Bridging Organizational Divides in Health Care: An Ecological View of Health Information Exchange

Background The fragmented nature of health care delivery in the United States leads to fragmented health information and impedes patient care continuity and safety. Technologies to support interorganizational health information exchange (HIE) are becoming more available. Understanding how HIE technology changes health care delivery and affects people and organizations is crucial to long-term successful implementation. Objective Our study investigated the impacts of HIE technology on organizations, health care providers, and patients through a new, context-aware perspective, the Regional Health Information Ecology. Methods We conducted more than 180 hours of direct observation, informal interviews during observation, and 9 formal semi-structured interviews. Data collection focused on workflow and information flow among health care team members and patients and on health care provider use of HIE technology. Results We structured the data analysis around five primary information ecology components: system, locality, diversity, keystone species, and coevolution. Our study identified three main roles, or keystone species, involved in HIE: information consumers, information exchange facilitators, and information repositories. The HIE technology impacted patient care by allowing providers direct access to health information, reducing time to obtain health information, and increasing provider awareness of patient interactions with the health care system. Developing the infrastructure needed to support HIE technology also improved connections among information technology support groups at different health care organizations. Despite the potential of this type of technology to improve continuity of patient care, HIE technology adoption by health care providers was limited. Conclusions To successfully build a HIE network, organizations had to shift perspectives from an ownership view of health data to a continuity of care perspective. To successfully integrate external health information into clinical work practices, health care providers had to move toward understanding potential contributions of external health information. Our study provides a foundation for future context-aware development and implementation of HIE technology. Integrating concepts from the Regional Health Information Ecology into design and implementation may lead to wider diffusion and adoption of HIE technology into clinical work.

[1]  Hoangmai H Pham,et al.  Care patterns in Medicare and their implications for pay for performance. , 2007, The New England journal of medicine.

[2]  Doug B. Fridsma Electronic Health Records: The HHS Perspective , 2012, Computer.

[3]  Paul Dourish,et al.  What we talk about when we talk about context , 2004, Personal and Ubiquitous Computing.

[4]  Jakob E. Bardram,et al.  “I love the system—I just don't use it!” , 1997, GROUP.

[5]  K. Mandl,et al.  Patients treated at multiple acute health care facilities: quantifying information fragmentation. , 2010, Archives of internal medicine.

[6]  J. Kendall Axial Coding and the Grounded Theory Controversy , 1999, Western journal of nursing research.

[7]  Cliff Lampe,et al.  Coordinating the ordinary: social information uses of Facebook by adults , 2011, iConference.

[8]  M. Patton Qualitative research and evaluation methods , 1980 .

[9]  Kim M. Unertl,et al.  Health information exchange technology on the front lines of healthcare: workflow factors and patterns of use , 2011, J. Am. Medical Informatics Assoc..

[10]  Robert M Wachter,et al.  Patient safety at ten: unmistakable progress, troubling gaps. , 2010, Health affairs.

[11]  Jean Gayton Carroll,et al.  Crossing the Quality Chasm: A New Health System for the 21st Century , 2002 .

[12]  S. Altman,et al.  COMMITTEE ON THE CHANGING MARKET, MANAGED CARE, AND THE FUTURE VIABILITY OF SAFETY NET PROVIDERS , 2000 .

[13]  Anind K. Dey,et al.  Understanding and Using Context , 2001, Personal and Ubiquitous Computing.

[14]  K. Charmaz,et al.  Constructing Grounded Theory: A practical guide through qualitative analysis Kathy Charmaz Constructing Grounded Theory: A practical guide through qualitative analysis Sage 224 £19.99 0761973532 0761973532 [Formula: see text]. , 2006, Nurse researcher.

[15]  Steven R. Simon,et al.  Case Report: Community-wide Implementation of Health Information Technology: The Massachusetts eHealth Collaborative Experience , 2009, J. Am. Medical Informatics Assoc..

[16]  Avery S. Hart,et al.  America's Health Care Safety Net: Intact but Endangered , 2000 .

[17]  Craig Gibson Student Engagement and Information Literacy , 2006 .

[18]  Janet Marchibroda The impact of health information technology on collaborative chronic care management. , 2008, Journal of managed care pharmacy : JMCP.

[19]  Alma Leora Culén,et al.  Tablet PCs – An Assistive Technology for Students with Reading Difficulties? , 2012, ACHI 2012.

[20]  D. Blumenthal Launching HITECH. , 2010, The New England journal of medicine.

[21]  Michael Gillam,et al.  Clinical information systems: instant ubiquitous clinical data for error reduction and improved clinical outcomes. , 2004, Academic emergency medicine : official journal of the Society for Academic Emergency Medicine.

[22]  D. Bates,et al.  What Affects Clinicians’ Usage of Health Information Exchange? , 2011, Applied Clinical Informatics.

[23]  P. Maurette,et al.  [To err is human: building a safer health system]. , 2002, Annales francaises d'anesthesie et de reanimation.

[24]  Grace Cheng,et al.  The shifting information landscape : re-inventing the wheel or a whole new frontier for librarians , 2000 .

[25]  T. Brooks Information Ecologies: Using Technology with Heart , 1999 .

[26]  S. Altman,et al.  America's Health Care Safety Net: Intact but Endangered , 2000 .

[27]  T. Bodenheimer Coordinating care--a perilous journey through the health care system. , 2008, The New England journal of medicine.

