Ethical Dilemmas in Pediatrics: Ethical problems encountered with oncology and bone marrow transplant patients

[1]  G. Annas Extremely preterm birth and parental authority to refuse treatment--the case of Sidney Miller. , 2004, The New England journal of medicine.

[2]  P. Benner Relational ethics of comfort, touch, and solace-endangered arts? , 2004, American journal of critical care : an official publication, American Association of Critical-Care Nurses.

[3]  A. Langnas ADVANCES IN SMALL-INTESTINE TRANSPLANTATION , 2004, Transplantation.

[4]  Laurence B McCullough,et al.  A Typology of Shared Decision Making, Informed Consent, and Simple Consent , 2004, Annals of Internal Medicine.

[5]  K. Abu-Elmagd,et al.  Gut failure and abdominal visceral transplantation , 2003, Proceedings of the Nutrition Society.

[6]  L. Ackerson,et al.  Choices physicians would make if they were the parents of a child with hypoplastic left heart syndrome. , 2003, The American journal of cardiology.

[7]  M. Eyrich,et al.  Risks of mortality in children admitted to the paediatric intensive care unit after haematopoietic stem cell transplantation , 2003, British journal of haematology.

[8]  R. Connelly Ethical Issues in the Use of Covert Video Surveillance in the Diagnosis of Munchausen Syndrome by Proxy: The Atlanta Study - an Ethical Challenge for Medecine , 2003, HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues.

[9]  H. Keenan,et al.  Outcome of children who require mechanical ventilatory support after bone marrow transplantation , 2000, Critical care medicine.

[10]  A. Shorr,et al.  Mechanical ventilation in hematopoietic stem cell transplantation: can We effectively predict outcomes? , 1999, Chest.

[11]  O. Eden,et al.  Paediatric oncology and intensive care treatments: changing trends , 1999, Archives of disease in childhood.

[12]  J. Tronto Care Ethics: Moving Forward , 1999, Hypatia.

[13]  E. Bove,et al.  Current Status of Staged Reconstruction for Hypoplastic Left Heart Syndrome , 1998, Pediatric Cardiology.

[14]  Y. Orime,et al.  Hypoplastic left heart syndrome: "Which is the best operative strategy?". , 1998, Annals of thoracic and cardiovascular surgery : official journal of the Association of Thoracic and Cardiovascular Surgeons of Asia.

[15]  J. Astin Why patients use alternative medicine: results of a national study. , 1998, JAMA.

[16]  P. Steinherz,et al.  Survival after relapse in childhood acute lymphoblastic leukemia , 1998, Cancer.

[17]  D. Callahan Managed Care and the Goals of Medicine , 1998, Journal of the American Geriatrics Society.

[18]  R. Burt,et al.  Confronting Death: Who Chooses, Who Controls? , 1998 .

[19]  C. Canter,et al.  Outcome of listing for heart transplantation in infants younger than six months: predictors of death and interval to transplantation. The Pediatric Heart Transplantation Study Group. , 1997, The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation.

[20]  J. Luce Making decisions about the forgoing of life-sustaining therapy. , 1997, American journal of respiratory and critical care medicine.

[21]  R. Novick,et al.  The Registry of the International Society of Heart and Lung Transplantation: first official pediatric report--1997. , 1997, The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation.

[22]  R. Piecuch,et al.  Outcome of Infants Born at 24‐26 Weeks' Gestation: II. Neurodevelopmental Outcome , 1997, Obstetrics and gynecology.

[23]  D. Southall,et al.  Covert Video Recordings of Life-threatening Child Abuse: Lessons for Child Protection , 1997 .

[24]  A. Jonsen,et al.  Managed Care: A House of Mirrors , 1997, The Journal of Clinical Ethics.

[25]  W. Gersony,et al.  Survival and risk factor analysis for the Norwood procedure for hypoplastic left heart syndrome. , 1997, The American journal of cardiology.

[26]  M. Bryk,et al.  My mother caused my illness: the story of a survivor of Münchausen by proxy syndrome. , 1997, Pediatrics.

[27]  A. Milstein Managing utilization management: a purchaser's view. , 1997, Health affairs.

