Participation survey/mobility: psychometric properties of a measure of participation for people with mobility impairments and limitations.

OBJECTIVE To describe the development and psychometric properties of a self-report survey of participation by people with mobility limitations, the Participation Survey/Mobility (PARTS/M). DESIGN The information obtained during interviews and focus groups was used to develop items for the PARTS/M. Demographics and measures of disability, health, and functioning were collected. The PARTS/M was administered twice. SETTING Primarily in the midwestern United States. PARTICIPANTS Purposeful sample of 604 people with mobility limitations having a diagnosis of spinal cord injury, multiple sclerosis, cerebral palsy, stroke, or postpoliomyelitis. INTERVENTIONS Not applicable. MAIN OUTCOME MEASURE PARTS/M is composed of 20 major life activities that are placed in 6 domains used in the activity/participation component of the International Classification of Functioning, Disability and Health: self-care; mobility; domestic life; interpersonal interactions and relationships; major life areas; and community, social, and civic life. For each activity, questions were asked about components of participation including frequency, health-related limitations, importance, choice, satisfaction, use of assistive technology, and use of personal assistance. RESULTS PARTS/M domains and components of participation had good internal consistency and stability. Composite participation scores were developed for participation components and domains. CONCLUSIONS PARTS/M is a reliable measure of some aspects of participation in major life activities for people with mobility impairments and limitations living in community settings.

[1]  S. Katz,et al.  STUDIES OF ILLNESS IN THE AGED. THE INDEX OF ADL: A STANDARDIZED MEASURE OF BIOLOGICAL AND PSYCHOSOCIAL FUNCTION. , 1963, JAMA.

[2]  E M Backett,et al.  A quantitative approach to perceived health status: a validation study. , 1980, Journal of epidemiology and community health.

[3]  L. Frieden,et al.  Independence: the ultimate goal of rehabilitation for spinal cord-injured persons. , 1985, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[4]  J. Desrosiers,et al.  Measuring social participation: reliability of the LIFE-H in older adults with disabilities , 2004, Disability and rehabilitation.

[5]  G. Dejong,et al.  Independent living: from social movement to analytic paradigm. , 1979, Archives of physical medicine and rehabilitation.

[6]  J M Linacre,et al.  Prediction of rehabilitation outcomes with disability measures. , 1994, Archives of physical medicine and rehabilitation.

[7]  A. Jette,et al.  Uses of evidence in disability outcomes and effectiveness research. , 2002, The Milbank quarterly.

[8]  J. Ware SF-36 health survey: Manual and interpretation guide , 2003 .

[9]  T M Gill,et al.  A critical appraisal of the quality of quality-of-life measurements. , 1994, JAMA.

[10]  V. Freedman,et al.  Disability in America , 2004 .

[11]  A. Chorus,et al.  Measuring participation according to the International Classification of Functioning, Disability and Health (ICF) , 2003, Disability and rehabilitation.

[12]  David Pfeiffer,et al.  The ICIDH and the Need for its Revision , 1998 .

[13]  When walking fails. , 1996, JAMA.

[14]  M. Dijkers,et al.  Measures of social outcomes in disability research. , 2000, Archives of physical medicine and rehabilitation.

[15]  B. Ford International Classification of Impairments, Disabilities and Handicaps , 1984, Releve epidemiologique hebdomadaire.

[16]  D. Pfeiffer The Devils are in the Details: The ICIDH2 and the disability movement , 2000 .

[17]  S. Wood-Dauphinée,et al.  Assessment of global function: The Reintegration to Normal Living Index. , 1988, Archives of physical medicine and rehabilitation.

[18]  Richard A. Krueger,et al.  Analyzing and Reporting Focus Group Results , 1997 .

[19]  G. Whiteneck,et al.  Quantifying handicap: a new measure of long-term rehabilitation outcomes. , 1992, Archives of physical medicine and rehabilitation.

[20]  M. Nosek,et al.  Independence among People with Disabilities: II. Personal Independence Profile. , 1992 .

[21]  L. Nordenfelt Action theory, disability and ICF , 2003, Disability and rehabilitation.

[22]  R. Harwood,et al.  Measuring handicap: the London Handicap Scale, a new outcome measure for chronic disease. , 1994, Quality in health care : QHC.

[23]  R. Parker Measuring Social Participation , 1983 .

[24]  E. Brandt,et al.  Enabling America: Assessing the Role of Rehabilitation Science and Engineering , 1997 .

[25]  Arlene S. Bierman,et al.  Significance of Functional Status Data for Payment and Quality , 2003, Health care financing review.

[26]  C. Granger,et al.  Outcome Measurement in Medical Rehabilitation , 1995, International Journal of Technology Assessment in Health Care.

[27]  B. B. Fleming,et al.  Quality of medical care delivered to Medicare beneficiaries: A profile at state and national levels. , 2000, JAMA.

[28]  John E. Ware,et al.  SF-36 Health Survey. , 1990 .

[29]  A. Meyers,et al.  Enabling our instruments: accommodation, universal design, and access to participation in research. , 2000, Archives of physical medicine and rehabilitation.

[30]  G. Whiteneck Measuring what matters: Key rehabilitation outcomes , 1994 .

[31]  G. Hendershot,et al.  The ICIDH-2: developments for a new era of outcomes research. , 2000, Archives of physical medicine and rehabilitation.

[32]  M. Schroll,et al.  Active life in old age. Combining measures of functional ability and social participation. , 1999, Danish medical bulletin.

[33]  Andrew M. Pope,et al.  Disability in America: Toward a National Agenda for Prevention. Summary and Recommendations. , 1991 .

[34]  S. Luchter,et al.  Validating the Functional Capacity Index as a measure of outcome following blunt multiple trauma , 2002, Quality of Life Research.

[35]  L. Iezzoni When Walking Fails: Mobility Problems of Adults with Chronic Conditions , 2003 .

[36]  M. Dijkers,et al.  PREDICTING DEPRESSION AND PSYCHOLOGICAL DISTRESS IN PERSONS WITH SPINAL CORD INJURY BASED ON INDICATORS OF HANDICAP , 1994, American journal of physical medicine & rehabilitation.

[37]  A. Jette Using health-related quality of life measures in physical therapy outcomes research. , 1993, Physical therapy.

[38]  G St-Michel,et al.  Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap , 1998, International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation.

[39]  R. Shephard,et al.  Spinal Cord Injury, Exercise and Quality of Life , 1995, Sports medicine.

[40]  A M Jette,et al.  The disablement process. , 1994, Social science & medicine.

[41]  T. Glass Conjugating the "tenses" of function: discordance among hypothetical, experimental, and enacted function in older adults. , 1998, The Gerontologist.

[42]  K. H. Åsberg Disability as a Predictor of Outcome for the Elderly in a Department of Internal Medicine , 1987 .

[43]  G. Chard International Classification of Functioning, Disability and Health , 2004 .