Estudo de apoio ao desenvolvimento de um sistema com base na Web para a gestão de informação clínica em hemofilia

The Information and Communication Technologies associated with the Internet have today an important role for data quality and fast data transfer in the scope of the healthcare in general and haemophilia care in particular. As such, the purpose of this work is to study the potentialities of those technologies in the registry and transference of home treatment records, as well as, to study the feasibility of an integrated Information System, to manage clinical information of this specific pathology, in haematology services of the Coimbra Hospital Center.

[1]  P. Levine,et al.  The benefits of comprehensive care of hemophilia: a five-year study of outcomes. , 1984, American journal of public health.

[2]  K. Pasi,et al.  Haemophilias A and B , 2003, The Lancet.

[3]  R. I. Baker,et al.  The impact of information technology on haemophilia care , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

[4]  N Heddle,et al.  Handheld computers and paper diaries for documenting the use of factor concentrates used in haemophilia home therapy: a qualitative study , 2005, Haemophilia : the official journal of the World Federation of Hemophilia.

[5]  P. Collins,et al.  Pilot study of an Internet‐based electronic patient treatment record and communication system for haemophilia, Advoy.com , 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

[6]  S. Israels,et al.  Home management of haemophilia , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.