  The Sociology of Gender: An Introduction to Theory and Research , 2004 .

[99]  F. Lewis,et al.  Dementia friendly, dementia capable, and dementia positive: concepts to prepare for the future. , 2015, The Gerontologist.

[100]  S. Koch,et al.  Introducing the bio-psycho-social-physical model of dementia through a collective case study design. , 2013, Journal of clinical nursing.

[101]  Fiona Kelly Bodywork in dementia care: recognising the commonalities of selfhood to facilitate respectful care in institutional settings , 2013, Ageing and Society.

[102]  A. Taket,et al.  Scoping social inclusion practice , 2014 .

[103]  R. Cordier,et al.  Community-based Men's Sheds: promoting male health, wellbeing and social inclusion in an international context. , 2014, Health promotion international.

[104]  H. Silver,et al.  Social exclusion and social capital: A comparison and critique , 2008 .

[105]  S. Sabat,et al.  The Experience of Alzheimer's Disease: Life Through a Tangled Veil , 2001 .

[106]  P. Whitehouse,et al.  The end of Alzheimer's disease--from biochemical pharmacology to ecopsychosociology: a personal perspective. , 2014, Biochemical pharmacology.

[107]  C. Ward-Griffin,et al.  “Her World Gets Smaller and Smaller With Nothing To Look Forward To” Dimensions of Social Inclusion and Exclusion Among Rural Dementia Care Networks , 2011 .

[108]  Jenenne A. Geske,et al.  Wii-Fit for Improving Gait and Balance in an Assisted Living Facility: A Pilot Study , 2012, Journal of aging research.

[109]  Andrew Hunter,et al.  Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies , 2015, Dementia.

[110]  G. Parker,et al.  Dementia : through the eyes of women , 2015 .

[111]  Jemma L. Regan Ethnic minority, young onset, rare dementia type, depression: A case study of a Muslim male accessing UK dementia health and social care services , 2016, Dementia.

[112]  Paul McCrory,et al.  Validity and reliability of the Nintendo Wii Balance Board for assessment of standing balance. , 2010, Gait & posture.

[113]  Andrew Kirk,et al.  Evolution of a Community-Based Participatory Approach in a Rural and Remote Dementia Care Research Program , 2014, Progress in community health partnerships : research, education, and action.

[114]  B. Stamm Rural behavioral health care: An interdisciplinary guide. , 2003 .

[115]  K. Croucher,et al.  The Impact of Demographic Change on the Infrastructure for Housing, Health and Social Care in the North of England , 2013 .

[116]  Martin Orrell,et al.  Using a biopsychosocial model of dementia as a tool to guide clinical practice , 2010, International Psychogeriatrics.

[117]  Bob Woods,et al.  Nonpharmacological Therapies in Alzheimer’s Disease: A Systematic Review of Efficacy , 2010, Dementia and Geriatric Cognitive Disorders.

[118]  L. Burgio,et al.  "It Was Very Rewarding for Me …": Senior Volunteers' Experiences With Implementing a Reminiscence and Creative Activity Intervention. , 2016, The Gerontologist.

[119]  Stephen Kemmis,et al.  Action research as a practice‐based practice , 2009 .

[120]  Stacey George,et al.  Comparison of iPad applications with traditional activities using person-centred care approach: Impact on well-being for persons with dementia , 2014, Dementia.

[121]  P. Saunders Social inclusion, exclusion, and well‑being in Australia: Meaning and measurement , 2015 .

[122]  Elmar Gräßel,et al.  Exergames and Their Acceptance Among Nursing Home Residents , 2012 .

[123]  DavidJ. O'Brien,et al.  Subjective Quality of Life , 2017 .

[124]  A. Spector,et al.  Guidelines for adapting cognitive stimulation therapy to other cultures , 2014, Clinical interventions in aging.

[125]  K. Bandeen-Roche,et al.  Appendix 1 , 2019, European Journal of Human Genetics.

[126]  M. Marmot,et al.  WHO European review of social determinants of health and the health divide , 2012, The Lancet.

[127]  Bob Woods,et al.  Psychosocial interventions in dementia care research: The INTERDEM manifesto , 2011, Aging & mental health.

[128]  Martin Orrell,et al.  What is meaningful activity for people with dementia living in care homes? A comparison of the views of older people with dementia, staff and family carers , 2008, Aging & mental health.

