To Prevent and Handle Positional Deformational Skull Asymmetry in Infants —A Survey on Child Health Care Nurses and Parents’ Perception of the Given Information

Background: Infants with developmental skull asymmetry referred to the physiotherapist have increased since 1990. At the physiotherapy clinic the parents often claim that they did not get enough or unclear information from the Health Care Centre. Aim: To investigate where a possible gap between parents and nurses comprehension is, and also to give proposals how to achieve more effective information. Method: A survey with quantitative approach, questionnaires were distributed to nurses and parents. Results: 84% of the nurses totally agreed that they inform all parents about preventative intervention. 98% of the nurses totally agreed that they inform about tummy time and 85% stated that they inform about the variation of head position. There were significant differences between nurses and parents’ perception regarding optimal time of receiving information, parents estimated that it was provided late. Only 19% of the nurses totally agreed that the routines were good enough. Conclusion: This study indicates that nurses inform but the parents do not always comprehend the information or understand the importance. Only a fifth of the nurses totally agreed that the routines are good enough, this indicates that better routines are needed. The nurses found it easier to give preventative information than giving information when a skull asymmetry had developed.

[1]  H. Lagercrantz,et al.  Updated Swedish advice on reducing the risk of sudden infant death syndrome , 2015, Acta paediatrica.

[2]  P. Pirttiniemi,et al.  Cranial shape, size and cervical motion in normal newborns. , 2014, Early human development.

[3]  R. Sauve,et al.  The Incidence of Positional Plagiocephaly: A Cohort Study , 2013, Pediatrics.

[4]  L. Tell,et al.  The Physical Therapy Assessment and Management of Infants with Congenital Muscular Torticollis. A Survey and a Suggested Assessment Protocol for CMT , 2013 .

[5]  Freda Lennartsson Testing guidelines for child health care nurses to prevent nonsynostotic plagiocephaly: a Swedish pilot study. , 2011, Journal of pediatric nursing.

[6]  T. Luerssen,et al.  Prevention and management of positional skull deformities in infants. American Academy of Pediatrics Committee on Practice and Ambulatory Medicine, Section on Plastic Surgery and Section on Neurological Surgery. , 2003, Pediatrics.

[7]  Anne H. Zachry,et al.  Caregiver awareness of prone play recommendations. , 2011, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[8]  A. Koren,et al.  Parental information and behaviors and provider practices related to tummy time and back to sleep. , 2010, Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners.

[9]  H. Nishikawa,et al.  Changing referral patterns to a designated craniofacial centre over a four-year period. , 2010, Journal of Plastic, Reconstructive & Aesthetic Surgery.

[10]  J. Kurinczuk,et al.  Twins born following assisted reproductive technology: perinatal outcome and admission to hospital. , 2009, Human reproduction.

[11]  E. Beckung,et al.  Are infants with torticollis at risk of a delay in early motor milestones compared with a control group of healthy infants? , 2009, Developmental medicine and child neurology.

[12]  Mark Proctor,et al.  Diagnosis and management of deformational plagiocephaly. , 2009, Journal of neurosurgery. Pediatrics.

[13]  G. Rogers,et al.  Predictors of Severity in Deformational Plagiocephaly , 2009, The Journal of craniofacial surgery.

[14]  J. Mulliken,et al.  The Role of Congenital Muscular Torticollis in the Development of Deformational Plagiocephaly , 2009, Plastic and reconstructive surgery.

[15]  P. Helders,et al.  Risk Factors for Deformational Plagiocephaly at Birth and at 7 Weeks of Age: A Prospective Cohort Study , 2007, Pediatrics.

[16]  L. Dudek-Shriber,et al.  The Effects of Prone Positioning on the Quality and Acquisition of Developmental Milestones in Four-Month-Old Infants , 2007, Pediatric physical therapy : the official publication of the Section on Pediatrics of the American Physical Therapy Association.

[17]  J. Thompson,et al.  Sudden infant death syndrome: risk factors for infants found face down differ from other SIDS cases. , 2006, The Journal of pediatrics.

[18]  M. Chariker,et al.  Positional plagiocephaly: pathogenesis, diagnosis, and management. , 2006, The Journal of the Kentucky Medical Association.

[19]  P. Hummel,et al.  IMPACTING INFANT HEAD SHAPES , 2005, Advances in neonatal care : official journal of the National Association of Neonatal Nurses.

[20]  S. Scott-Findlay,et al.  Tummy time! Preventing unwanted effects of the "Back to Sleep" campaign. , 2005, AWHONN lifelines.

[21]  Nicholas S Payne,et al.  Conveying the Message About Optimal Infant Positions , 2005, Physical & occupational therapy in pediatrics.

[22]  J. Losee,et al.  Deformational plagiocephaly: diagnosis, prevention, and treatment. , 2005, Clinics in plastic surgery.

[23]  C. McGarvey,et al.  Factors relating to the infant’s last sleep environment in sudden infant death syndrome in the Republic of Ireland , 2003, Archives of disease in childhood.

[24]  B. Hutchison,et al.  Determinants of nonsynostotic plagiocephaly: a case-control study. , 2003, Pediatrics.

[25]  W. Peitsch,et al.  Incidence of cranial asymmetry in healthy newborns. , 2002, Pediatrics.

[26]  Kevin M Kelly,et al.  Multiple-birth infants at higher risk for development of deformational plagiocephaly: II. is one twin at greater risk? , 2002, Pediatrics.

[27]  R. Jonsell [Infants should sleep in supine position. The risk of skull deformities can be prevented]. , 1999, Läkartidningen.

[28]  J L Marsh,et al.  Observations on a recent increase in plagiocephaly without synostosis. , 1996, Pediatrics.

[29]  Louis C. Argenta,et al.  An Increase in Infant Cranial Deformity with Supine Sleeping Position , 1996, The Journal of craniofacial surgery.

[30]  K. Beard,et al.  Play position is influenced by knowledge of SIDS sleep position recommendations , 1995, Journal of paediatrics and child health.

[31]  C. Emery The determinants of treatment duration for congenital muscular torticollis. , 1994, Physical therapy.

[32]  J. Gaiser,et al.  Congenital muscular torticollis: results of conservative management with long-term follow-up in 85 cases. , 1987, Archives of physical medicine and rehabilitation.

[33]  M. Sakanoue [Sudden infant death syndrome]. , 1985, [Kango gijutsu] : [Nursing technique].