Validity and reliability of the Spanish sign language version of the KIDSCREEN-27 health-related quality of life questionnaire for use in deaf children and adolescents.

OBJECTIVE The aim of this paper was to test the validity and reliability of a Spanish sign language (SSL) adaptation of KIDSCREEN-27, a health-related quality of life (HRQoL) questionnaire for use in deaf children and adolescents. METHODS We performed an observational cross-sectional study of 114 deaf children and adolescents aged 8 to 18 years old. The Spanish version of the KIDSCREEN-27 was adapted to SSL through the translation-back translation technique. The adapted questionnaire was then administered using a web tool to ensure complete access to study participants. Floor and ceiling effects were calculated. Structural and cultural validity were tested using exploratory and confirmatory factor analysis. Cronbach's α was used to assess internal consistency. The questionnaire was administered for a second time to the entire sample after 2 to 4 weeks (test-retest reliability). RESULTS In the SSL version of the KIDSCREEN-27, as in the original Spanish scale, five dimensions explained 59% of the variance. None of the participants obtained the minimum or maximum scores on the scale (floor and ceiling effect, respectively). Confirmatory factor analysis showed the goodness-of-fit of the factor solution with five dimensions of the SSL version. The Cronbach's α of both the total scale and of each of the distinct dimensions was above 0.75. The intra-class correlation coefficient of the test-retest scale was considered acceptable in all the dimensions. CONCLUSIONS The reliability and validity of the SSL version of the KIDSCREEN-27 are similar to those of the original Spanish version, providing a new tool for measuring HRQoL in deaf children and adolescents.

[1]  W. Mann,et al.  Psychological and physical well-being in hearing-impaired children. , 2007, International journal of pediatric otorhinolaryngology.

[2]  A. Urzúa,et al.  Propiedades Psicométricas del Cuestionario de Auto Reporte de la Calidad de Vida KIDSCREEN-27 en Adolescentes Chilenos , 2009 .

[3]  J. Fellinger,et al.  Mental health of deaf people , 2012, The Lancet.

[4]  P. Bentler,et al.  Cutoff criteria for fit indexes in covariance structure analysis : Conventional criteria versus new alternatives , 1999 .

[5]  C. Ãlvarez-Dardet,et al.  Comunidades sordas: ¿pacientes o ciudadanas? , 2011 .

[6]  J. Alegria,et al.  Reading mechanisms in orally educated deaf adults. , 2010, Journal of deaf studies and deaf education.

[7]  España,et al.  Ley Orgánica 15/1999, de 13 de diciembre, de protección de datos de carácter personal , 1999 .

[8]  B. Byrne.  Structural equation modeling with EQS : basic concepts, applications, and programming , 2000 .

[9]  J. Fellinger,et al.  Mental distress and quality of life in the hard of hearing , 2007, Acta psychiatrica Scandinavica.

[10]  Scott R. Smith,et al.  Deaf Sign Language Users, Health Inequities, and Public Health: Opportunity for Social Justice , 2011, Preventing chronic disease.

[11]  L. Rajmil,et al.  Desarrollo de la versión en español del KIDSCREEN: un cuestionario de calidad de vida para la población infantil y adolescente , 2005 .

[12]  J. Fellinger,et al.  An innovative and reliable way of measuring health-related quality of life and mental distress in the deaf community , 2005, Social Psychiatry and Psychiatric Epidemiology.

[13]  J. Fellinger,et al.  Mental distress and quality of life in a deaf population , 2005, Social Psychiatry and Psychiatric Epidemiology.

[14]  M. Huber.  Health-related quality of life of Austrian children and adolescents with cochlear implants. , 2005, International journal of pediatric otorhinolaryngology.

[15]  L. Rajmil,et al.  Fiabilidad y validez de la versin espaola del KIDSCREEN-52 para poblacin infantil y adolescente , 2008 .

[16]  P. Auquier,et al.  The KIDSCREEN-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries , 2007, Quality of Life Research.

[17]  P. Auquier,et al.  Testing the structural and cross-cultural validity of the KIDSCREEN-27 quality of life questionnaire , 2007, Quality of Life Research.

[18]  J. Fellinger,et al.  Mental health and quality of life in deaf pupils , 2008, European Child & Adolescent Psychiatry.

[19]  Salvador Trinxet Llorca.  Ley Orgánica de Protección de Datos de Carácter Personal , 2014 .

[20]  H TSCHABOLD,et al.  [The deaf school child]. , 1952, Pro Infirmis.

[21]  P. Auquier,et al.  KIDSCREEN-52 quality-of-life measure for children and adolescents , 2005, Expert review of pharmacoeconomics & outcomes research.

[22]  P. Auquier,et al.  Quality of life in children and adolescents: a European public health perspective , 2005, Sozial- und Präventivmedizin.

[23]  Estrada,et al.  Calidad de vida relacionada con la salud (CVRS) en la infancia y la adolescencia: revisión de la bibliografía y de los instrumentos adaptados en España , 2001 .

[24]  R. Martínez.  El Real Decreto 1720/2007, de 21 de diciembre, por el que se aprueba el Reglamento de desarrollo de la Ley Orgánica 15/ 1999, de 13 de diciembre, de Protercción de Datos de Carácter Personal: aspectos clave , 2008 .

[25]  Bencie Woll,et al.  The Linguistics of British Sign Language: An Introduction , 1999 .

[26]  Samuel S. Silva,et al.  There is More to Color Scales than Meets the Eye: A Review on the Use of Color in Visualization , 2007, 2007 11th International Conference Information Visualization (IV '07).