Disability and narrative medicine: Challenges and opportunities.

Despite decades of international entreaties for improvement, education about and provision of healthcare for people with disabilities remains harmfully inferior to that of the non-disabled population. Many obstacles confound efforts to ameliorate this inequity, perhaps the most pernicious of which is negative bias on the part of providers. Narrative medicine offers a means to address healthcare attitudes towards people with disabilities, in particular negative attitudes based on 'ableism'. Through absorbing, writing, and sharing of diverse perspectives, narrative medicine kindles imagination and empathy, promoting self-reflection. This approach enriches the students' capacity to absorb what their patients are trying to say, and to appreciate, respect, and hopefully meet the healthcare needs of people with disability.

[1]  Trisha Kaundinya,et al.  Dismantle Ableism, Accept Disability: Making the Case for Anti-Ableism in Medical Education , 2022, Journal of medical education and curricular development.

[2]  Anne T. Vo,et al.  A Value-Added Health Systems Science Intervention Based on My Life, My Story for Patients Living with HIV and Medical Students: Translating Narrative Medicine from Classroom to Clinic , 2021, Journal of Medical Humanities.

[3]  C. A. Jones,et al.  The use of digital storytelling of patients’ stories as an approach to translating knowledge: a scoping review , 2021, Research Involvement and Engagement.

[4]  M. Gerrity,et al.  Tolerance for Uncertainty and Professional Development: a Normative Analysis , 2021, Journal of General Internal Medicine.

[5]  Sowmya R. Rao,et al.  Physicians' Perceptions Of People With Disability And Their Health Care. , 2021, Health affairs.

[6]  V. Bradley How COVID-19 May Change the World of Services to People With Intellectual and Developmental Disabilities. , 2020, Intellectual and developmental disabilities.

[7]  Claire Eagleson,et al.  Has teaching about intellectual disability healthcare in Australian medical schools improved? A 20-year comparison of curricula audits , 2020, BMC medical education.

[8]  P. Rosenbaum ‘You have textbooks; we have story books’. Disability as perceived by professionals and parents , 2020, Developmental medicine and child neurology.

[9]  Carli Friedman,et al.  Explicit and implicit disability attitudes of healthcare providers. , 2020, Rehabilitation psychology.

[10]  L. Trinquart,et al.  Content and outcomes of narrative medicine programmes: a systematic review of the literature through 2019 , 2020, BMJ Open.

[11]  E. Campbell,et al.  Communicating with Patients with Disability: Perspectives of Practicing Physicians , 2019, Journal of General Internal Medicine.

[12]  L. Pezzin,et al.  Patient Satisfaction and Perceived Quality of Care Among Younger Medicare Beneficiaries According to Activity Limitation Stages. , 2019, Archives of physical medicine and rehabilitation.

[13]  John W. Murphy,et al.  The Role of Reflection in Narrative Medicine , 2018, Journal of medical education and curricular development.

[14]  D. Kendzor,et al.  Impact of disability and chronic conditions on health. , 2016, Disability and health journal.

[15]  T. Shakespeare Just What Is the Disability Perspective on Disability? , 2016, The Hastings Center report.

[16]  M. Molinari,et al.  Don't look at my wheelchair! The plasticity of longlasting prejudice , 2015, Medical education.

[17]  S. Goering Rethinking disability: the social model of disability and chronic disease , 2015, Current Reviews in Musculoskeletal Medicine.

[18]  Katherine C. Chretien,et al.  Tell Me Your Story: A Pilot Narrative Medicine Curriculum During the Medicine Clerkship , 2015, Journal of General Internal Medicine.

[19]  S. Fernbach,et al.  Handing the pen to the patient: Reflective writing for children and families affected by genetic conditions , 2014, American journal of medical genetics. Part A.

[20]  W. Najm,et al.  Reflective Practice Enriches Clerkship Students’ Cross-Cultural Experiences , 2010, Journal of General Internal Medicine.

[21]  R. Kelly,et al.  Embedding developmental disabilities into medical training. , 2009, North Carolina medical journal.

[22]  F. Campbell Medical Education and Disability Studies , 2009, The Journal of medical humanities.

[23]  Sayantani Dasgupta,et al.  Personal Illness Narratives: Using Reflective Writing to Teach Empathy , 2004, Academic medicine : journal of the Association of American Medical Colleges.

[24]  M. Byron,et al.  Disability teaching for medical students: disabled people contribute to curriculum development , 2002, Medical education.

[25]  R. Charon Narrative Medicine: A Model for Empathy, Reflection, Profession, and Trust , 2001 .

[26]  M. Irigoyen,et al.  The Effects of Patient Characteristics and Practice Settings on Students' Participation in a Primary Care Clerkship , 2000, Academic medicine : journal of the Association of American Medical Colleges.