Quality of life for people with epilepsy.

The diversity and impact of problems related to epilepsy require each patient to develop a concept of what issues are most important, and seek to address these issues as a personal priority. Domains to be considered include physical, psychological, social, and epilepsy-specific issues. Level of independence is also an important concern. Quality of life instrument scores are a new measure of overall patient function. Use of well constructed, validated instruments specific for disease or general function will enhance the ability of health care providers to understand changes in patients that are not readily discernible without an extensive interview.

[1]  E. Reynolds Early Treatment and Prognosis of Epilepsy , 1987, Epilepsia.

[2]  S. Shorvon,et al.  A quantitative approach to measuring the social effects of epilepsy. , 1990, Neuroepidemiology.

[3]  J. Cramer,et al.  A comparison of valproate with carbamazepine for the treatment of complex partial seizures and secondarily generalized tonic-clonic seizures in adults. The Department of Veterans Affairs Epilepsy Cooperative Study No. 264 Group. , 1992, The New England journal of medicine.

[4]  K. Calman,et al.  QultIflf ncne ains-a Quality of life in cancer patients -an hypothesis , 2006 .

[5]  D. Chadwick,et al.  Psychosocial Outcomes of Antiepileptic Drug Discontinuation , 1992 .

[6]  R. Hays,et al.  The Functional Status of Patients , 1990 .

[7]  J. Collings Psychosocial Weil‐Being and Epilepsy: An Empirical Study , 1990, Epilepsia.

[8]  B. Hermann Quality of life in epilepsy , 1992 .

[9]  G. Fenton,et al.  Psychiatric symptom profiles of patients with epilepsy: a controlled investigation , 1975, Psychological Medicine.

[10]  E. Nelson,et al.  The Measurement of Health Status in Clinical Practice , 1989, Medical care.

[11]  David F. Smith,et al.  Seizure frequency, patient-perceived seizure severity and the psychosocial consequences of intractable epilepsy , 1991, Epilepsy Research.

[12]  O. Devinsky Clinical Uses of the Quality‐of‐Life in Epilepsy Inventory , 1993, Epilepsia.

[13]  D. Spencer,et al.  Occupational adjustment following neurosurgical treatment of epilepsy , 1984, Annals of neurology.

[14]  C. Sherbourne,et al.  The MOS 36-Item Short-Form Health Survey (SF-36) , 1992 .

[15]  Josemir W Sander,et al.  The Chalfont Seizure Severity Scale. , 1991, Journal of neurology, neurosurgery, and psychiatry.

[16]  K. Meador,et al.  Comparative cognitive effects of anticonvulsants , 1990, Neurology.

[17]  J. Cramer,et al.  A method of quantification for the evaluation of antiepileptic drug therapy , 1983, Neurology.

[18]  Linda Moretti Ojeman Brainstorms: epilepsy in our words , 1994 .

[19]  J. Cramer,et al.  Quantitative Approaches to Seizure Severity , 1993 .

[20]  D. Karnofsky The clinical evaluation of chemotherapeutic agents in cancer , 1949 .

[21]  J. Cramer,et al.  Reproductive Function in Epilepsy , 1991, Epilepsia.

[22]  David F. Smith,et al.  The development of a seizure severity scale as an outcome measure in epilepsy , 1991, Epilepsy Research.

[23]  J. Engel,et al.  A Health-Related Quality of Life Instrument for Patients Evaluated for Epilepsy Surgery , 1992, Medical care.

[24]  L. Mackeigan,et al.  Overview of health-related quality-of-life measures. , 1992, American journal of hospital pharmacy.

[25]  E. Lusk,et al.  Psychosocial status in chronic illness. A comparative analysis of six diagnostic groups. , 1984, The New England journal of medicine.

[26]  N. Temkin,et al.  An Objective Method for the Assessment of Psychological and Social Problems Among Epileptics , 1980, Epilepsia.

[27]  J. Cramer,et al.  Comparison of carbamazepine, phenobarbital, phenytoin, and primidone in partial and secondarily generalized tonic-clonic seizures. , 1985, The New England journal of medicine.

[28]  A. Jacoby Epilepsy and the quality of everyday life. Findings from a study of people with well-controlled epilepsy. , 1992, Social science & medicine.

[29]  Carl V. Granger,et al.  Functional assessment in rehabilitation medicine , 1993 .

[30]  Graham Scambler,et al.  Being epileptic: coming to terms with stigma , 1986 .