Using a Values Discussion Guide to facilitate communication in advance care planning.

The utility of values clarification tools for advance care planning needs further study. This descriptive, qualitative study aimed to describe patients' and surrogates' experiences using a Values Discussion Guide (VDG), both with and without a professional facilitator. Ten male Veterans Health Administration outpatients over age 50 and their health care agents completed audio-taped discussions, both without and with a facilitator, and responded to structured feedback interviews. Most participants found a discussion using the VDG to be helpful and reassuring. Discussions varied in quantity and quality, and participants varied in preferring self-guided versus professionally facilitated discussions. The best interchanges were elicited by questions about prior experience with medical decisions, for oneself or others, and trusted versus non-trusted others to help with decision-making. A VDG appears a useful tool in a repertoire of advance care planning tools, which need to be geared towards the needs and abilities of particular patients and families.

[1]  P. Singer,et al.  Advance Care Planning as a Process: Structuring the Discussions in Practice , 1995, Journal of the American Geriatrics Society.

[2]  W. Knaus,et al.  Advance Directives for Seriously Ill Hospitalized Patients: Effectiveness with the Patient Self‐Determination Act and the SUPPORT Intervention , 1997 .

[3]  K. Cain,et al.  Physicians' and spouses' predictions of elderly patients' resuscitation preferences. , 1988, Journal of gerontology.

[4]  A. Strauss,et al.  Basics of qualitative research: Grounded theory procedures and techniques. , 1992 .

[5]  D. Tobin,et al.  End-of-life conversations: evolving practice and theory. , 2000, JAMA.

[6]  C. Cassel,et al.  Treatment choices at the end of life: a comparison of decisions by older patients and their physician-selected proxies. , 1989, The Gerontologist.

[7]  D. High All in the family: extended autonomy and expectations in surrogate health care decision-making. , 1988, The Gerontologist.

[8]  B. Koenig,et al.  Multicultural considerations in the use of advance directives. , 1998, Oncology nursing forum.

[9]  W. G. Cole,et al.  Advance care planning: eliciting patient preferences for life-sustaining treatment. , 1995, Patient education and counseling.

[10]  L. Suzuki,et al.  Using Qualitative Methods in Psychology , 1999 .

[11]  A. Markowitz,et al.  Initiating End-of-Life Discussions With Seriously Ill Patients , 2001 .

[12]  B. Collopy The Moral Underpinning of the Proxy-Provider Relationship: Issues of Trust and Distrust , 1999, Journal of Law, Medicine & Ethics.

[13]  S. Murphy,et al.  Ethnicity and attitudes toward patient autonomy. , 1995, JAMA.

[14]  S. Miles,et al.  Advance end-of-life treatment planning. A research review. , 1996, Archives of internal medicine.

[15]  E. Emanuel,et al.  The Medical Directive. A new comprehensive advance care document. , 1989, JAMA.

[16]  T. Quill Perspectives on care at the close of life. Initiating end-of-life discussions with seriously ill patients: addressing the "elephant in the room". , 2000, JAMA.

[17]  C. Schwartz,et al.  Early intervention in planning end-of-life care with ambulatory geriatric patients: results of a pilot trial. , 2002, Archives of internal medicine.

[18]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.

[19]  J. Fins Commentary: From Contract to Covenant in Advance Care Planning , 1999, Journal of Law, Medicine & Ethics.

[20]  Michael Quinn Patton,et al.  How to use qualitative methods in evaluation , 1987 .

[21]  R. Houts,et al.  Advance directives as acts of communication: a randomized controlled trial. , 2001, Archives of internal medicine.

[22]  J. Hare,et al.  Agreement between patients and their self-selected surrogates on difficult medical decisions. , 1992, Archives of internal medicine.

[23]  P. V. Aitken,et al.  Incorporating advance care planning into family practice [see comment]. , 1999, American family physician.

[24]  Clara E. Hill,et al.  Helping Skills: Facilitating Exploration, Insight, and Action , 1999 .

[25]  S. Miles,et al.  Advance End-of-Life Treatment Planning , 1996 .

[26]  Michele J. Karel,et al.  The assessment of values in medical decision making , 2000 .

[27]  T. Garrick,et al.  Myth of substituted judgment. Surrogate decision making regarding life support is unreliable. , 1994, Archives of internal medicine.

[28]  J. Lynn,et al.  Patients Who Want their Family and Physician to Make Resuscitation Decisions for Them: Observations from SUPPORT and HELP , 2000, Journal of the American Geriatrics Society.

[29]  Elizabeth Merrick An exploration of quality in qualitative research: Are "reliability" and "validity" relevant? , 1999 .

[30]  K. Covinsky,et al.  Communication and Decision‐Making in Seriously Ill Patients: Findings of the SUPPORT Project , 2000, Journal of the American Geriatrics Society.

[31]  D. Meier,et al.  Substituted judgment: how accurate are proxy predictions? , 1991, Annals of internal medicine.

[32]  J. Morse Qualitative data analysis (2nd ed): Mathew B. Miles and A. Michael Huberman. Thousand Oaks, CA: Sage Publications, 1994. Price: $65.00 hardback, $32.00 paperback. 238 pp , 1996 .

[33]  B. Rooney,et al.  Death and end-of-life planning in one midwestern community. , 1998, Archives of internal medicine.

[34]  L. Mccullough,et al.  The values history. The evaluation of the patient's values and advance directives. , 1991, The Journal of family practice.

[35]  Douglas K. Martin,et al.  Reconceptualizing advance care planning from the patient's perspective. , 1998, Archives of internal medicine.