[28]  D. Stone The doctor as businessman: the changing politics of a cultural icon. , 1997, Journal of health politics, policy and law.

[29]  L. Pearson Family-centered care and the anticipated death of a newborn. , 1997, Pediatric nursing.

[30]  S. Horning,et al.  High-dose therapy and autologous hematopoietic progenitor cell transplantation for recurrent or refractory Hodgkin's disease: analysis of the Stanford University results and prognostic indices. , 1997, Blood.

[31]  W. Levinson,et al.  Discussing futility with patients and families , 1996, Journal of General Internal Medicine.

[32]  B. Brody,et al.  A multi-institution collaborative policy on medical futility. , 1996, JAMA.

[33]  R. Caldwell,et al.  Surgical management of hypoplastic left heart syndrome. , 1996, The Annals of thoracic surgery.

[34]  S. R. Meadow,et al.  Epidemiology of Munchausen syndrome by proxy, non-accidental poisoning, and non-accidental suffocation. , 1996, Archives of disease in childhood.

[35]  S. Gundry,et al.  Transplantation as a primary treatment for hypoplastic left heart syndrome: intermediate-term results. , 1996, The Annals of thoracic surgery.

[36]  J. J. Fins,et al.  A proposal to restructure hospital care for dying patients. , 1996, The New England journal of medicine.

[37]  J. Tulsky,et al.  Cardiopulmonary resuscitation on television. Miracles and misinformation. , 1996, The New England journal of medicine.

[38]  N. Cantor Can healthcare providers obtain judicial intervention against surrogates who demand "medically inappropriate" life support for incompetent patients? , 1996, Critical care medicine.

[39]  C. Sprung,et al.  Judicial intervention in medical decision-making: a failure of the medical system? , 1996, Critical care medicine.

[40]  D. Tibboel,et al.  The prognosis of oncologic patients in the pediatric intensive care unit , 1996, Intensive Care Medicine.

[41]  J. Vanderhoof Short bowel syndrome in children and small intestinal transplantation. , 1996, Pediatric clinics of North America.

[42]  D. Orentlicher Paying Physicians More to Do Less: Financial Incentives to Limit Care , 1996, University of Richmond law review. University of Richmond.

[43]  M. Amylon,et al.  Identifying early predictors of mortality in pediatric patients with acute leukemia and pneumonia. , 1996, Chest.

[44]  J. Tesman,et al.  Outcome After Open-Heart Surgery in Infants and Children , 1996, Journal of child neurology.

[45]  D. Himmelstein,et al.  Extreme risk--the new corporate proposition for physicians. , 1995, The New England journal of medicine.

[46]  E. Emanuel Medical Ethics in the Era of Managed Care: The Need for Institutional Structures Instead of Principles for Individual Cases , 1995, The Journal of Clinical Ethics.

[47]  L. Zoloth-Dorfman,et al.  The Patient as Commodity: Managed Care and the Question of Ethics , 1995, The Journal of Clinical Ethics.

[48]  E D Pellegrino,et al.  Interests, Obligations, and Justice: Some Notes Toward an Ethic of Managed Care , 1995, The Journal of Clinical Ethics.

[49]  E. Howe Managed Care: “New Moves,” Moral Uncertainty, and a Radical Attitude , 1995, The Journal of Clinical Ethics.

[50]  P. Pillans,et al.  Toxicity of herbal products. , 1995, The New Zealand medical journal.

[51]  J. L. Nelson,et al.  The best laid plans. , 1995, The Hastings Center report.

[52]  T. Massaro,et al.  Management of hypoplastic left heart syndrome in a consortium of university hospitals. , 1995, The American journal of cardiology.

[53]  Roy Meadow,et al.  Munchausen Syndrome by Proxy , 1995, The Medico-legal journal.

[54]  L. Mazur,et al.  Use of folk remedies in a Hispanic population. , 1995, Archives of pediatrics & adolescent medicine.

[55]  M. Pollack,et al.  Variability in brain death determination practices in children. , 1995, JAMA.

[56]  D. Diekema Unwinding the COBRA: New perspectives on EMTALA , 1995, Pediatric emergency care.

[57]  J. Merrick,et al.  Critically ill newborns and the law. The American experience. , 1995, The Journal of legal medicine.