[129]  D. Upton,et al.  Evaluation of the Impact of Touch Screen Technology on People with Dementia and their Carers Within Care Home Settings. , 2011 .

[130]  United Nations Educational, Scientific and Cultural Organisation , 1946, Nature.

[131]  D. Jolley,et al.  Dementia: stigma and its effects , 2012 .

[132]  T. Dening,et al.  Football and dementia: A qualitative investigation of a community based sports group for men with early onset dementia , 2016, Dementia.

[133]  R. Connell,et al.  Hegemonic Masculinity , 2005 .

[134]  A. McDonald,et al.  Developing services for people with dementia , 2009 .

[135]  L. Robinson,et al.  “We’re all thrown in the same boat … ”: A qualitative analysis of peer support in dementia care , 2016, Dementia.

[136]  M. Griffin,et al.  The use of gaming technology for rehabilitation in people with multiple sclerosis , 2015, Multiple sclerosis.

[137]  E. Mordoch,et al.  Use of social commitment robots in the care of elderly people with dementia: a literature review. , 2013, Maturitas.

[138]  G. Demiris,et al.  Design Recommendations for Recreational Systems Involving Older Adults Living With Dementia , 2018, Journal of applied gerontology : the official journal of the Southern Gerontological Society.

[139]  Walter R. Boot,et al.  Video Games as a Means to Reduce Age-Related Cognitive Decline: Attitudes, Compliance, and Effectiveness , 2013, Front. Psychology.

[140]  Darla Fortune,et al.  Sharing the Journey: Exploring a Social Leisure Program for Persons with Dementia and Their Spouses , 2016 .

[141]  B. Elliott,et al.  Family decision-making for nursing home residents with dementia: rural-urban differences. , 2006, The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association.

[142]  M. Gilhooly,et al.  Dementia and the phenomenon of social death , 1997 .

[143]  R. Nay,et al.  Social participation and family carers of people living with dementia in Australia. , 2015, Health & social care in the community.

[144]  Charles Calderwood,et al.  Use it or lose it? Wii brain exercise practice and reading for domain knowledge. , 2010, Psychology and aging.

[145]  S. van Dyk The appraisal of difference: critical gerontology and the active-ageing-paradigm. , 2014, Journal of aging studies.

[146]  J. Cohen-Mansfield,et al.  The impact of personal characteristics on engagement in nursing home residents with dementia , 2009, International journal of geriatric psychiatry.

[147]  P. Snow,et al.  Influence of rurality on diagnosing dementia in Australian general practice. , 2012, Australian journal of primary health.

[148]  R. Montgomery,et al.  The Role of Cultural Factors on Clients' Attitudes Toward Caregiving, Perceptions of Service Delivery, and Service Utilization , 2002, Home health care services quarterly.

[149]  Alan Hartley,et al.  Effects of interactive physical-activity video-game training on physical and cognitive function in older adults. , 2012, Psychology and aging.

[150]  C. Stirling,et al.  Rural dementia carers: formal and informal sources of support , 2012, Ageing and Society.

[151]  Brendan McCormack,et al.  Person-centredness in gerontological nursing: an overview of the literature. , 2004, Journal of clinical nursing.

[152]  E. Thompson,et al.  Older Men’s Blueprint for “Being a Man” , 2016 .

[153]  J. Baumbusch,et al.  Walking in the neighbourhood: Performing social citizenship in dementia , 2016, Dementia.

[154]  M. Conner,et al.  How Does Masculinity Impact on Health? A Quantitative Study of Masculinity and Health Behavior in a Sample of UK Men and Women , 2015 .

[155]  S. Winlow,et al.  Rethinking Social Exclusion: The End of the Social? , 2013 .

[156]  W. Frisby,et al.  6 Continuing the Journey: Articulating Dimensions of Feminist Participatory Action Research (FPAR) , 2008 .

[157]  A. Innes,et al.  Who steers the ship? Rural family physicians’ views on collaborative care models for patients with dementia , 2013, Primary Health Care Research & Development.

[158]  R. Levant,et al.  The new psychology of men: Application to rural men. , 2003 .

[159]  G. Marston,et al.  The social inclusion policy agenda in Australia: A case of old wine, new bottles? , 2015 .

