Social support modifies perceived stigmatization in the first years of mental illness: a longitudinal approach.

Perceived stigmatization of mentally ill people impairs their social relations and well-being. While perceived stigmatization theoretically and empirically has been accounted for as an independent and unalterable factor, this longitudinal study focuses on reciprocal effects between stigmatization and social ties. The duration of mental illness is included as a grouping variable to extend the longitudinal perspective. A sample of severely mentally ill persons (n=165) in two psychiatric hospitals in Zurich took part in a structured interview during their admission and 1 year later. Cross-lagged path models were designed to test the interrelations of (1) perceived stigmatization, (2) a defensive stigma coping orientation, (3) concrete stigmatizing experiences, and either (4) social network, or (5) perceived social support as dependent variables. Contrary to previous findings, neither of the three components of stigmatization tested has any influence on social network or support. Social support, though, strongly predicts perceived stigmatization 1 year later, but only in the group with a more recent onset of illness. This finding suggests that the perception of stigma is subject to modification in the course of new life circumstances and underlines the importance of activating social resources in the first years of mental illness. Duration of illness should be included as a central variable in future research, as it influences the nature of the relation between stigmatization and social ties.

[1]  P. Mortensen,et al.  Marital and labor market status in the long run in schizophrenia. , 2004, Archives of general psychiatry.

[2]  Bruce G. Link,et al.  Stigma as a barrier to recovery: Adverse effects of perceived stigma on social adaptation of persons diagnosed with bipolar affective disorder. , 2001, Psychiatric services.

[3]  Khan Fa,et al.  The Net is many people's only chance of access , 2001 .

[4]  W. Iacono,et al.  The role of social relationships in the course of first-episode schizophrenia and affective psychosis. , 1989, The American journal of psychiatry.

[5]  W. Rössler,et al.  Does the place of treatment influence the quality of life of schizophrenics? , 1999, Acta psychiatrica Scandinavica.

[6]  S. Rosenfield,et al.  Negative and Supportive Social Interactions and Quality of Life Among Persons Diagnosed with Severe Mental Illness , 2001, Community Mental Health Journal.

[7]  J. Coverdale,et al.  Family Interventions for Schizophrenia: A Review of Long-term Benefits of International Studies , 1999 .

[8]  J. Leff,et al.  The Influence of Family and Social Factors on the Course of Psychiatric Illness , 1976, British Journal of Psychiatry.

[9]  M. Angermeyer,et al.  The stigma of mental illness: effects of labelling on public attitudes towards people with mental disorder , 2003, Acta psychiatrica Scandinavica.

[10]  Golan Shahar,et al.  Depressive symptoms erode self-esteem in severe mental illness: a three-wave, cross-lagged study. , 2003, Journal of consulting and clinical psychology.

[11]  Bruce G. Link,et al.  A modified labeling theory approach to mental disorders : an empirical assessment , 1989 .

[12]  W. Rössler,et al.  Erhöhte Stigmatisierung durch vergangenen Klinikaufenthalt? Resultate einer Befragung der schweizerischen Bevölkerung , 2003 .

[13]  G H Guyatt,et al.  Publication bias: a brief review for clinicians. , 2000, Mayo Clinic proceedings.

[14]  B. Tabachnick,et al.  Using Multivariate Statistics , 1983 .

[15]  M. Browne,et al.  Alternative Ways of Assessing Model Fit , 1992 .

[16]  L. George,et al.  Social Support and the Outcome of Major Depression , 1989, British Journal of Psychiatry.

[17]  F. Dickerson,et al.  Experiences of stigma among outpatients with schizophrenia. , 2002, Schizophrenia bulletin.

[18]  R. Wentz Visibility of research: FUTON bias , 2002, The Lancet.

[19]  H. Stuart,et al.  Community Attitudes toward People with Schizophrenia , 2001, Canadian journal of psychiatry. Revue canadienne de psychiatrie.

[20]  W. Rössler,et al.  Lay recommendations on how to treat mental disorders , 2001, Social Psychiatry and Psychiatric Epidemiology.

[21]  Herbert Matschinger,et al.  Public beliefs about schizophrenia and depression: similarities and differences , 2003, Social Psychiatry and Psychiatric Epidemiology.

[22]  B. Pescosolido,et al.  The view from two worlds: The convergence of social network reports between mental health clients and their ties. , 2004, Social science & medicine.