[58]  D. Brock Justice and the Ada: Does Prioritizing and Rationing Health Care Discriminate against the Disabled? , 1995, Social Philosophy and Policy.

[59]  E. Pellegrino Guarding the integrity of medical ethics. Some lessons from Soviet Russia. , 1995, JAMA.

[60]  Victoria N. Ruff,et al.  The use of anencephalic neonates as organ donors. Council on Ethical and Judicial Affairs, American Medical Association. , 1995, JAMA.

[61]  G. Lundberg The failure of organized health system reform--now what? Caveat aeger--let the patient beware. , 1995, JAMA.

[62]  T. Tomlinson,et al.  Futility and hospital policy. , 1995, The Hastings Center report.

[63]  J. Luce Physicians do not have a responsibility to provide futile or unreasonable care if a patient or family insists. , 1995, Critical care medicine.

[64]  C. Sprung,et al.  Is the physician's duty to the individual patient or to society? , 1995, Critical care medicine.

[65]  D. Notterman,et al.  Acute hypoxemic respiratory failure in children following bone marrow transplantation: an outcome and pathologic study. , 1995, Critical care medicine.

[66]  G. Annas,et al.  Reframing the debate on health care reform by replacing our metaphors. , 1995, The New England journal of medicine.

[67]  M. Rodwin,et al.  Conflicts in managed care. , 1995, The New England journal of medicine.

[68]  A. Yarmolinsky Supporting the patient. , 1995, New England Journal of Medicine.

[69]  T. Prendergast Futility and the common cold. How requests for antibiotics can illuminate care at the end of life. , 1995, Chest.

[70]  R. Cranford,et al.  Forgoing Medically Provided Nutrition and Hydration in Pediatric Patients , 1995, Journal of Law, Medicine & Ethics.

[71]  D. Pieroni,et al.  Neurodevelopmental outcome of infants with hypoplastic left heart syndrome. , 1995, The Journal of pediatrics.

[72]  E. Emanuel,et al.  Institutional conflict of interest. , 1995, The New England journal of medicine.

[73]  Charles W. Plows,et al.  Ethical Issues in Managed Care: Council on Ethical and Judicial Affairs, American Medical Association , 1995 .

[74]  Kocoshis Sa Small bowel transplantation in infants and children. , 1994 .

[75]  J. Frader,et al.  Ethical issues in the pediatric intensive care unit. , 1994, Pediatric clinics of North America.

[76]  S. Reiser The ethical life of health care organizations. , 1994, The Hastings Center report.

[77]  E. Pellegrino,et al.  First Annual Nicholas J. Pisacano Lecture , 1994, The Journal of the American Board of Family Medicine.

[78]  M. C. Rogers,et al.  Predictors of acute respiratory failure after bone marrow transplantation in children , 1994, Critical care medicine.

[79]  K. Faber‐Langendoen Clinical Investigations in Critical CareThe Clinical Management of Dying Patients Receiving Mechanical Ventilation: A Survey of Physician Practice , 1994 .

[80]  T. Spray,et al.  Neurologic complications of pediatric heart transplantation. , 1994, Archives of pediatrics & adolescent medicine.

[81]  R. Reilly,et al.  Projecting Patients' Preferences from Living Wills: An Invalid Strategy for Management of Dementia with Life‐Threatening Illness , 1994, Journal of the American Geriatrics Society.

[82]  J. A. Slater Psychiatric Aspects of Organ Transplantation in Children and Adolescents , 1994 .

[83]  Multi-Society Task Force on Pvs Medical aspects of the persistent vegetative state (1). , 1994, The New England journal of medicine.

[84]  G. Annas Asking the courts to set the standard of emergency care--the case of Baby K. , 1994, The New England journal of medicine.

[85]  M. Iannettoni,et al.  Improving results with first-stage palliation for hypoplastic left heart syndrome. , 1994, The Journal of thoracic and cardiovascular surgery.

[86]  S. Ashwal,et al.  Life expectancy of children in a persistent vegetative state. , 1994, Pediatric neurology.

[87]  S. Feig,et al.  Survival outcome among 54 intubated pediatric bone marrow transplant patients , 1994, Critical care medicine.