[160]  Helena Tobiasson,et al.  Game over or play it again and again. : participatory design approach within Special Housing , 2010 .

[161]  Pia Kontos,et al.  Embodiment and dementia: Exploring critical narratives of selfhood, surveillance, and dementia care , 2013, Dementia.

[162]  P. Kontos,et al.  Re-claiming citizenship through the arts , 2016, Dementia.

[163]  Sarah Lamb Permanent personhood or meaningful decline? Toward a critical anthropology of successful aging. , 2014, Journal of aging studies.

[164]  Key Informants and Community Members in Community-Based Participatory Research: One Is Not Like the Other , 2012 .

[165]  M. Vernooij-Dassen,et al.  Meaningful activities for people with dementia , 2007, Aging & mental health.

[166]  Witold Zatonski,et al.  The State of Men's Health in Europe , 2011 .

[167]  C. Wallace,et al.  Enhanced broadband access as a solution to the social and economic problems of the rural digital divide , 2013 .

[168]  Ruth Williams Involving people. , 2022, Nursing management.

[169]  Christopher M Callahan,et al.  Systematic review of non-pharmacologic interventions to delay functional decline in community-dwelling patients with dementia , 2013, Aging & mental health.

[170]  M. Downs,et al.  Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort , 2005 .

[171]  Sarah Campbell A Close Shave: masculinity and bodywork in dementia care , 2012 .

[172]  T. Cain The Sage handbook of action research: participative inquiry and practice , 2014 .

[173]  M. von Kutzleben,et al.  Care arrangements for community-dwelling people with dementia in Germany as perceived by informal carers - a cross-sectional pilot survey in a provincial-rural setting. , 2016, Health & social care in the community.

[174]  G. O’Sullivan Living with dementia in New Zealand: an action research study , 2012 .

[175]  A. Phinney,et al.  Shifting Patterns of Everyday Activity in Early Dementia , 2013, Journal of family nursing.

[176]  Housing Lin Dementia - supporting people with dementia and their carers in health & social care , 2006 .

[177]  L. D. de Witte,et al.  Community participation of people with an intellectual disability: a review of empirical findings. , 2009, Journal of intellectual disability research : JIDR.

[178]  A. Blom,et al.  The social exclusion of older people : evidence from the first wave of the English Longitudinal Study of Ageing (ELSA), Final Report , 2006 .

[179]  Joost van Hoof,et al.  Understanding the Nintendo Wii and Microsoft Kinect consoles in long-term care facilities , 2013 .

[180]  Christina C. Hicks,et al.  Co-production in scholarly activity: Valuing the social capital of lay people and volunteers , 2012 .

[181]  T. H. Marshall,et al.  Citizenship and Social Class , 1987 .

[182]  Susan M. Behuniak The living dead? The construction of people with Alzheimer's disease as zombies , 2010, Ageing and Society.

[183]  Jose Alvir,et al.  What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia , 2009, International journal of geriatric psychiatry.

[184]  D. Coghlan,et al.  Action research from the inside: issues and challenges in doing action research in your own hospital. , 2001, Journal of advanced nursing.

[185]  Arlene J. Astell,et al.  Technology and Fun for a Happy Old Age , 2013 .

[186]  L. Flicker Dementia Reconsidered: the Person Comes First , 1999, BMJ.

[187]  F. Baum,et al.  Participatory action research , 2006, Journal of Epidemiology and Community Health.

[188]  Jenny Basran,et al.  Improving access to dementia care: Development and evaluation of a rural and remote memory clinic , 2009, Aging & mental health.

[189]  T. Kitwood,et al.  The Dialectics of Dementia: With Particular Reference to Alzheimer's Disease , 1990, Ageing and Society.

[190]  J. Breitner The end of Alzheimer's disease? , 1999, International journal of geriatric psychiatry.

[191]  C. McAiney,et al.  Theoretical foundations guiding culture change: The work of the Partnerships in Dementia Care Alliance , 2016, Dementia.

[192]  S. Parveen,et al.  Psychosocial interventions for people with dementia: An overview and commentary on recent developments , 2019, Dementia.

[193]  B. Turner Outline of a Theory of Human Rights , 1993 .

[194]  E. Donaldson-Feilder,et al.  Returning Employees Back to Work: Developing a Measure for Supervisors to Support Return to Work (SSRW) , 2011, Journal of Occupational Rehabilitation.

