Reporting health‐related quality of life scores to physicians during routine follow‐up visits of pediatric oncology patients: Is it effective?

The aim of the current study is to investigate the effectiveness of an intervention that provides health‐related quality of life (HRQOL) scores of the patient (the QLIC‐ON PROfile) to the pediatric oncologist.

[1]  S. Detmar,et al.  Health‐related quality of life after completion of successful treatment for childhood cancer , 2011, Pediatric blood & cancer.

[2]  Lotte Haverman,et al.  Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application , 2011, BMC pediatrics.

[3]  Lotte Haverman,et al.  Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice. , 2010, Patient education and counseling.

[4]  R. Epstein,et al.  How does communication heal? Pathways linking clinician-patient communication to health outcomes. , 2009, Patient education and counseling.

[5]  Frank J. Snoek,et al.  Monitoring and Discussing Health-Related Quality of Life in Adolescents With Type 1 Diabetes Improve Psychosocial Well-Being , 2008, Diabetes Care.

[6]  P. Auquier,et al.  The KIDSCREEN-52 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. , 2008, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[7]  F. Oort,et al.  Longitudinal assessment of health‐related quality of life in preschool children with non‐CNS cancer after the end of successful treatment , 2008, Pediatric blood & cancer.

[8]  H. Duivenvoorden,et al.  Effectiveness of health-related quality-of-life measurement in clinical practice: a prospective, randomized controlled trial in patients with chronic liver disease and their physicians , 2008, Quality of Life Research.

[9]  G. Guyatt,et al.  The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature , 2008, Quality of Life Research.

[10]  S. van Dulmen,et al.  Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups , 2007, BMC pediatrics.

[11]  H. Caron,et al.  Course of Life of Survivors of Childhood Cancer Is Related to Quality of Life in Young Adulthood , 2007, Journal of psychosocial oncology.

[12]  Michael Erhart,et al.  Measuring subjective health in children and adolescents: results of the European KIDSCREEN/DISABKIDS Project , 2007, Psycho-social medicine.

[13]  E. Verrips,et al.  Health-related quality of life problems of children aged 8–11 years with a chronic disease , 2007, Developmental neurorehabilitation.

[14]  M. Essink‐bot,et al.  Reliability and validity of the Infant and Toddler Quality of Life Questionnaire (ITQOL) in a general population and respiratory disease sample , 2006, Quality of Life Research.

[15]  B. Clarridge,et al.  Barriers to the integration of psychosocial factors in medicine: results of a national survey of physicians. , 2006, Journal of the American Board of Family Medicine : JABFM.

[16]  H. Caron,et al.  Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment , 2006, Pediatric blood & cancer.

[17]  M. Mills,et al.  Cancer patients' satisfaction with communication, information and quality of care in a UK region. , 2005, European journal of cancer care.

[18]  Joanne Greenhalgh,et al.  The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? , 2005, Social science & medicine.

[19]  J. Varni,et al.  The PedsQL™ in Pediatric Cancer Pain: A Prospective Longitudinal Analysis of Pain and Emotional Distress , 2004, Journal of developmental and behavioral pediatrics : JDBP.

[20]  Galina Velikova,et al.  Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. , 2004, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[21]  Michael Seid,et al.  The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. , 2003, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[22]  N. Aaronson,et al.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial. , 2002, JAMA.

[23]  C. Darby.  Patient/parent assessment of the quality of care. , 2002, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[24]  F B Lammes,et al.  Doctor-patient communication and cancer patients' quality of life and satisfaction. , 2000, Patient education and counseling.

[25]  L. Carlson,et al.  Impact of computerized quality of life screening on physician behaviour and patient satisfaction in lung cancer outpatients , 2000, Psycho-oncology.

[26]  N K Aaronson,et al.  Quality of life assessment in daily clinical oncology practice: a feasibility study. , 1998, European journal of cancer.

[27]  J. M. McCoy,et al.  Improving patient quality of life with feedback to physicians about functional status , 1995, Journal of General Internal Medicine.

[28]  Henriette A. Delemarre-van de Waal,et al.  Monitoring and Discussing Health Related Quality of Life in adolescents with type 1 diabetes improves psychosocial well-being . A randomized controlled trial , 2008 .

[29]  K. Hoagwood,et al.  Do pediatricians think they are responsible for identification and management of child mental health problems? Results of the AAP periodic survey. , 2008, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[30]  M. Fekkes,et al.  Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1–5-year-old children , 2004, Quality of Life Research.

[31]  F. Oort,et al.  Satisfaction with the outpatient encounter: a comparison of patients' and physicians' views. , 2004, Journal of general internal medicine.

[32]  G. Bonsel,et al.  Reliability and validity of comprehensive health status measures in children: The Child Health Questionnaire in relation to the Health Utilities Index. , 2002, Journal of clinical epidemiology.

[33]  Roel Bosker,et al.  Multilevel analysis : an introduction to basic and advanced multilevel modeling , 1999 .