The family mobilizing against the manifestations of child disease

Objective: to know how the family is mobilizing against the manifestations of illness of the child. Method: descriptive-exploratory study, of qualitative approach, with methodological referential of the Theory Based on Data held in the first half of 2010, at a hospital in southern Brazil, with 15 family caregivers. Data collection was held by semi-structured interviews, analyzed by the open, axial and selective encoding. The research had the project approved by the Ethics Committee in Research of FURG, CAEE no 23116.00352012009-19. Results: from the analysis of the interviews, emerged the three categories: 1. Realizing the first manifestations of the disease in children, 2. Seeking social support network resources and 3. Looking for health services. Conclusion: it is necessary for the nursing staff, with their role as a health educator, to use accessible mechanisms to instrumentalize the familiar, inside every reality, seeking the support networks, thus avoiding the aggravation of the state of health of the child. Descriptors: Child Hospitalized; Family; Pediatrics; Nursing. RESUMO Objetivo: conhecer como a família mobiliza-se frente às manifestações de doença da criança. Método: estudo descritivo-exploratório, de abordagem qualitativa, com referencial metodológico da Teoria Fundamentada nos Dados, realizada no primeiro semestre de 2010, em um hospital no sul do Brasil, com 15 familiares cuidadores. A coleta de dados realizou-se por entrevistas semiestruturadas, analisadas pela codificação aberta, axial e seletiva. A pesquisa teve aprovado projeto pelo Comitê de Ética em Pesquisa da FURG, CAEE no 23116.00352012009-19. Resultados: a partir das análises das entrevistas, emergiram as três categorias: 1. Percebendo as primeiras manifestações de doença na criança, 2. Buscando recursos na rede de apoio social e 3. Procurando os serviços de saúde. Conclusão: faz-se necessário para que a equipe de enfermagem, com o seu papel de educador em saúde, utilize mecanismos acessíveis para instrumentalizar o familiar, dentro de cada realidade, a procurar as redes de apoio, evitando assim o agravo do estado de saúde da criança. Descritores: Criança Hospitalizada; Família; Pediatria; Enfermagem. RESUMEN Objetivo: conocer como la familia se mobiliza frente a las manifestaciones de enfermedades del niño. Método: estudio descriptivo-exploratorio, de enfoque cualitativo, con referencial metodológico de la Teoria Fundamentada en los Datos, realizada en el primer semestre de 2010, en un hospital en el sur de Brasil, con 15 familiares cuidadores. La recolección de datos se realizó por entrevistas semi-estructuradas, analizadas por la codificación abierta, axial y selectiva. La investigación tuvo el proyecto aprobado por el Comité de Ética em Investigación de la FURG, CAEE no 23116.00352012009-19. Resultados: a partir del análisis de las entrevistas, surgieron las tres categorías: 1. Percibiendo las primeras manifestaciones de enfermedad en el niño, 2. Buscando recursos en la red de apoyo social y 3. Buscando los servicios de salud. Conclusión: se hace necesario para que el equipo de enfermería, con su papel de educador en salud, utilice mecanismos accesibles para instrumentalizar el familiar, dentro de cada realidad, buscando las redes de apoyo, evitando así el agravio del estado de salud del niño. Descriptores: Niño Hospitalizado; Familia; Pediatría; Enfermería. Nurse, PhD Professor, Graduation/Post-graduate Program in Nursing, Federal University of Rio Grande/PPGENF/FURG. Rio Grande (RS), Brazil. E-mail: giovanacalcagno@furg.br; Nurse, PhD, Post-graduate Program in Nursing, Federal University of Rio Grande/PPGENF/FURG. Rio Grande (RS), Brazil. E-mail: daiamoder@ibest.com.br; Nurse, PhD Professor, Nursing Graduation, Federal University of Rio Grande/FURG. Rio Grande (RS), Brazil. E-mail: acpintanel@furg.br; Nurse, Master degree Professor, Post-graduate Program in Nursing, Federal University of Rio Grande/PPGENF/FURG. Rio Grande (RS), Brazil. E-mail: deiseaquino@furg.br; Nurse, Master degree, Postgraduate Program in Nursing, Federal University of Rio Grande/PPGENF/FURG. Rio Grande (RS), Brazil. E-mail: dorisenf@hotmail.com; Nurse, Master degree, Post-graduate Program in Nursing, Federal University of Rio Grande/PPGENF/FURG. Rio Grande (RS), Brazil. Email: pamelakathpko@yahoo.com.br ORIGINAL ARTICLE Gomes GC, Xavier DM, Chagas MCS et al. The family mobilizing against the manifestations... English/Portuguese J Nurs UFPE on line., Recife, 8(10:3340-6, Oct., 2014 3341 DOI: 10.5205/reuol.6039-55477-1-ED.0810201412 ISSN: 1981-8963 When one of the family members experience the disease process, the structure and family relationships can suffer some changes. In order to overcome this difficult moment, the family reorganizes and rebalances facing the disease. The hospitalization of the child is presented to the family as a time of crisis. It can get sick and often feel guilty and powerless against this