[28]  Gilad J. Kuperman,et al.  Health-information exchange: why are we doing it, and what are we doing? , 2011, J. Am. Medical Informatics Assoc..

[29]  Jill Palzkill Woelfer,et al.  Value considerations in an information ecology: Printed materials, service providers and homeless young people , 2008, ASIST.

[30]  L. Kohn,et al.  To Err Is Human : Building a Safer Health System , 2007 .

[31]  Alastair Baker,et al.  Crossing the Quality Chasm: A New Health System for the 21st Century , 2001, BMJ : British Medical Journal.

[32]  Kevin B. Johnson,et al.  A Regional Health Information Exchange: Architecture and Implementation , 2008, AMIA.

[33]  Joshua R. Vest,et al.  More than just a question of technology: Factors related to hospitals' adoption and implementation of health information exchange , 2010, Int. J. Medical Informatics.

[34]  Mark A. Parsons,et al.  A conceptual framework for managing very diverse data for complex, interdisciplinary science , 2011, J. Inf. Sci..

[35]  James B. Rebitzer,et al.  Organizational Fragmentation and Care Quality in the U.S. Health Care System , 2008, The journal of economic perspectives : a journal of the American Economic Association.

[36]  J. Kralewski,et al.  Health information exchange: participation by Minnesota primary care practices. , 2010, Archives of Internal Medicine.

[37]  L. Schilling,et al.  Systematic Review of Health Information Exchange in Primary Care Practices , 2010, The Journal of the American Board of Family Medicine.

[38]  Kim M. Unertl,et al.  Health information exchange usage in emergency departments and clinics: the who, what, and why , 2011, J. Am. Medical Informatics Assoc..

[39]  C. Clancy Ten Years After To Err Is Human , 2009, American journal of medical quality : the official journal of the American College of Medical Quality.

[40]  C. Pope,et al.  Qualitative Research in Health Care , 1999 .

[41]  A. Strauss,et al.  Grounded theory , 2017 .

[42]  J S Ash,et al.  Order Creation and Communication in Healthcare , 2003, Methods of Information in Medicine.

[43]  Kate Williams,et al.  Following the "community" thread from sociology to information behavior and informatics: Uncovering theoretical continuities and research opportunities , 2012, J. Assoc. Inf. Sci. Technol..

[44]  S. Sofaer Qualitative methods: what are they and why use them? , 1999, Health services research.

[45]  R. Edwards,et al.  What Is Qualitative Interviewing , 2013 .

[46]  David Blumenthal,et al.  Implementation of the federal health information technology initiative. , 2011, The New England journal of medicine.

[47]  G. Guyatt,et al.  Users' guides to the medical literature. , 1993, JAMA.

[48]  Andrew Walker,et al.  The dGrail toolkit for iterative deterministic record linkage. , 2007, AMIA ... Annual Symposium proceedings. AMIA Symposium.

[49]  D. Brailer Interoperability: the key to the future health care system. , 2005, Health affairs.

[50]  Lonnie Blevins,et al.  The Indiana network for patient care: a working local health information infrastructure. An example of a working infrastructure collaboration that links data from five health systems and hundreds of millions of entries. , 2005, Health affairs.

[51]  K Ann McKibbon,et al.  Health Information Technology to Facilitate Communication Involving Health Care Providers, Caregivers, and Pediatric Patients: A Scoping Review , 2010, Journal of medical Internet research.

[52]  Gerard A Tobin,et al.  Methodological rigour within a qualitative framework. , 2004, Journal of advanced nursing.

[53]  Herbert S. Lin,et al.  Computational Technology for Effective Health Care: Immediate Steps and Strategic Directions , 2009 .

[54]  N. Mauthner,et al.  Reflexive Accounts and Accounts of Reflexivity in Qualitative Data Analysis , 2003 .

[55]  Joanna Saad-Sulonen,et al.  eParticipation as an information ecology: a micro-scale examination of two cases in Helsinki , 2010, OZCHI '10.

[56]  Steve Benford,et al.  Pursuing Leisure: Reflections on Theme Park Visiting , 2012, Computer Supported Cooperative Work (CSCW).

[57]  Genna R. Cohen,et al.  Are Electronic Medical Records Helpful for Care Coordination? Experiences of Physician Practices , 2010, Journal of General Internal Medicine.

[58]  Kim M. Unertl,et al.  Research Paper: Describing and Modeling Workflow and Information Flow in Chronic Disease Care , 2009, J. Am. Medical Informatics Assoc..

[59]  Joshua R. Vest,et al.  Factors motivating and affecting health information exchange usage , 2011, J. Am. Medical Informatics Assoc..

[60]  D. Cook,et al.  Users' guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? Evidence-Based Medicine Working Group. , 2000, JAMA.

[61]  Kathryn J. Ahern,et al.  Ten Tips for Reflexive Bracketing , 1999 .

[62]  Johnny Saldaña,et al.  The Coding Manual for Qualitative Researchers , 2009 .

[63]  Lisa M. Schilling,et al.  Health information exchange in small-to-medium sized family medicine practices: Motivators, barriers, and potential facilitators of adoption , 2010, Int. J. Medical Informatics.

[64]  D. Bates,et al.  Patients’ Attitudes Toward Electronic Health Information Exchange: Qualitative Study , 2009, Journal of medical Internet research.