[195]  D. Ames,et al.  Psychosocial treatments of psychological symptoms in dementia: a systematic review of reports meeting quality standards , 2009, International Psychogeriatrics.

[196]  A. Innes,et al.  Dementia care provision in rural Scotland: service users' and carers' experiences. , 2005, Health & social care in the community.

[197]  Claudine McCreadie The perspectives of people with dementia: Research methods and motivations , 2004 .

[198]  Arlene J. Astell,et al.  Identifying Existing, Accessible Touchscreen Games for People Living with Dementia , 2016, ICCHP.

[199]  Jason S. Spendelow,et al.  Coping and Adjustment in Informal Male Carers: A Systematic Review of Qualitative Studies , 2017 .

[200]  Beatrice Godwin,et al.  The ethical evaluation of assistive technology for practitioners: a checklist arising from a participatory study with people with dementia, family and professionals , 2012 .

[201]  Colin Robson,et al.  Real world research : a resource for users of social research methods in applied settings , 2011 .

[202]  Jacqueline Moodley,et al.  The importance of intersectionality in disability and gender studies , 2015 .

[203]  B. Tuckman DEVELOPMENTAL SEQUENCE IN SMALL GROUPS. , 1965, Psychological bulletin.

[204]  Costas Boletsis,et al.  Dementia Games: A Literature Review of Dementia-Related Serious Games , 2013, SGDA.

[205]  Yelena Perkhounkova,et al.  The effects of perceived stigma on quality of life outcomes in persons with early-stage dementia: Longitudinal findings: Part 2 , 2015, Dementia.

[206]  A. Innes,et al.  Dementia care in rural and remote settings: a systematic review of informal/family caregiving. , 2011, Maturitas.

[207]  T. Stickley,et al.  Concepts of social inclusion, exclusion and mental health: a review of the international literature. , 2013, Journal of psychiatric and mental health nursing.

[208]  Greta Rait,et al.  Comorbidity and dementia: a scoping review of the literature , 2014, BMC Medicine.

[209]  T. Kitwood,et al.  Towards a Theory of Dementia Care: The Interpersonal Process , 1993, Ageing and Society.

[210]  M. Rebecca Genoe,et al.  Leisure as resistance within the context of dementia , 2010 .

[211]  C. Alexander,et al.  General practitioners' management of patients with mental health conditions: the views of general practitioners working in rural north-western New South Wales. , 2008, The Australian journal of rural health.

[212]  P. Camic,et al.  Viewing and making art together: a multi-session art-gallery-based intervention for people with dementia and their carers , 2014, Aging & mental health.

[213]  J. Strong,et al.  Caring for Someone with Dementia in a Rural Town Part 2: Services , 1997 .

[214]  P. Camic,et al.  Does a ‘Singing Together Group’ improve the quality of life of people with a dementia and their carers? A pilot evaluation study , 2013, Dementia.

[215]  T. Brannelly Citizenship and people living with dementia: A case for the ethics of care , 2016, Dementia.

[216]  Joost van Hoof,et al.  Factors influencing acceptance of technology for aging in place: A systematic review , 2014, Int. J. Medical Informatics.

[217]  Tsipi Heart,et al.  Older adults: Are they ready to adopt health-related ICT? , 2013, Int. J. Medical Informatics.

[218]  A. Bevan Creating communicative spaces in an action research study. , 2013, Nurse researcher.

[219]  Jiska Cohen-Mansfield,et al.  Can persons with dementia be engaged with stimuli? , 2010, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[220]  A. Petersen,et al.  Aging men, masculinity and Alzheimer’s: Caretaking and caregiving in the new millennium , 2013 .

[221]  N. Keating,et al.  Age-Friendly Rural Communities: Conceptualizing ‘Best-Fit’* , 2013, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[222]  A. Innes,et al.  Service provision for people with dementia in rural Scotland , 2006 .

[223]  A. Lotherington,et al.  Gender, citizenship and dementia care: a scoping review of studies to inform policy and future research , 2018, Health & social care in the community.

[224]  A. Innes,et al.  Dementia care in rural and remote settings: a systematic review of formal or paid care. , 2011, Maturitas.