[88]  C. Stocking,et al.  Ethics consultants' recommendations for life-prolonging treatment of patients in a persistent vegetative state. , 1993, JAMA.

[89]  M. Allen,et al.  The Limit of Viability -- Neonatal Outcome of Infants Born at 22 to 25 Weeks' Gestation , 1993 .

[90]  M. Gillick,et al.  Medical technology at the end of life. What would physicians and nurses want for themselves , 1993 .

[91]  M. Angell,et al.  The Doctor as Double Agent , 1993, Kennedy Institute of Ethics journal.

[92]  J. Kassirer Medicine at center stage. , 1993, The New England journal of medicine.

[93]  R. Kessler,et al.  Unconventional medicine in the United States. Prevalence, costs, and patterns of use. , 1993, The New England journal of medicine.

[94]  M. Michaels,et al.  Ethical considerations in listing fetuses as candidates for neonatal heart transplantation. , 1993, JAMA.

[95]  R. Wigton,et al.  The Influence of Treatment Descriptions on Advance Medical Directive Decisions , 1992, Journal of The American Geriatrics Society.

[96]  M. Jacobs,et al.  Fontan procedure for hypoplastic left heart syndrome. , 1992, The Annals of thoracic surgery.

[97]  E. Susman,et al.  Participation in biomedical research: the consent process as viewed by children, adolescents, young adults, and physicians. , 1992, The Journal of pediatrics.

[98]  J. Bale,et al.  The persistent vegetative state in children: Report of the child neurology society ethics committee , 1992, Annals of neurology.

[99]  R. Rhodes,et al.  Transplant Recipients Seletion: Peacetime vs. Wartime Triage , 1992, Cambridge Quarterly of Healthcare Ethics.

[100]  R. Huxtable The Myth of Beneficent Nature: The Risks of Herbal Preparations , 1992, Annals of Internal Medicine.

[101]  R. Truog,et al.  The problem with futility. , 1992, The New England journal of medicine.

[102]  N. King Transparency in neonatal intensive care. , 1992, The Hastings Center report.

[103]  E. Emanuel,et al.  Four models of the physician-patient relationship. , 1992, JAMA.

[104]  P. Marshall Anthropology and bioethics. , 1992, Medical anthropology quarterly.

[105]  W. May The Beleaguered Rulers: The Public Obligation of the Professional , 1992, Kennedy Institute of Ethics journal.

[106]  M. C. Cooper,et al.  Principle‐oriented ethics and the ethic of care: A creative tension , 1991, ANS. Advances in nursing science.

[107]  J. Arras Beyond Cruzan: Individual Rights, Family Autonomy and the Persistent Vegetative State , 1991, Journal of the American Geriatrics Society.

[108]  Morreim Eh Economic disclosure and economic advocacy. New duties in the medical standard of care. , 1991 .

[109]  D. Bernstein,et al.  Pediatric heart transplantation at Stanford: results of a 15-year experience. , 1991, Pediatrics.

[110]  E. Emanuel,et al.  Advance directives for medical care--a case for greater use. , 1991, The New England journal of medicine.

[111]  Martin Benjamin,et al.  Alcoholics and Liver Transplantation , 1991 .

[112]  M. Siegler,et al.  Should alcoholics compete equally for liver transplantation? , 1991, JAMA.

[113]  Dan W. Brock,et al.  The Ideal of Shared Decision Making Between Physicians and Patients , 1991, Kennedy Institute of Ethics journal.

[114]  D. Tresch,et al.  Patients in a Persistent Vegetative State Attitudes and Reactions of Family Members , 1991, Journal of the American Geriatrics Society.

[115]  D. Montaño,et al.  A survey of the attitudes of physician specialists toward capitation-based health plans with primary care gatekeepers. , 1990, QRB. Quality review bulletin.

[116]  R. Truog,et al.  BRAIN DEATH AND THE ANENGEPHALIC NEWBORN , 1990 .

[117]  G. Wintemute Childhood drowning and near-drowning in the United States. , 1990, American journal of diseases of children.

[118]  N. Jecker Integrating medical ethics with normative theory: Patient advocacy and social responsibility , 1990, Theoretical medicine.

