Strength through adversity: Bereaved cancer carers' accounts of rewards and personal growth from caring

ABSTRACT Objective: Many studies have identified negative and distressing consequences experienced by informal cancer carers, but less attention has been given to positive and beneficial aspects of caring. This qualitative study examined the positive aspects of caring as subjectively constructed by bereaved informal cancer carers, a group of individuals who are in a position to make sense of their caring experiences as a coherent whole. Method: Twenty-three bereaved informal cancer carers were interviewed, and their accounts were analyzed using a thematic analytical approach from a phenomenological perspective. Results: The participants were able to identify positive and beneficial aspects of caring. These included the discovery of personal strength, through adversity, acceptance, and necessity; the deepening of their relationship with the person for whom they cared; and personal growth through altered relationships with others and altered perspectives on living. Many participants gave accounts of focusing on these positive benefits when they reflected on their caring experiences. Significance of results: We concluded that benefit finding in the face of adverse events serves an important function in allowing individuals to incorporate difficult experiences into their worldview in a meaningful way, thus maintaining positive beliefs about the world. This has implications for the development of interventions for informal cancer carers and for those who are bereaved following caring.

[1]  J. Ussher,et al.  Gender differences in the construction and experience of cancer care: The consequences of the gendered positioning of carers , 2008, Psychology & health.

[2]  B. Monroe,et al.  Introduction: unlocking resilience in palliative care , 2007 .

[3]  B. Monroe,et al.  Resilience in palliative care : achievement in adversity , 2007 .

[4]  D. Waldrop Caregiver grief in terminal illness and bereavement: a mixed-methods study. , 2007, Health & Social Work.

[5]  C. Carver,et al.  Benefit Finding in the Cancer Caregiving Experience , 2007, Psychosomatic medicine.

[6]  Deborah O'Connor,et al.  Self-identifying as a caregiver: Exploring the positioning process , 2007 .

[7]  K. Brazil,et al.  Caregiving at the end of life: Perspectives from spousal caregivers and care recipients , 2007, Palliative and Supportive Care.

[8]  H. Prigerson,et al.  Bereavement services for family caregivers: how often used, why, and why not. , 2007, Journal of palliative medicine.

[9]  G. Williamson The Sage Dictionary of Social Research Methods , 2007 .

[10]  Scott A. Baldwin,et al.  Continuing Bonds and Reconstructing Meaning: Mitigating Complications in Bereavement , 2006, Death studies.

[11]  P. Hudson How well do family caregivers cope after caring for a relative with advanced disease and how can health professionals enhance their support? , 2006, Journal of palliative medicine.

[12]  Victor Jupp,et al.  The SAGE Dictionary of Social Research Methods , 2006 .

[13]  S. Aranda,et al.  A psycho-educational intervention for family caregivers of patients receiving palliative care: a randomized controlled trial. , 2005, Journal of pain and symptom management.

[14]  K. Pakenham The positive impact of multiple sclerosis (MS) on carers: Associations between carer benefit finding and positive and negative adjustment domains , 2005, Disability and rehabilitation.

[15]  M. J. Kennedy,et al.  Psychological distress, fatigue, burden of care, and quality of life in primary caregivers of patients with breast cancer undergoing autologous bone marrow transplantation. , 2004, Oncology nursing forum.

[16]  Peter Hudson,et al.  Positive aspects and challenges associated with caring for a dying relative at home. , 2004, International journal of palliative nursing.

[17]  E. Horwitz,et al.  Psychoeducational group intervention for wives of men with prostate cancer , 2004, Psycho-oncology.

[18]  A. Stanton,et al.  The yellow brick road and the emerald city: benefit finding, positive reappraisal coping and posttraumatic growth in women with early-stage breast cancer. , 2003, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[19]  C. Sinding “Because you know there's an end to it”: Caring for a relative or friend with advanced breast cancer , 2003, Palliative and Supportive Care.

[20]  P. Koop,et al.  The Bereavement Experience Following Home-Based Family Caregiving for Persons with Advanced Cancer , 2003, Clinical nursing research.

