Telehealth and Family Caregiving: Developments in Research, Education, Policy, and Practice

One of the most exciting developments in the field of telehealth has been the use of telecommunication technologies to provide health information, education, and ­support to family caregivers of individuals with chronic illnesses. Telehealth has been defined as the use of telecommunications and information technologies to provide access to health information and services across a geographical distance, including (but not limited to) consultation, assessment, intervention, and follow-up programs to ensure maintenance of treatment effects. Internet, point-to-point videoconferencing, e-mail, telephone, biosensor, and virtual reality interactions between providers and family caregivers are all subsumed under the definition of telehealth (Glueckauf & Ketterson, 2004; Glueckauf, Pickett, Ketterson, Loomis, & Rozensky, 2003).

[1]  J. Seeley,et al.  Worksite-based internet multimedia program for family caregivers of persons with dementia. , 2005, The Gerontologist.

[2]  Jeffrey S. Loomis,et al.  Preparation for the delivery of telehealth services: A self-study framework for expansion of practice. , 2003 .

[3]  Jeffrey S. Loomis,et al.  Online support and education for dementia caregivers: overview, utilization, and initial program evaluation. , 2004, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[4]  R. King,et al.  Telephone Group Intervention for Older Stroke Caregivers , 2003, Topics in stroke rehabilitation.

[5]  R. Toseland,et al.  Telephone Caregiver Support Groups , 2005 .

[6]  P. Whitten,et al.  E-Health, telehealth, and telemedicine : a guide to start-up and success , 2001 .

[7]  C. Safran,et al.  Baby CareLink: using the internet and telemedicine to improve care for high-risk infants. , 2000, Pediatrics.

[8]  C. Stine,et al.  Telephone-Based Cognitive-Behavioral Intervention for Distressed Rural Dementia Caregivers , 2007 .

[9]  W. Haley,et al.  Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. , 1987, Psychology and aging.

[10]  R. Kobb,et al.  Emerging Technology for At‐Risk Chronically Ill Veterans , 2004, Journal for healthcare quality : official publication of the National Association for Healthcare Quality.

[11]  Robert L. Glueckauf,et al.  Research on telehealth and chronic medical conditions: Critical review, key issues, and future directions. , 2002 .

[12]  J. Berry,et al.  Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. , 2008, Archives of physical medicine and rehabilitation.

[13]  R. Glueckauf,et al.  Telehealth Interventions for Individuals With Chronic Illness: Research Review and Implications for Practice. , 2004 .

[14]  G. Demiris,et al.  Rural backwaters or front-runners? Rural telehealth in the vanguard of psychology practice. , 2006 .

[15]  Sheryl Connell,et al.  Self-Directed Behavioral Family Intervention for Parents of Oppositional Children in Rural and Remote Areas , 1997, Behavior modification.

[16]  J. Grant,et al.  Social problem-solving partnerships with family caregivers. , 1999, Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses.

[17]  L. Gitlin,et al.  Evaluation of a Telephone-Based Support Group Intervention for Female Caregivers of Community-Dwelling Individuals With Dementia , 2007, American journal of Alzheimer's disease and other dementias.

[18]  Elsa Marziali,et al.  Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. , 2006, The Gerontologist.

[19]  C. McBride,et al.  Facilitating research participation and improving quality of life for African American prostate cancer survivors and their intimate partners , 2007, Cancer.

[20]  Richard Schulz,et al.  E-care: a telecommunications technology intervention for family caregivers of dementia patients. , 2007, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[21]  Susannah Fox,et al.  Internet Health Resources , 2003 .

[22]  P. Carney,et al.  Videoconferencing-based family counseling for rural teenagers with epilepsy: Phase 1 findings. , 2002 .

[23]  S. Lauderdale,et al.  Comparative Outcomes of Two Distance-Based Interventions for Male Caregivers of Family Members With Dementia , 2007, American journal of Alzheimer's disease and other dementias.

[24]  N. Finch,et al.  The effect of psychosocial nursing intervention on the mood state of patients with implantable cardioverter defibrillators and their caregivers. , 1997, Progress in cardiovascular nursing.

[25]  Diane G Schwartz,et al.  Information-seeking behavior changes in community-based teaching practices. , 2004, Journal of the Medical Library Association : JMLA.

[26]  B. Stamm.  Rural behavioral health care: An interdisciplinary guide. , 2003 .

[27]  Santosh Krishna,et al.  Internet-enabled interactive multimedia asthma education program: a randomized trial. , 2003, Pediatrics.

[28]  B. Stamm.  Bridging the rural-urban divide with telehealth and telemedicine. , 2003 .

[29]  J. Shaw,et al.  Health care in the information age. , 2000, Managed care.

[30]  A. King,et al.  Effects of moderate-intensity exercise on physiological, behavioral, and emotional responses to family caregiving: a randomized controlled trial. , 2002, The journals of gerontology. Series A, Biological sciences and medical sciences.

[31]  Jeffrey S. Loomis,et al.  Alzheimer's Caregiver Support Online: lessons learned, initial findings and future directions. , 2003, NeuroRehabilitation.

[32]  B. Given,et al.  Improving depressive symptoms among caregivers of patients with cancer: results of a randomized clinical trial. , 2001, Oncology nursing forum.

[33]  Ronald W. Toseland,et al.  An Introduction to Group Work Practice , 1984 .

[34]  R. Toseland,et al.  The effectiveness of a telephone support program for caregivers of frail older adults. , 2006, The Gerontologist.

[35]  Telephone Intervention With Family Caregivers of Stroke Survivors After Rehabilitation , 2002 .

[36]  Michelle S. Bourgeois,et al.  Alzheimer's Rural Care Healthline: Linking Rural Caregivers to Cognitive-Behavioral Intervention for Depression. , 2005 .

[37]  J. Monnier,et al.  Patient and caregiver interest in internet-based cancer services. , 2002, Cancer practice.

[38]  Richard N. Jones,et al.  Effects of an automated telephone support system on caregiver burden and anxiety: findings from the REACH for TLC intervention study. , 2003, The Gerontologist.

[39]  R Brown,et al.  Distance education and caregiver support groups: comparison of traditional and telephone groups. , 1999, The Journal of head trauma rehabilitation.

[40]  R. Schulz,et al.  Caregiving for children and adults with chronic conditions: introduction to the special issue. , 1998, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[41]  S. Czaja,et al.  The effect of a family therapy and technology-based intervention on caregiver depression. , 2003, The Gerontologist.

[42]  K. Buckwalter,et al.  A comparison of in-home and telephone-based skill training interventions with caregivers of persons with demetia. , 2004 .

[43]  Christopher R. Wolfe,et al.  Telehealth Interventions in Rehabilitation Psychology: Postcards From the Edge. , 2005 .

[44]  Bartley P Griffith,et al.  An internet-based intervention to improve psychosocial outcomes in heart transplant recipients and family caregivers: development and evaluation. , 2004, The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation.

[45]  Roxanne Pickett Hauber,et al.  Telerehabilitation Support for Families at Home Caring for Individuals in Prolonged States of Reduced Consciousness , 2002, The Journal of head trauma rehabilitation.

[46]  B. Stewart,et al.  Family caregiving skill: development of the concept. , 2000, Research in nursing & health.