[119]  Jay A Friedman Taking the camel by the nose: the anencephalic as a source for pediatric organ transplants. , 1990, Columbia law review.

[120]  D Hemenway,et al.  Physicians' responses to financial incentives. Evidence from a for-profit ambulatory care center. , 1990, The New England journal of medicine.

[121]  B. Brody Quality of scholarship in bioethics. , 1990, The Journal of medicine and philosophy.

[122]  R. L. Rosen,et al.  Ethical and Moral Guidelines for the Initiation, Continuation, and Withdrawal of Intensive Care , 1990 .

[123]  Medical Task Force on Anencephaly The infant with anencephaly. , 1990 .

[124]  R. J. Devettere,et al.  Neocortical Death and Human Death , 1990, Law, medicine & health care : a publication of the American Society of Law & Medicine.

[125]  B. Griffith,et al.  Coronary arteriosclerosis in pediatric heart transplant survivors: limitation of long-term survival. , 1990, The Journal of pediatrics.

[126]  Johnson Gt Restoring trust between patient and doctor. , 1990 .

[127]  S. Gundry,et al.  Heart transplantation during the first 12 years of life. Loma Linda University Pediatric Heart Transplant Group. , 1989, Archives of surgery.

[128]  H Brody,et al.  Transparency: informed consent in primary care. , 1989, The Hastings Center report.

[129]  R. Dresser,et al.  Quality of Life and Non-Treatment Decisions for Incompetent Patients: A Critique of the Orthodox Approach , 1989, Law, medicine & health care : a publication of the American Society of Law & Medicine.

[130]  A. Hillman,et al.  How do financial incentives affect physicians' clinical decisions and the financial performance of health maintenance organizations? , 1989, The New England journal of medicine.

[131]  Sanford Lelkin A proposal concerning decisions to forgo life-sustaining treatment for young people , 1989 .

[132]  A. Cross,et al.  Children as decision makers: guidelines for pediatricians. , 1989, The Journal of pediatrics.

[133]  E. Zackai,et al.  Genetic disorders and major extracardiac anomalies associated with the hypoplastic left heart syndrome. , 1988, Pediatrics.

[134]  G. Barker,et al.  Outcome of children with hematologic malignancy who are admitted to an intensive care unit. , 1988, Critical care medicine.

[135]  L. Kopelman,et al.  Neonatologists judge the "Baby Doe" regulations. , 1988, The New England journal of medicine.

[136]  M. Roulet,et al.  Hepatic veno-occlusive disease in newborn infant of a woman drinking herbal tea. , 1988, The Journal of pediatrics.

[137]  W. Winkenwerder,et al.  Transformation of American health care. The role of the medical profession. , 1988, The New England journal of medicine.

[138]  A. Hillman,et al.  Financial Incentives for Physicians in HMOs , 1987 .

[139]  D. Montaño,et al.  Primary care physician attitudes about gatekeeping. , 1987, The Journal of family practice.

[140]  E. Susman,et al.  Reasoning about Illness in III and Healthy Children and Adolescents: Cognitive and Emotional Developmental Aspects , 1987, Journal of developmental and behavioral pediatrics : JDBP.

[141]  B. Zitelli,et al.  Munchausen's syndrome by proxy and its professional participants. , 1987, American journal of diseases of children.

[142]  R. Duff "Close-up" versus "distant" ethics: deciding the care of infants with poor prognosis. , 1987, Seminars in perinatology.

[143]  J. Opitz,et al.  Studies in neural tube defects. II. Pathologic findings in a prospectively collected series of anencephalics. , 1987, American journal of medical genetics.

[144]  C. Pallis ABC of brain stem death. Reappraising death. , 1982, British medical journal.

[145]  G. Humphrey,et al.  Therapeutic choices made by patients with end-stage cancer. , 1982, The Journal of pediatrics.

[146]  B. Gert,et al.  Defining death in theory and practice. , 1982, The Hastings Center report.

[147]  B. Gert,et al.  On the definition and criterion of death. , 1981, Annals of internal medicine.

[148]  N. Fost,et al.  The limited moral significance of 'fetal viability'. , 1980, The Hastings Center report.

[149]  D. Vandeveer Autonomy Respecting Paternalism , 1980 .

