Using experience‐based co‐design for the development of physical activity provision in rehabilitation and recovery mental health care

Despite advances in recovery focused mental health care, people with severe mental illness (SMI) experience multiple physical comorbidity compounded by unhealthy lifestyle behaviours including low levels of physical activity (Vancampfort et al. 2017; Walker et al. 2015). Responding to this, international policy is moving to include physical activity as part of fundamental care for people with severe mental illness (Pratt et al. 2016; Richardson et al. 2005). Incorporation of physical activity into mental health service provision should adopt an approach that is in keeping with best practice, recovery orientated guidelines of mental health service provision, with particular consideration shown to incorporating service users as partners in care plan development and delivery (Department of Health, 2001; Department of Health and Children, 2006). This article is protected by copyright. All rights reserved.

[1]  R. Whitley,et al.  Barriers to exercise among people with severe mental illnesses. , 2013, Psychiatric rehabilitation journal.

[2]  S. Riedel-Heller,et al.  Health habits of patients with schizophrenia , 2007, Social Psychiatry and Psychiatric Epidemiology.

[3]  G. Skrinar,et al.  Integrating physical activity into mental health services for persons with serious mental illness. , 2005, Psychiatric services.

[4]  N. Byrne,et al.  Energy Expenditure and Physical Activity in Clozapine use: Implications for Weight Management , 2006, The Australian and New Zealand journal of psychiatry.

[5]  Glenn Robert,et al.  Using Experience-based Co-design (EBCD) to improve the quality of healthcare: mapping where we are now and establishing future directions , 2014 .

[6]  T. McCann,et al.  Improving care planning and coordination for service users with medical co‐morbidity transitioning between tertiary medical and primary care services , 2017, Journal of psychiatric and mental health nursing.

[7]  P. Sienaert,et al.  A review of physical activity correlates in patients with bipolar disorder. , 2013, Journal of affective disorders.

[8]  Glenn Robert,et al.  Experience-based Co-design and Healthcare Improvement: Realizing Participatory Design in the Public Sector , 2014 .

[9]  A. Kilbourne,et al.  Nutrition and exercise behavior among patients with bipolar disorder. , 2007, Bipolar disorders.

[10]  Caroline R Richardson,et al.  Are adults with bipolar disorder active? Objectively measured physical activity and sedentary behavior using accelerometry. , 2014, Journal of affective disorders.

[11]  Jane M. Young,et al.  The effectiveness of clinical networks in improving quality of care and patient outcomes: a systematic review of quantitative and qualitative studies , 2016, BMC Health Services Research.

[12]  Kevin Patrick,et al.  Assessment of physical activity in middle-aged and older adults with schizophrenia , 2008, Schizophrenia Research.

[13]  A. Koyanagi,et al.  Chronic physical conditions, multimorbidity and physical activity across 46 low- and middle-income countries , 2017, International Journal of Behavioral Nutrition and Physical Activity.

[14]  Smith,et al.  Literature review using systematic approaches to explore physical illness co-morbidity among people with serious mental illness and related healthcare interventions , 2015 .

[15]  David E. Goodrich,et al.  Increasing US health plan coverage for exercise programming in community mental health settings for people with serious mental illness: a position statement from the Society of Behavior Medicine and the American College of Sports Medicine , 2016, Translational behavioral medicine.

[16]  Paul Bate,et al.  Experience-based design: from redesigning the system around the patient to co-designing services with the patient , 2006, Quality and Safety in Health Care.

[17]  S. Lawrie,et al.  Schizophrenia, poor physical health and physical activity: evidence-based interventions are required to reduce major health inequalities , 2013, British Journal of Psychiatry.

[18]  “Staying native”: coproduction in mental health services research , 2010 .

[19]  Andy Dearden,et al.  How was it for you? Experiences of participatory design in the UK health service , 2013 .

[20]  T. Scheewe,et al.  A systematic review of correlates of physical activity in patients with schizophrenia , 2012, Acta psychiatrica Scandinavica.

[21]  D. Vancampfort,et al.  How much physical activity do people with schizophrenia engage in? A systematic review, comparative meta-analysis and meta-regression , 2016, Schizophrenia Research.

[22]  Mark G. Davis,et al.  Participant and Public Involvement in Refining a Peer-Volunteering Active Aging Intervention: Project ACE (Active, Connected, Engaged) , 2016, The Gerontologist.