[225]  Yow-wu B. Wu,et al.  The feasibility of an intervention combining self-efficacy theory and Wii Fit exergames in assisted living residents: A pilot study. , 2013, Geriatric nursing.

[226]  S. Payne,et al.  Place and wellbeing: shedding light on activity interventions for older men , 2013, Ageing and Society.

[227]  M. R. Genoe,et al.  The role of leisure within the dementia context , 2014, Dementia.

[228]  Norman Alm,et al.  Engaging multimedia leisure for people with dementia , 2009 .

[229]  B. Tuckman,et al.  Stages of Small-Group Development Revisited , 1977 .

[230]  James A. Smith Beyond masculine stereotypes: moving men's health promotion forward in Australia. , 2007, Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals.

[231]  A. Spector,et al.  Cognitive stimulation to improve cognitive functioning in people with dementia. , 2012, The Cochrane database of systematic reviews.

[232]  D. Vogel,et al.  Men's Help Seeking: Examination of Differences Across Community Size, Education, and Income , 2013 .

[233]  Hilary Bradbury-Huang What is good action research? , 2010 .

[234]  B. Primack,et al.  Role of video games in improving health-related outcomes: a systematic review. , 2012, American journal of preventive medicine.

[235]  D. Charles,et al.  Gaming for Health: A Systematic Review of the Physical and Cognitive Effect of Interactive Computer Games (ICG) in Older Adults , 2012 .

[236]  Å. Slettebø,et al.  The importance of moral sensitivity when including persons with dementia in qualitative research , 2013, Nursing ethics.

[237]  Jerome Billeter,et al.  Building dementia-friendly communities: A priority for everyone , 2013 .

[238]  Karen J. Reynolds,et al.  Usability of Tablet Computers by People with Early-Stage Dementia , 2012, Gerontology.

[239]  A. Milne The ‘D’ word: Reflections on the relationship between stigma, discrimination and dementia , 2010, Journal of mental health.

[240]  M. R. Genoe,et al.  Picturing Leisure: Using Photovoice to Understand the Experience of Leisure and Dementia , 2013 .

[241]  Gail A. Mountain,et al.  New forms of information and communication technology (ICT) and the potential to facilitate social and leisure activity for people living with dementia , 2012, Int. J. Comput. Heal..

[242]  Geraldine Leader,et al.  Defining social inclusion of people with intellectual and developmental disabilities: an ecological model of social networks and community participation. , 2015, Research in developmental disabilities.

[243]  Rebecca Genoe,et al.  Moving beyond patient and client approaches: Mobilizing ‘authentic partnerships’ in dementia care, support and services , 2012 .

[244]  K. Bennett,et al.  Measurement of masculinity ideologies: A (critical) review. , 2015 .

[245]  R. Dröes,et al.  Participation of end users in the design of assistive technology for people with mild to severe cognitive problems; the European Rosetta project , 2014, International Psychogeriatrics.

[246]  Jerome F. Singleton,et al.  Utilizing therapeutic recreation to empower persons with Alzheimer's in a day center. , 2011 .

[247]  Catherine Hagan Hennessy,et al.  Countryside connections : older people, community and place in rural Britain , 2014 .

[248]  Hui-Xin Wang,et al.  Late life leisure activities and risk of cognitive decline. , 2013, The journals of gerontology. Series A, Biological sciences and medical sciences.

[249]  H. Stuart,et al.  Social inclusion and mental health , 2010, Current opinion in psychiatry.

[250]  June Lennie,et al.  An Evaluation Capacity-Building Process for Sustainable Community IT Initiatives , 2005 .

[251]  Bruno Vellas,et al.  Recommendations for the use of Serious Games in people with Alzheimer's Disease, related disorders and frailty , 2014, Front. Aging Neurosci..

[252]  F. Cowdell,et al.  Engaging older people with dementia in research: myth or possibility. , 2008, International journal of older people nursing.

[253]  A. Capstick Travels with a Flipcam: bringing the community to people with dementia in a day care setting through visual technology , 2011 .

[254]  L. Clare We'll fight it as long as we can: Coping with the onset of Alzheimer's disease , 2002, Aging & mental health.

[255]  P. Topo Technology Studies to Meet the Needs of People With Dementia and Their Caregivers , 2009 .

[256]  P. Higgs,et al.  Social death and the moral identity of the fourth age , 2015 .

