Collaboration and Coordination in the Context of Informal Care (CCCiC): Concepts, Methods, and Technologies

Increasing attention is currently paid to informal care and the physical, emotional, and psychological burden stemming from it. Research findings suggest that such a burden might be intensified when informal caregivers are at older ages. Aiming at reducing the burden associated with informal care, some research studies have focused on developing innovative technologies to support caregivers with their activities and responsibilities. These studies highlight the importance of understanding the many variables that characterise different care situations, emphasizing the relevance of user-centered and participatory design approaches. Following up the successful first edition of the CCCiC workshop held at the 2014 ACM CSCW conference in Baltimore, this workshop elaborates on the resulting roadmap for future research in the domain: concepts, methods, and technologies. This workshop seeks contributions exploring issues of collaboration and coordination for informal care addressing concepts emerging from field research, methodological challenges, work-in-progress, and the design and evaluation of technological solutions.

[1]  Norman Alm,et al.  Sociable TV: Exploring User-Led Interaction Design for Older Adults , 2007, EuroITV.

[2]  Scott E. Caplan,et al.  Bringing theory to research on computer-mediated comforting communication , 2007, Comput. Hum. Behav..

[3]  Tao Liu,et al.  Gait Analysis Using Wearable Sensors , 2012, Sensors.

[4]  Mike Martin,et al.  The burden of spousal caregiving: A preliminary psychometric evaluation of the German version of the Zarit Burden Interview , 2010, Aging & mental health.

[5]  Unfpa and HelpAge Ageing in the Twenty-First Century: A Celebration and A Challenge , 2012 .

[6]  Emanuela Sala,et al.  Older carers in the UK: are there really gender differences? New analysis of the individual sample of anonymised records from the 2001 UK Census. , 2009, Health & social care in the community.

[7]  William W. Gaver The Video Window: My Life with a Ludic System , 2009, Media Space 20+ Years of Mediated Life.

[8]  David Benyon Designing interactive systems : a comprehensive guide to HCI, UX and interaction design , 2013 .

[9]  Richard N. Jones,et al.  Effects of an automated telephone support system on caregiver burden and anxiety: findings from the REACH for TLC intervention study. , 2003, The Gerontologist.

[10]  Aparecido Fabiano,et al.  Technology for Work-Life Balance in Terms of Informal Care Work , 2013 .

[11]  M. Akrich,et al.  From Communities of Practice to Epistemic Communities: Health Mobilizations on the Internet , 2010 .

[12]  Barbara Czarniawska Shadowing: And Other Techniques for Doing Fieldwork in Modern Societies , 2007 .

[13]  L Magnusson,et al.  Supporting family carers through the use of information and communication technology--the EU project ACTION. , 2002, International journal of nursing studies.

[14]  Patricia Langenberg,et al.  Gender differences in burden and depression among informal caregivers of demented elders in the community , 2002, International journal of geriatric psychiatry.

[15]  G.A.L. Meijer,et al.  Methods to assess physical activity with special reference to motion sensors and accelerometers , 1991, IEEE Transactions on Biomedical Engineering.

[16]  Sun Young Park,et al.  Caring for caregivers: designing for integrality , 2013, CSCW.

[17]  Inmaculada Plaza,et al.  Mobile applications in an aging society: Status and trends , 2011, J. Syst. Softw..

[18]  Mark S. Ackerman,et al.  The Intellectual Challenge of CSCW: The Gap Between Social Requirements and Technical Feasibility , 2000, Hum. Comput. Interact..

[19]  Colin Potts,et al.  Design of Everyday Things , 1988 .

[20]  Gerhard Fischer,et al.  Design, adoption, and assessment of a socio-technical environment supporting independence for persons with cognitive disabilities , 2008, CHI.

[21]  Matthias Kranz,et al.  GymSkill: A personal trainer for physical exercises , 2012, 2012 IEEE International Conference on Pervasive Computing and Communications.

[22]  R. Montgomery,et al.  Caregiving as a Process of Changing Identity: Implications for Caregiver Support , 2009 .

[23]  Myriam Lewkowicz,et al.  Designing Social Support Online Services for Communities of Family Caregivers , 2009, BIS.

[24]  J. Brach,et al.  Using activity monitors to measure physical activity in free-living conditions. , 2006, Physical therapy.

[25]  Lennart Magnusson,et al.  Developing a model of participatory research involving researchers, practitioners, older people and their family carers , 2006 .

[26]  Dan Saffer Designing gestural interfaces , 2009 .

[27]  Hend Suliman Al-Khalifa,et al.  Touch-Based Mobile Phone Interface Guidelines and Design Recommendations for Elderly People: A Survey of the Literature , 2012, ICONIP.

[28]  Michitaka Hirose,et al.  Elderly User Evaluation of Mobile Touchscreen Interactions , 2011, INTERACT.

[29]  Eric Baumer,et al.  Staccato social support in mobile health applications , 2014, CHI.

[30]  Aliaksei Andrushevich,et al.  RelaxedCare - Connecting people in care situations: User involvement to collect informal caregivers needs , 2015, AAATE Conf..

[31]  Geraldine Fitzpatrick,et al.  YouTube and intergenerational communication: the case of Geriatric1927 , 2009, Universal Access in the Information Society.

[32]  Constantine Stephanidis,et al.  Universal access in the information society , 1999, HCI.

[33]  Eva Kahana,et al.  Specifying caregiver outcomes: gender and relationship aspects of caregiving strain. , 1989, The Gerontologist.

[34]  M. Chambers,et al.  User-friendly technology to help family carers cope. , 2002, Journal of advanced nursing.

[35]  Jennifer Preece,et al.  Empathic communities: reaching out across the Web , 1998, INTR.

[36]  Jan O. Borchers A pattern approach to interaction design , 2001, DIS '00.

[37]  Nigamanth Sridhar,et al.  Utilization of a wrist-mounted accelerometer to count movement repetitions , 2012, 2012 Fourth International Conference on Communication Systems and Networks (COMSNETS 2012).