[21]  S. Morris,et al.  Informal carers in cancer contexts. , 2002, European journal of cancer care.

[22]  Andrea A. Thornton Perceiving Benefits in the Cancer Experience , 2002, Journal of Clinical Psychology in Medical Settings.

[23]  K Soothill,et al.  Informal carers of cancer patients: what are their unmet psychosocial needs? , 2001, Health & social care in the community.

[24]  Carol Thomas,et al.  Companions through cancer: the care given by informal carers in cancer contexts. , 2001, Social science & medicine.

[25]  P. Carter A Not-so-Silent Cry for Help , 2001, Journal of holistic nursing : official journal of the American Holistic Nurses' Association.

[26]  S. Aranda,et al.  Home Caregivers of the Person With Advanced Cancer: AN AUSTRALIAN PERSPECTIVE , 2001, Cancer nursing.

[27]  Gary W. Taylor,et al.  Making Sense of S&M: A Discourse Analytic Account , 2001 .

[28]  G. Bonanno,et al.  Loss and human resilience , 2001 .

[29]  D. Parker,et al.  The Emotions and Coping Strategies of Caregivers of Family Members with a Terminal Cancer , 2001, Journal of palliative care.

[30]  B. Meyerowitz,et al.  Responses to Parental Cancer: A Clinical Perspective , 1999, Journal of Clinical Psychology in Medical Settings.

[31]  Philip Smith,et al.  Identifying the concerns of informal carers in palliative care , 1999, Palliative medicine.

[32]  B. Ternestedt,et al.  Involvement of Relatives in Care of the Dying in Different Care Cultures: Development of a Theoretical Understanding , 1999, Nursing science quarterly.

[33]  Christopher G. Davis,et al.  Making sense of loss and benefiting from the experience: two construals of meaning. , 1998, Journal of personality and social psychology.

[34]  Richard E. Boyatzis,et al.  Transforming Qualitative Information: Thematic Analysis and Code Development , 1998 .

[35]  M. Fallon,et al.  ABC of palliative care: Constipation and diarrhoea , 1997 .

[36]  Richard S. Lazarus,et al.  Fifty Years of the Research and theory of R.s. Lazarus: An Analysis of Historical and Perennial Issues , 1997 .

[37]  S. Folkman Introduction to the special section: use of bereavement narratives to predict well-being in gay men whose partners died of AIDS--four theoretical perspectives. , 1997, Journal of personality and social psychology.

[38]  B. Kramer Gain in the caregiving experience: where are we? What next? , 1997, The Gerontologist.

[39]  J. Nelson,et al.  Struggling to gain meaning: living with the uncertainty of breast cancer. , 1996, ANS. Advances in nursing science.

[40]  B. Germino,et al.  Cancer and the partner relationship: what is its meaning? , 1995, Seminars in oncology nursing.

[41]  Catherine C. Marshall,et al.  Designing Qualitative Research , 1989 .

[42]  K. Gergen THE SOCIAL CONSTRUCTIONIST MOVEMENT IN MODERN PSYCHOLOGY , 1985 .

[43]  R. Neimeyer Making Meaning in the Midst of Loss , 2006 .

[44]  G. Macfarlane,et al.  A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. , 2005, Social science & medicine.

[45]  Gretchen B. Rossman,et al.  Designing qualitative research, 3rd ed. , 1999 .

[46]  V. Leonard A Heideggerian Phenomenological Perspective on the Concept of Person , 1994 .

[47]  B. Fife The conceptualization of meaning in illness. , 1994, Social science & medicine.

[48]  K. Gergen Refiguring Self And Psychology , 1993 .

[49]  M. Larkin What about the carers? , 1989, Australian family physician.

[50]  Kenneth J. Gergen,et al.  Narrative and the Self as Relationship , 1988 .

[51]  V. Braun,et al.  Please Scroll down for Article Qualitative Research in Psychology Using Thematic Analysis in Psychology , 2022 .