Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children’s Hospital Gene Partnership Informed Cohort Oversight Board
暂无分享,去创建一个
Robert C. Green | Steven Joffe | Patrick L. Taylor | Ingrid A. Holm | Susan Kornetsky | R. Green | A. McGuire | E. Juengst | I. Holm | S. Brewster | S. Joffe | Susan Kornetsky | Stephanie J. Brewster | S. Savage | Amy McGuire | Sarah K. Savage | Eric Juengst | Patrick Taylor
[1] Marc S. Williams,et al. ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing , 2013, Genetics in Medicine.
[2] H. Saal,et al. Ethical and Policy Issues in Genetic Testing and Screening of Children , 2013, Pediatrics.
[3] Susan M. Wolf,et al. The past, present, and future of the debate over return of research results and incidental findings , 2012, Genetics in Medicine.
[4] Patrick L. Taylor,et al. The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository , 2012, Genetics in Medicine.
[5] Robert C. Green,et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets , 2012, Genetics in Medicine.
[6] Patrick L. Taylor,et al. The Informed Cohort Oversight Board: From Values to Architecture. , 2012, Minnesota journal of law, science & technology.
[7] George Church,et al. Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group , 2010, Circulation. Cardiovascular genetics.
[8] Patrick L. Taylor,et al. Multidimensional Results Reporting to Participants in Genomic Studies: Getting It Right , 2010, Science Translational Medicine.
[9] M. Khoury,et al. Evaluation of the validity and utility of genetic testing for rare diseases. , 2010, Advances in experimental medicine and biology.
[10] Richard R Sharp,et al. Evaluating the utility of personal genomic information , 2009, Genetics in Medicine.
[11] M. Khoury,et al. Personal utility and genomic information: Look before you leap , 2009, Genetics in Medicine.
[12] J. Witte,et al. The Scientific Foundation for Personal Genomics: Recommendations from a National Institutes of Health–Centers for Disease Control and Prevention Multidisciplinary Workshop , 2009, Genetics in Medicine.
[13] Gail Geller,et al. Public Expectations for Return of Results from Large-Cohort Genetic Research , 2008, The American journal of bioethics : AJOB.
[14] Kathy Hudson,et al. Subjects matter: a survey of public opinions about a large genetic cohort study , 2008, Genetics in Medicine.
[15] Kenneth D. Mandl,et al. Reestablishing the Researcher-Patient Compact , 2007, Science.
[16] Isaac S Kohane,et al. Medicine. Reestablishing the researcher-patient compact. , 2007, Science.
[17] B. Wilfond,et al. Disclosing Individual Genetic Results to Research Participants , 2006, The American journal of bioethics : AJOB.
[18] M. Rothstein. Tiered Disclosure Options Promote the Autonomy and Well-Being of Research Subjects , 2006, The American journal of bioethics : AJOB.
[19] H. Richardson,et al. The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects. , 2004, The Hastings Center report.
[20] B. Wilfond,et al. Ethical issues with genetic testing in pediatrics. , 2013, Pediatrics.
[21] P. Reilly. When should an investigator share raw data with the subjects? , 1980, IRB.