[23]  M. Angermeyer,et al.  Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. , 2003, Social science & medicine.

[24]  Bruce G. Link,et al.  The effectiveness of stigma coping orientations: can negative consequences of mental illness labeling be avoided? , 1991, Journal of health and social behavior.

[25]  O. Wahl Mental health consumers' experience of stigma. , 1999, Schizophrenia bulletin.

[26]  P. V. van Diest,et al.  Impactitis: new cures for an old disease. , 2001, Journal of clinical pathology.

[27]  E. Garfield Journal impact factor: a brief review. , 1999, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[28]  Bruce G. Link,et al.  The growing belief that people with mental illnesses are violent: the role of the dangerousness criterion for civil commitment , 1998, Social Psychiatry and Psychiatric Epidemiology.

[29]  W. Rössler,et al.  Perceived Stigmatization of Mentally Ill People and Its Consequences for the Quality of Life in a Swiss Population , 2004, The Journal of nervous and mental disease.

[30]  S. Rosenfield Labeling mental illness : The effects of received services and perceived stigma on life satisfaction , 1997 .

[31]  V Pistotti,et al.  Impact factor and electronic versions of biomedical scientific journals. , 2001, Haematologica.

[32]  T. Scheff,et al.  Being Mentally Ill: A Sociological Theory. , 1967 .

[33]  R. Liberman,et al.  Integrating treatment with rehabilitation for persons with major mental illnesses. , 2003, Psychiatric services.

[34]  P. Hayward,et al.  Stigma and mental illness: A review and critique , 1997 .

[35]  W. Finlay,et al.  Is low self-esteem an inevitable consequence of stigma? An example from women with chronic mental health problems. , 2002, Social science & medicine.

[36]  J. P. Winter,et al.  Social support, psychiatric symptoms, and housing: A causal analysis , 2002 .

[37]  D. Mechanic,et al.  Effects of illness attribution and depression on the quality of life among persons with serious mental illness. , 1994, Social science & medicine.

[38]  J. Gowrishankar,et al.  Sprucing up one's impact factor , 1999, Nature.

[39]  L. Blankertz Cognitive components of self esteem for individuals with severe mental illness. , 2001, The American journal of orthopsychiatry.

[40]  W. Rössler,et al.  Public attitude to compulsory admission of mentally ill people , 2002, Acta psychiatrica Scandinavica.

[41]  J. Neuberger,et al.  Impact factors: uses and abuses , 2002, European journal of gastroenterology & hepatology.

[42]  E L Struening,et al.  Stigma as a barrier to recovery: The consequences of stigma for the self-esteem of people with mental illnesses. , 2001, Psychiatric services.

[43]  Carol Tenopir,et al.  Lessons for the future of journals , 2001, Nature.

[44]  T. Brugha Social Support and Psychiatric Disorder: Social support and psychiatric disorder: overview of evidence , 1995 .

[45]  P W Corrigan,et al.  Three strategies for changing attributions about severe mental illness. , 2001, Schizophrenia bulletin.

[46]  Bruce G. Link Understanding labeling effects in the area of mental disorders : An assessment of the effects of expectations of rejection , 1987 .

[47]  M G Gelder,et al.  Stigmatisation of people with mental illnesses. , 2000, The British journal of psychiatry : the journal of mental science.

[48]  James Frank,et al.  The Social Rejection of Former Mental Patients: Understanding Why Labels Matter , 1987, American Journal of Sociology.

[49]  J. S. Long,et al.  Testing Structural Equation Models , 1993 .

[50]  K. Mueser,et al.  Psychosocial treatment approaches for schizophrenia , 2000 .

[51]  Richard Smith,et al.  Four futures for scientific and medical publishing , 2002, BMJ : British Medical Journal.

[52]  Leonard I. Pearlin,et al.  Stress and mental health: A conceptual overview. , 1999 .

[53]  D. Bhugra,et al.  Attitudes towards mental illness , 1989 .

[54]  W. Gaebel,et al.  Zur sozialen Situation schizophrener Patienten , 1998, Der Nervenarzt.

[55]  Bruce G. Link,et al.  Stigma Perceived by Patients Attending Modern Treatment Settings: Some Unanticipated Effects of Community Psychiatry Reforms , 1987, Journal of Nervous and Mental Disease.

