Ethical aspects of care in the newborn surgical patient.

This article places focus on three main subjects that are all related to the ethical aspects of care of newborns undergoing major surgical interventions. The first concerns the communication between the surgeon, as a representative of the treatment team, and the parents. The second is the way to handle new developments in neonatal surgery. The third issue covers several aspects of the ethical decision-making process with regard to forgoing life support in surgical neonates. These issues will be discussed on the basis of two clinical case reports.

[1]  Pediatric Surgery: Diagnosis and Management , 2023, Journal of the American College of Surgeons.

[2]  A. Diamanti,et al.  Long-Term Outcome of Home Parenteral Nutrition in Patients With Ultra-Short Bowel Syndrome , 2014, Journal of pediatric gastroenterology and nutrition.

[3]  Karen A. Diefenbach,et al.  Counselling variation among physicians regarding intestinal transplant for short bowel syndrome , 2013, Journal of Medical Ethics.

[4]  M. Statter The ethics consultation and the pediatric surgeon. , 2013, Seminars in pediatric surgery.

[5]  R. Wijnen,et al.  Esophageal atresia: long-term morbidities in adolescence and adulthood. , 2013, Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus.

[6]  R. Wijnen,et al.  Prospective long-term follow up of children with anorectal malformation: growth and development until 5years of age. , 2013, Journal of pediatric surgery.

[7]  B. Ure,et al.  Systematic Review of Level 1 Evidence for Laparoscopic Pediatric Surgery: Do Our Procedures Comply with the Requirements of Evidence-Based Medicine? , 2013, European Journal of Pediatric Surgery.

[8]  M. Pakarinen,et al.  Modern outcomes of oesophageal atresia: single centre experience over the last twenty years. , 2013, Journal of pediatric surgery.

[9]  D. Tibboel,et al.  Congenital diaphragmatic hernia with(out) ECMO: impaired development at 8 years , 2012, Archives of Disease in Childhood: Fetal and Neonatal Edition.

[10]  D. Tibboel,et al.  VACTERL Association Etiology: The Impact of de novo and Rare Copy Number Variations , 2012, Molecular Syndromology.

[11]  W. Hop,et al.  Respiratory morbidity and growth after open thoracotomy or thoracoscopic repair of esophageal atresia. , 2012, Journal of pediatric surgery.

[12]  M. Mercurio,et al.  Ethics of emerging technologies and their transition to accepted practice: intestinal transplant for short bowel syndrome , 2012, Journal of Perinatology.

[13]  R. Wijnen,et al.  Minimal Access Surgery for Repair of Congenital Diaphragmatic Hernia: Is it Advantageous?—An Open Review , 2012, European Journal of Pediatric Surgery.

[14]  G. Blumenstock,et al.  Perioperative outcome of patients with esophageal atresia and tracheo-esophageal fistula undergoing open versus thoracoscopic surgery. , 2011, Journal of laparoendoscopic & advanced surgical techniques. Part A.

[15]  B. Nwomeh,et al.  Emerging ethical issues in pediatric surgery , 2011, Pediatric Surgery International.

[16]  D. Tibboel,et al.  Early developmental assessment of children with major non‐cardiac congenital anomalies predicts development at the age of 5 years , 2010, Developmental medicine and child neurology.

[17]  D. Tibboel,et al.  Motor-function and exercise capacity in children with major anatomical congenital anomalies: an evaluation at 5 years of age. , 2010, Early human development.

[18]  D. Tibboel,et al.  Interdisciplinary management of infantile short bowel syndrome: resource consumption, growth, and nutrition. , 2010, Journal of Pediatric Surgery.

[19]  David W. Taggart,et al.  No surgical innovation without evaluation: the IDEAL recommendations , 2009, The Lancet.

[20]  D. Tibboel,et al.  A prospective comparative evaluation of persistent respiratory morbidity in esophageal atresia and congenital diaphragmatic hernia survivors. , 2009, Journal of pediatric surgery.

[21]  P. Puri,et al.  A meta-analysis of clinical outcome in patients with total intestinal aganglionosis , 2009, Pediatric Surgery International.

[22]  D. Tibboel,et al.  Interdisciplinary structural follow-up of surgical newborns: a prospective evaluation. , 2009, Journal of pediatric surgery.

[23]  Michael T Longaker,et al.  The ethics of innovation in pediatric surgery. , 2006, Seminars in pediatric surgery.

[24]  F. Hazebroek Quality improvement in pediatric surgery: The Rotterdam experience , 2006 .

[25]  M. Sprangers,et al.  Quality of life in adult survivors of correction of esophageal atresia. , 2005, Archives of surgery.

[26]  D. Caniano Ethical issues in the management of neonatal surgical anomalies. , 2004, Seminars in perinatology.

[27]  E. Skarsgard,et al.  The role of prospective randomized clinical trials in pediatric surgery: state of the art? , 2001, Journal of pediatric surgery.

[28]  L. Spitz,et al.  Educational attainments in early adolescence of infants who required major neonatal surgery. , 2001, Journal of pediatric surgery.

[29]  J. Glover,et al.  Ethical issues in treating infants with very low birth weight. , 2000, Seminars in pediatric surgery.

[30]  D. Tibboel,et al.  Children with congenital diaphragmatic hernia are at risk for lower levels of cognitive functioning and increased emotional and behavioral problems. , 2000, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie.

[31]  D. Tibboel,et al.  Brief report: parental burden and grief one year after the birth of a child with a congenital anomaly. , 1999, Journal of pediatric psychology.

[32]  D. Tibboel,et al.  Staff attitudes towards continuation of life-support in newborns with major congenital anomalies , 1996, European Journal of Pediatrics.

[33]  J. Molenaar Ethics in Pediatric Surgery*,** , 1996, European journal of pediatric surgery.

[34]  D. Tibboel,et al.  End-of-life decisions for surgical neonates: experience in The Netherlands and United States. , 1995, Journal of pediatric surgery.

[35]  Y. Hishikawa,et al.  Mental and intellectual development of neonatal surgical children in a long-term follow-up. , 1993, Journal of pediatric surgery.

[36]  B. Nwomeh,et al.  Ethical Considerations in Pediatric Surgery , 2019, Pediatric Surgery.

[37]  B. Ure Enthusiasm, evidence and ethics: the triple E of minimally invasive pediatric surgery. , 2013, Journal of pediatric surgery.

[38]  M. Mercurio,et al.  The role of a pediatric ethics committee in the newborn intensive care unit , 2011, Journal of Perinatology.

[39]  D. Tibboel,et al.  Parental satisfaction with follow-up services for children with major anatomical congenital anomalies. , 2010, Child: care, health and development.

[40]  J. Reyes,et al.  Outcomes in children with intestinal failure following listing for intestinal transplant. , 2010, Journal of pediatric surgery.

[41]  M. Fallat,et al.  Ethics and the pediatric surgeon. , 2007, Journal of pediatric surgery.

[42]  D. Caniano,et al.  Chapter 14 – Ethical Considerations , 2006 .

[43]  F. Hazebroek Is continuation of life support always the best option for neonates with congenital anatomical anomalies? , 2006, Journal of pediatric surgery.