event. During childhood many diseases appeared, being classified as acute or chronic, and may trigger psychological changes in its bearers. For the family, the disease of the child has a symbolic, moral, social and psychological representation for the family. The hospitalization of the child put the family to moments of fear, doubt, sadness, worry, helplessness and despair and when there is lack of information and of psychosocial support this confrontation becomes harder. Experiencing the disease of the child, the families seek support with the other members of the family, because with them it is possible to carry out an exchange of experiences and feelings, resulting in decreased anxiety and fear. The relationship with the other members of the family expanded, helps in coping with the situation and treatment of the child. When the child gets sick, the first person who realizes what is happening, it is usually the mother. The first attempt to help the child occurs at home and if this attempt is not successful, the family seeks then, professional help. When the state of health of the child remains the same, or worsens, the family seeks other resources to try to solve the problem. Many times, the mother feels responsible for the child's health status, becoming involved with his illness and treatment so intense that sometimes, she gives up her care needs to support the child in this coping. When this mother has other children, it is important that family members visualize their needs, because they also suffer to see his sick brother and may show jealousy by the lack of attention of parents who prioritize the care of the sick child. In this context, it is visualized that with the illness child, the family mobilizes to provide care. So, the guiding question of this study was: How does the family mobilize with the first manifestations of illness of the child? From this questions, the study aims to: ● Know how the family mobilizes with the manifestations of illness of the child. The present study has been extracted from the Scientific Initiation Research Report/CNPQ/FURG << Family experiences in the hospital during the hospitalization of the child >>, from August 2009 to 2010. This is a descriptive and exploratory research with qualitative approach. This kind of research covers the description of the phenomenon investigated, making possible to know the problems experienced and deepen their study within the limits of a specific reality. It was held in a Pediatrics Unit, from a hospital in southern Brazil. It has 25 beds, all for children under agreements by the Sistema ùnico de Saúde (SUS). In this study 15 family caregivers of children hospitalized in the first half of 2010 have participated. They were divided into four groups, two sampling consisting of five family members, one by three and another by two. As criteria for the choice of participants, were determined the following conditions: be significant caregiver of the child, provide direct care in hospital and accept to participate in the study. The data were collected through semistructured interviews. They were asked about their acceptance of the need for hospitalization of the child. The interviews have been scheduled with each family, recorded and transcribed for analysis. The data obtained were analyzed according to the methodological referential of the Theory Based on Data. It was operationalized by the simultaneous analysis of the data, by open encoding, in which the examination of the data line by line was conducted, cutting the units of analysis; axial coding ensued, with their categorization and, finally the selective encoding in which there were certain connections between the categories. The ethical principles of the research involving human beings, as the Resolution 196/96 were followed. The research project was referred to the Ethic Committee in Research at the Federal University of Rio Grande and approved by the Certificate of Introduction to Ethics Assessment (CAEE) no 23116.0035201200919, receiving opinion to its publication under Protocol No 92/2009. The lines have been identified by the letter F, followed by the number of the interview as a way to ensure their anonymity. The analysis of data generated two categories: Realizing the first manifestations of the disease in children, Seeking social RESULTS METHOD INTRODUCTION Gomes GC, Xavier DM, Chagas MCS et al. The family mobilizing against the manifestations... English/Portuguese J Nurs UFPE on line., Recife, 8(10:3340-6, Oct., 2014 3342 DOI: 10.5205/reuol.6039-55477-1-ED.0810201412 ISSN: 1981-8963 support network resources and looking for health services.  Realizing the first manifestations of the disease in children The disease is a common and inevitable episode in the life of any child. It appears suddenly or it is a slow and progressive. The family is the first place where the disease occurs and the child begins to be treated. The girl had a fever and bronchitis. She had a strong flu which turned bronchiolitis. (F1) My son's