[257]  Garry Potter,et al.  Power and Knowledge , 2010 .

[258]  A. Innes,et al.  Human rights, citizenship and dementia care nursing. , 2013, International journal of older people nursing.

[259]  The Social Dimension of the Europe 2020 Strategy Summary of the Report by the Social Protection , .

[260]  S. Allen Broadening the dementia debate: Towards social citizenship , 2010 .

[261]  E. Wiersma,et al.  Masculinity, ageing bodies, and leisure , 2011 .

[262]  C. Bailey,et al.  Narrative citizenship, resilience and inclusion with dementia: On the inside or on the outside of physical and social places , 2016, Dementia.

[263]  R. Bartlett ‘You can get in alright but you can't get out’: Social exclusion and men with dementia in nursing homes: insights from a single case study , 2007 .

[264]  E. Wiersma,et al.  From Beginning to End: Perspectives of the Dementia Journey in Northern Ontario* , 2015, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[265]  Sarah A. Hall The Social Inclusion of People with Disabilities: A Qualitative Meta-Analysis. , 2009 .

[266]  S. Ng,et al.  Social inclusion in an ageing world: introduction to the special issue , 2012, Ageing and Society.

[267]  L. Boise,et al.  The Rural Older Adult Memory (ROAM) Study: A Practice-based Intervention to Improve Dementia Screening and Diagnosis , 2010, The Journal of the American Board of Family Medicine.

[268]  Caroline C. Wang,et al.  Photovoice as a Participatory Health Promotion Strategy , 1998 .

[269]  J. Billeter 'Caring for our future: reforming care and support' White Paper , 2012 .

[270]  T. Brannelly Sustaining citizenship: People with dementia and the phenomenon of social death , 2011, Nursing ethics.

[271]  Cyprian F. Fisiy,et al.  Inclusion matters : the foundation for shared prosperity , 2013 .

[272]  K. Francis Health and Health Practice in Rural Australia: Where are We, Where to From Here? , 2005 .

[273]  M. Sutton,et al.  Is the health of people living in rural areas different from those in cities? Evidence from routine data linked with the Scottish Health Survey , 2012, BMC Health Services Research.

[274]  Meredith Minkler,et al.  Participatory action research with older adults: key principles in practice. , 2009, The Gerontologist.

[275]  L. Bangerter,et al.  Do Family Proxies Get It Right? Concordance in Reports of Nursing Home Residents’ Everyday Preferences , 2017, Journal of applied gerontology : the official journal of the Southern Gerontological Society.

[276]  Frank R. Rusch,et al.  Effects of an Interactive Video Game (Nintendo Wii™) on Older Women with Mild Cognitive Impairment , 2010 .

[277]  Michelle D. DiLauro,et al.  Spousal caregivers and persons with dementia: Increasing participation in shared leisure activities among hospital-based dementia support program participants , 2017, Dementia.

[278]  Marike Hettinga,et al.  Involving people with dementia in the development of supportive IT applications: A systematic review , 2013, Ageing Research Reviews.

[279]  A. White The state of men's health in Europe: how do we compare in the UK? , 2011 .

[280]  S. Neely-Barnes,et al.  Inclusion for People with Developmental Disabilities: Measuring an Elusive Construct , 2014, Journal of social work in disability & rehabilitation.

[281]  A. Afghani,et al.  Subjective quality of life of those 65 years and older experiencing dementia , 2016, Dementia.

[282]  M. Carlsson,et al.  Staff members' perceptions of a ICT support package in dementia care during the process of implementation. , 2009, Journal of nursing management.

[283]  Howard S. Becker,et al.  Tricks of the Trade: How to Think about Your Research While You're Doing It , 1998 .

[284]  S. Nyman,et al.  Meaningful activities for improving the wellbeing of people with dementia: beyond mere pleasure to meeting fundamental psychological needs , 2016, Perspectives in public health.

[285]  N. Pistrang,et al.  Processes and experiences of mutual support in professionally-led support groups for people with early-stage dementia , 2005 .

[286]  R. Cordier,et al.  A narrative review of Men's Sheds literature: reducing social isolation and promoting men's health and well-being. , 2013, Health & social care in the community.

[287]  Wendy Hulko,et al.  From ‘not a big deal’ to ‘hellish’: Experiences of older people with dementia , 2009 .