[23]  D. Vancampfort,et al.  Associations between sedentary behaviour and metabolic parameters in patients with schizophrenia , 2012, Psychiatry Research.

[24]  Linda R. Tropp,et al.  A meta-analytic test of intergroup contact theory. , 2006, Journal of personality and social psychology.

[25]  H. Möller,et al.  Physical illness in patients with severe mental disorders. I. Prevalence, impact of medications and disparities in health care , 2011, World psychiatry : official journal of the World Psychiatric Association.

[26]  C. Platania‐Phung,et al.  Placing physical activity in mental health care: a leadership role for mental health nurses. , 2011, International journal of mental health nursing.

[27]  B. Stubbs,et al.  How sedentary are people with psychosis? A systematic review and meta-analysis , 2016, Schizophrenia Research.

[28]  C. Gillmore,et al.  Experience-based co-design in an adult psychological therapies service , 2016, Journal of mental health.

[29]  B. Stubbs,et al.  Physical activity ameliorates the association between sedentary behavior and cardiometabolic risk among inpatients with schizophrenia: A comparison versus controls using accelerometry. , 2017, Comprehensive psychiatry.

[30]  B. Druss,et al.  Mortality in mental disorders and global disease burden implications: a systematic review and meta-analysis. , 2015, JAMA psychiatry.

[31]  T. McCann,et al.  Improving mental health service users’ with medical co-morbidity transition between tertiary medical hospital and primary care services: a qualitative study , 2016, BMC Health Services Research.

[32]  D. Vancampfort,et al.  Why moving more should be promoted for severe mental illness. , 2015, The lancet. Psychiatry.

[33]  G. Robert,et al.  Experience based co-design reduces formal complaints on an acute mental health ward , 2015, BMJ quality improvement reports.

[34]  D. Vancampfort,et al.  Physical activity and serious mental illness: A multidisciplinary call to action , 2014 .

[35]  J. McDevitt,et al.  Perceptions of barriers and benefits to physical activity among outpatients in psychiatric rehabilitation. , 2006, Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing.

[36]  Adrian H. Taylor,et al.  Exploring variability and perceptions of lifestyle physical activity among individuals with severe and enduring mental health problems: A qualitative study , 2007 .

[37]  T. Schuster,et al.  The CORE study protocol: a stepped wedge cluster randomised controlled trial to test a co-design technique to optimise psychosocial recovery outcomes for people affected by mental illness in the community mental health setting , 2015, BMJ Open.

[38]  Michael Larkin,et al.  On the Brink of Genuinely Collaborative Care , 2015, Qualitative health research.

[39]  E. Lavelle Mental health rehabilitation and recovery services in Ireland: a multicentre study of current service provision,characteristics of service users and outcomes for those with and without access to these services , 2012 .

[40]  J. Ribeiro,et al.  Physical Activity Advice Only or Structured Exercise Training and Association With HbA 1 c Levels in Type 2 Diabetes , 2011 .

[41]  Louise Locock,et al.  Testing accelerated experience-based co-design: a qualitative study of using a national archive of patient experience narrative interviews to promote rapid patient-centred service improvement , 2014 .

[42]  A. Tiedemann,et al.  Physical activity interventions for people with mental illness: a systematic review and meta-analysis. , 2014, The Journal of clinical psychiatry.

[43]  D. Vancampfort,et al.  Prevalence and predictors of treatment dropout from physical activity interventions in schizophrenia: a meta-analysis. , 2016, General hospital psychiatry.

[44]  D. Vancampfort,et al.  Dropout from exercise randomized controlled trials among people with depression: A meta-analysis and meta regression. , 2016, Journal of affective disorders.

[45]  Daniel Umpierre,et al.  Physical activity advice only or structured exercise training and association with HbA1c levels in type 2 diabetes: a systematic review and meta-analysis. , 2011, JAMA.

[46]  S. Rosenbaum,et al.  The Simple Physical Activity Questionnaire. , 2016, The lancet. Psychiatry.

[47]  Laura D. Ellingson,et al.  Sedentary Behavior Research Network (SBRN) – Terminology Consensus Project process and outcome , 2017, International Journal of Behavioral Nutrition and Physical Activity.

[48]  Ingrid Mur-Veeman,et al.  Bringing user experience to healthcare improvement: the concepts, methods and practices of experience-based design , 2008, International Journal of Integrated Care.

[49]  Jennifer Hayes,et al.  Physical activity levels of persons with mental illness attending psychiatric rehabilitation programs , 2009, Schizophrenia Research.