[56]  D. Hell,et al.  Occupation, social support and quality of life in persons with schizophrenic or affective disorders , 2004, Social Psychiatry and Psychiatric Epidemiology.

[57]  W. Gaebel,et al.  Public attitudes towards people with mental illness in six German cities , 2002, European Archives of Psychiatry and Clinical Neuroscience.

[58]  A. Bengtsson-tops Mastery in patients with schizophrenia living in the community: relationship to sociodemographic and clinical characteristics, needs for care and support, and social network. , 2004, Journal of psychiatric and mental health nursing.

[59]  G. Thornicroft,et al.  Links between social networks and quality of life: an epidemiologically representative study of psychotic patients in South London , 1998, Social Psychiatry and Psychiatric Epidemiology.

[60]  L. Davidson,et al.  Chronicity Reconsidered: Improving Person-Environment Fit Through a Consumer-Run Service , 2001, Community Mental Health Journal.

[61]  Anthony F Jorm,et al.  Mental health literacy , 2000, British Journal of Psychiatry.

[62]  G. Nelson,et al.  Social networks, social support, personal empowerment, and the adaptation of psychiatric consumers/survivors: path analytic models. , 1996, Social science & medicine.

[63]  C. Bell DSM-IV: Diagnostic and Statistical Manual of Mental Disorders , 1994 .

[64]  T. Brugha,et al.  Social support and psychiatric disorder : research findings and guidelines for clinical practice , 1995 .

[65]  Bruce G. Link,et al.  Adverse effects of perceived stigma on social adaptation of persons diagnosed with bipolar affective disorder , 2001 .

[66]  P. Seglen,et al.  Education and debate , 1999, The Ethics of Public Health.

[67]  Michael King,et al.  Stigma: the feelings and experiences of 46 people with mental illness , 2004, British Journal of Psychiatry.

[68]  M. Scherer,et al.  How psychiatric patients perceive the public's stereotype of mental illness , 2003, Social Psychiatry and Psychiatric Epidemiology.

[69]  J. Hawley The JCI’s commitment to excellence — and free access , 2003 .

[70]  Peter Byrne,et al.  Stigma of mental illness and ways of diminishing it , 2000 .

[71]  S. Romans,et al.  The social networks of bipolar affective disorder patients. , 1992, Journal of affective disorders.

[72]  C. Brewin,et al.  The relationship of social network deficits with deficits in social functioning in long-term psychiatric disorders , 1993, Social Psychiatry and Psychiatric Epidemiology.

[73]  M. Sherman The Support and Family Education (SAFE) program: mental health facts for families. , 2003, Psychiatric services.

[74]  H. Möller,et al.  Psychopathological and social outcome in schizophrenia versus affective/schizoaffective psychoses and prediction of poor outcome in schizophrenia Results from a 5‐8 year follow‐up , 1988, Acta psychiatrica Scandinavica.

[75]  G Walter,et al.  The Impact Factor: Time for Change , 2001, The Australian and New Zealand journal of psychiatry.

[76]  Jayawant N Mandrekar,et al.  Impact of FUTON and NAA bias on visibility of research. , 2004, Mayo Clinic proceedings.

[77]  P. Thoits Multiple identities and psychological well-being: a reformulation and test of the social isolation hypothesis. , 1983, American sociological review.

[78]  W. Rössler,et al.  Factors Influencing Social Distance Toward People with Mental Illness , 2004, Community Mental Health Journal.

[79]  Carol Tenopir,et al.  Towards Electronic Journals: Realities for Scientists, Librarians, and Publishers,,,, , 2000 .

[80]  Bruce G. Link,et al.  On stigma and its consequences: evidence from a longitudinal study of men with dual diagnoses of mental illness and substance abuse. , 1997, Journal of health and social behavior.

[81]  Andrew P Kurmis,et al.  Understanding the limitations of the journal impact factor. , 2003, The Journal of bone and joint surgery. American volume.

[82]  R. Lazarus,et al.  The health-related functions of social support , 1981, Journal of Behavioral Medicine.

[83]  F. Markowitz,et al.  Modeling processes in recovery from mental illness: relationships between symptoms, life satisfaction, and self-concept. , 2001, Journal of health and social behavior.

[84]  Barbara Aronson,et al.  Improving online access to medical information for low-income countries. , 2004, The New England journal of medicine.