A balance between putting on the researcher’s hat and being a fellow human being: a researcher perspective on informal carer involvement in health and social care research

[1]  E. Hanson,et al.  What motivates informal carers to be actively involved in research, and what obstacles to involvement do they perceive? , 2021, Research Involvement and Engagement.

[2]  S. Iwarsson,et al.  Collaboration in Grant Proposals and Assessments in Ageing Research – Justification or a Quest for a Collaborology? , 2021 .

[3]  Ria Mardiana Yusuf,et al.  Exploring Carers' Views and Experiences of Being Involved in Research and Development Work , 2020, Int. J. Sociotechnology Knowl. Dev..

[4]  A. Sheikh,et al.  Patient and public involvement in research: from tokenistic box ticking to valued team members , 2020, BMC Medicine.

[5]  G. Bammer.  Key issues in co-creation with stakeholders when research problems are complex , 2019, Evidence & Policy: A Journal of Research, Debate and Practice.

[6]  Trisha Greenhalgh,et al.  Frameworks for supporting patient and public involvement in research: Systematic review and co‐design pilot , 2019, Health expectations : an international journal of public participation in health care and health policy.

[7]  R. Thomson,et al.  “About sixty per cent I want to do it”: Health researchers’ attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study , 2019, Health expectations : an international journal of public participation in health care and health policy.

[8]  H. Dahl,et al.  Tight Ties in Collaborative Health Research Puts Research Ethics on Trial? A Discussion on Autonomy, Confidentiality, and Integrity in Qualitative Research , 2019, Qualitative health research.

[9]  P. Giladi.  Epistemic injustice , 2018 .

[10]  Simon L Goodman,et al.  How to conduct a psychological discourse analysis , 2017 .

[11]  S. McClelland.  Vulnerable Listening: Possibilities and Challenges of Doing Qualitative Research , 2017 .

[12]  L. Granek.  Emotional aspects of conducting qualitative research on psychological topics. , 2017 .

[13]  K. Staley,et al.  The impact of involvement on researchers: a learning experience , 2017, Research Involvement and Engagement.

[14]  E. Hanson,et al.  Developing a carer identity and negotiating everyday life through social networking sites: an explorative study on identity constructions in an online Swedish carer community , 2017, Ageing and Society.

[15]  L. Ross.  An Account From the Inside: Examining the Emotional Impact of Qualitative Research Through the Lens of “Insider” Research , 2017, Qualitative psychology.

[16]  T. Wykes,et al.  Impact on the individual: what do patients and carers gain, lose and expect from being involved in research? , 2016, Journal of mental health.

[17]  C. Goodman,et al.  ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study , 2015 .

[18]  Vivien Burr.  Social constructionism: Third edition , 2015 .

[19]  M. Wetherell,et al.  A Discursive Psychological Framework for Analyzing Men and Masculinities , 2014 .

[20]  Dominika Byczkowska-Owczarek.  Researcher's personal experiences as a method of embodiment research , 2014 .

[21]  Colin Tysall,et al.  A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities , 2014, The Patient - Patient-Centered Outcomes Research.

[22]  J. Sloan,et al.  Patient engagement in research: a systematic review , 2014, BMC Health Services Research.

[23]  D. Rose.  Patient and public involvement in health research: Ethical imperative and/or radical challenge? , 2014, Journal of health psychology.

[24]  Chris Westrup.  Representing Reality: Discourse, Rhetoric and Social Construction , 2013 .

[25]  T. Kuhn,et al.  The Structure of Scientific Revolutions: 50th Anniversary Edition , 2012 .

[26]  A. Boaz,et al.  Handbook of service user involvement in nursing and healthcare research , 2011 .

[27]  J. Boote,et al.  Health researchers’ attitudes towards public involvement in health research , 2009, Health expectations : an international journal of public participation in health care and health policy.

[28]  R. Montgomery,et al.  Caregiving as a Process of Changing Identity: Implications for Caregiver Support , 2009 .

[29]  S. Dwyer,et al.  The Space Between: On Being an Insider-Outsider in Qualitative Research , 2009 .

[30]  V. Dickson-Swift,et al.  Researching sensitive topics: qualitative research as emotion work , 2009 .

[31]  Helen Sampson,et al.  A Price Worth Paying? , 2008 .

[32]  V. Kanuha.  "Being" native versus "going native": conducting social work research as an insider. , 2000, Social work.

[33]  K. Gilbert.  The emotional nature of qualitative research , 2000 .

[34]  D. Rennie.  Grounded Theory Methodology as Methodical Hermeneutics , 2000 .

[35]  Margaret Wetherell,et al.  Positioning and Interpretative Repertoires: Conversation Analysis and Post-Structuralism in Dialogue , 1998 .

[36]  J. Potter.  Representing Reality: Discourse, Rhetoric and Social Construction , 1996 .

[37]  M. Wetherell,et al.  Men in Perspective: Practice, Power, and Identity , 1995 .

[38]  J. Swales.  Research and development in the NHS , 1991, The Lancet.

[39]  H. Blumer,et al.  Symbolic Interactionism: Perspective and Method , 1988 .

[40]  T. Borkman.  Experiential Knowledge: A New Concept for the Analysis of Self-Help Groups , 1976, Social Service Review.

[41]  S. Arnstein,et al.  Ladder of Citizen Participation , 2020 .

[42]  K. Staley.  Changing what researchers 'think and do': Is this how involvement impacts on research? , 2017 .

[43]  Leeat Granek,et al.  The Bits on the Cutting Room Floor: Erasures and Denials Within the Qualitative Research Trajectory: (606572013-001) , 2013 .

[44]  M. Fricker.  FORUM: Miranda FRICKER's Epistemic Injustice. Power and the Ethics of Knowing , 2008, THEORIA.

[45]  S. Harding.  The feminist standpoint theory reader : intellectual andpolitical controversies , 2004 .

[46]  Hilde van der Togt,et al.  Publisher's Note , 2003, J. Netw. Comput. Appl..

[47]  S. Eckstein.  Ethical principles for medical research involving human subjects. , 2001, European journal of emergency medicine : official journal of the European Society for Emergency Medicine.

[48]  D. Rennie.  Grounded Theory Methodology as Methodical Hermeneutics: Reconciling Realism and Relativism , 2001 .

[49]  Luk Van Langenhove,et al.  Positioning theory : moral contexts of intentional action , 1999 .

[50]  Alison M. Jaggar.  Love and knowledge: Emotion in feminist epistemology , 1989 .

[51]  Michael Billig,et al.  Arguing and Thinking: A Rhetorical Approach to Social Psychology , 1987 .