[288]  R. Levitas The Just’s Umbrella: Austerity and the Big Society in Coalition policy and beyond , 2012 .

[289]  M. Orrell,et al.  Social support group interventions in people with dementia and mild cognitive impairment: a systematic review of the literature , 2015, International journal of geriatric psychiatry.

[290]  P. Enderby,et al.  Using the Senses Framework to achieve relationship-centred dementia care services , 2008 .

[291]  J. Kuypers,et al.  Men, Feminism, and Men’s Contradictory Experiences of Power , 2002 .

[292]  Older Men's Leisure Experiences Across Their Lifespan , 2006 .

[293]  J. Farmer,et al.  Social capital, rural nursing and rural nursing theory. , 2006, Nursing inquiry.

[294]  K. Doma,et al.  Men's Sheds function and philosophy: towards a framework for future research and men's health promotion. , 2015, Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals.

[295]  L. McCabe,et al.  Supporting User Participation in Local Policy Development: The Fife Dementia Strategy , 2012, Social Policy and Society.

[296]  Judith E. Sturges,et al.  Comparing Telephone and Face-to-Face Qualitative Interviewing: a Research Note , 2004 .

[297]  J. Gubrium,et al.  Measurement and the interpretation of burden in the Alzheimer's disease experience. , 1987, Journal of aging studies.

[298]  J. Zinn Risk, Social Inclusion and the Life Course – Review of Developments in Policy and Research , 2013, Social Policy and Society.

[299]  Jill Manthorpe,et al.  Developing theoretical understandings of dementia and their application to dementia care policy in the UK , 2013, Dementia.

[300]  Ann Kolanowski,et al.  A Randomized Clinical Trial of Theory‐Based Activities for the Behavioral Symptoms of Dementia in Nursing Home Residents , 2011, Journal of the American Geriatrics Society.

[301]  G. Wenger,et al.  The experience of caring for older people with dementia in a rural area: Using services , 2002, Aging & mental health.

[302]  David Jolley Hearing the Voice of People with Dementia: Opportunities and Obstacles By Malcolm Goldsmith. London: Jessica Kingsley. 1996. 182 pp. £12.95 (pb) , 1997 .

[303]  C. Dowrick,et al.  Older men and social activity: a scoping review of Men's Sheds and other gendered interventions , 2015, Ageing and Society.

[304]  Roy I. Brown,et al.  Quality of life and social inclusion across the lifespan: challenges and recommendations , 2015 .

[305]  A. Phinney,et al.  Leisure Connections: Benefits and Challenges of Participating in a Social Recreation Group for People With Early Dementia , 2011 .

[306]  D. Brooker What is Person-Centred Care in Dementia? , 2003 .

[307]  J. Morris,et al.  CLINICIAN BELIEFS AND PRACTICES IN DEMENTIA CARE: IMPLICATIONS FOR HEALTH EDUCATORS , 2004 .

[308]  A. Innes,et al.  A Review of Diagnostic Process and Postdiagnostic Support for People With Dementia in Rural Areas , 2011, Journal of primary care & community health.

[309]  Debbie Tolson,et al.  Football reminiscence for men with dementia: lessons from a realistic evaluation. , 2012, Nursing inquiry.

[310]  A. Innes,et al.  Dementia diagnosis and post-diagnostic support in Scottish rural communities: Experiences of people with dementia and their families , 2014, Dementia.

[311]  J. Dewing Process Consent and Research with Older Persons Living with Dementia , 2008 .

[312]  E. Wiersma Using Photovoice with people with early-stage Alzheimer’s disease: A discussion of methodology , 2011 .

[313]  Steven R. Sabat Excess disability and malignant social psychology: A case study of Alzheimer's disease , 1994 .

[314]  J. Ponterotto Brief Note on the Origins, Evolution, and Meaning of the Qualitative Research Concept "Thick Description" , 2006 .

[315]  Y. Arai,et al.  Undue concern for others' opinions deters caregivers of impaired elderly from using public services in rural Japan , 2000, International journal of geriatric psychiatry.

[316]  P. Lundy,et al.  Participation,Truth and Partiality , 2006 .

[317]  Shanthi Johnson,et al.  Healthy Aging in Place: Perceptions of Rural Older Adults , 2014 .