Health-related quality of life and the transformation of symptoms.

This paper traces the development of health-related Quality of Life instruments over the last half century. It identifies the emergence of key components of quality of life measurement in other health status questionnaires between about 1950 and 1980 and their formalization in Quality of Life instruments in the mid 1980s. The common developmental thread that linked these Quality of Life instruments and their precursors was the identification of 'distal symptoms' that represented the impact of illness beyond its immediate bodily manifestations. The measurement of distal symptoms through Quality of Life instruments also served to detach symptoms from their customary patho-physiological referent. Other contemporary examples of these free-floating symptoms reinforce the argument that the nature and meaning of symptoms has been transformed over recent decades.

[1]  M. Cassidy.  DOCTOR AND PATIENT , 1938 .

[2]  E. Nõu,et al.  Comparative measurements of quality of survival of lung cancer patients after diagnosis. , 1970, Scandinavian journal of respiratory diseases.

[3]  M. Sprangers,et al.  Response-shift bias: a challenge to the assessment of patients' quality of life in cancer clinical trials. , 1996, Cancer treatment reviews.

[4]  R. Plutchik,et al.  Changes in Elderly Welfare Hotel Residents During a One‐Year Period † , 1975, Journal of the American Geriatrics Society.

[5]  C. Dollery,et al.  A symptom questionnaire for hypertensive patients. , 1974, Journal of chronic diseases.

[6]  S. Katz,et al.  STUDIES OF ILLNESS IN THE AGED. THE INDEX OF ADL: A STANDARDIZED MEASURE OF BIOLOGICAL AND PSYCHOSOCIAL FUNCTION. , 1963, JAMA.

[7]  M. Hotopf,et al.  Medically unexplained symptoms: an epidemiological study in seven specialities. , 2001, Journal of psychosomatic research.

[8]  D. A. Pond,et al.  The Doctor, His Patient and the Illness , 1957, Mental Health.

[9]  H. Buchsbaum,et al.  Psychosocial adjustment to pelvic exenteration. , 1975, Gynecologic oncology.

[10]  E. Ackerknecht.  Medicine at the Paris Hospital, 1794-1848 , 1967 .

[11]  F. Dombal,et al.  A SYMPTOMATIC DISCRIMINANT TO IDENTIFY RECURRENT ULCER IN PATIENTS WITH DYSPEPSIA AFTER GASTRIC SURGERY , 1976, The Lancet.

[12]  K. Box,et al.  The Wartime Social Survey , 1944 .

[13]  R. Cummins,et al.  Moving from the quality of life concept to a theory. , 2005, Journal of intellectual disability research : JIDR.

[14]  F. Carp.  Impact of improved housing on morale and life satisfaction. , 1975, The Gerontologist.

[15]  G. A. Rose.  ISCHEMIC HEART DISEASE. CHEST PAIN QUESTIONNAIRE. , 1965, The Milbank Memorial Fund quarterly.

[16]  D. Caldwell,et al.  Origins of the Concept of Quality of Life in Health Care: A Rhetorical Solution to a Political Problem , 2004 .

[17]  N. Levy,et al.  THE QUALITY OF LIFE ON MAINTENANCE HÆMODIALYSIS , 1975, The Lancet.

[18]  Mahoney Fi,et al.  FUNCTIONAL EVALUATION: THE BARTHEL INDEX. , 1965 .

[19]  C. H. Wood,et al.  Variability in Answers to a Questionnaire on Respiratory Symptoms , 1959, British journal of preventive & social medicine.

[20]  M. Foucault,et al.  The birth of the clinic : an archaeology of medical perception , 1974 .

[21]  D. Mechanic,et al.  The concept of illness behavior. , 1962, Journal of chronic diseases.

[22]  J. Lawrence,et al.  Osteo-Arthrosis: Prevalence in the Population and Relationship between Symptoms and X-ray Changes , 1966, Annals of the rheumatic diseases.

[23]  C. Raitta,et al.  Fluorescence angiography of the fundus vessels in aortic coarctation. , 1970, British heart journal.

[24]  C. O'boyle,et al.  Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit population , 1991, Psychological Medicine.

[25]  F. V. van Dam,et al.  Underreporting by cancer patients: the case of response-shift. , 1991, Social science & medicine.

[26]  D. Armstrong.  The patient's view. , 1984, Social science & medicine.

[27]  Catherine Marsh,et al.  The survey method : the contribution of surveys to sociological explanation , 1983 .

[28]  John Brazier,et al.  A review of the use of health status measures in economic evaluation. , 1999, Health technology assessment.

[29]  M. Arnott,et al.  The quality of life in Glasgow's east end. , 1973, Age and ageing.

[30]  A. N. Schwartz.  An observation on self-esteem as the linchpin of quality of life for the aged. An essay. , 1975, The Gerontologist.

[31]  G. A. Rose.  Chest Pain Questionnaire , 1965 .

[32]  V. Carstairs,et al.  The handicapped and impaired in Great Britain. , 1972, Health bulletin.

[33]  M. Sprangers,et al.  Integrating response shift into health-related quality of life research: a theoretical model. , 1999, Social science & medicine.

[34]  O. Tofler.  Life units. A discussion in the Department of Cardiology, Royal Perth Hospital, Australia. , 1970, British heart journal.

[35]  B. Ford.  International Classification of Impairments, Disabilities and Handicaps , 1984, Releve epidemiologique hebdomadaire.

[36]  A. Tector,et al.  Prosthetic cardiac valve replacement: a comparison between ball and tilting disc valves. , 1973, The Journal of cardiovascular surgery.

[37]  J. Curran.  The Doctor, his Patient and the Illness , 2007, BMJ : British Medical Journal.

[38]  A. Williams.  Economics of coronary artery bypass grafting. , 1985, British medical journal.

[39]  D. Mechanic,et al.  Illness Behavior and Medical Diagnoses , 1960 .

[40]  J. Mcewen,et al.  The development of a subjective health indicator. , 1980, Sociology of health & illness.