[150]  M. Siegler Clinical ethics and clinical medicine. , 1979, Archives of internal medicine.

[151]  A. Capron LEGAL DEFINITION OF DEATH , 1978, Annals of the New York Academy of Sciences.

[152]  J. Nixon,et al.  Emotional Sequelae of Parents and Sibs following the Drowning or Near-Drowning of a Child* , 1977, The Australian and New Zealand journal of psychiatry.

[153]  N. Fost,et al.  Passive euthanasia of defective newborn infants: legal considerations. , 1976, Journal of pediatric surgery.

[154]  C. Fried Rights and health care--beyond equity and efficiency. , 1975, The New England journal of medicine.

[155]  B. Goott,et al.  The Physiological Response of the Small Bowel of the Dog to Ischemia Including Prolonged in Vitro Preservation of the Bowel with Successful Replacement and Survival , 1959, Annals of surgery.

[156]  G. Kelly The Duty to Preserve Life , 1951 .

[157]  R. Rhodes,et al.  The Not Unreasonable Standard for Assessment of Surrogates and Surrogate Decisions , 2004, Theoretical medicine and bioethics.

[158]  R. Tong The ethics of care: a feminist virtue ethics of care for healthcare practitioners. , 1998, The Journal of medicine and philosophy.

[159]  S. Ashwal,et al.  Anencephaly: Where Do We Now Stand? , 1997, Seminars in neurology.

[160]  J. Luce,et al.  Increasing incidence of withholding and withdrawal of life support from the critically ill. , 1997, American journal of respiratory and critical care medicine.

[161]  Morreim Eh To tell the truth: disclosing the incentives and limits of managed care. , 1997, The American journal of managed care.

[162]  R. Miller Love and death in a pediatric intensive care unit. , 1996, The annual of the Society of Christian Ethics. Society of Christian Ethics.

[163]  E. Phipps,et al.  Beliefs and attitudes about cardiopulmonary resuscitation and DNR orders: a survey of attending physicians. , 1995, Trends in health care, law & ethics.

[164]  Purtilo Rb Managed care: ethical issues for the rehabilitation professions. , 1995 .

[165]  S. Stewart,et al.  A survey of psychosocial adaptation in long-term survivors of pediatric liver transplants. , 1995, Children's health care : journal of the Association for the Care of Children's Health.

[166]  E. Morreim Profoundly diminished life. The casualties of coercion. , 1994, The Hastings Center report.

[167]  K. Nolan,et al.  Decisions near the end of life: professional views on life-sustaining treatments. , 1993, American journal of public health.

[168]  I. Todres Ethical dilemmas in pediatric critical care. , 1992, Critical care clinics.

[169]  American Academy of Pediatrics Committee on Bioethics: Infants with anencephaly as organ sources: ethical considerations. , 1992, Pediatrics.

[170]  V. Stefanović,et al.  Balkan nephropathy. Kidney disease beyond the Balkans? , 1991, American journal of nephrology.

[171]  P. Stillwell,et al.  The ventilator-dependent child: issues in diagnosis and management. , 1991, Archives of physical medicine and rehabilitation.

[172]  Cooper Mc Reconceptualizing nursing ethics. , 1990 .

[173]  D. Montaño,et al.  Attitudes of Washington State primary care physicians toward capitation-based insurance plans. , 1990, The Journal of family practice.

[174]  J. Holland,et al.  Patients', parents', and oncologists' perceptions of informed consent for bone marrow transplantation. , 1989, Medical and pediatric oncology.

[175]  D. Rosenberg Web of deceit: a literature review of Munchausen syndrome by proxy. , 1987, Child abuse & neglect.

[176]  Pelligrino Ed,et al.  Rationing health care: the ethics of medical gatekeeping. , 1986, The Journal of contemporary health law and policy.

[177]  A. Jonsen Blood transfusions and Jehovah's Witnesses. The impact of the patient's unusual beliefs in critical care. , 1986, Critical care clinics.

[178]  J. A. Robertson Involuntary euthanasia of defective newborns: a legal analysis. , 1975, Stanford law review.

[179]  R. Dworkin Death in context. , 1973, Indiana law journal.